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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Astrongtower

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  1. I really never had any symptoms that is the case. To be honest I just wanted to get some Testorenone so I went to endocrinologist to see if I could get some if you know what I mean. Nothing was wrong with me. Then he did a bunch of tests and this is what came up. Since then I have seen 5 Doctors and they all say elevated IgA means nothing or they just don't know from what I am guessing. Sometimes they never seem to give me a straight answer. You make a very good point though. I should go outside and enjoy the nice weather. Thanks for doing all that you could at this point though, I really appreciate it.
  2. Thank you so much for this information ... Some one posted this on another forum for me and this actually seems closer to figuring something out. I might actually have connected tissue disease: I actually have hypo-tropic scars and growths that are benign but would go along with this. It is the second most cause of poloclonal gamopathy right after liver disease. Tell me what you think. Post: Once you get into discussions of polyclonal gammopathies, you're getting into areas that aren't really the expertise of people here. MGUS, smoldering myeloma, and multiple myeloma are monoclonal gammopathies most of the time. When it comes to figuring out what the cause of polyclonal gammopathies might be, I suspect you're going to have to get advice somewhere else. This is a good initial source to start understanding differences between monoclonal and polyclonal gammopathies: treatment O'Connell et al., "Understanding and Interpreting Serum Protein Electrophoresis," American Family Physician, Jan 1, 2005 (full text) You'll see that it says the following: It is extremely important to differentiate monoclonal from polyclonal gammopathies. Monoclonal gammopathies are associated with a clonal process that is malignant or potentially malignant. In contrast, polyclonal gammopathies may be caused by any reactive or inflammatory process, and they usually are associated with nonmalignant conditions."
  3. Thank you for at least reading and trying. Do you think you could stretch and now what IgA means when it is elevated though? Isn't it the opposite of having low IgA which means you have Celiac Disease. I know that if your levels are low you can't fight off infection and you need assistance or something needs to change. I just wonder what it means when your levels are high with no apparent reason.
  4. I apologize. I meant to also ask: Do I have “polyclonal Gammopathy of Unknown Significance (MGUS)”? or is this even possible? This is what my Blood Test says: Immunofixation, Serum 01 Immunofixation Result, Serum An apparent polyclonal gammopathy: IgA and IgM. Kappa and lambda typing appear increased. Result: P E Interpretation, S 01 The SPE pattern appears essentially unremarkable. Evidence of monoclonal protein is not apparent. It doesn’t mention anything of “Monoclonal” just “Polyclonal” That is why I was wondering if this possibly existed: polyclonal Gammopathy of Unknown Significance (MGUS) or when: “The SPE pattern appears essentially unremarkable. Evidence of monoclonal protein is not apparent.” Cancels all this out … Do you understand what I am trying to say?
  5. Also … Do you think I have this: MGUS: Monoclonal Gammopahty of Unknown Significance (MGSU) http://www.webmd.com/hw-popup/monoclonal-gammopathy-of-unknown-significance-mgus Or has this been ruled out by my blood tests? Or Bacteria Sinusitis or some kind of infection or allergy that my body has been trying to fight off for over a year? Here are a couple of links to where people having elevated IGA and the Doctors really have no idea what to make of it when no others symptoms are present. http://www.aaaai.org/ask-the-expert/levated-IgA-with-no-explanation.aspx http://www.aaaai.org/ask-the-expert/recurrent-respiratory-infection.aspx Any other ideas or ways to go? I have a feeling when I see my Hematologist next week they are just going to say, looks like your results are fine, good luck be safe out there, will run a follow up next year. That’s it with no explanation. I just find it hard to believe that in 2014 that is the best we can do with Blood Tests.
  6. Thank you for the comforting words. Yes I think my Hematologist has rule out the worst things it could be. I just don't they are trying at all to find the cause of the IGA though. Its just like oh hey you don't have this so have a nice day. Yes I have had a lot more test than this. I have also had the Immunofixation and the Celiac Panel 10 done. Among a ton of others for good measure. I am starting to think it is "Bacterial Sinusitis" because I do struggle with that with heavy allergies. So the results you had, they could not find anything either? Did you just end up being an outlier on the bell curve as well? My father just had a blood test done. He did not want to do the endoscopy because that was to invasive for him. His symptoms where much much worse than mine. He would have sever pain and gain and would have to lie on the floor and try to move the gas around in his system. I have never had anything like that. But his didn't really developed till his late thirties or early forties I believe. He has always struggled with hemorrhoids, severe ibs and now celiac. He took a blood test that confirmed he had celiac and that was enough for him. He feels much better and has gotten on a strict Gluten Free diet and takes it extremely seriously. I just wish i knew how all this relates to me. I mean I could have a gluten intolerance but not celiac or I could just have Bacterial Sinusitis. I don't know and neither do my Doctors. Thanks for the link, I have checked that out before. I'll double check it again.
