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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About rimsch

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  1. Thanks for your answer! I will talk to my doctor about that stuff. Sorry but I have to repeat this question since it's really important for me and my diagnosis:
  2. Thanks for your answer. Could even the amount of 23.1 even though being in the normal range for my GAF - 3X Elisa antibodies (I believe, it's DGP IgA) be an indication of my "immune system still making me sick"? I mean, the fact remains: My blepharitis (eye condition) doesn't feel better after being gluten-free for 9 months. What do you think about the gene-test? Do you agree with my doctor? In case such a test was be negative, could I "forget" about a possible celiac-disease and move on?` (This whole celiac-thing really poses a problem for me: There are certain medicinical approaches that are worth giving a try for my condition. However, some of them have problematic potential side-effects, partially change things about your body maybe even permanently. Therefore it would be good to know BEFORE trying that stuff if my symptoms could be celiac-related and wether or not I should hope and expect my symptoms to improve just by not eating gluten.)
  3. Not sure what you guys are talking about but here in germany we have this: http://www.lammsbraeu-biobier.de/bio-biere/detail/glutenfreie-spezialitaeten/glutenfrei/ However, this brewery apparently removes the gluten from the already brewed beer. Therefore it hasn't anything to do with "gluten-free barley" even though it indeed is brewed with barley. Edit: The brewery "Lammsbräu" that produces this gluten-free beer I posted the link to is honest enough to acknowledge that there have been celiacs reacting to their beer. Apparently, they even conducted a study in cooperation with a professor. I haven't read the study but the result was that they still can't make out the reason for some celics reacting to their beer. They assume that some celics may have "multi-allergies".
  4. Thanks for your answer! My doctor agrees that my situation is not easy to evaluate. She suggested either making a gluten-challenge once again to see if the IgA-antibodies go up again or conducting a gene-test. According to her a negative gene-test would mean that it is "extremely unlikely", nearly impossible that I have celiac. 1. Out of 5! different blood tests there is ONE which indicates that I have a problem with gluten. 2. I didn't write that here but my biopsy was also negative (4 samples). (Before I did the biopsy battened myself with pizza, burgers etc. for weeks since I figured it could be the last time in my life ) 3. My symptoms haven't really changed since I started the diet. The idea was that maybe my seborrhea which causes a blepharitis could be triggered by gluten. However, even though my acne tendentially improved (obivously there is a connection between seborrhea and acne) my blepharitis is still the same basically. All in all: Yes, there still is the possibility that I indeed have celiac. Still, if one considers the facts I'd say the probability that I have celiac is <50%. I'd like to get other opinions on that. Many doctors seem to suggest test-diets for periods like 2-3 months. I am aware that this can be too short. However, even the DZG - "german celiac association" - suggests 6-12 months. I've never heard of 1-3 years. That seems rather long. I don't think this is a problem in my case. I've been very strict and careful about not eating any gluten. Also, the only thing I can think of that even has something made out of gluten-sources in it is alcohol - gluten-free beer as well as Vodka etc. Now, I really don't drink often so... Last but not least: I won't do anything rash. I haven't eaten any gluten so far and I won't be doing that for at least the next 3-4 months (to make the 12 gluten-free months as suggested by my doctor).
  5. Hello, it's probably the best to just dig this up. Check out post#1 for my initial test results. So, atfer being gluten-free for about 9 months now (my doctor suggested 6-12 months to wait since my symptoms are probably only influenced slowly by gluten, if at all) I have done another blood-test. The results are basically as displayed in the test shown in post#1. However, Gliadin IgA with the GAF - 3x test changed into the normal specturm even though it still remains at the limit. (23,1) What do I make of these results? My symptoms havent changed really so far. However, even if the symptoms aren't related to celiac I'd still like to know if I'm potentially in "danger" of doing something unhealthy for my body when eating gluten. celiac-antibodies Ergebnis ( = result) Normalbereich ( =normal range) Gliadin (GAF – 3X) – IgG: Eliss < 2.0 U/ml < 25.0 Gliadin (GAF – 3X) – IgA: Elisa + 23.1 U/ml < 25.0 Endomysium – IgA - Ak (IFT) < 1 : 10 Titer < 1 : 10 Transglutaminase – IgA – Ak (Elisa < 1.0 Ratio < 1.0 Transglutaminase – IgA – Ak (Elisa) < 2.0 E/ml < 20 Thanks in advance for your efforts! Best regards, rimsch
  6. Thanks for your answers! What exactly do you mean by the advice to "not overdo the gluten"? Can it influence the biopsy result in a negative way or is it "just" about my health maybe being unecessarily damaged if I eat too much gluten during the challenge?
