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Posterboy last won the day on November 9 2016

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  1. ironictruth, I don't know if this will help or not. You don't want to rely on Dr. Google for too much in way of a diagnosis but your specific symptom's of specifically mentioning the right side indicates it might related to your gall bladder. See this thread. http://www.healthcaremagic.com/premiumquestions/What-causes-soreness-in-lower-right-rib/168303 Also see this thread that talks about gall bladder issues from a newsletter I subscribe too that links common food allergens to gall bladder problems. If it is your gall bladder try eliminating eggs research indicates that eggs are a common trigger for gall bladder inflammation (see information in the thread). This is not medical advice. don't use google either to diagnose your self but it might be worth a try if limiting eggs helps the inflammation that might be leading to your tenderness (assuming) you have not had injury/trauma to that area (like cycyclinglady) that you know of that might otherwise explain the cause. I hope this is helpful. posterboy,
  2. Texasjen, There is a group that certifies restaurants if you are super sensitive and need a certified restaurant. It is called the gluten-free Food service. Here is their link http://www.gffoodservice.org/certified-directory/certified-food-services/ But I think it is a little try and error for local restaurants. A little trick I employed was when I went to my favorite chinese restaurant (like Ennis_Tx mentioned above). I told them about my allergy and had them keep a bottle of gluten free soy sauce on hand when I came in regularly. Every Friday I would order maifun rice noodles with gluten-free sauce only and they were more than happy to do this and since I was a regular they gladly did this for me. But reward your local restaurant and I think you will be pleasantly surprised. There is a great gluten free local pizza restaurant that will deliver nationally either frozen crusts or heat and eat crust vacuum sealed that I swear by sent packed in ice. I used to buy they by the dozen and pack in my freezer. They use Tom Sawyer flour I think and it is a good pizza not just a good gluten free pizza. They actually have a negative vacuum gravity room to ensure their is not mixing on gluten with their regular pizza's and all gluten free pizzas are made in that room. I am not sure if they have dedicated oven or not. I haven't been in a while. Here is their website if you want to try a good gluten free pizza. https://www.matteospizza.com/about I also recommend though they are a little expensive the worlds best carrot cake. I usually bought one only for my birthdays and special occasions. They use fine red rice and it is wonderful. http://www.worldsbestcarrotcake.com/news.html They can be ordered through Whole Foods and before they were stocked in the Southern region I specifically had my local store order them for me. The Outback and their respective companies are very good at gluten free I think if I understood it right the founder's owner's wife was a Celiac and every restaurant I have been too is always very knowledgeable and I have never had a problem. One of my go too fast food places is Wendy's Taco Salad or just a large chili and ask for corn chips instead for your "crackers". I haven't at in a while at hardee's but I ate several times their low carb burger. They still sell them though they are not on the menu boards anymore. Five guys also has a great low carb burger (lettuce for your bun) and a dedicated peanut oil fryer for hot fries. There are actually more options than you think if you stop and think a little and are a bit creative you can actually meet new friends. I would go to favorite mexican restaurant and have fajita's and speficially ask for corn tortilla's or eat only a taco salad or orzo con pollo. I didn't try this the first (corn tortilla's) time I went but by the 3rd week in a row I went they were glad to give me corn tortillas and by then they new me and were familiar with my order. If you do it the first time (you will probably fail) so just eat the tortilla in the low carb style or like Ennis_TX said bring your own corn tortilla's instead. Or go to Ryan's and have them make you an omelet or steak or chicken if it is lunch or to a chinese buffet and them have make you an hibachi grill of the stir fry you choose personally bringing again your own soy sauce or braggs liquid amino which is not bad soy sauce substitute in a pinch. This way you always have fresh and hot food when it comes. I hope this is helpful. posterboy,
  3. Renaye, I just got timely information about what often can trigger a Gall Bladder attack. See this link http://healthbeatnews.com/gallbladder-attacks-and-gallstones-2/ I subscribe to her news letter. I will quote from the link what I think is revelant information. I just read this a couple days ago so it was fresh on my mind. I noticed you mentioned egg as one of your allergies. According to research reported by Dr. Myatt 92% of Gall Bladder attacks were cause by food sensitivities to eggs. Quoting "The real cause — and cure — of gallbladder pain was discovered back in 1968 by a physician named James C. Breneman. Dr. Breneman was chairman of the Food Allergy Committee of the American College of Allergists, or ACA (now called the American College of Allergy and Immunology, or ACAI). Dr. Breneman discovered that attacks of gallbladder pain are caused by food allergies. In 1968, he put 69 people who suffered from recurrent gallbladder attacks on an elimination diet to determine their food allergies. Six of the subjects already had their gallbladders removed but were still having gallbladder "attacks," a phenomenon known as "post-cholecystectomy syndrome." Dr. Breneman found that all 69 people — 100 percent! — were totally symptom-free of gallbladder pain when they avoided their individual food sensitivities, and all 69 had a recurrence of their symptoms when they ate the foods they reintroduced the foods they were allergic to back into their diets. The most common allergenic foods were found to be eggs (92.8%), pork (63.8%), onions (52.2%), chicken and turkey (34.8%), milk (24.6%), coffee (21.7% ), and oranges (18.8%). Corn, beans, nuts, apples, tomatoes, peas, cabbage, spices, peanuts, fish, and rye accounted for between 1 to 14.5% of gallbladder attacks. 14 of the 69 study participants (over 20 percent) also had gallbladder attacks caused by medications." Low stomach acid can also contribute to a strained Gall Bladder she notes. Without a strong stomach acid many of these proteins that trigger food sensitivities make into the lower GI tract where the body is trying to fight off these undigested proteins. Triggering an autoimmune reaction first in the GI tract and if it (Small Intestine) leaks the same proteins cause similar reactions in other parts of the body as well. The body can't handle undigested proteins. It must digest them first before it can metabolize them. There is a reason the 8 most common food allergies are all proteins. The body detects (mistakes) the food protein as a virus. The FDA site summarizes this well. http://www.fda.gov/Food/ResourcesForYou/Consumers/ucm079311.htm I want to quote one sentence from their website to bring focus to the protein portion. Quoting " These eight foods, and any ingredient that contains protein derived from one or more of them, are designated as “major food allergens” by FALCPA. I think this explains why when you have one food allergy then it much more common to be allergic to additional proteins in addition to gluten. If you can't or are not digesting gluten properly other food allergen triggering proteins are getting through to the the small intestine or gall bladder in your case with eggs triggering a response in our bodies. I think of the stomach as the defender of the Small Intestine. The body knows it is sensitive and needs to be protected and why food passes through a strong acid before it safe for the Small Intestine. If your are still having food allergen issues after removing gluten try taking some Niacin as Niacinamide. This is old information 15+ years old but is not common knowledge. http://www.yourhealthbase.com/database/a124b.htm Niacin treats digestive problems. When I took it long enough to cause a distinct burping (like a healthy baby does at around 6 months) a sign they can digest whole foods (proteins) their colic (stomach aches) usually go away my GI problems got much better. Perhaps your stomach acid is not strong enough to digest the proteins still in your diet. I have found when your stomach acid is strong enough to cause burping and a stool that sinks then your bodies defenses are strong enough to digest difficult proteins. this is not medical advice it just been my experience and my conclusions based on my own research. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. I hope this is helpful. posterboy,