  7. I tried googling everything related to IGA and have come up with nothing. So are you saying like my Doctor is saying that I could just be an outlier on the Bell Curve with my IGA. While it is high it could be normal for me and my body? I have checked on Lupus and Liver Disease and I have zero symptoms of anything. I only stumbled on this because I was getting a LOW T Test done. I have had a complete Celiac Test done as well with everything you listed checked and the Doctors said that I do not have Celiac disease. They also did a colonoscopy and took samples to get checked by the lap and everything came back fine.
  8. I went to a FAAAAI Certified Doctor and he said Elevated IGA means clinically nothing. I just swear sometimes I feel like I read conflicting data on the internet though ... Did you ever have the chance to ask your Doctor about Elevated IGA?
  9. Last year I went to a Doctor for Low Testosterone. Only because I thought I had low testosterone. I told him that I was not feeling on top of my game and that my dad had celiac. Well he order a complete panel of like everything. The lab bill was like 1500.00 dollars. Covered by insurance thankfully. Everything turned out fine and I did not have low testosterone. Except I had an elevated IGA levels. He was perplexed by this and had me see a Hematologist immediately. I did not know these Doctors usually work at the Cancer centers so when I called I kind of freaked out and started to think I had cancer. In any rate the Hematologist looked at me after seeing my results and just look at me like I was dumb and why am I not all enjoying my life and why are you acting like all Hypochondriac like. I was kind of offended but I did not say anything. So far I have had like 5 complete blood work tests done. I did not feel comfortable with this Doctor entirely so I went back to my primary doctor which I have two of them and they both ran complete tests. All test come back fine except that I have elevated IGA mainly and a little elevated IGM. I even went to an allergist certified doctor which told me that clinically that elevated IGA means nothing. My primary doctor says that is what just makes you, you. That these results are based on a bell curve and that sometimes people are outliers. Is this true in my case? Questions: What does elevated IGA mean exactly? What does elevated IGM mean exactly? What does “An apparent polyclonal gammopathy: IgA and IgM. Kappa and lambda typing appear increased.” mean exactly? What does “The SPE pattern appears essentially unremarkable. Evidence of monoclonal protein is not apparent.” mean exactly? Is this anything I should worry about or do I just simply ignore this and move on with my life? Does this have anything to with allergies or chronic sinusitis possibly? Because I have read up on this and have found that it might be do to that and I do have bad sinuses. If everything is fine now, can everything stay fine or does this mean I can develop “Multiple Myeloma” or some form of “cancer” in the future based on these results? I mean I know everyone has a chance of getting cancer I am just wondering if I have an increased chance or something based on these results. I am asking this because it just doesn’t seem like any of my Doctors either are not really concerned by this or just don’t really know what to make of it. I wish they could just tell me exactly what it is and what I should either prepare for or not prepare for. I have seen the following Doctors: Two primary doctors One hematologist Allergist Endocrinologist And have also had an ultra sound and a CT scan of my pelvis and stomach because I believe I have IBS instead of Celiac Disease like my Father. So please let me know what I should do or what I should know. Results: 2014 – March Immunoglobulin A, Qn, Serum 710 High mg/dL 91 − 414 01 Endomysial Antibody IgA Negative Negative 01 2014 – April Beta Globulin 1.4 High g/dL 0.6 − 1.3 01 Immunoglobulin A, Qn, Serum 721 High mg/dL 91 − 414 01 Immunoglobulin M, Qn, Serum 271 High mg/dL 40 − 230 01 THE SPE PATTERN APPEARS ESSENTIALLY UNREMARKABLE.EVIDENCE OF MONOCLONAL PROTEIN IS NOT APPARENT. 2014 – October Beta Globulin 1.4 High g/dL 0.6 - 1.3 01 Immunoglobulin A, Qn, Serum 753 High mg/dL 91 - 414 01 Immunoglobulin M, Qn, Serum 270 High mg/dL 40 - 230 01 P E Interpretation, S 01 The SPE pattern appears essentially unremarkable. Evidence of monoclonal protein is not apparent. I have the two from my primary doctor but they just say elevated IGA and they are not worried about it. All of these blood tests have much more information and tests on them but they are all normal so I didn’t bother putting them up here. I am just wondering is my Doctors not telling me something because they do not want to get me down or depressed. By telling me that this can turn into something or is it truly something not to worry about? I have seen many Doctors. Do any of you know of anyone else that I can go to that can truly tell me what these results mean? Also can you explain to me where I can post these results to where I can get some answers and also do you know anything about these results? Thank you for your time and I greatly appreciate your feedback.
