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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Get pictures if you can and contact GFWD if true and perhaps we can inform others better about this issue.
  2. First this is a old post please check date, second, are you celiac/been tested? You should probably see about a gluten challenge and testing if you have not. Or are you confirmed to have a gluten/wheat allergy? What kind of testing was done to determine this? Or is it a NCGS gluten issue? Sorry for the questions but different people have different issues and it is a bit hard to address them without more information. Perhaps start a new thread and feel free to introduce yourself. We always welcome new members and are glad to help out. You mention allergy but also mention swelling stomach/gut which is is sometime a celiac reaction generally.
  3. Magnesium, B-vitamins, Vitamin D etc. Should probably be supplemented. For the fog, stress, brain issues I swear by my regime of Liquid Health Stress & Energy, and Liquid Health Neurlogical support 1tbsp each 3 times a day in a beverage before a meal. Works wonders, magnesium is also wonderful, you did not mention constipation or D so I do not know which is best for you. There is Doctors best and Natural Vitality, Doctors best works great for relaxing and is easy on the gut but Natural Vitality is easier absorbed but can be harsh on the gut, it also is great for constipation. Doctors you dose as it tells you, Natural Vitality, you start off at 1/4 tsp and up it slowly to full dose over 1-2 weeks. Liquid Health also makes Vitamin D3 in a sublingual form. ALL of these can be found on Luckyvitamin.com and on Amazon. These will help with you fog, and anxiety.
  4. Soft blended, soups, porridge, Personally I had to avoid the follow for my last gluten attack Spices (made it burn), any carbs, sugars even in trace amounts caused gas, We normally suggest removing dairy and oats also as they become problematic during healing. Simple soft cooked egg dishes (coconut/almond meal quiche and microwaved omelettes), nut meal porridge sit best for me. Many swear by peppermint and camomilla tea, and peptobismal but neither of those work for me personally, other swear by Imodium for the D. There is a product out there that is supposed to lessen the symptoms of a exposure called GlidainX that helps to break down some of the gluten in the intestines so it is not as bad but you have to take it right after realizing the issue. Not tried it personally but after my last exposure and the following 4 weeks of random bouts of D I had I would have tried anything lol. MY D did no stop til my antibodies went back down and my exposure was a low and slow exposure to a CCed food staple....
  5. If your concerned on wheat/gluten, see about getting a actual celiac blood test done, you have to be eating wheat for the test to be accurate. After that you will need the follow up endoscope and biopsy. http://www.cureceliacdisease.org/screening/
  6. I play a few online games...not as much as I used to, and I no longer really do the social aspect of them. EVE Online when bored I might just get on it and mine some asteroids, or run missions while watching anime or reading a book...makes me feel productive "Multitasking" lol. I have a few phone/tablet games like TrainStation where you just send trains out on contracts every day or so also.
  7. Two options for online noodles that are lower carb, the cellophane noodles as suggested but I really do swear by Miracle Noodles which are No to low carb. They have and adjustment phase...they are pure fiber noodles. They can cause issues if your not used to them, or if you have bad gut bacteria. But they have enabled me to enjoy pasta, rice, and noodle dishes without issues....>.< I always keep their MRE meals in my fridge for when I got to eat on the go. But anyway for a lighter easier ramen, or noodle soup they are also great, Good for pasta, fried rice, and risottos also without the heavy feeling. I suggest a sampler pack to get a feeling for each before doing a case purchase. Also keep a eye on them for sales. I normally nab a case when it goes on huge sale every few months. PS you HAVE to rince and preboil, then rinse again to give them a neutral taste. https://www.amazon.com/Roland-Bean-Thread-Noodles-8-8/dp/B0001840KW/ref=sr_1_sc_2_a_it?ie=UTF8&qid=1516107778&sr=8-2-spell&keywords=celloohane+noodles https://miraclenoodle.com/collections/miracle-noodle-rice-products
  8. Nutritional Yeast is something completely different....stick to KAL brand or BRAGGS brand they are safe. It is a inactive yeast and is a super food chock full of all kinds of vitamins/minerals. Has a deep nutty/cheesy flavor. I use it to make vegan cheese sauces, vegan cheese, seasonings ,etc. Sweetener and vanilla and it taste a bit like cream cheese....I just love the deep nutty flavor.....I have 2-3tbsp of it a meal in a side, dip, or sauce to maintain certain nutrients. You can get a HUGE 22oz container of it on amazon for $16 Go ahead and look it up then look at the nutritional profile for it....you will see why I call it a powerhouse food. Amusingly other companies make some epic stuff with it like Rythem Foods uses to on their kale chips....wish btw make a great garnish crushed over or mixed in scrambled eggs.