  4. GFinDC, I might not be doing it right. I have done more testing. When I go to "home page" when you put in celiac.com and start searching for a topic nothing comes up as found though I know it exists. But if I go to the forum section and use the search there I get results for the same search topic. Same thing happens if I search in Advanced Query mode from the home page. No results are found. But if I go to the forum page to search there search works fine but I can't use the "Advance Search" from the forums to find specific things for for a range of dates. posterboy,
  5. Search function seems to have stopped working properly Up until recently. I could search for old threads or comments. About three days ago when I now use or try to use the search function on this board nothing comes up. In the past something would come up. It was not sorted in any fashion but now nothing comes up in the search box when I try to search for other topics that have similar responses or themed topics to link for people to read that might be easier and quicker to respond to than retyping the response again. Are other people having the same problem? I have tried it with different browsers and different computers but it (search) doesn't seem to be working now for some reason. Also how do you link another thread when typing a response in another thread without exiting that thread when and if search is working again. I usually open another tab now in the browser and search in it (when it (search) seemed to be working. I have not changed any of my settings. Thanks for your help. posterboy,
  6. VikingMac, I have tried writing about these connections you have observed but most people don't see the connection(s) today. I find good research goes unheadead for many years after it has been discovered/or reported by people only to have it rediscovered later by other people. Take the research by Prousky that Niacin treats digestive problems researched 15+ years ago and it is still not well understood that something as simple as taking a Vitamin can help with GI problems. See this link where abstract is reported. http://www.yourhealthbase.com/database/a124b.htm I suggest you read the whole paper as it explains well why and how low Niacin levels can contribute to GERD/heartburn issues. As for your dementia issues (psychoses) take the healtybynaturehwc blog notes some of these same issues you raise by Susan Hughes who asks( Is it) Dementia or Pellagra? Niacin Deficiency in the 21st Century http://blog.healthybynaturehwc.com/niacin-deficiency/ Note: Dementia is stand in here for a range of mind/brain conditions that can occur with gluten allergies. 50 percent of MS, and Cerebral Palsy patients have gluten antibodies in their systems at the time of diagnosis and 40 percent of Celiac are depressed. Susan is much kinder than Dr. Mercola who she references in her blog where Dr. Mercola notes violent tendency in patients/inmates in psyche wards and prisons who when given Niacin went into remission at a rate as high as 50 percent with low grades supplementation and at rates as high as 80 percent with high dose supplementation when Dr. Hoffer in the 1950’s first discovered Niacin treats the Dementia’s of Pellagra. And it was not just mild mental symptomologies like being sad that were cured either but even schizophrenia. Or take the brainblogger site that notes gluten ataxia mimics ALS see this link http://brainblogger.com/2015/09/26/celiac-disease-and-amyotrophic-lateral-sclerosis-is-there-a-link/ They note in summary "Aiming at further establishing a link between ALS symptoms and celiac disease, the authors assessed the genetic profile of the ALS patients to determine if their carried the HLA genetic variants associated with celiac disease. They found that 86.4% of patients who were seropositive for transglutaminase 6 autoantibodies also carried celiac disease susceptibility HLA variants. They thereby established a direct link between celiac disease and ALS symptoms in this group of patients. The data from this study strengthens the hypothesis that ALS may be associated with autoimmunity and gluten sensitivity, at least in a subset of patients with celiac disease. Although there is still need to further study and confirm this link, these results are important in the sense that gluten sensitivity is easily treatable; ALS symptoms in this subset of patients could therefore also potentially be reverted – a gluten-free diet could do the trick." Research on the NCBI goes one step further https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2723628 noting the causal affect of Niacin metabolism in Parkinson's patients. Yet though this research is 10+ years old. The dementia's of Pellagra are still considered separate diseases. The problem today is Pellagra is no longer being diagnosed as the cause of these Dementia’s. Hindwai (a medical reference website notes this) “subpellagrous nicotinamide deficiency may have lifetime roles in a range of behavioral traits, neuropsychiatric diseases, and dementias.” https://www.hindawi.com/journals/cggr/2012/302875/ Noting your Eczema that you mentioned in your brief health bio further indicates a Niacin deficiency could be causing most of these D's of Pellagra you are experiencing. Quoting the Celiac Posterboy "These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.” See this new research that ties eczema in babies to low Niacinamide in the mother during pregnancy. Nicotinamide is usually the way Europeans spell Niacinamide. http://www.dailyrxnews.com/higher-vitamin-b3-nicotinamide-levels-during-pregnancy-reduce-eczema-newborns Comorbidity is the term. Glutenfree works noted this connection 5+ years ago but only notes it occurs in those who received a Celiac diagnosis -- not causes it. https://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ But they (Gluten Free Works) notes quoting “Niacin, also called vitamin B3, is required by all the cells of our body making it essential for vitality and life itself. Niacin is essential for keeping our skin and digestive tract healthy, our brain and nervous system functioning normally, certain key cell processes repaired, our adrenal glands producing steroid hormones at demand levels, sex glands producing the hormones estrogen, progesterone and testosterone and, most especially, for producing energy to keep our body alive.1" Which describe (most) all of the symptom's you have been having. How can we/you confirm this or know for sure. The Merck Manual notes you might not be able to tell if you are already taking a B-Vitamin with high dose Niacin or Niacinamide in it because they say "Use nicotinamide to treat the deficiency; a favorable response can confirm the diagnosis" (and you say you already feel better after beginning your Vitamin regimen) but a urine test for those who are not now taking Niacin could biochemically prove Niacin is contributing to your poor GI issues as noted by Prousky 15+ years ago and/or the dementia's you have described as was used in Psychotic patients 50+ years ago but has now fallen out of favor today by medical science instead preferring a lifetime of medical drugs. See this Merck Manual link to have your doctor test you for a Niacin deficiency. http://www.merckmanuals.com/professional/nutritional-disorders/vitamin-deficiency,-dependency,-and-toxicity/niacin Here is a good summary of Pellagra and the 4 D's and why Doctor's no longer recognize it when they see it. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ Where quoting Dr. Heaney he correctly states “ and it is doubtful today that most health professionals would recognize it (Pellagra) if a case happened to come to their attention. ” Today! He even notes why this is possible. Quoting Dr. Heaney " Pellagra was characterized by the “four Ds” – dermatitis, diarrhea, dementia, and death. It is a perfect example of a point made in earlier posts in this (Dr. Heaney's) blog that most tissues need most nutrients, and that a deficiency of virtually any nutrient impairs virtually every function of the body. This is in contrast to the popular belief that one nutrient may be good for the skin, another for memory, another for the eyes, another for the immune system – on and on – which is simply not accurate." I hope this is helpful. please visit my profile if you want to read my blog post on celiac.com "I am a Celiac who developed Pellagra" that summarizes in greater detail how Pellagra and Celiac disease are more related than people understand today or just search for the posterboy on celiac.com to read all my posts about my journey if this sounds like something that you think might could help you. good luck on your continued journey. **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I know it helped me . . . . 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
  7. Kamoko, Gluten Free 9 months should be more than enough time to be regular. Try changing your laxative. Sometimes overuse of some laxatives can contribute to the constipation you are trying to avoid. Taking iron supplements are also known to cause constipation. I used Colace and Pericolace for years to gently cause a regular movement before I found about Magnesium Citrate like Ennis_Tex mentioned above. Plus it helps fatigue and muscle cramps too. Space your doses 200 to 300mg 3 to 4 hours apart and you can take another dose. Best taken 3/day for maximum benefit and 2 hours before bedtime if fatigue is an issue or muscle cramps are a problem for you. Also how is your thyroid. Here is a link that describes how a thyroid condition (that could of been caused by gluten) can contribute to constipation. https://www.verywell.com/constipation-and-the-thyroid-thyroid-disease-3233144 Your pooplet comment triggered this search. I was telling my doctor a few years ago about my dads movements and he mentioned a possible thyroid problem/connection back then. It couldn't hurt to check. Take your body temperature in the evening if it more than 1 point low or high then you could have a thyroid problem and don't know it yet. Some say a 1/2 point or more but if it more than 1 point high or low in the evening then your thyroid could be contributing to your yet unexplained constipation. I hope this is helpful. posterboy,
  8. christine1962, Cyclinglady has given you good advice. A food journal might be helpful too to see what your triggers are. Buy a meter if you don't have one now and you will soon learn what to avoid. The only thing I would change from what cyclinglady said was not to exclude beans. Beans by their nature are resistive to digestion being a starch. Reverse your order of food intake to eat beans (any kind really) but White beans are particularlly good as are navy, lima, and kidney beans in soluble fiber. Peas and Lentils are also particularly high in soluble fiber. So also are black beans. I read that somewhere and I am sorry I can't cite the website and tried it and it really works about reversing food order. Why I am not sure. But food order can reduce your blood sugar. I suspect it has to do with delayed stomach emptying but that is just a guess s on my part. I keep some beanie weanies or pork and beans at work in case I want to snack to on something high carb and just eat them after I had my potato chips as an example. When I eat beans last my blood counts are 30 or 40 points lower than if I just eat a high starch side instead. Sweet potatoes are good for diabetics if you must have a potato for your side. You want soluble fiber. If says dietary fiber it will spike your blood sugar. Think breakfast cereals. Low carb is very good at lowering blood sugar. I took Chromium POLY and it lowered my blood sugar 2 whole a1c points in only two months and it stays in the prediabetes levels since. It has not been over 6.5 a1c in over 5 years now. And a lot of the time it is under 6.0 . And that is without medicine. chromium at least in type II diabetes can help your insulin work better. I was low in chromium. Not chromium picolinate it can injury your kidneys. Walk (or any exercise) after a meal helps. I find if I walk 30 minutes or more it can lower it 50 or 60 points or more depending on how vigorous I walk. A small hill to increase your heart rate can be helpful too. Also have your doctor swap your metoprolol to carvedilol. Metoprolol can cause weight gain. I dropped 30 lbs in the year after I had my doctor change my metoprolol to carvedilol and have been down that low for 5 years now. I hope this is helpful. These are some of the tips I've learned to help my blood sugar. Good luck on your journey, posterboy,
  9. Erikarae, I think waiting on "biopsy proven" diagnosis only delays his recovery at this point. See this link where a noted NZ Pediatrician Dr. Rodney Ford discusses the approach he uses in his clinic. http://drrodneyford.com/extra/documents/239-how-early-can-you-diagnose-celiac-disease.html You will have set backs but cycylinglady I think has the right approach to address your son's newly diagnosed Celiac disease with his grandparents. GFinDC is right you might to look for a local ROCK support group. As for how long it takes to react people are different. My GI symptom's always begin 18 to 20 hours later but might go on for 3 or 4 days before I begin to fell somewhat normal. Often my brain would be "fogged" by gluten for a couple weeks even after my bowel had settled down. I hope this is helpful. . .. I was an ejectile vomiter as kid but gradually grew out of it. I think most of that (so my parents said was do to my lactose allergy) but that got better too in time. I also wanted quote ravenwoodglass from another thread here is the link Where I think sometimes too much information can confuse us. A positive blood test is positive for a Celiac diagnosis and having a biopsy and getting a negative biopsy result tends to confuse people. And it can be slow to develop in children as Dr. Ford notes. from ravenwoodglass comments in the above linked thread so what else could be after someone was tested and got a negative biopsy result. "Positive blood trumps negative biopsy. There is no other cause of elevated Celiac panel results. Can you get a copy of the biopsy reports? Some doctors will not call a biopsy positive until the villi are completely destroyed and discount any changes that come before that. Some will even tell a person to go back on glutenand come back in a year or so to retest to see if the villi are completely destroyed yet. IMHO you should keep her strictly gluten free and let her heal. Being gluten free is not going to interfere with testing for other problems. Then when she has recovered have the celiac panel run again to see if those numbers have gone back to a negative range. Good luck and I hope she is feeling better soon." I don't envy the decisions you have to make but I know I wish I knew about my celiac diagnosis as a kid so my height would of been more normal compared to my peers. I have several brothers and I am the shortest of them all and I have no doubt Celiac disease undiagnosed for 30+ years played a part. At what age would I have been when I might have gotten a positive biopsy is hard to say because I never knew to check for a celiac diagnosis back then. But I know you are lucky to be able to catch your son's diagnosis so soon so that he can begin to get back on track growth wise or stay on track through his teen years if he is still growing normally but I did not find out soon enough to get that benefit. posterboy,