  10. I also forgot to mention that I think I grind my teeth or clench my jaw a lot and it if finally catching up to me.
  11. UPDATE: Ok I am not sure if this helps or not, but I no longer have the weird feeling in my left torso, that is gone. The only feeling that I have left is the weird sensation right on the left side of my nose and possibly sometimes below my left eye. It comes and go. If I put an eye patch on my left eye I do not feel the sensation. So I am thinking it is eye strain or that it is just pressure from the patch distracting the other sensation. I just went for a walk and I really didn’t feel it. So I think it might only come when I look down at the computer screen or watch TV. I mean how are you suppose to know when you need glasses? I mean I can still read the words but is it just harder for me to do so now? I recently moved a very heavy flat screen and put it on my shoulder/back, have been studying a lot by looking down and on the computer, and have been watching TV until like 4 in the morning sometimes. I think this might be related to my Shoulders or middle back or upper neck but I am not sure. Can a pinched nerve affect facial muscles? PLEASE HELP ME ANY WAY THAT YOU CAN!
  12. They did not. I was wondering if I should do that but my Father who has Celiac Disease did not even do that. I heard it is not completely necessary. I have not completely removed Gluten. Have been thinking about that. Do you think I could have a gluten sensitivity without having Celiac? Thank you for the advice I will definitely start doing that. Yes I hate vegetables and its very hard for me to eat them so I would agree. I do need to be more active and watch less TV. You are right, I just didn't know if High IGA was a bad thing or meant I had an increase risk or not. You are very right I should appreciate what I have and take that to the bank. Thank you. I agree. Maybe I am a little depressed too. not sure, but I could change my diet. I have asked my Doctor everything, they say I am all fine. Just wanting some other opinions. I do need to stop obsess, I agree so much!
  13. I recently got a CT scan of my Pelvis and Abdomen because I kept feeling a weird sensation on my left side of torso. The feeling is just like a slight pressure more towards the back then the front. I have also had an ultrasound. Everything came back 100 percent normal except that I had constipation. Seemed like there was food all throughout my colon and just not in the lower quadrant like it should be. Other thing that came back was the “Calcified Nodule Cyst”. They said that I had two very tiny ones that where benign and not cancerous. One was in my liver and one is on my left liver lobe. My question is what is this all about? Is this common? They asked if I drunk a lot in the past and I said no because I didn’t. I do have heavy drinks once in a blue moon on special occasions but that is it. Questions: +Can I still drink alcohol or should I stay away from it? Will my cyst increase do to Alcohol? +What should I watch out for having a cyst in my Liver? +I read something online saying that a calcified liver will heal itself and nothing special is required, is this true? +I have a high IGA and an elevated IGM levels, does this have anything to do with that? P.S. I have a five major complete work up blood tests drawn all from different Doctors saying that I am completely healthy. I am 35 now, is this just a sign of getting old? Other symptoms… Only two symptoms I really have left are the weird sensation that I have