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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Peaceflower

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  1. Hi, yes. I once sat next to someone who was eating a sausage roll in a house that was being plastered. I couldn't feel anything from the waist down and had to check my legs were still there. It's as though my brain is numbed. The manufacturer of the plaster said it contained wheat gluten as a bonding agent.
  2. Yes, good point, thank you, Kareng. I lifted that quote, should've been more careful. The only yeast I am able to eat is Dove's Farm Yeast.
  3. To prevent and/or treat pellagra, prescribe a protein-rich diet with adequate calories. The addition of meats, milk, peanuts, leafy green vegetables, whole or enriched grains, and brewer's dry yeast can enhance niacin intake.
  4. Hi Celina, It took my family ten years to take it seriously and it is because I did. I realised that I could say I only eat food I prepare myself. When I knew my mum took it seriously I would eat food she cooked for me. I could have offended her recently when she made me a cup of tea but took out the tea bag after eating a sandwich, but she and I have a closer relationship because I am honest with her. I said I was really sorry but I can't accept tea from anyone who doesn't wash their hands first after eating gluten food. I said I don't even accept a cup of tea from my husband without him washing his hands first. I had realised that I had started to eat food people prepared me, just to please them. I'd then go home and suffer for four or five days unbearably. My mum began to realise that if I was going to eat her food she would have to take it seriously, because I explained to her what I considered 'safe'. She made me a big chocolate cake for my birthday once and assured me that before making it, she and Dad had cleaned the kitchen and checked every utensil over before baking. They were laughing about how careful they had been and I believed them because they were finally taking me seriously. They even remove the toaster from the kitchen now when I go and visit because I plucked up the courage to tell them I react to airborne cooking or baking smells. You feel like a hypochondriac when you know you are not, especially without a clinical diagnosis. You don't need one to know what your symptoms are and what you need to avoid. I used to get migraine and other symptoms whenever I visited and still struggle to say that I need to avoid being in the kitchen. The thing about parents is that they feel guilt. They want to carry on looking after you and being hospitable even when you grow up and have kids of your own. They want you to trust them too. The cake my mum and dad made that day was delicious. I went home with migraine and hid my head under a pillow in a darkened room and said nothing. My mum called later to see how I was and my husband told her I was lying in a dark room with migraine and asked why she was asking. She said that after all the effort they went to she realised she had used baking powder with wheat flour in it. I was so excited, because I knew it was not cross-contamination and it was like a placebo effect experiment because my mum and I both knew I believed it was gluten free. From that day, even though she believed me before, this was like a breakthrough for me and I was happy with my symptoms and told my mum I was so happy to know I hadn't imagined it, knowing that she believed me. If your mum is no experiencing your symptoms, she is not going to be as careful as you. When you work out how to look after yourself, you can tell other people how to. Only you know how bad you feel when you're not careful. I always take a mug and teabag to friends' now and they don't bat an eyelid and I can relax knowing the tea is 'safe'.
  5. That is the point, Gemini. You do not do well without grains, but some people are reacting to lots of foods, without knowing what to. Some people need to cut out food groups in order to heal and then bring them back one at a time. Without elimination we don't know what we are reacting to. Some people are suffering and confused because something is causing them symptoms in addition to gluten, probably because their guts need to heal by eating only easily absorbed and digested foods. If that means cutting out all grains for a month it is worth it. Nuts are a great source of energy and so are bananas and other fruits and veg.
  6. I am sensitive even to airborne gluten, including in aerosols, kitchens where an oven is cooking gluten containing food, or has been recently, plaster dust in building materials. I work, but suffer migraine when I have fully ingested gluten and numbness and muscle weakness from smells. Does anyone else experience full-body numbness, or facial or extremities numbness?
  7. So do I. I even get glutened with brain fog, intestinal issues, fatigue, numbness and muscle spasms from aerosols or bakery or sometimes plaster dust and the gluten found in building materials.
  8. I am sensitive to trace gluten, but when I was out with wider family and desperately hungry with no food or drink and found a can of coke, uncharacteristically I downed it with no ill effects. I drink probably one can every two years, not a regular occurrence. If it was going to give me problems I would have known about it. In USA corn is a more commonly used starch, such as the derivative of dextrose, wheee as in the U.K. and Europe they often use either potato, maize or wheat, sometimes without knowing which because they are mixed sometimes.
  9. Hi, Your gut will take time to heal and some foods are more difficult to digest than others, so during the healing process foods that encourage bad bacteria should be avoided. This book was written by someone who had been given an ultimatum by doctors, who said removal of the colon was the only option for her daughter. She fought that and researched the molecular structure of foods we eat and put her daughter on a diet linked to encouraging good bacterial growth and her symptoms disappeared without medication. Sometimes other grains that do not contain gluten are hard to digest, until your body is healed. Read this and consider trying the diet for a month. It is not as hard as it sounds and has had amazing effect on various symptoms from neurological to intestinal. http://www.breakingtheviciouscycle.info/p/about-the-author/
  10. Hi Jm34, After ten years of gluten free diets on and off and suffering all sorts of problems, I've discovered a sensitivity to maize. I also had heart problems after lasagne, bolognese and pizza (all gluten free), but when I ate pizza made with baked beans instead of tomatoes and with less cheese, I didn't have the symptoms. I have since cut out maize from my diet and used doves farm bread flour (tapioca, rice and potato) for baking and making pizza and bread and I haven't felt ill after eating. I don't know if this is a long term thing, or just a phase, but I know tomatoes are very high in histamine too and so are mushrooms and peas. My sister is on a histamine elimination diet and is eating lots of dried fruit and nuts as snacks to stop the cravings.
  11. Numbness and tingling is a common reaction to gluten.
  12. Gemini, you misunderstand me in your defence. I said, making things worse is to say something unhelpful. I wasn't referring to you, only that I was offering support. Newly diagnosed people need support.
  13. Hi Gemini, Cross-reactivity is not relevant in the context of oats, but it certainly isn't a myth. If OP is suffering after eating oats, perhaps they are one of the few who DO react to oats. Let's not fall out here or have side-discussions. I care a great deal about helping people who are suffering, especially psychologically when affected. Making things worse would be to say something unhelpful.
  14. I'm assuming they see a dietician, you'd hope!
  15. Lentils and Beans don't contain gluten. Some people are sensitive to grains and need to avoid rice and corn, but that's nothing to do with this and I wouldn't give yourself more to worry about unnecessarily.