  10. Prologue I never know what to call a post. What Else Could it Be; Co-Morbidity in Celiac disease and what else could be causing your Celiac like symptoms or I had Celiac Disease and developed Pellagra. This is my story yours may be similar. I have tried to write as much as I could of this beforehand to summarize some of my experience and research since I was first serology confirmed a Celiac and why I think Pellagra explains if not all the complications a Celiac develops at least many of them seem common in undiagnosed Pellagra but I find formatting and links can be a challenge. This is not meant to be an answer to all your questions but a beginning, posterboy by God’s Grace. See post that follows “I had Celiac disease and developed Pellagra”. Good luck on your journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”. I had Celiac Disease and developed Pellagra I try and educate about how Pellagra can be confused for Celiac disease and/or GI problems like IBS, GERD, Ulcer’s, UC etc. after having received a Celiac diagnosis and my symptom’s improved greatly after taking Niacinamide (the non-flushing form of Niacin). And almost without fail people do not see the connection. They say but I have … . fill in the blank. They don’t see the connection. But if I say it this way maybe it will help you “I am a Celiac who developed Pellagra” or fill in the blank … . heartburn, IBS, UC, Chron’s etc. I named this post this because another board/forum member said as much in a thread post on this forum and it struck with me. She had the digestive problems of a Celiac but also the dermatitis issues of DH and her itching got better after taking Niacin. What we fail to understand often with any diagnosis there is continuum of disease/symptoms. Since this happens gradually you develop heartburn first then you have IBS, and Constipation and diarrhea then maybe an ulcer etc we don’t often see the connection. But all along it was the same disease in a more pronounced condition. If we catch it early enough say at IBS then the ulcer or UC might not develop. When we think spectrum of disease it helps us to understand these diseases’ can be and are more related that we often understand. They are all bound by STRESS. Do not all these conditions worsen when you are stressed does not the heartburn turn into IBS i.e. your constipation and diarrhea flare up? Yet we think of them as separate diseases Right? No there is a continuum of disease bound by STRESS and TIME. The longer the stress the more your symptom’s Right! You just haven’t stopped to think about the relationship. Relationship and time is important to a proper diagnosis. So how are these related? Our mucus membranes are always in a constant state of repair either of repairing or rebuilding what is broken or maintaining our bodies defenses. This takes energy and lots of it and one is not able to make enough energy to repair the lining of our stomach without enough Niacin and Pellagra develops. I am not even saying I have been cured of Celiac disease. I say my GI symptoms are in remission which leads me to Pellagra as a cause and effect relationship of stress and our environment — Epigenetics. I am saying I was/am a Celiac who developed Pellagra. The International Journal of Celiac disease notes that both Pellagra and Celiac disease does often occur in the same person. How do we know this? The Journal of Celiac in an issue entitled Celiac Disease Intestinal Heart and Skin Interconnections http://pubs.sciepub.com/ijcd/3/1/6/ when listing common aspects of both diseases’ says and I quote “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease.” Which also explains why a Genetic disease can increase in two or three generations because our stress changes our genes. There is a trigger. Stress — it is not your day to day stress. We can handle all that kind of stuff but TRAUMA lasting 3 or 4 more months at a time. Think when Celiac disease was first studied as a Disease? It was during and directly after WWII and I dare say a stressful time to say the least. Not to mention all the energy needed day to day to just survive. Europe almost starved after the war. So much so he U.S. government had to step in and help deliver/air drop humanitarian aid to Europe. It was called the Marshall Plan named after the man who devised the relief plan and it is credited with keeping Europe alive after WWII and averting another possible world war because of the infighting that would have developed from a starving Europe. 3 to 4 months is approx. the exact time we can store B Vitamins. Anything that triggers the fight or flight high energy response (TRAUMA) that depletes our bodies reserve’s. Stress is coincidently what Niacin helps us control. It (Niacin) helps control our stress response’s in the body without which cellular disfunction happens (are membranes brake down). Like the alternating constipation and diarrhea you have had for years if you have developed Celiac disease. Things like a Car Accident, difficult divorce, injury to our kids, extended care giving, surgery etc. can and often does trigger GI problem’s. And yes the stress of pregnancy. And it (STRESS) is common with with/before a pregnant lady gives birth triggering heartburn. A good example is pregnant women in their 3rd trimester often develop heartburn that’s goes away when the child is born. Those who are predisposed continue to have heartburn and GI problems because their body couldn’t meet their need. Half of pregnant women develop heartburn during pregnancy that goes away in all but about 1/3 of those who get heartburn when the child is born. Think of Heartburn as infant Celiac disease if it helps you to think in these terms. The older/longer the heartburn persists or the more GI symptom’s (heartburn/GERD/IBS, Constipation, diarrhea, ulcer etc) reoccur the more serious the conditions and diagnosis becomes. The genetic component is that 1/3 are predispose to high Niacin consumption when stressed. It is those1/3 of us who had Pellagra and Celiac disease developed is who I am trying to help. But it should be noted up and until your Celiac diagnosis things like the Ulcer, UC, IBS etc can/could be helped also if Pellagra is the Parent diseases and all these other diseases are its children. Co-Morbidity is the term. A B-Vitamin deficiency can be inherited but does not have to be permanent. It is a reversible condition. See this new research that ties eczema in babies to low Niacinamide in the mother during pregnancy. Nicotinamide is usually the way Europeans spell Niacinamide. Both names refer to the same amide form of Niacin. https://www.sciencedaily.com/releases/2016/09/160923092924.htm The very definition of a Vitamin (especially in the case of B vitamins) a vital (life giving) nutrient/substance needed in a minimum amount without which we become sick. Your continuum of diseases are completely reversible if your symptom’s look like Pellagra (digestive, dermatitis and dementia’s) in nature and your respond (BURP in 3 to 4 months) to Niacinamide you might have Pellagra and the doctors have not figured it out in a clinical setting (they are sub-clinical) yet or at least you (may) have Pellagra and Celiac Diseases Co-Morbid. If one is critically low in Niacin the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up. Really there are 4 D’s more on that latter but we are trying to catch Pellagra before it gets that far. The International Journal of Celiac Disease notes this co-morbidity when they note in 58% of Celiac -- Pellagra ALSO occurs. See this link http://pubs.sciepub.com/ijcd/3/1/6/ Quoting their paragraph 3 on the Co-Morbidity of Celiac and Pellagra together 3. Pellagra and Celiac Disease “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]. “ 58% of the time (that is a majority folks) Celiac’s go on to develop Pellagra too! Or is it really the other way around? Have you had Pellagra all along and now you have developed Celiac from it (Pellagra) undiagnosed. The later may be more true than you know. Ask your friends if they have ever heard of Pellagra. I dare say it a low percentage that knows Pellagra a once rampant disease especially in the rural south can cause many of the GI problems you are now experiencing as a Celiac disease patient or even the Non-Celiac Gluten Sensitivity (NCGS) patients that have not yet received a Celiac diagnosis. And it maybe a lower percentage today that know what Pellagra (or even that they could have it) is than have heard of Celiac disease or think they have Celiac disease instead. Think beri beri, rickets, scurvy etc all complex diseases completely forgotten about today that were/are completely reversible conditions. As Dr. Heaney points out about Pellagra today! That as Creighton’s University Dr. Heaney says “In the United States, at least, Pellagra is a disease of the past – fortunately – and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention.” See Dr. Heaney’s Professor of Medicine post here at this link http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ The knowledge of Pellagra (if you have ever heard of it) is in that same state of forgotten diseases now thought relegated to the history books. If you have Pellagra co-morbid then you just have to take a Vitamin to get rid of this morbidity. This is a summary of my 10 year journey. I researched these things for 3 to 4 year (2 Tim 2:7) before I had the courage in my conviction to test this Pellagra theory. But I think most people would rather hear from some who has suffered like them and has been able to help themselves. This is not theory anymore for me. It is my story. In case this is the only post you read I will repeat here for knowledge sakes ****** the number one mistake people make when taking Niacinamide is they don’t take it often or long enough. It should be taken UNTIL you are burping. Most people will burp when taking Niacinamide in 3 to 4 months or less taking it 3/daily — ie with each meal. What do I mean by burping? This confuses some people sometimes. I don’t mean the little burp you get with drink some carbonated beverage or burp a little in the first 20 minutes after eating but also are bloated. But your new normal BURPING the natural order of things burping – The burp will come later after the meal the longer you take the vitamin. Burping will occur the more frequently the less you eat. Soon water will cause you to burp -- Burping without the bloat and distension (pain from gas) that comes later. When your stool begin sinking your body is digesting the carbs and proteins that were causing you the backwash (heartburn/GERD/IBS) before when you only burped a little or occasionally or when you drank something carbonated. Now BURPING will occur two hours after you ate something. Long after you have finished your meal you will burp if you have taken the Niacinamide 3/day for 3 to 4 months at a minimum. Dr. Prousky proved this 15 years ago this past November that Niacinamide treats digestive problems. http://www.yourhealthbase.com/database/a124b.htm Yet 15 years later people still are bemused when you mention Pellagra let alone that Pellagra could be contributing to your Co-Morbid Celiac disease. I for one will tell those will listen. I am a Celiac who developed Pellagra. Learn from my mistakes so you don’t have to repeat them and get your doctor to test you for a Niacin deficiency. Pellagra once rampant early in the 20th Century is now known TODAY as Celiac disease in the 21st Century (I believe) or at least in a good majority of cases could be. To paraphrase William Shakespeare “Disease by another name hurts just as much” and maybe more because if you get the right disease you can get better! You know have the power to help yourself forum reader (because knowledge is power) the question is what will you do about it? This blog post is a store house of 10 years of research learned from life experiences. The blog’s author has been stung so you don’t have to be. Learn from my mistakes. No man is so dumb as the man who won’t learn from other people’s mistakes. Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life. Is it any wonder God’s promised land was described as a land flowing with milk and honey? Where knowledge flows there is health of mind and body. Feel free to ladle and dollop your life with the sweet stickiness of the truth (knowledge) found/ gained today. For honey like truth stick to you once in contact and you can’t just wash it away. Don’t let them the doctor’ almost kill you before you are willing to take a Vitamin to see if it is really the Co-Morbid Pellagra as the International Journal of Celiac Disease notes that could be causing your Celiac symptom’s in the MAJORITY of Celiac patients if the International Journal of Celiac disease is correct. Quoting again from the IJCD “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38].” See this link provided again for easy reference http://pubs.sciepub.com/ijcd/3/1/6/ Stop the madness! Admit the MAJORITY of Celiac Patients today are Co-Morbid with Pellagra and if you treat the co-morbid disease you can get better from that morbidity. The Celiac Posterboy might say “(Unfortunately) for most patients it (Pellagra) is not recognized as Disease TODAY! By their admission (a professor of medicine/health professionals/doctors) Pellagra is OMITTED as a disease in most doctor’s differential diagnosis TODAY!” If you have (a) Celiac disease diagnosis then you have been stung with/by this ignorance. That as Creighton’s Dr. Heaney says “In the United States, at least, Pellagra is a disease of the past – fortunately – and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention.” See Dr. Heaney’s Professor of Medicine discussion about why Pellagra is not diagnosed today here at this link http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ This blog post is about the ignorance (of) Pellagra cost’s you when the doctor’s diagnose you with Celiac Disease/NCGS when 58% of their patients is/are Co-Morbid with Pellagra and they get the wrong “key” diagnosis. **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I have found and my friends have found if you take it (Niacinamide) like an antibiotic (UNTIL BURPING) and your stool SINK then 95% of your GI stress will be in remission. You could still have other things that are bothering you but it won’t be Pellagra. If you take fiber and still have GI trouble then eliminating supplemental dietary fiber for 30 days (like you did to see if gluten was your’ problem) might help you figure out whether the fiber is helping or hurting your GI problems. People do have bad reactions to fiber sometimes that can be confused for IBS problems and unless you try eliminating it for 30 days you won’t know for sure if it is causing or contributing to the remaining GI problems you might still be having after taking Niacin until burping if any. As I am fond of saying “To Educate is to truly Free”. But do not do as I did! Learn from my mistakes. DO NOT take Niacin or Niacinamide or any form of Niacin UNTIL you have your doctor’s test you for it (Pellagra). If you notice the IJCD link these were clinical observations only. Quoting the IJCD again “It is the first description of celiac disease . . . .and Pellagra in the same person, however, only associative linkscan be established, but not cause and effect relationships. Unfortunately, the patient was not diagnosed biochemically as pellagra and died before gluten free diet was initiated.” You probably know this by now if you are a Celiac or even a NCGS patient the diagnosis rate for Celiac disease can be a horrible