on my left face on my upper chick and around my left eye. I watch an extremely large amount of TV and on the computer like 24/7 doing large amounts of school work. I did go to an allergist and got a complete work up done to find out what I am allergic to and found out that I am extremely allergic to grass and ragweed. My primary doctor said that my face sensation is nothing and that I should just take a hot shower and lean over to let my sinuses drain. I read somewhere else that sometimes you could have a dry face and you just need to put lotion on it. My second symptom is just the weird sensation that I feel around my left side torso. Feels like there is a slight pressure their mainly when I sit down for long periods of time. Note: Both of these symptoms have absolutely no pain. Nothing else has occurred and I have gotten completely better from everything else. I sleep absolutely great, I feel great, and I am happy. I would just like to finish up with these last few symptoms and move on with my life. P.S. I did do a stool test 3 times which I did not obey the eating requirement all too well I think. But they did come back positive for “Fecal Occult Blood Test”, all three. But my Primary Doctor again said that was due to my bloating and they are not really reliable. Basically at the end of the day I am just trying to figure out if I have IBS. I just want to know so I can move on with my life. My dad has celiac and I have been tested 3 ways to Sunday saying I do not have Celiac. He has always had all kinds of abdominal pain and that is where I think I get this from. Medication: I was told by my Doctor to take Metamucil and Probiotics which I have started and man let me tell you I feel much better on this stuff. I wish I knew why but I just do I guess. I have great bowl movements and no lower intestine pain right before going to the bathroom. Here is my blood work: Blood Work – 01 Comp. Metabolic Panel (14) Glucose, Serum 84 mg/dL 65 − 99 01 BUN 18 mg/dL 6 − 20 01 Creatinine, Serum 0.97 mg/dL 0.76 − 1.27 01 eGFR If NonAfricn Am 102 mL/min/1.73 >59 eGFR If Africn Am 118 mL/min/1.73 >59 BUN/Creatinine Ratio 19 8 − 19 Sodium, Serum 142 mmol/L 134 − 144 01 Potassium, Serum 4.2 mmol/L 3.5 − 5.2 01 Chloride, Serum 104 mmol/L 97 − 108 01 Carbon Dioxide, Total 22 mmol/L 19 − 28 01 Calcium, Serum 9.4 mg/dL 8.7 − 10.2 01 Protein, Total, Serum 7.9 g/dL 6.0 − 8.5 01 Albumin, Serum 4.6 g/dL 3.5 − 5.5 01 Globulin, Total 3.3 g/dL 1.5 − 4.5 A/G Ratio 1.4 1.1 − 2.5 Bilirubin, Total 0.6 mg/dL 0.0 − 1.2 01 Alkaline Phosphatase, S 86 IU/L 39 − 117 01 AST (SGOT) 23 IU/L 0 − 40 01 ALT (SGPT) 27 IU/L 0 − 44 01 SPACE Rheumatoid Arthritis Factor RA Latex Turbid. 7.2 IU/mL 0.0 − 13.9 01 SPACE CCP Antibodies IgG/IgA 12 units 0 − 19 02 Negative <20 Weak positive 20 − 39 Moderate positive 40 − 59 Strong positive >59 ANA w/Reflex ANA Direct Negative Negative 01 SPACE Uric Acid, Serum Uric Acid, Serum 5.9 mg/dL 3.7 − 8.6 01 Please Note: 01 Therapeutic target for gout patients: <6.0 SPACE 10 mm/hr 0 − 15 01 Blood Work – 02 Celiac Disease II Endomysial Antibody IgA Negative Negative 01 t−Transglutaminase (tTG) IgA <2 U/mL 0 − 3 01 Negative 0 − 3 Weak Positive 4 − 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstr− ated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. t−Transglutaminase (tTG) IgG <2 U/mL 0 − 5 01 Negative 0 − 5 Weak Positive 6 − 9 Positive >9 Immunoglobulin A, Qn, Serum 710 High mg/dL 91 − 414 01 SPACE TSH+Free T4 TSH 2.440 uIU/mL 0.450 − 4.500 01 T4,Free(Direct) 1.31 ng/dL 0.82 − 1.77 01 