  7. Hello, currently I'm doing a gluten challenge for the biopsy I'll have to take in about a month. Since I generally eat extremely healthy I decided to make the gluten challenge a little bit more comfortable by eating burgers, pizza, etc. - stuff that I normally don't eat. My question is: Are products like pizza, burger, cookies, etc. as good as normal bread for an effective gluten challenge? Or should I start eating the often proposed "2-4 slices of bread" per day? Also, what do you think about products that basically are pure gluten like http://www.amazon.com/Bobs-Red-Mill-22-Ounce-Packages/dp/B000EDK5LM/ref=sr_1_3?ie=UTF8&qid=1406556850&sr=8-3&keywords=gluten ? Does it make sense to eat stuff like that on a regular basis for an optimal gluten challenge? Thanks in advance for every answer! Best regards, rimsch
  8. Hello, just wanted to thank you for your answer. Hadn't had the time to visite this site, so I just saw your post. However, I already arranged an appointment for a biopsy. Since the doctor has some vacation time during the middle of august, I'm gonna have the biopsy in about 2 months from now. This means that I will have had an 8-week gluten-challenge before the biopsy which should be enough - especially because it isn't like I was on a gluten-free diet for a really long time now.
  9. Hello, I just would like to push this thread a little bit. Maybe no one saw my last question because I edited too late!? I would be really thankful for an answer! Best Regards, rimsch
  10. Thanks for all your help! I can't really be sure about that. I believe that some of the symptoms have improved. But the placebo effect is empirically proven and I also know how great I would feel about having a gluten-intolerance (finally a solution for my problems): I don't trust my own judgement on this issue (at least not after only 38 days of gluten-free dieat and vague improvements, especially since the improvement is somehow vague. Additionally one possible good indicator is gone since I stopped consuming lactose half a year ago (since I did that I stopped having regular and serious indigestions). And the most important thing is that the major health problem I have is lid margin inflammtion on both eyes. In my case this is basically caused by clogged glands (meibomian glands) due to an overproduction of meibom secretion (which is closely connected to the normal sebum production of the skin). This means that probably the normalization of meibomian-secretion-production could take some time to really show results since the glands would still be clogged. Anyway...I guess I'm gonna think about in the next days and then I will decide. I tend to do the gluten-challenge so that a biopsy can be done. Edit: There's another question: A doctor told me that after for example being on a gluten-free diet for 5 months it would be necessary to eat gluten again for 12 weeks to make a biopsy. Considering what you wrote (and also the university of chicago) wrote it seems to me that the 2-4 weeks gluten-challenge before an endoscopy are a general advise no matter how long you were gluten-free?! Is that right?
  11. Hello, there is probably no "right" answer to my question but since this forum is full of experienced celiacs I thought I could give it a try. As I already explained in another topic ( http://www.celiac.com/gluten-free/topic/108035-interpretation-of-test-results/ ) I did have a blood test for gluten-intolerance and it was partly positive. (One pretty specific test was positive, the others were negative.) The problem is: After I took the blood test I stopped eating gluten and now I'm gluten-free for about 38 days. Since my blood results weren't that clear I would really like to make biopsy. BUT: If i do the biopsy and for example start consuming gluten again for 4 weeks it would completely destroy the diet I already started and for my gluten-free-diet there would be a delay of about 2,5 months: ~ 1,5 months of the diet I already started + ~ 1 month of consuming gluten... So, what's your opinion? Of course it would be great to be completely sure about the diagnosis but on the other hand I'm thinking that I would have to do a diet anyway: (Partly) positive blood results + negative biopsy probably wouldn't put me off following this "gluten-theory", so that I still would have to make a diet... Probably the strongest argument for a biopsy I can think of is the follow: If I dont do the biopsy and have no absolute certainty about being a celiac it would be a desaster if I would get constantly glutened "secretely" during my diet by eating something that unexpectedly contains gluten. Then there could be the case of me being a celiac without seeing real improvement of my symptoms during a diet... What also bothers me is the fact, that a doctor told me that there are celiacs who felt first symptom improvement 6-12 months after the start of their diet. I imagine it pretty hard to be on a gluten-free diet without a waterproof diagnosis and not feeling any real improvement for more than 6 months.. Anyway, it all comes to one simple question. After reading about my situation and my thoughts about it: Would you advise me to start eating gluten again so that I can do a biopsy? Or would prefer staying on the gluten-free diet? Thanks in advance! I really appreciate your effort! Best regards, rimsch Edit: Oh and a last aspect: Since gluten-intolerance causes nutrient deficiency: I'm somehow concerned about the danger of damaing something permanently by intterupting the diet. I mean, if for example my eye problems, more concretely my lid margin inflammation/dry eyes, are caused by processes that are based on a gluten-intolerance it can't be good if I extend the "time of damage" by going back to gluten again. Is this a considerable concern or am I too concerned?