and if you have Pellagra it is even worse because the doctor’s like Celiac disease 15 or 20 years ago are not even looking for it today. One more test needs to be done to differentiate Pellagra from Celiac and it is not being done today as Dr. Heaney correctly noted. Doctor’s don’t know to look for it (Pellagra) much less in a Celiac patient. See this link to the Merck Manual a commonly used traditional desk reference for Physician’s when they need to look up a diagnosis. http://www.merckmanuals.com/professional/nutritional-disorders/vitamin-deficiency,-dependency,-and-toxicity/niacin Quoting from the Merck Manual “If available, laboratory testing can help confirm the diagnosis, particularly when the diagnosis is otherwise unclear. Urinary excretion of N1-methylnicotinamide (NMN) is decreased; < 0.8 mg/day (< 5.8 mcmol/day) suggests a niacin deficiency.” No, doctors don’t know everything they have to look things up from time to time too. And when they do look up Pellagra when you ask them to test you for it the way some people on this board went to their doctor’s to have them test for Celiac disease instead of accepting as Gemini on this board said and say you had IBS instead “I Be Stumped” they learned/were taught by their patient’s that Celiac is not as rare as once thought. And neither is Pellagra. Quoting the Celiac Posterboy “Pathology presumably would qualify the Pellagra patient as a Celiac Patient if the Pellgarin was first diagnosed as a Celiac first as often is the case TODAY!” Why is this? The pellagra disease blog explains why this is https://pellagradisease.wordpress.com/ Quoting Niki Frost “Since pellagra is (thought to be my words) such a rare disease today, few people recognize it based on their symptoms alone (any of the three D’s: dementia, dermatitis, and diarrhea). Pellagra patients are consequently (constantly being my words) referred to specialists in fields that are ultimately unrelated to the underlying nutritional deficiency and metabolic nature of the disease.” So the cycle repeats. Since these specialists don’t consider you in a subgroup that is prone to be diagnosed with Pellagra then Celiac/NCGS disease is diagnosed if you are lucky and not some other GI problem like chrons, IBS, UC etc because in these cases the GI specialists is not even looking for Gluten as a possible trigger. This is not to even mention the other D’s of Pellagra today being diagnosed as various degrees’ of Dermatitis like ezcema, psorsias, Dermatitis Herpetiformis (DH) etc which are related to skin presentations of Pellagra. Pellagra when it was first named means rough/sour skin in Italian and people forget that today. Or the dementia’s of Pellagra like depression (40 percent of Celiac’s are depressed) or the “brain fog” a Celiac develops after being “glutened” I could go on and on but you get the idea. But unless you are tested for it your doctor’ won’t know to look for it in their next Celiac patient because they do not know to look for it in GI patients today remember the war on Pellagra ended 75+years ago so they don’t look for (see) Pellagra anymore in a clinical setting unless you are in a subgroup like being an alcoholic etc . The same way they didn’t or might not of known to test their IBS patients for a Celiac diagnosis 10 or 15 years ago. I am not saying this will help you the way it seemed to help me. But I am saying have your doctor verify these things for you before doing these things because if you are a Celiac that has developed Pellagra also then it needs to be documented. If you want to read more about my story search for the posterboy on this board to read my other forum threads or visit the website in my profile. I have specifically left out dosage amounts because the frequency you take a B-Vitamin is more important than the amount you take of it. Because B-Vitamins are water soluble 2 or 3 hours later if one is deficient in that Vitamin then the body can absorb more of it. So taking higher doses don’t necessary help you any more than lower doses. They (higher doses 500mg) can be easier to find especially if you are taking it (Niacin) for cholesterol management but it doesn’t help you any quicker than smaller amounts more frequently and higher Niacin causing flushing (which can be mitigated to some degree by taking Niacin with food) where the Niacinamide form doesn’t. In fact taking smaller amounts frequently 3/day with meals will help approximately 40 percent faster than one larger 500mg capsule/tablet only once daily. And why if given a specific amount and you retain it (is low in the urine) is a sign you are low in Niacin. I do prefer the Niacinamide form because it is a naturally flush free form. The Merck Manual notes this quoting “Nicotinamide is usually used to treat niacin deficiency, because nicotinamide, unlike nicotinic acid (the most common form of niacin ), does not cause flushing, itching, burning, or tingling sensations. Nicotinamide is given in doses in doses of 250 to 500 mg po daily.” But a Slo-Niacin can work just as well. The Townsend Letter makes note of this in their Feb/Mar 2003 edition. http://www.townsendletter.com/FebMar_2003/inositol0203.htm This will be a cycle. You will take it until burping 2 hours after you finish your meal and your stool sinks where before it floated and even water now causes burping without bloating or gas or distension. It might be 3 or 4 months for some people or it might be even 6 months or longer for some people. But it is a cycle. Usually people feel better when they begin burping for the first time in years and their stool now sinks when before it always floated. I do not now take Niacinamide and haven’t for several years since my symptoms’ are in remission. I stopped taking it when I had rebound acid reflux. By that I mean I begin to have acid reflux symptoms when I had no food in my stomach that when away when I ate something. Timeline is important in any diagnosis. All heartburn is not equal. IF your stomach acid was HIGH as you often hear then eating food (carbs, greasy things or your other triggers) wouldn’t bother you because it would only weaken it. BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight you are in and things (carbs/fats) become to ferment, rancidify and cause heart burn. The excess pressure from fermented carbs push open the trap door allowing the low acid you have burn the lining of your esophagus. TRUE heartburn from too HIGH acid happens between meals when there is no food in your stomach to tamp it down and will occur if you take Niacinamide too long and how I knew I needed to stop taking Niacinamide. When low in stomach acid for too long in time this can lead to Non-Celiac disease first and with enough injury to Marsh lesions qualifying you for diagnosis as a Celiac candidate/patient. How do we know this? Low stomach acid has now been linked to a probable cause of damage to the Small Intestine before and/or occurring with a Non-Celiac Gluten Sensitivity (NCGS) or Celiac diagnosis. Celiac.com reports these findings http://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html Note how the researcher’s starts the article “Rates of celiac disease and the use of drugs to inhibit the secretion of stomach acid have both increased in recent decades. A research team recently set out to explore the association between anti-secretory medication exposure and subsequent development of celiac disease.” If these medicine are lowering stomach acid what cause effect relationship does/ could this have on Celaic/NCGS diagnosis is what they are postulating. They go on to say without being very technical (read the whole article for yourself) that “The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines.” . . .. Summarizing their findings “The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship”. Now the term causal is not used lightly. To prove causal is much harder than casual (occurring with) like the 58% of Celiac who are also casually observed as having Pellagra. Gluten Free works