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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About fayejw

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  1. Exactly :-) I just feel so grateful to have found the answer, and the only person that needs to know that is me.
  2. I just wanted to thank all of you for your responses. Now I've had a little time to process everything, and I've been gluten free for three weeks, I've decided an official diagnosis is not necessary. I've just felt so much better for not eating gluten. Stomach pains all gone, eczema all gone, redness on my face has disappeared - it's been like a miracle. It was a huge, huge thing for me, given everything I've been through, and how terrible I'd felt for so many years. But I can see that it doesn't matter if I have the gut biopsy - I would never go back to eating glutenous foods. Seven miscarriages down and I'm unsure if I have the strength to try for another baby now I'm gluten free. I'm just going to take the time to enjoy feeling better and see what the future brings. Thank you all again for your support and words of encouragement. I wish you all health and happiness on your journeys :-) X
  3. Thank you very much for the test info. I am in the UK, so coeliac testing has a protocol on the NHS that all doctors follow - they don't do the panel above (I don't even know if you can request it? Can you?). If you test negative to anti-tissue transglutnase and IgA is perceived to be normal (not low), then your only options are the biopsy (if the doctor will refer you) or to go private (very expensive). I just don't think I have it in me any more to follow up on it. I don't want to eat any more gluten. Is that bad? I'm so worn down by it all and so tired of feeling like crap. I'm just worried that a lack of an official diagnosis will make me somehow seem like a hypochondriac or something
  4. Please let me know your thoughts - all opinions welcome (but please be gentle, I am feeling emotional!). I'll try and keep the story short: mother has IBS and psoriasis. Never tested for celiac disease. Grandmother had severe osteoporosis, never tested for celiac disease. Me (age 39) : recurrent, worsening digestive issues, cramps, soreness, swelling, diarrhoea, endless gas and extensive bloating. Acne all my life. Eczema patches on my body. Keratosis pilaris on arms and thighs, diagnosed recently with a ventricular ectopic beat (benign) as suffering from increasingly bad skipped heart beats. Seven first trimester miscarriages (all investigations came up negative, including fetal testing), and two live births. 18 months ago I did a home coeliac test which came up positive. The test checked for IgA AND IgG antibodies. I requested a blood test at the doctors, but when I called to get my results I was told over the phone they were negative and the doctor's comment was "Normal, no action". (Note - my usual doctor was away and this was all done by a different doctor) Last week, finally at my wits end with the bloating and pain, I requested a copy of those results so I could check the numbers myself. I was low (out of range) for potassium and calcium. I had a high (way out of range) level of serum C reactive protein. IgA was just listed as "negative". I went back to my usual doctor today and he said with my results that they should have at least repeated the test, or done further investigations. He said it was in all likelihood a false negative as the IgA test isn't always a reliable indicator. In the UK they no longer do an IgA count, just a screen for it's presence at a certain level, so I know I could be IgA deficient. The home test implies that I got a positive result for the IgG component, which would make sense as to why the "official" blood test was negative. I've been through four miscarriages since I was told my official test was negative, and I have been so depressed and bloated and miserable for two years that I am just at the end of my strength. 6 days ago, in desperation, I stopped eating all gluten. By day 4 my eczema had lost it's redness and stopped itching. My insomnia is almost gone. My mood has improved beyond belief, and my stomach - my fat, bloated, sore, painful stomach - has been flat for 6 days. My doctor said today that we could request a biopsy, but that I would need to eat gluten. I am so crushed and emotional about what I have been through, possibly needlessly. I am so sad that the doctor that reviewed my results didn't think that all the out of range numbers meant any follow up was needed despite the official "negative" for IgA. I refused the biopsy today, I just feel that I want to be left alone to try to put my life back together. But is this a mistake? When people ask if I am coeliac, how can I explain all of this to them? Should I just persist in order to get a diagnosis? I just keep crying for all those babies I lost that may have just been because some stupid doctor somewhere thought that I didn't need any further attention. What would you do? I don't ever want to touch gluten ever again after all this. Sorry for the long rambling post. I just need some advice on what to do. I don't want people thinking it's "all in my head" or that I'm just jumping on the bandwagon, but equally, I don't want to subject my body to any more gluten given how much difference it's made in just a few short days. I just feel exhausted and emotional over the whole thing :-(