SPACE Comp. Metabolic Panel (14) Glucose, Serum 93 mg/dL 65 − 99 01 BUN 15 mg/dL 6 − 20 01 Creatinine, Serum 1.04 mg/dL 0.76 − 1.27 01 eGFR If NonAfricn Am 94 mL/min/1.73 >59 eGFR If Africn Am 109 mL/min/1.73 >59 BUN/Creatinine Ratio 14 8 − 19 Sodium, Serum 141 mmol/L 134 − 144 01 Potassium, Serum 4.3 mmol/L 3.5 − 5.2 01 Chloride, Serum 102 mmol/L 97 − 108 01 59935 084−560−1311−0 Seq # 3523 Carbon Dioxide, Total 26 mmol/L 19 − 28 01 Calcium, Serum 9.9 mg/dL 8.7 − 10.2 01 Protein, Total, Serum 7.5 g/dL 6.0 − 8.5 01 Albumin, Serum 4.2 g/dL 3.5 − 5.5 01 Globulin, Total 3.3 g/dL 1.5 − 4.5 A/G Ratio 1.3 1.1 − 2.5 Bilirubin, Total 0.7 mg/dL 0.0 − 1.2 01 Alkaline Phosphatase, S 80 IU/L 39 − 117 01 AST (SGOT) 20 IU/L 0 − 40 01 ALT (SGPT) 23 IU/L 0 − 44 01 SPACE CBC, Platelet, No Differential WBC 4.9 x10E3/uL 3.4 − 10.8 01 RBC 4.87 x10E6/uL 4.14 − 5.80 01 Hemoglobin 15.4 g/dL 12.6 − 17.7 01 Hematocrit 46.6 % 37.5 − 51.0 01 MCV 96 fL 79 − 97 01 MCH 31.6 pg 26.6 − 33.0 01 MCHC 33.0 g/dL 31.5 − 35.7 01 RDW 13.2 % 12.3 − 15.4 01 Platelets 229 x10E3/uL 155 − 379 01 SPACE Testosterone, Free+Total LC/MS Testosterone, Total, LC/MS 442.3 ng/dL 348.0 − 1197.0 02 Free Testosterone(Direct) 9.5 pg/mL 8.7 − 25.1 02 SPACE Luteinizing Hormone(LH), S LH 3.2 mIU/mL 1.7 − 8.6 01 SPACE FSH, Serum FSH 2.3 mIU/mL 1.5 − 12.4 01 SPACE Prolactin 11.9 ng/mL 4.0 − 15.2 01 SPACE Vitamin B12 603 pg/mL 211 − 946 01 Blood Work – 03 Protein Elec + Interp, Serum Protein, Total, Serum 8.0 g/dL 6.0 − 8.5 01 Albumin 4.1 g/dL 3.2 − 5.6 01 Alpha−1−Globulin 0.2 g/dL 0.1 − 0.4 01 Alpha−2−Globulin 0.6 g/dL 0.4 − 1.2 01 Beta Globulin 1.4 High g/dL 0.6 − 1.3 01 Gamma Globulin 1.6 g/dL 0.5 − 1.6 01 M−Spike Not Observed g/dL Not Observed 01 Globulin, Total 3.9 g/dL 2.0 − 4.5 A/G Ratio 1.1 0.7 − 2.0 Please note: 01 Protein electrophoresis scan will follow via computer, mail, or courier delivery. 01 The SPE pattern appears essentially unremarkable. Evidence of P E Interpretation, S monoclonal protein is not apparent. SPACE Immunofixation, Serum 01 An apparent polyclonal gammopathy: IgA and IgM. Kappa and lambda Immunofixation Result, Serum typing appear increased. Immunoglobulin G, Qn, Serum 1396 mg/dL 700 − 1600 01 Immunoglobulin A, Qn, Serum 721 High mg/dL 91 − 414 01 Immunoglobulin M, Qn, Serum 271 High mg/dL 40 − 230 01 SPACE Rheumatoid Arthritis Factor RA Latex Turbid. 7.8 IU/mL 0.0 − 13.9 01 SPACE HLA B 27 Disease Association HLA−B27 Negative 02 HLA−B*27 Negative HLA Lab CLIA ID Number 34D0954530 This test was performed using PCR (Polymerase Chain Reaction)/SSOP (Sequence Specific Oligonucleotide Probes) technique. SBT (Sequence Based Typing) and/or SSP (Sequence Specific Primers) may be used as supplemental methods when necessary. Please contact HLA Customer Service at 1−800−533−1037 if you have any questions. Director of HLA Laboratory Dr George C Maha, PhD SPACE ANA w/Reflex ANA Direct Negative Negative 01 SPACE 15 mm/hr 0 − 15 01 Sedimentation Rate−Westergren SPACE C−Reactive Protein, Quant 0.6 mg/L 0.0 − 4.9 01 Comment THE SPE PATTERN APPEARS ESSENTIALLY UNREMARKABLE.EVIDENCE OF MONOCLONAL PROTEIN IS NOT APPARENT. Final Notes: I have the other two tests but they say about the same exact thing and are only on paper. So what does everyone think about all this? What should I do? Am I essentially okay? Or do I have a possibly of developing cancer in the future more so then the next person? My family does not have a history of any major diseases that I know of. Any help would be greatly appreciated. Thank You! Best, Astrongtower