summarizes a casual association of a Niacin deficiency very well at this link https://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ They only note a casual association only noting similar symptoms occur in Pellagrin’s too. Quoting “ Inadequate levels of niacin slows metabolism and impairs functioning of the brain and nervous system, digestion, skin, DNA repair and other key cell processes, and steroid and sex hormone production. Severe deficiency of niacin causes the disease pellagra.2 “ I can not prove that Niacin helped me because I did not know to test for it or have the doctor test me for it but you can teach your doctor to look for i it in you if you are an IBS, NCGS, or Celiac patient by sharing the information in the Merck Manual with him/her. To prove causal you will have to have your doctor test you for a Niacin deficiency verifying the International Journal of Celiac disease casual observation that the majority of Celiac are co-morbid with Pellagra establishing if not a causal link that it at least contributes to your concomitant GI conditions in at least the 50 percent of Celiacs’ who are low in Niacin and don’t know it. Taking the Niacinamide as the Merck Manual notes in their key points for doctors can confirm the diagnosis. Quoting “Use nicotinamide/Niacinamide to treat the deficiency; a favorable response can confirm the diagnosis.” If you want to research more about Pellagra and how it can present as so many different diseases and its clinical presentation(s). I say presentation(s) because if it begins with a “D” i.e., dementia, dermatitis or Digestive Disorders(s) (I added the S to Digestive Disorder because I think it speaks to the spectrum of diseases) that Pellagra can and is often confused for in modern medicine. And could be added to dementia(s) and dermatitis (s) see above about depression and Celiac and Pellagra meaning rough/sour skin in Italian and the Hindai link below to do more research on Pellagra if this blog post is not enough to answer all of your questions. Read this great Hindawi article linked below for a great synopsis of Pellagra https://www.hindawi.com/journals/cggr/2012/302875/ where they pose the question what role does Pellagra play in contemporary disease (today) In one of their breakout paragraphs talking about Pellagra today! They discuss how Pellagra is still prevalent today in contemporary disease pathways entitled “Is Subclinical Pellagra Relevant to Contemporary Disease?” And they list a dozen plus ways it is and I whole-heartily agree and I hope you do too after reading this post. And doing some of the research listed therein. It bears repeating though I said it earlier **** Note: This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. Good luck on your journey and I hope it helps you the way it seemed to help me. Posterboy by God’s Grace! 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Blessed are those who will hear and take a Vitamin for their health or at least have their doctor check their Vitamin levels so they can get better from that morbidity if indeed as the International Journal of Celiac disease notes – Celiac’s are co-morbid with Pellagra in the Majority of celiac patients and the doctor’s don’t know yet to test for it but by having your doctor test your urine for low levels of Niacin it indicates you are retaining Niacin to maintain and repair your membranes the doctor can treat you for this morbidity a sign of undiagnosed Pellagra today.
  11. tammi22, I agree with Gemini. The link she provided is the best information I have read on the subject. You also might look up the Niacin protocol. It involves taking Niacin 100mg titrating it up on 100mg steps till you get up to 500mg and depleting your histamine reserves by way of the Niacin flushing that people get in taking Niacin in higher dosages. If taken (niacin) with food the flushing you get is usually mitigated in 100mg amounts but will over 3 or 4 days usually deplete your histamine reserves so that the hives you are experiencing usually settles down when the histamine is flushed out with high dose niacin. I had a friend who had a histamine allergy who when taking Niacinamide 500mg (the non flushing form of Niacin) to treat her histamine allergy got better in 3 or 4 months. It will take 3 or 4 months of taking it (Niacinamide) 3/day to get over a B-Vitamin deficiency. You will notice you begin burping after each meal when the Niacinamide or Niacin (once the flushing/hives are gone) when you begin burping and your stool sinks to the bottom of the bowl. A burp that comes in the first twenty minutes will be what you notice when it (burping) begins again if you don't now burp but when you are over you deficiency you will be burping (without carbonated drinks) 2 hours after a meal and even water will cause you to burp after taking Niacinamide for 6 months 3/day. I think you will notice by then your histamine allergy is much better. Or at least my friends was. Niacin regulates how histamines functions in the body. Here is a good link that explains what modern day doctor's have forgotten about Niacin. http://www.doctoryourself.com/niacinreviews.html It natures natural antihistamine because it helps regulate adrenalin in the body. I think of it as being able to reset your stress clock. When we have anaphylactic reaction our "stress clock" (my words) goes haywire and we can't shut it off. Niacin let's us diffuse that ticking time bomb by depleting our histamine reserves. ******This is not medical advice and should not be considered such but taking Niacin should flush your histamine reserves in 3 or 4 days helping the anaphylactic reaction if it indeed a histamine reaction you are having. Here is another link that explains how to take Niacin to deplete your histamine reserves. http://getwellstaywellathome.com/blog/2015/06/seasonal-allergies-and-the-niacin-flush/ I hope this is helpful. posterboy,
  12. GFinDC, I agree sites that don't sell something are better are at least they should be but as kareng points out . . . they can be useful resources for plain english explanation to laymen. I do find most doctor's sites that recommend vitamins/minerals also sell them. You can take the wrong kind/form (non-bio-available) like Magnesium Oxide and get no benefit so I only use them as resource to find the best form available to my body. Magnesium Citrate ended my chronic fatigue but I know a lot of people who take the cheapest easiest available Magnesium oxide who show no benefit form which is sad because now they often now never consider Magnesium in the bio-available form citrate and/or glycinate that really helps our body to make energy. I am like you I never buy their vitamins but I do use their good information to confirm other research I did on the topic. That often can tell me where to look in the medical journals to see if what they say is true. Concerning what Dr. Myatt said (you can't cover everything in one page sometimes) and why my posts tend to be long (and I am a rambler) but what was left out for brevity (maybe not clarity) is called "gastric tolerance" the research of what is considered a safe dose when taking a supplement or medicine. See this link where the "gastric tolerance" of acetylsalicylic acid (ASA) also commonly known as Aspirin is being determined. https://www.ncbi.nlm.nih.gov/pubmed/1473880 Dr. Prousky talks about the theory of "gastric tolerance" and what it means when he researched "Is Vitamin B3 Dependency a Causal Factor in the Development of Hypochlorhydria and Achlorhydria?" at this link http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml quoting Dr. Prousky from his paragraph on "The Treatment of Hypo- and Achlorhydria with HCl Supplements" that (Dr. Prousky "For the treatment of hypo- and achlorhydria, many clinicians have utilized HCl supplements (either betaine HCl or glutamic acid HCl with or without pepsin). This method requires the use of increasing doses of HCl supplements with meals until gastric tolerance is reached.65Gastric