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RMJ

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RMJ last won the day on December 15 2016

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About RMJ

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  1. Those Doritos don't have gluten ingredients but could be contaminated and are not tested for gluten - so you take your chances eating them. If the reaction was to gluten and not just to junk food it would set healing back some but not all the way to square one.
  2. Cool Ranch Doritos are not on the Frito Lay gluten free list. http://www.fritolay.com/nutrition/special-dietary-needs/us-gluten-free-products-and-products-not-containing-gluten-ingredients.htm
  3. About 95% of my diet fits that, with a little certified gluten free (not junk food). If my antibodies aren't normal next year I'll go for 100%. Although I don't have symptoms, I did just feel better eating mostly that way. I was surprised that my dietician, who specializes in GI issues, had not heard of it.
  4. Do you mean total IgA? Or Ttg or Dgp IgA?
  5. I can't help, but I can sympathize. I hope you get some advice! I've been trying to be gluten free for four years. My antibody levels have come way down but my DGP IgA is still high and my TTg IgA is still borderline positive. Each time I try a stricter diet they come down a little more. I'm now eating mainly whole foods plus some certified gluten free. I had a biopsy last summer (along with my routine every 10 year colonoscopy) and I have Marsh 3A villi damage. My GI doesn't have any advice. I went to a dietician and we went over every ingredient in every food I eat plus toothpaste and mouthwash. I don't have obvious symptoms so I can't tell that way where gluten might be hiding. My husband is not gluten free but he prepares his food with gluten in a separate part of the kitchen and we have separate plates and utensils (no dishwasher). If my levels are still up at my next test I may try 100% whole foods that can't be contaminated. I dislike having to cut more and more out of my diet when I don't know where the problem really is.
  6. It might have gone down, you can't tell because the first result was >100. It might have been 200 or 300 and now 101. I'd give it more time. Do you feel better?
  7. In a correctly functioning immune system antibodies bind to molecules that shouldn't be in the body and help to remove them - for example, bacteria and viruses. In allergies and autoimmune conditions the immune system overreacts. In an allergy, the IgE type of antibody binds with the allergen, for example a protein in wheat (most allergies are to proteins). In an autoimmune condition, the antibody (IgA or IgG for celiac) binds to a human protein, it is an antibody against "self". For celiac this is the anti TTG (tissue transglutaminase). TTGs are normal human proteins. In celiac there may also be antibodies against DGP, deamidated gliadin peptides. These come from partially digested wheat. This is an immune reaction but not either allergy or autoimmune.
  8. I went to a registered dietician who specializes in Celiac. She was concerned about the balsamic vinegar I was using and suggested a different brand, Napa Valley Naturals.
  9. Posterboy, canker sores and oral thrush are NOT the same thing. Kkgirl, good luck with your doctor's appointment, those look painful.
  10. In most people the gluten free diet will reverse the damage, although it may not go all the way back to normal. You're young so there is a good chance you'll heal completely - children seem to heal better than older adults, we'll hope you heal like a child! Your toddler should heal up just fine. Intestinal lymphoma is very rare. Untreated patients with celiac have a higher than normal chance of getting it but it is still in the very rare range. Healing on a gluten free diet reduces the chances. I wasn't diagnosed until I was 57 and my villi aren't back to normal yet but I'm not worried about it.
  11. Yes, blunted is less damaged than atrophy. Blunted villi are shorter than normal, but they are there and available for absorbing nutrients. Atrophied villi are basically gone - the surface is flat with no villi projecting out.
  12. There is a whole spectrum of damage that is seen in celiac disease. Looking at your results another way: "Patchy flattening" - Only patchy, not all over, Yeah! "Isolated areas" - Isolated, not all over, Yeah! "Blunted villi" - Only blunted, that's great. You still have villi. In some people the villi are totally atrophied. "40 intraepithelial lymphocytes per 100 epithelial cells" - That's part of the classification of even the mildest levels of celiac disease. "Hyperplasia" - That is seen in all but the mildest classification of celiac disease. Your results are normal for celiac and are milder than those of some people. Go gluten free and get ready to heal!
  13. Steak and potatoes? Ham and hash browns? (although ham gives me migraines).
  14. Some people with celiac can't eat oats, and some gluten free oats are not as gluten free as they could be. I'd try omitting those from your diet.