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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Matt268

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  1. Thank you for your help. I will make sure to ask specifically for those tests when I go to see my Doctor. I will update when I find out.
  2. The problem that I think I have here is that the colonoscopy/endoscopy was done prior to the antibody test that was done. I am not sure if the Gastroenterologist checked for Celiac or not. Perhaps I need to have another procedure done? That would be a pain.
  3. Thanks for the response. I have had an antibody test, I just can't remember exactly what it was called and I don't have the paperwork with me right. The first Doctor came to the Celiac conclusion based on my antibody test. I will try to find the paperwork and post the test.
  4. Ok. I am 30 years old and for the past 2 years I have been dealing with a lot of bowel issues that don't seem to ever go away. I noticed that I was having a lot of different types of stool and a lot of bowel irritation. I went to the Doctor to have them run tests and no one could find anything so they called it IBS - I never had this issue in my life until 2 years ago.The issue kept going and I couldn't seem to shake it - in fact, I started feeling light headed and experienced a lot of confusion and fatigue. I decided to go back to the Doctor who tested me for a lot of different issues, some of which included Hep. C., Mono (which he said I had at one point but not currently), white blood cells, MRI (for the head stuff) and a ton more stuff which never yielded results. I even had a colonoscopy/endoscopy (they found nothing but mild gastritis). The Doctor finally said that he wanted to test me for Celiac. I was tested and then diagnosed with Celiac Disease due to a blood test that showed a reaction to Gliadin Peptides. I had a second Doctor take a look and this doctor said she was going to test for the "Celiac gene". According to the second Doctor, I didn't test positive for the gene - therefore I did not have Celiac. So I went back to consuming Gluten. This all happened about a year and a half ago. Fast forward to about a week ago - the symptoms have not stopped for two years, sometimes I feel that they are worse. I went to a new Doctor, in a completely different state who has looked at my records and is convinced that I have Celiac or some variant, despite the test that said I don't have the gene. I am at a loss here and I have no idea what to do. I feel like I can't even live a normal life anymore because I always feel sick. I am sick and tired of not knowing what is wrong with me and whether or not I actually have Celiac or some form of Gluten intolerance. Can anyone help me here?