• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

1 Neutral

About Graindamaged

  • Rank
    New Community Member
  1. Swollen Organs

    Well. That's chilling, but good to know. It certainly seems possible that I have crohns. Thanks!
  2. I love your name!

  3. Swollen Organs

    No anti inflammatory at this time, but now I'm considering it. But I like the food idea better. Seems like heavy meds can often just cause new problems. Not to mention mess with my moods. After spending most of my life depressed, there's really nothing I wouldn't do to avoid it now that I'm feeling better. Thanks very much!
  4. Hi, So I was diagnosed in 2003, have been extremely faithful to gluten-free diet, and along the way found that I couldn't tolerate dairy either. Two years ago I had a followup biopsy and was told my gut had "healed completely". However, I never gained any weight. My BMI is 19, just above NIH "underweight" category. Then, in December, I went to ER with fever, chills and extreme organ pain (mostly in the areas of the kidneys and liver/gall bladder). I'd been having mild organ swelling intermittently for years, and now it's suddenly become rather severe. I had blood work, CT scan, ultrasound, and everything checked out fine. No heightened IG's either. Mild anemia. Doctor is saying there's a chance I was misdiagnosed with sprue (he's owning it, he was the guy who dx'ed me the first time) and I may have Crohn's instead. He's getting me the genetic test, which I didn't have the first time (diagnosed via biopsy). I haven't been back to the ER, but I've got regular mild organ pain and sometimes have trouble swallowing or urinating. After reading a couple of other posts, I've begun to avoid citrus and alcohol, and I'm focusing on drinking plenty of water. All of *seems* to help, but it's really hard to say. My naturopath has had me on an herbal tonic, too. Has anyone else had similar problems? Anything that made it better?