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Jmg last won the day on January 15

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  1. Did you see the thread elsewhere on pie crust Ennis? I think someone was after the definitive gluten-free recipe?
  2. Only certain areas still do this and I think the practice will soon be at an end nationally: http://www.telegraph.co.uk/science/2017/01/10/nhs-wastes-25-million-ludicrous-prescribing-gluten-free-foods/
  3. I think this is an excellent idea. I would wait until the result of the fresh bloods are in, just in case they prompt the doctors to resume the diagnostic process. If not, you have nothing to lose, and potentially a great deal to gain from giving the gluten free diet a proper go. I have a lot in common with you, both in symptoms, experiences within the UK medical system and in testing negative for coeliac. Not the pregnancy part though, that would be very strange indeed... After a negative endoscopy the gastro and I agreed I'd be gluten free for life based on my reaction to the gluten challenge. I still don't know if I'm one of the coeliacs that slip through the diagnostic procedure or if I'm non celiac gluten sensitive (the default diagnosis for negative coeliac but react to gluten). Nowadays it doesnt really matter. The diet has made a massive difference to my health and I'm happy to live as if the result was positive. There's no nuggets or cake on the surface of the planet that would make up for the results when I consume gluten. Best of luck! Matt
  4. Hi Shollie and welcome I can't give you any specific answers on DH, there are others here with more experience and I'm sure they'll answer soon. I guess the more specific you can be about the rash the better, eg was it symettrical? The other thing which occurred to me when I read your post was shingles, that started for me with the sore and tender feeling prior to blistering. but I think that pain level would've had you at the doctors and even then it could perhaps be linked to celiac. I did collect some links and sample questions here on the diagnostic process however which may be of some help: Best of luck!
  5. You may already have seen this: but if not there's lots of good advice in there. Best of luck with your recovery!
  6. When on desktop highlight the text and within a second or so the quote this button above, lot easier. Mobile is a bit fiddlier granted. However your point is moot, it's the choice of passage I was referring to and maybe it was subconscious but my point remains. You didn't address the positive in your own comments afterwards either. Ok: As I said above your research can become your enemy: 'After some time I realised it wasn't helping me any more, just feeding my anxiety and sense of gloom. You don't need to know everything about this straight away, you have plenty of time. You know enough now to get on and heal. Stop reading his stuff, it's doing you no good. He's writing according to a business model and you should avoid any such blogs. Fear drives clicks. Limit your exposure to anecdotal accounts and draw your data from established scientists wherever possible. There is a lot of 'woo' out there and is does none of us any favours. Confirmation bias! You are hanging around on sites where people are suffering. Those that healed aren't posting on gluten sites, they're off enjoying themselves! All of which could be condensed as 'different strokes for different folks'. Most benefit from 6 months clean eating at the outset as healing is taking place but then many are able to add gluten-free processed foods, gluten-free oats, Corn etc that others struggle with. Some are super sensitive, others aren't. Some are willing to take a caculated risk, others don't. We each have to find our happy medium. I have my personal red lines but if Kate Beckinsdale leaps upon me in her leather vamp suit I'm not going to demand she flosses before we get it on. If I win a ticket to go round the world I'll do my research, pack some snacks and go. Trust me you wouldn't. I didn't and having multiple symptoms that I couldn't put down to anything was a living hell. I never thought I'd make 40 but I didn't know why. I envy you to be honest. To be fair to him he's probably outlining that as a state not to get into! The way to get there is to continue on the path you're currently treading. Stop going to those sites. You've had a traumatic event. Get some counselling or cognitive behavioral therapy to help you adjust. It will get better in time.
  7. Are you quite sure you need one Jen? Your doctor already sounds better than the majority I've encountered. He knew enough about you to detect celiac from anemia for one thing. I don't think there's a great deal of a role for a doctor as you start the gluten-free diet. Checking levels after a year to see how your going is pretty standard. Maybe a referral to a dietician for advice on how to adapt to the diet would've been of help though. Sorry by the way, I don't have any useful info, just love Austin and couldn't help clicking
  8. There's apps for travelling with celiac which will help in some countries. A bit of pre trip research should throw up some options in cities, maybe small towns may be a little trickier. Most supermarkets in Western Europe should have an option. If you're travelling you could print out / save on your phone some of these in case you need to explain the condition to a non English speaker: http://www.celiactravel.com/cards/ Hope it goes well Wish I'd known about the gluten-free burgers in Copenhagen when I was there!
