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About ibex333

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  1. My endoscopy was when I was around 17 years old, and I'm 32 now. I am not sure how many samples the doctor took, but I am scared of another endo, because I am scared I'll never wake up after anesthesia. (a completely irrational fear) Either way, lets say I go on a gluten free diet right now. How long does it usually take for symptoms to start decreasing? (if they are indeed due to celiac disease)
  2. Please bear with me if I say more than I should have mentioned, I tend to write a lot: I have been suffering with severe anxiety, panic attacks and horrible headaches for most of my life. When I was about 15 years old, my gastroenterologist said I have celiac desease because my blood test showed highly elevated levels of whatever it is that shows doctors someone is positive for it. Me and my parents thought it was nonesense. A disease where you cannot eat bread? We never heard of that. Bread is life. Bread is what saved many people throughout history during wars and famine. All I eat is bread! Every day it's spagetti, bread, bagels, burgers, hot dogs, wheat cereals, wheat porrage, farina, and so on and so forth. I hate most meat, fish, poultry, and milk products. Even when I have meat fish or whatever, I must have it with huge quantities of bread to "not feel the meat". Anyway, in between severe diarrhea and horrible anxiety attacks, I got scared and lived gluten free for about a month. I bought rice cakes in a health food store, potato pasta, and other things like that. I noticed that my anxiety isn't getting any better, and after I got a CAT scan and realized I dont have a tumor, my diarrhea magically stopped. I continued suffering with anxiety and headaches, but went back to eating tons of wheat products because I was sick and tired of gluten free diet. When I was something like 17 years old, I had an endoscopy done, specifically aimed at taking a sample of my insides to test for celiac desease. The test came back negative! But my doctor said that it would be nice to do another test to check the intestines where they go from the rear, not from the front if you know what I mean... I refused because I was terrified, having experienced anestesia for the first time in my life during the endoscopy and the overall experience was horrifying for me. Doctor did not press me - he said most likely i DO NOT have celiac disease anyway. After many years of suffering, somehow my headaches and anxiety subsided and I returned to normal life. I didn't do anything to make it so. I just suddenly became better after an 11 year nightmare. I lived for 7 years, mostly headache and anxiety free and ate tons of wheat products, but my GP, every year consistently told me that each of my blood tests are coming back positive for celiac sprue colitis. I asked her, why is it then that I am eating bread, pasta, etc, and I am fine?! She said it doesnt mean anything because celiac disease can be in remission but may come back in full force at any time in my life. I just ignored her.... Now 32 years old, all of a sudden I developed severe anxiety, headaches and panic attacks all over again. The nightmare is back! I want to know if this may have to do with the celiac desease. I have absolutely no diarrhea. And very rarely do I have any stomach ache or anything like that. There is no particularly foul smelling stool or most of the symtoms of celiac desease commonly listed. In your opinion, is it possible that I am still gluten intolerant? For those that do not like to read a lot, here's a summary question: "Is it possible for me to have celiac desease if gastroscopy says I am negative, but 3 blood tests over 3 years say I am positive?" (I do not have any diarrhea.)