  12. Thanks for your effort, I really appreciate that! And for everyone else who knows more about these things (especially if other diseases can cause false positive dgp-tests; and if there are such diseases it logically would be interesting to know which diseases we are talking about) , feel free to post. I would be very thankful!
  13. Thanks for your answer! The link I posted ( http://www.biognost.be/fr/anti-gliadin-gaf-3x-elisa-539.aspx ) says: " Recently, areas of gliadin could be identified against which only patients with coeliac disease and not healthy individuals develop antibodies. These areas were fused by means of biomolecular methods (Institute of experimental Immunology, Luebeck, Germany) and as recombinant "gliadin-analogous fusion peptides" (GAF) form the basis of the innovative Anti-Gliadin(GAF-3X) ELISA. [...] The investigation of antibodies with conventional anti-gliadin test systems is no longer considered to be state of the art. " And the "Deutsche Zöliakiegesellschaft" (german celiac association) says that the GAF-test and the DGP-test would be comparable. (And, as I said, the lab says in the short evaluation of the test that is has a specifity of 95%") That would be interesting for me! Is there something like a list on which possible other diseases are named that could cause a positive dgp IgA test? Because for example http://www.biognost.be/fr/anti-gliadin-gaf-3x-elisa-539.aspx in this study it seems as if they used three groups of test persons to evaluate the specifity/sensitivity of the GAF-test: celiacs, non-celiacs and patients with rheumatic diseases. So my thought is: If false positive GAF/dgp tests are mostly caused by rheumatic diseases then I could be pretty sure about not having a false positive result. Do you know diseases other than rheumatic ones that can cause false positive dgp-tests? Or, as I already asked, is there a list with the diseases that normally cause false positive dgp-test? Thanks in advance!
  14. Sorry, for posting again but is there really no one who can tell me something about my test results? It would be very nice cause I'm just not sure about how to interpret these results.
  15. Hello, I got the results of my blood tests but I'm not quite sure how to interpret them. I hope you are able to make use of the german expressions (hope they are similar to the english ones) since I don't want to translate them because I don't know enough about celiac testing to this in an appropriate way. celiac-antibodies Ergebnis ( = result) Normalbereich ( =normal range) Gliadin (GAF – 3X) – IgG: Eliss < 2.0 U/ml < 25.0 Gliadin (GAF – 3X) – IgA: Elisa + 57.2 U/ml < 25.0 Endomysium – IgA - Ak (IFT) < 1 : 10 Titer < 1 : 10 Transglutaminase – IgA – Ak (Elisa < 1.0 Ratio < 1.0 Transglutaminase – IgA – Ak (Elisa) < 2.0 E/ml < 20 According to the lab which conducted the tests the test which was positive (Gliadin GAF - 3X -IgA:Elisa) has a specifity of 95% and a sensitivity of 85%. So it seems to be pretty precise but on the other hand the other tests were all negative...For the translation: From what I've read the "Gliadin GAF-3X-IgA Elisa2-test seems to be pretty similar to the dgp-test. Edit: Found a link where the specifity of the anti gliadin "GAF-3X: Elisa"-test is described. http://www.biognost.be/fr/anti-gliadin-gaf-3x-elisa-539.aspx (just in case this test more popular in germany than elsewhere) One aspect that may be important concerning my test results is that I was on a gluten-free diet for 3 weeks, then ate gluten again for 3 weeks - and then I took the blood test. I think this could be important because I read on this forum for several times things like the dgp-test "is on of the fastest to turn positive if gluten is sneaking into your diet" (nvsmom) Oh, and I think it was also nvsmom - thanks again for all your answers - who told me that I should remember that a "positive is a positive". Does this mean I should consider myself a celiac now since I have a "positive"? So, all in all: How reliable is the dgp-test and what do you think specifically of my test results? Thanks in advance!