• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About NYCEthan

  • Rank
    New Community Member

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Location
    New York City
  1. Celebrities With Celiac?

    Audrey Hepburn, I have been told, had Celiac.
  2. Any doc can run an IgA test - but you might want to see an infectious disease specialist. You should be aware that if you are IgA deficient, you stand a much higher chance of having celiac, but the standard blood test for celiac will likely be a false negative. I am IgA deficient and got a false neg celiac test. I started a gluten-free diet. It was almsot a complete cure, so my docs all agreed there was little sense doing many more tests. In terms of the IgA deficiency, I try to be careful when I get a cold so that those viral things do not turn into bacterial upper respiratory infections since my body can't fight that kind of thing well. When a cold comes, i lay on the decongestants so I don't get too much gunk hanging out in my lungs - which in an IgA deficient person is an invitation for bacterial problems. Dayquil and Nyquil are a godsend. That and I always travel with antibiotics just in case. Add the gluten-free diet to the mix and I seem to be able to function at about 95%, not too bad given that IgA deficiency and celiac aren't a good set of cards to start out with!
  3. Barium Test?

    It's a shame your doc isn't aware that IgA deficient people usually test negative for for celiac - the blood test only works on people who produce IgA. There are studies IgA deficient people are 10 times more likely to have celiac - the two are somehow related, so it's no surprise. You should do some research on IgA deficiency - it will help (as it did for me) explain why you're entire life you've probably had a harder time than most people shaking off upper respiratory infections and perhaps gi infections (e.g. ghiardia). Your body does not make a very common immune cell - the first line of defense - IgA. It lines the mucous membranes of most people and helps shed off pathogens. Like me, your body does not make any which is why its easier for us to get certain infections. It also means, and your doctor should know, that the standard blood test for celiac is meaningless.
  4. Night Sweats

    I find that since I came down with Celiac, alcohol causes me to have nightsweats. If I have just one cocktail, I sweat terribly, mostly from my neck. If I don't drink, they are very minor.