  9. Chewing Your Food

    It makes digestion easier...I like to blend my meals and cook them like blending veggies into my eggs with coconut flour and almond flour, almond milk to keep it moist and cooking it slow and low or in a microwave to make super soft egg dishes that do not need to be chewed much, or blended soups, porridge made of nut meals, etc. I turn to these when my stomach is being disaggreeable. I also take digestive enzymes to help break down food to get more from them. Jarrow makes porcine enzymes that are much the same as human pancreatic enzymes. PS you should probably avoid oatmeal, and gluten free processed foods if she still has digestion issues. These processed foods do cause issues for many of us new to the diet or dealing with complications. Oats and dairy for one are suggested to be avoided for months til we heal enough. Oats are commonly contaminated and some of us even react to oats the same as gluten. Diary is a issue due to the damaged villi not producing the enzymes to break down lactose, so we suggest avoiding it and removing it from the diet. gluten-free processed foods are normally loaded with starches, gums, emuslifers etc. Not really a healthy food or something to eat while still having digestion issues so a whole foods diet free of processed foods is best for now.....note on the pasta...try a rice risotto in marinara with ground burger instead...much easier on the gut...might even blend into a soup.
  10. Got a cold this week end, threw my gut in a wack. been eating nothing but nut meal porridge for the past few days. Base is 2 cups liquid/nutmilk, 2 heaping tbsp coconut flour 2 tbsp almond flour/butter and sometimes add in a tbsp of ground seeds. Bring to a boil while stirring constantly and it thickens up. I sometimes add in additional nutritional yeast and egg white stirring til it thickens up. You can go savory or sweet with it......I use this as I can not handle carbs/sugars. I sometimes water it down with a extra 2 cups water.
  11. Produce waste from your kitchen IE celery butts, carrot tops, apple cores, seeds form melons/squash, and melon/squash rinds. Also hay is nice, I know many give grazing animals alfalfa for treats espesially during winter months.
  12. I was going to chime in as a gluten free chef as to some alternatives here of similar options I have done for people EASY ones get a lundberg rice kit of choice, stir in browned ground meat of choice, sausage, or shrimp. I will link these. Other things I grew up in a Mexican family...we did not do hamburger helper but we did often do something called migas, were you dump some crushed up frito or tortilla chips in a frying pan, and cracked a bunch of eggs over them and scrambled it up then topped with shredded cheese and either ate it as a burrito or with a fork with some salsa over it. I recent redid this with protein no carb tortilla chips and had a nostalgia child hood flash back of how a cheap and easy meal can be so wonderful lol. Anyway have a look as these lundberg kits and imagine them with browned burger, sausage, bacon, or shrimp in them for some easy meal ideas. http://www.lundberg.com/products/entrees-sides/
  13. Symptoms for this disease constantly change, I could go over my story but it would be a few pages. Chances of cancer are low, you probably just got worse reactions now and this is very common, especially as we start to get it out of our system, our body reacts to it coming back in MUCH for violently. Also Cutting it out now is VERY important I was in my early 20s before we got it diagnosed and the damage caused a bunch of other issues...allergies, food intolerance, other AI disease that make it where I can not consume carbs/sugars.....and the obvious things like dairy intolerance etc....got that 10+ years ago. Point is nip it in the bud now and you have much less to worry about in the future. Here are some links to some foods to make this less daunting PS go whole foods only and treat processed gluten-free foods as treats...the higher starch and sugar ratios in many are not so good for your health lol. I personally am grain free keto. https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/ https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ PS Worry and anxiety go with this disease and will flare up with exposure, this is a combination of nutrient deficiency of B-vitamins, vitamin D, magnesium, etc. Caused by damaged intestines, and in some of us a aspect where our immune system attacks our nervous system and brain. These will cause the anxiety and stress to worsen with brain fog, confusion, and I will admit moments of impending doom feeling. I have to up my anti stress regime with this, and I swear so much by it I doubt I could operate with out it. I use Liquid Health Stress & Energy and Liquid Health Neurological support 1tbsp each 3 times a day. I also dose magnesium to tolerance rotating between Natural Vitality Calm and Doctors Best. The Calm can cause loose stools if you take to much but really helps with the hard stool, constipation issues that come with low magnesium levels (magnesium deficiency can cause constipation). If you want to start magnesium I suggest calm at 1/4 tsp a day then slowly up it over the period of a week or two to the full dose or to tolerance (tolerance refers to it causing loose stools then you dose back)
  14. Correct, wheat is a allergy to you like corn is for me I imagine....it started off minor for me actually...just fever....it got worse over the years...now I get blood blisters in my mouth and s$#& blood when I eat it.....if it touches my skin I break out in a rash...>Allergies have tendencies to get worse or better as we get older and like celiac being reintroduced later to the culprit can cause different reactions. Worse case with a allergy is anaphylactic shock, this is why we mentioned a epi pen....PS I have a friend who works for a CVS, if you need a epi pen CVS has generics and coupons they can apply to checkout if they know how that gets you them for less then $15 each. We said avoid the gluten testing for celiac btw because it involves eating gluten every day for weeks to ramp up your antibodies to be tested....if you allergic...well you see.
  15. This is a old post from 2013, you might want to put your son back on gluten and do what we refer to as a gluten challenge, and get tested for celiac disease. This might seem odd but you can actually get school plans, and help if your son is medically dianosed with this disease. Even if he does not have celiac there is such a thing as NCGS (Non Celiac Gluten Sensitivity), and he might just have to avoid it regardless...heck gluten used to turn me into Mr.Hyde, all rage, scream, punch walls.....it was causing gluten ataxia and my own immune system was attacking my nervous system causing confusion and anger....this also led to brain and nerve damage. https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/