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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About ch88

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  1. There is a lot of information on site about living with Celiac disease. A good idea is to take a look at the "coping with" section and the "newbie info 101" thread. There is a lot of good information about cross contamination and proper nutrition.
  2. That is a good choice. That way you can have an official diagnosis. I regret not getting a blood test as it would have made explaining things to people around me a lot simpler. It is common for family members and other people not to understand celiac disease and to think that it is a eating disorder or that is is all in the head. That would have made my life a little bit easier. I probably would have still skipped the biopsy.
  3. I heard that muscles are mostly made of glutamine. Glutamine powder is available at walmart, is labelled gluten free and it is cheap. It might also help repair your gut. I take it regularly.
  4. I have tried removing nightshades and I don't think they effect me much. With some experimenting I have figured out how to successfully lower my uric acid blood levels and control my gout. Gout is one form of arthritis that is caused by diet in most cases and can be controlled by limiting alcohol, high purine foods and fructose.
  5. No, I didn't get a endoscopy or even a blood test. I got digestive as well as other problems though on a number of occasions after being gluten free and accidentally eating something with gluten. My symptoms were severe and dramatic so it was obvious to me that I had celaic disease. I would ask the doctor what the endoscopy test is for and if there is any reason to take it besides confirming the blood tests. From what I have read a false positive result on a blood test is unlikely but I don't know for sure.
  6. For me personally a medium result, in that situation, would be enough to convince me that I had celiac disease. Probably the standard of care is to also get a biopsy. Going gluten free is difficult so some people want to do all the tests they can so they can make the best choice. Generally more testing is thought of as providing better patient care. I think it is a personal preference thing though.
  7. I have been eating dark chocolate bars as well as cocoa powder. Both are highly processed (this is an exception to the no processed food rule) which I am sure removes a lot of the nutrients. I might try the nibs as I am sure they are more nutritious and they look really good. I am suspicious of using hemp, for myself, but it is interesting that chocolate and chilly peppers have some of the same chemicals! I actually tried chocolate as it has flavinoids which act as a "xanthine oxidase inhibitors". I have gouty arthritis which is caused by a build up of uric acid in the blood. Coffee and an chocolate are thought to help with that. I might react negatively to coffee though so I am trying chocolate.
  8. You could try removing all grain and dairy and see if that helps. Processed foods can have cross contamination. Lactose intolerance is common with celiac disease. Fruits are high in fructose and it can be difficult for some people to digest fructose if they have digestive problems. Vegetables are healthy and nutritious.
  9. I don't know for sure but if you have a emotional roller coaster it may be do to food sensitivities. The pattern however may be difficult to figure out. I also removed all grains and milk from my diet. I limit my fruit and fructose consumption (fructose binds with tryptophan in the gut) and don't eat processed food. That might be something you could try. Alcohol can be problematic as well as a diet too high in protein or fat. Vegetables may be your best bet as far as a healthy nutritious diet. I take glutamine powder as unbound glutamine is the preferred food for the cells that line the intestine. It is known to help with "leaky gut syndrome." I think it really helps!!! Glutamine powder is gluten free and it may help repair damage to the brain blood barrier as well. I also am experimenting with dark cocoa powder as it is rich in antioxidants and flavinoids which can help with healing and improving mood. Another option would be to research the AIP diet.
  10. From what I have read online there is about a 1-3% chance of getting a false positive for celiac disease from a blood test. Was it a blood test that you got done? It may be worth your while to get a biopsy or more testing just to confirm it. I know being gluten free is a pain but it is better than getting cancer or other auto immune disorders.
  11. Gluten can cause the mental symptoms. There is a strong link or cross reaction between gluten/the brain, dairy/the brain, and dairy/gluten. http://brainhealthbook.com/new-study-shows-gluten-dairy-cause-brain-autoimmunity/ Some other foods like oats, corn and soy may also be cross-reactive with celiac disease.
  12. Gluten withdrawl is common. Four days is not enough to tell if the diet works. I would wait a few weeks at least. A lot of people with celiac diease also have to give up oats, dairy, corn and a few other foods that also effect them mentally.
  13. Here is some information that people might find helpful in relationship between brain health and food. Milk intolerance is a common problem with celiac disease. This could be because wheat damages the intestine which makes it harder to digest milk. If a milk sensitivity is merely and intolerance it probably isn't a big deal. If milk is triggering an immune system response on the other hand this is a lot more serious. I think that it is likely that a lot of what is considered lactose intolerance is actually an immune system response to milk. Some people also need to remove a long list of other foods before they feel better. I think each person is different in this regard. Here is some technical papers that people might find helpful about cross reactivity: Gluten and other foods: http://file.scirp.org/pdf/FNS_2013011516575568.pdf Critique of the above study: http://paleofoundation.com/19-gluten-cross-reactive-foods/ Corn and gluten: https://link.springer.com/article/10.1007%2Fs11130-012-0274-4 Dairy and the brain: http://brainhealthbook.com/new-study-shows-gluten-dairy-cause-brain-autoimmunity/ Dairy and gluten and age: https://www.ncbi.nlm.nih.gov/pubmed/19290628https://www.ncbi.nlm.nih.gov/pubmed/19290628 I am also curious what other foods people are sensitive to and if they get the same type of reaction that they get from eating wheat.
  14. I am now gluten and night shade free. I used to have extreme anxiety and social phobia and was rather psychotic, now I enjoy being around people and am very calm. Gluten was the big change, and I think eliminating night shades has also helped. The amount of change that I experienced was extreme. Keep in mind that it can take a long time of being 100% gluten free (no processed food, cross contamination, oats etc) for the mind to improve. Most sources recommend trying going gluten free for at least a year straight to see if it improves mental health. 5 days is not enough time time for the body or mind to heal. Some people say that they get more anxiety at first when they go gluten free and then they see an improvement. https://www.verywell.com/what-is-gluten-ataxia-562400?utm_source=facebook&utm_medium=social&utm_campaign=shareurlbuttons I take St. Johns Wort which I think also has helped lower my anxiety level.
  15. I also asked some people on a diabetes forum. They said that it was most likely my spike in blood sugar in the morning was something called the "dawn phenomena" and that it did not necessarily mean that I am diabetic or pre-diabetic. I was getting reading from 145 to 110 in the morning. My bloods sugar before dinner is always within the 90 to 105 range though which is considered normal. I get a little bit of stress during the evenings and at other times, but it much worse in the early morning. This happens even when I get plenty of sleep. I am wondering if there is something up which is causing both the spike in blood sugar in the morning, and the anxiety. Maybe a problem with the thyroid or some other food sensitivity, or differences in how I metabolize things. I know I am not getting cross contaminated with gluten. I could get an HA1c from a doctor but I'm not so worried about it now.