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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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  1. Gluten can cause the mental symptoms. There is a strong link or cross reaction between gluten/the brain, dairy/the brain, and dairy/gluten. http://brainhealthbook.com/new-study-shows-gluten-dairy-cause-brain-autoimmunity/ Some other foods like oats, corn and soy may also be cross-reactive with celiac disease.
  2. Gluten withdrawl is common. Four days is not enough to tell if the diet works. I would wait a few weeks at least. A lot of people with celiac diease also have to give up oats, dairy, corn and a few other foods that also effect them mentally.
  3. Here is some information that people might find helpful in relationship between brain health and food. Milk intolerance is a common problem with celiac disease. This could be because wheat damages the intestine which makes it harder to digest milk. If a milk sensitivity is merely and intolerance it probably isn't a big deal. If milk is triggering an immune system response on the other hand this is a lot more serious. I think that it is likely that a lot of what is considered lactose intolerance is actually an immune system response to milk. Some people also need to remove a long list of other foods before they feel better. I think each person is different in this regard. Here is some technical papers that people might find helpful about cross reactivity: Gluten and other foods: http://file.scirp.org/pdf/FNS_2013011516575568.pdf Critique of the above study: http://paleofoundation.com/19-gluten-cross-reactive-foods/ Corn and gluten: https://link.springer.com/article/10.1007%2Fs11130-012-0274-4 Dairy and the brain: http://brainhealthbook.com/new-study-shows-gluten-dairy-cause-brain-autoimmunity/ Dairy and gluten and age: https://www.ncbi.nlm.nih.gov/pubmed/19290628https://www.ncbi.nlm.nih.gov/pubmed/19290628 I am also curious what other foods people are sensitive to and if they get the same type of reaction that they get from eating wheat.
  4. I am now gluten and night shade free. I used to have extreme anxiety and social phobia and was rather psychotic, now I enjoy being around people and am very calm. Gluten was the big change, and I think eliminating night shades has also helped. The amount of change that I experienced was extreme. Keep in mind that it can take a long time of being 100% gluten free (no processed food, cross contamination, oats etc) for the mind to improve. Most sources recommend trying going gluten free for at least a year straight to see if it improves mental health. 5 days is not enough time time for the body or mind to heal. Some people say that they get more anxiety at first when they go gluten free and then they see an improvement. https://www.verywell.com/what-is-gluten-ataxia-562400?utm_source=facebook&utm_medium=social&utm_campaign=shareurlbuttons I take St. Johns Wort which I think also has helped lower my anxiety level.
  5. I also asked some people on a diabetes forum. They said that it was most likely my spike in blood sugar in the morning was something called the "dawn phenomena" and that it did not necessarily mean that I am diabetic or pre-diabetic. I was getting reading from 145 to 110 in the morning. My bloods sugar before dinner is always within the 90 to 105 range though which is considered normal. I get a little bit of stress during the evenings and at other times, but it much worse in the early morning. This happens even when I get plenty of sleep. I am wondering if there is something up which is causing both the spike in blood sugar in the morning, and the anxiety. Maybe a problem with the thyroid or some other food sensitivity, or differences in how I metabolize things. I know I am not getting cross contaminated with gluten. I could get an HA1c from a doctor but I'm not so worried about it now.
  6. I have been getting some high blood sugar readings in the morning and some anxiety. People with Celiac are more likely to get T1 diabetes. I am confident that I am not getting cross contaminated, but I might have another food sensitivity besides gluten. Has anyone else had problems with there blood sugar without diabetes? I am wondering if I have problems with digesting proteins, something wrong with my thyroid or pancreas. Also I get strong anxiety and panic attacks when I eat gluten. I still have some problems with anxiety that I am trying to fix. If I test my blood sugar after a fast during the day it is well within the normal range, if I do it in the morning it is much higher.
