• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Jmg

Advanced Members
  • Content count

    728
  • Joined

  • Last visited

  • Days Won

    19

Jmg last won the day on June 24

Jmg had the most liked content!

Community Reputation

163 Excellent

1 Follower

About Jmg

  • Rank
    Advanced Community Member

Profile Information

  • Gender
    Male
  • Location
    United Kingdom

Recent Profile Visitors

3,757 profile views
  1. Also if you want more choices join coeliac uk and they will send you a guide with all the safe foods in. It's also available online. Well worth it when your starting out. theres also a uk thread in the international section of this forum where we share our recommendations. no shortage of calories in my picks...
  2. I don't know who is claiming lots of uk gluten-free breads are contaminated? It's certainly news to me! I think it is possible to get a slight reaction to gluten-free breads and pastas, especially if you eat a lot. as I understand it they can contain a very small amount of gluten which can add up to more than the acceptable daily amount for a celiac. There is a cumulative effect in other words. I try to eat them more as an occasional treat rather than as a daily staple. I also find some agree with me more than otherss, but there could be other factors at play than gluten content there. For example the other additives, xantham gum content etc. I typically mix and match but regularly have genius, asda own brand, Udis buns, m and s, Newgate sourdough, those wraps which I forget the brand but are at most supermarkets., without major issues. Hope this of help, I will look next time I'm shopping for more brand names I've eaten
  3. This looks good: https://www.vegansociety.com/whats-new/blog/gluten-free-vegan-living https://www.vegansociety.com/resources/recipes/gluten-free
  4. That reminds me of the time I was in rural California and someone asked me if I was German They're speaking the beautiful South Western Ireland version of English. If you ever get the chance you should go there. It's one of the most beautiful parts of the world and the people are lovely. Albeit they maintain a sadistic pleasure in spinning tall tales to confuse hapless English visitors to their pubs...
  5. I think that's the answer. You can see plenty of others experiencing the same: My own experience is that my neuro symptoms took longer to go. The exception to this would be brain fog which happily lifted pretty quickly. I get occasional POTS on standing or a kind of sensation from in my head sometimes which is really difficult to describe which I think may relate to cross contamination but I don't neccesarily get any GI. I think its those symptoms which are maybe last to go, first to show...
  6. There was a thread on here some time ago from someone struggling to be gluten free on a vegan diet that got some good responses from vegan celiacs. Maybe worth a search, this forum has had so many members over the years who have been through similar.
  7. Welcome 3 positive looks about as unequivocal as it gets barring the endoscopy for confirmation. You should be proud of yourself for figuring this out and pushing for the test. It looks very much like you've found your answer and hopefully once the testing is complete you can look forward to feeling a lot better. There will be lots of support available here for you when that happens. Best of luck
  8. Welcome Desiree Lot's of people, myself included, wind up in the same situation you have, removing gluten from the diet then finding out they need to go back on it for testing. Unfortunately there's no option other than the challenge. I know it's the last thing you feel like after experiencing a health improvement on your diet. You need to weigh up the pros and cons and decide if you want to do it. If you do, there's lot's of advice and support available here to help you through it. For me although the initial feeling of going back on gluten was unpleasant and it wasn't nice to see symptoms return, the challenge became easier as it went on. If you do this you may want some advice on the gluten-free diet as there's lot's of ways you can slip up.
  9. Lidl this time - next to Aldi it's my addiction! https://www.lidlcommunity.co.uk/t5/Design-DIY-Gadgets/As-reviewed-by-you-The-Silvercrest-Ice-Cream-Maker/gpm-p/29960
  10. You really need to stop eating gluten. I don't think there's anything else to be said. You need to change your mindset, act as if you'd received a positive celiac test and live accordingly.
  11. Sounds like a good plan. Remember that once you've finished testing there's nothing to stop you trialling the gluten-free diet, don't assume that a negative for celiac means gluten isn't a problem...
  12. You're welcome I don't want to attack your doctor, he's the one with the knowledge, experience, qualifications etc. but it does seem as if his conception of celiac is a little narrow. There's some links and further info on testing here and the forum FAQ is stickied above as well. Finally, even if you do exclude celiac don't take that to mean that you shouldnt give the gluten-free diet a chance. It could be that you're non celiac gluten sensitive like me! So once testing is over try the diet regardless and see for yourself!
  13. Celiac can present with many different symptoms or even none (silent celiac). You have GI issues, brain fog and I may be wrong but the non alcohol fatty liver seems to be related to celiac: https://www.ncbi.nlm.nih.gov/pubmed/25617505 Can you get a second opinion? Alternatively, you could try writing a letter saying that: Given my test result, alongside the following symptoms and my observed reactions to gluten etc can you please explain how you are eliminating celiac as a potential problem? A letter can be harder to dismiss than a verbal request in a consult. Best of luck!
  14. I saw one in the store today and was sorely tempted. I love ice cream