tolerance occurs when the patient experiences warmth or a slight burning sensation in the stomach. At this point, the patient would know the total dose of HCl supplements required per meal. Whenever gastric tolerance occurs, the patient would reduce the total dose by one. The patient would be instructed to use fewer capsules with smaller meals and the therapeutic dose (the dose below gastric tolerance) at larger meals." and I think would make more sense if Dr. Myatt had provided this background information on what it means to reach gastric tolerance. And why I leave it to doctor's to talk about taking BetaineHCL because it is easy to get burned (if you take a supplement wrong) and prefer to talk about Vitamins/Minerals which usually has a much safer profile with less risk. I have taken betaineHCL and experienced this gastric tolerance of a "warm feeling" but it was not intuitive. I had to play around with how many I took and prefer to take a vitamin if a vitamin like Niacinamide can do the same thing if Prousky's research is correct. I think taking betaineHCL is much more risky than taking a water soluble vitamins is. B-Vitamins by their nature are water soluble and one would have to take them for at least 3 to 4 months even at high doses to get too much to usually harm someone. and even then at high doses 3 or 4 times a day because in 3 to 4 hours your body usually pisses (passes through the kidney's) out any extra you have taken. If you have ever taken B-2 Riboflavin you have noticed this effect of bright neon colored urine that stops when you stop taking Riboflavin. The yellow color is your kidney's bypassing the extra B-2. As for a more medical jargon source ( of which I am not) but do a lot of nutrition research because I find it is best to know as much as you can before you take any thing either a vitamin or medicine from a doctor. See this link http://tgc.amegroups.com/article/viewFile/4364/5233 that talks about the "Effect of gastrointestinal disorders in autoimmune thyroid diseases" And have excellent summarizes of how often both hypothyroid and hyperthyroid problems occur in Celiac disease. I tried to copy the Celiac disease paragraph and thyroid disorders but couldn't get the formatting to work properly. Read it yourself they are very thorough as you would expect any good medical journal to be but I can't say it is an easy read. Remember **** This is not medical advice and should not be considered such. But I have found if it helps me it usually will help someone else too. And you could do a lot worse than take B vitamins. But I do think it is best too test first so that your own personal doctor can help recover from your deficiency and just as importantly document it. So others can be helped from your experience. by documenting it I mean test first for your deficiency before taking a vitamin if a good test is available. some tests are harder to come by than others. Vitamin D tests are now fairly routine but are not part of a normal blood test. you have to ask for the doctor's to check it (Vitamin D) for you. I don't think my doctor can do it but once or twice a year without a medical reason (if you have been diagnosed with Celiac) as an example and he want's to check your Vitamin D levels... at least he did mine and found them low but never checked again . . . an a few years later I found I was low again. It think someone else complained about this on this board/forum. They treat then follow up but don't always check back up to see if you are maintaining your levels. You have to be your own advocate. I hope this is helpful. posterboy, dysfunction. diagnoses ©
  13. gigdeb, It is amazing how many things line up when you first discover you have developed Celiac disease after all these years. Some of the same things associated with Celiac disease are also associated with having low stomach/poor gastric function. https://www.drmyattswellnessclub.com/GastricAcidFunction.htm And Graves disease is an associated disease of having poor stomach function. Strong stomach acid helps us absorb our Vitamin and Minerals that we use to regulate our organs. Look into Iodine if you having goiter problems. Selenium is also helpful for Thyroid problems. Functional Medicine doctor's get that nutrients (vitamins and minerals) are necessary to help our body function correctly. 1/3 of will have a thyroid problem in our life's and when I was first diagnosed as a celiac I was starting to have thyroid problems. It has since got better. Both Iodine and Selenium helped restore my body's function. Having a thyroid associated disease you might enjoy reading this article about doctor's whom struggled to diagnose someone with a thyroid condition in the Nytimes. http://www.nytimes.com/2016/09/01/well/live/think-like-a-doctor-the-sick-traveler.html?action=click&contentCollection=Well&module=RelatedCoverage&region=EndOfArticle&pgtype=article&_r=0 Sometimes it as simple as taking our temperature and why historically a doctor's visit would always check your body temperature when people come in for an office visit. But I find my doctor doesn't always do that anymore. Dr. Chris Kresser has a free ebook on thyroid problems. I don't know if it would help you are not but you can't beat free as they say. Here is the link to his thyroid page. https://chriskresser.com/thyroid/ He also has some great information on low stomach acid and GERD and about "what everybody ought to know about heartburn but doesn't" series of articles. I just wish more people gave vitamin/minerals more of a chance these days. See this link to part I of the series https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ Where he says talking about heartburn/GERD "Curing a disease means eliminating its cause. When a disease is cured, the symptoms don’t return once the treatment is removed. This of course is not the case with drugs for heartburn and GERD. As soon as the patient stops taking them, the symptoms return. And often they’re worse than they were before the patient started the drug." noting like most Functional Medicine doctor's "a symptom is not a cause" and why I believe taking Selenium and Iodine helped my thyroid problem. The symptom (thyroid problems) was not the cause of my problems but my low minerals related to my my celiac disease. And why I think both Iodine and Selenium helped my thyroid. Good luck on your journey and thanks for sharing. I hope this is helpful. posterboy,
  14. artsunshine, We are glad to help if we can. I have had your legs cramps before. Taking Magnesium CITRATE 200mg 3 to 4 a day (at least 2 hours between doses) will get rid of most people's leg cramps. posterboy,
  15. coolclimates, I don't know if this will help you are not. I once did research for someone at work who was having constant nose bleeds and why dry weather can make it worse all my research lead me to believe low Vitamin C was the problem. See this link that summarizes some of the things that contribute to low vitamin C levels. http://knowledgeofhealth.com/vitamin-c-in-the-emergency-department-nose-bleeds/ Stress is common before a Celiac diagnosis often and it is possible that the stress of life like PTSD might of contributed to either causing/aggravating or making your flare ups worse. Here is the link as reported on Celiac.com that reports these findings. http://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html There is also a thread in the celiac.com forum that discusses "Major Stressors as a Factor" in Celiac disease that you might find interesting to read. Linked here It has a nice link provided by Ennis_Tx that notes how low iron levels and Vitamin B-6 might contribute to panic attacks. Provided here for your convenience. https://www.ncbi.nlm.nih.gov/pubmed/23603926 It might be worth checking out if you are having PTSD. *** this is not medical advice just what I have learned from researching nutrition and somethings I've learned from reading other posts on this board/forum. good luck on your journey. I hope this is helpful. posterboy,