  7. Another link: http://naldc.nal.usda.gov/download/7351/PDF
  8. Thanks for posting. I know it is difficult to talk about these sorts of things even on a webforum. It is good thing for people to be aware though about celiac disease and that it can cause mental problems. Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts. My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away. It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety. I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten. Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful. I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor. I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot. This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies. Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills) very well, and do better on an activated form of vitamin b. I take: 1 activated vitamin b12 daily 1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin 1 magnesium pill every day. St Johns Wort daily. 1 zinc vitamin daily I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. I think each of these helps lower my anxiety level. I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy. I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided. I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped. I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain. My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover. Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
  9. You might try going dairy free also...some people say it effects there sleep. I'd stick with the diet as it could take a long time.
  10. Celiac disease is an auto-immune disorder (where the body attacks itself) triggered but eating gluten. If you have any symptoms after eating gluten this could mean you have celiac disease. Many people with celiac disease cant digest milk. Oats and other processed foods are also problematic for a lot of people with celiac disease. I don't know if there are any risks associated with milk and pregnancy. It is a totally different mechanism though and I would be much much more concerned about wheat.
  11. - How do you get the carbs you need for energy now that most ways I had in the past I cannot do? I eat lots of brown rice. - How do you know if it's just the withdrawal symptoms from not eating gluten versus other sensitivities? I'd get tested for celiac disease (its a blood test.) and you have to get it before you go gluten free. - How do you guys deal with the constant issues and avoid anxiety? I exercise, avoid sugar and caffeine, drink chamomile tea (it has calming effects) and green tea. I also take extra vitamin b and vitamin b12. Lots of people with celiac disease are deficient in those vitamins. Also eat lots of fruits and veggies. Oats and processed foods are problematic for a lot of people with celiac disease. A lot of people reduced there carb intake on a gluten free diet which causes weight loss. I wouldn't worry about the weight changes. My weight varies a few pounds up or down and I don't think anything of it. - How long does it take being completely Gluten and Dairy free for the healing to begin? Most people see improvement right away but it varies.
  12. Gluten can cause anxiety and other types of mental problems. I don't know if the problem is the medication or gluten. If you decide to go gluten free it is a good idea read up about cross contamination. Oats and other processed foods often cause problems for some people with celiac disease. Lots of people with celiac disease have vitamin b deficiency. Eating lots of fruits and vegetables is important. I take a vitamin b multivitamin as well as a extra vitamin b12 which seemed to help me. It can take months or even years to fully recover on a gluten free diet. I haven't recovered all the way yet, but I feel much much better.
  13. I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy. The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation. There are a lot of different possible ways gluten can effect the brain some may not be related to the gut. It could still be an immune system problem. Normally "non-Celiac gluten sensitivity" refers to just a food intolerance. Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.
  14. Celiac disease can present with other symptoms (such as brain damage, skin problems, anxiety etc) without causing any obvious digestive problems. I'm guessing this means that the biopsy would be negative also.
  15. Is gluten ataxia a form of gluten intolerance, but not of celiac disease? Can this web site be used for gluten ataxia, as well as celiac disease? Should I see the stupid doctors some more, or keep going off of gluten? (I've been gluten-free since Easter. I'm going through painful withdrawal at present.) Should I get a medical bracelet? Any other thoughts? 1. 'Celiac disease' I think of as being an intestinal thing. Gluten ataxia I think is caused by the immune system attacking cells in the brain cells that send signals from one part to another. It may have other causes I am not sure. There is such a thing as "non-celiac gluten sensitivity" and it can effect the brain. You should read this: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ 2. Yep. 3. If you are effected in any way at all by gluten do not eat any gluten. PERIOD. That means you likely have an immune response to gluten. A single exposure to gluten can damage your brain. Try googling the "gluten contamination elimination diet." You may still get a positive result on the blood test depending on how long ago you last ate gluten. 4. Sounds like a good idea as it might be handy in certain cases if you you had trouble moving for example. 5. Having ataxia alone would be enough for me to stay gluten free.