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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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Bella11 last won the day on January 1 2014

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  1. I have given some examples showing where I got my information from. As opinion is divided as to whether or not it is an issue I was simply suggesting it as something to consider. I think when it comes to nutrition - as we are learning more and more all the time and NO ONE has all the answers - it would be nice if people can keep open minded and at the very least agree to disagree. It has not been proven that cross reactivity either exists. I came to this forum for support and to learn from others but it seems all I'm getting is narrow mindedness and not being allowed an opinion.
  2. It's obviously easier to be diagnosed celiac if you are eating gluten but if you've already stopped, the best bet is a genetic test. If that test comes back negative then you know you can't have celiac disease (though you might still have an intolerance or allergy.) If it comes back with a result indicating you have at least one of the genes you MAY get celiac disease but may never. The skin rash combined with your vitamin/mineral deficiencies suggest you MIGHT have celiac disease. Best to discuss with your Doctor. Some Doctors don't know much about these issues so if you are not satisfied with the first opinion, get another one. I was lucky to have a Doctor who specialises in nutrition so was diagnosed quickly. It's great that your Doctor quite rightly suggested the correlation between having one autoimmune disorder and others, as it is often the case. If you are genetically susceptible but do not have celiac disease at this point you might want to be re-tested from time to time (say every year unless you have symptoms in the meantime).
  3. Hope you feel better soon. The elimination diet is a good idea. My boyfriend has not only celiac disease but multiple food allergies so it can be a challenge.
  4. Nice to see everyone being open to different ideas. I didn't say I was definitely correct just that it was a possible explanation. I know people with severe food reactions in addition to celiac disease. There is adequate support for cross reactivity - both for and against. I believe when it comes to food allergies and celiac disease that it is better to be open minded and explore possible explanations when someone is not getting better. As I said before people are entitled to their opinions. I am not trying to make the diet "hard" just offer possible things to consider for someone having a difficult time. Seriously didn't expect such narrow mindnessness from fellow celiacs.
  5. Not a problem. I have read that from some sources and I have read the opposite from others - from celiac disease researchers and Doctors. I am not saying I know 100% that my view is correct, however from my reading I think it can be an issue for some. The original link I gave was written by a Doctor, however here is another example (see below). What it comes down to is that regardless of which researchers you believe, it is up in the air, and some people on gluten free diets do not get 100% better as we all know. As everyone is different, it is worth considering cross reactivity, cross contamination and food allergies if eliminating gluten doesn't do it (ofc also considering how damaged the gut lining was to begin with). http://www.scirp.org/Journal/PaperInformation.aspx?paperID=26626#.UsDFXfQW2So
  6. Most of us do not have this issue but some of the super sensitive do. I imagine it is not common (certainly I've not had the issue) but I know people who have had this issue. I am putting the idea out there as an option as people have different symptoms and what most people can handle, some cannot. Whilst I am no expert or Doctor, I am studying grad level nutrition and do research before making such statements. You are certainly entitled to your opinion as well.
  7. I agree with the previous poster.. cross contamination could definitely be an issue. Another possible issue could be cross reactivity. This is the concept that some people who are extremely sensitive to gluten will have a reaction from eating foods which do not contain any gluten (such as cheese or chocolate) simply because they contain a protein which is considered similar and the body treats it as if it is gluten. http://primaldocs.com/opinion/19-foods-that-cross-react-with-gluten/ Failing all else, it is possible that you have non gluten related food allergies as well. With celiac disease, you are more likely to develop food allergies due to the damage done to the gut lining (however I understand you don't have celiac). If you think you might have food allergies, it is recommended that you removed the foods you think might be causing issues then after giving your body a rest for at least a few weeks, add in the food items one at a time to see whether you notice a reaction. Alternatively, you can get food allergy testing done however I hear mixed reviews as to the consistency of the results. You said you don't have celiac disease.. did you have the genetic testing done? If this is negative, then you definitely cannot get it, ever.. however you most certainly sound like you have at least a very strong intolerance.
  8. I agree with the other posters to get tested for celiac disease before going gluten free. I have celiac disease... my sister was told she has IBS however often this is a misdiagnosis. Luckily my sister is so far celiac disease free, however as the symptoms can be confused it is worth checking. She does find that cutting way down on gluten (especially wheat) has helped, however she is safe to have some when she wants it whereas I am not. If you do indeed have IBS rather than celiac, there are other dietary recommendations which apparently can assist with IBS, most notably the FODMAP diet. http://www.med.monash.edu/cecs/gastro/fodmap/