  9. Everyone differs will probably be the common theme in answers to this. It took about 3 days for me to notice a big difference in my mood when I first excluded gluten from my diet. I kept a food diary which allowed me to track changes and that may be something you want to try? Other changes were more gradual and many months later I was noticing things which I'd never connected were resolving. I didn't have testosterone checked then so I can't say if it was affected, I've subsequently discovered its low but I don't know how much this is diet influenced. Best of luck!
  10. Against my better judgement I'll reply To be honest I wish I could speak to you in person because there's a limit to how effective communication over a forum can be and from what I've read you are almost exactly where I was not so long ago. Let me say that I think you're clearly extremely bright and have amassed knowledge on this. I also think however that your thinking at present is clouded by your mental state and unless and until you can acknowledge that you'll struggle to move forward, IRRESPECTIVE of your current physical condition. At present your intellect is pointed in one direction, you take a post like mine above and focus and fixate on the beginning, the negative. You then avoid the actual point I was making, the positive. Just look at the passage you chose to quote and then look at my post in it's entirety. You're trapped in negative, circular reasoning and any information which comes in which doesn't support or conform to that world view is ignored, downgraded or discarded. The same thought processes are apparent throughout your posts here. If I had time I'd trawl through them and provide examples but in want of that I'll simply ask you to trust me that they're there. I'm sure others will have seen them as well. Just think for a second about this forum. There are people on here in far worse situations than you or me, with more restrictions on their diet, with family members dependent on them for support, with additional physical symptoms or actual auto immune diseases. They are living their lives, having children, enjoying their working and home lives, some of them will tell you that celiac is the least of their worries compared to other issues. What's the difference between them and you (and me to be honest?). Please look again at the entirety of my last post and ask yourself why you seized upon the negative? I think you're depressed, your viewing everything through a negative prism and although it's mostly unlikely that a strangers words on the web will pierce through that, unless and until you address this aspect of your healing I think your struggles will continue. Again, sincerest best wishes and please don't take offence. My words, whether accurate or not, are offered in friendship and a recognition that we're on a similar journey.
  11. Then good luck and I hope you're soon on the way to feeling a whole lot better.
  12. Hi lo and welcome🙂 You may be better off starting a new topic and including any further info you have. For example, a test result will usually come with range info, this shows what the normal range is and helps you work out what your score means. It should also say which marker is being tested...
  13. Bite the bullet. Tell the doctors about the reaction to going gluten free and take the telling off for starting the diet before testing complete. After the biopsy you will either get a positive diagnosis or a negative. If negative, you have to decide whether to pursue the gluten free diet anyway. I suspect you will as I did. Not everyone who has a problem with gluten tests positive for celiac, either due to the vagaries of the testing (do you have damage in areas beyond the endoscope etc) or differing reactions to blood tests. Best of luck!
  14. Ok, I don't want to play amateur psychologist and I fully respect your decision, so this will be my last contribution to the thread, but when you say this: it suggests that you don't have a good handle on what counselling actually is. Neither they nor indeed you can change the facts of celiac, but they may be able to help change the way that you look at it. Ultimately they don't need to understand how to live with it, you do, and a good one can help with that. As I said earlier, you're in the middle of a grieving process but it's an unusual one. If a relative had died you'd have understanding from all around you, but that's not the case because most people don't understand the ramifications of a diagnosis like this. You're grieving for the life you had and expected to continue to lead, the certainty, the freedom to go anywhere and eat whenever, the choices of foods etc. All of a sudden they're not available and your world is suddenly both smaller and more hostile. Regardless of your current physical state it's a shock to the system. At present you're maybe moving from denial to anger, it's totally understandable and believe me I and many others here can empathise. At the same time you need your mind in as healthy and positive a state as possible, because there are obstacles to overcome, new knowledge to take on board and healing to accomplish and that happens a lot better with a positive outlook. Reading your posts I'm not sure that seeing all the different ways that people may be affected is helping you, you may be better off taking a break. I did some time ago. It doesn't need to be a living hell, indeed in time it won't seem that way. You'll get there eventually as I'm hopefully doing also, but maybe you'll get there sooner with a little help. Sermon over! I wish you the best of luck and hope you're feeling better soon.