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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About cmc811

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  1. DGP in and negative. DGP-IgA Result 8 Negative <20 DGP-IgG Result 4 Negative <20 Hmmm,,,,,now not sure what to do.
  2. Dgp

    So DGP result in and negative. DGP-IgA - Result 8 - Negative is <20 DGP-IgG - Result 4 - Negative is <20 Earlier in the year he had a negative tTg-IgA and EMA, so at this time it seems unlikely we're dealing with Celiac Disease. He did have an elevated ESR and he is severely constipated.....not sure what to do next. Doctors just seem to want him on Miralax forever instead of figuring out the root cause....grrrr! May try eliminating gluten anyway to see if we see improvement. That and dairy. Any other suggestions?
  3. I was wondering about anemia too...his hemocrit and hemoglobin are normal but his red blood cell count is low. Basically I've been told that isn't significant, but my blood work looked like that too and over time my other number fells into the anemia range. Was diagnosed with Celiac, went gluten free and for the first time my numbers are all normal after being gluten-free for 6 months. Even prediagnosis though my ESR was normal. The pediatrician said that some kind of IBS could definitely be causing it but since its a nonspecific test only time will tell. If the DGP comes back negative she said her next suggestion would be an elimination diet starting with dairy. Thoughts on that?
  4. My 6 yr old is still a mystery, but today we found out that his ESR came back high. Normal range is <10 and his was 38. Dr said they typically don't get too excited about it unless it's over 60 but it could be a piece to the puzzle. So far his Celiac tests have revealed nothing but we're waiting on the DGP still. tTg-IgA = <1 (range is <4) EMA = normal Serum IgA = normal tTg-IgG = not done because total IgA was normal I had to go to 3 different doctors to even get the DGP ordered but I really wanted an IgG test ran just in case. Anxiously awaiting those results, but curious if the ESR means anything.
  5. For Vitamin D3 I like Rainbow Light Berry D-Licious Gummies. They are 2500 IUs and are free of gluten, soy and dairy.
  6. i've always had trouble with vitamins but I can take 1 kind without issue: Garden of Law Raw One for Women. The vitamins are from actual food sources, rather than synthetic like Centrum. The same brand also makes digestive enzymes and probiotics, which would be good for you to take as well.
  7. Dgp

    Yeah, ideally I want a diagnosis for him, but I understand that he may have to suffer for years before a test finally comes up positive and I'm just not willing to let that happen. We'll see how the DGP tests turn out and go from there I guess!
  8. Dgp

    Thanks! Follow up question: if this test is negative, along with the tTg-IgA and EMA he has already had done (IgA was sufficient) would you do the biopsy anyway? GI said that would be the next step but I just don't know if it is worth doing. I know if I just trial a gluten-free diet and he's better I'll never really have a diagnosis for him but at the same time even if we do the biopsy we could end up in the same spot if it's negative. Either way I plan on trialing a gluten-free diet unless the dr has some miracle discovery between now and his next appt to explain his symptoms.
  9. Dgp

    He eats breakfast at daycare and almost everyday it is something with gluten in it (pancakes, toast, cereal, etc). I also send prepackaged gluten containing items like crackers a few times a week in his lunch. On the weekends he may not have any gluten at all though if we are home all weekend. I say small amounts mostly to be conservative because I don't watch him eat these things since it's away from home. I don't know how much of the pack of goldfish he eats before he throws it away. I do know he eats a ton of breakfast at daycare though. They've commented several times about how much he eats compared to the other kids.
  10. Dgp

    Just want to clarify that he has NOT been gluten free at any point. I've seen the everyday consumption for 8 weeks recommendation but that was for someone who was completely gluten-free. Since my son has had gluten on an almost daily basis, just in small amounts, would we need to wait that long? I've been making sure he a good serving of gluten every day this week. If I continue for 1 more week and get the lab drawn next Friday, would that be good? Ideally I would like the result by Monday, 12/29 for an appt we have. If it's negative though, I don't want to be second guessing whether the result is accurate or not...
  11. We're going through the same thing with our 6 yr old. Constant stomach pain but negative tests so far. He didn't have the DGP ordered initially so we are doing that in the next few days. What tests were included in the panel? Even if your little one isn't IGA deficient it is wise to get the IgG tests as well because some people only show positive on those.
  12. I have FINALLY found a doctor that was willing to order this test for my 6 yr old son after the TTG-IgA and EMA were negative. I have Celiac and he has symptoms so this is a test I've been trying to get ordered for over a year.... Anyway, since my diagnosis in March we are a gluten free household. My 6 yr old does get a bit of gluten everyday outside of the house (daycare, school, etc) but will that be enough for an accurate DGP test? I guess my concern is that it's such a small amount each day. After the work I've put in just to get this test ordered I want an accurate result!
  13. WOW, that's expensive. Can you have it done at an ambulatory surgery center instead of a hospital? My fees were $1825.75 which included everything - facility fee, physician fee and pathology fee.
  14. Yes, they do have a Child Life department. I called today to get more details and they said we could even come in the day before so he could see everything in advance.
  15. I had an appt with a dermatologist for today but his rash is almost gone now, so I canceled it.