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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

knitty kitty

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  1. Have Celiac...DON'T CARE!!

    I believe Cycling Lady has hit the bull's eye. Hypoparathyroidism can be caused by excessive caffeine consumption. That Zip Fizz contains Guarana. Guarana contains high levels of caffeine. Plus you're drinking coffee again. High doses of caffeine cause the parathyroid to secrete less of its hormone. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4207951/ Hypoparathyroid has similar symptoms to yours. "Calcium replacement or vitamin D can ameliorate the symptoms but can increase the risk of kidney stones and chronic kidney disease.[1]" https://en.m.wikipedia.org/wiki/Hypoparathyroidism NOT A DOCTOR. I'm a microbiologist. (Like Amy Farrah Fowler on The Big Bang Theory.) Just presenting one possibility. Not meant as a diagnosis. L-theanine helps take the edge off jittery nerves caused by caffeine. Hope you feel better.
  2. It might be Mast Cell Activation Syndrome. MCAS is when your defensive cells go overboard and react to every little thing. I react to many medications because of MCAS. https://www.jillcarnahan.com/2016/10/31/mast-cell-activation-syndrome-mcas-when-histamine-goes-haywire/ And it might be vitamin deficiencies. Low vitamin D can cause anxiety, as can deficiencies of some B vitamins, like B 12, niacin (B3), folate and thiamine (B1). Celiac Disease causes malabsorption which results in malnutrition, vitamin and mineral deficiencies. The eight B vitamins are water soluble and need to be replenished every day. They aren't stored in the body very long. You may not be getting enough B vitamins from your gluten free diet because of poor absorption (your intestines are probably still healing) or because gluten free versions of foods aren't enriched with vitamins like their gluten containing counterparts. Check with your doctor to rule out deficiencies. Hope this helps.
  3. Demylination diseases and Reynaud's syndrome are often related to low vitamin D, low omega 3 and omega 6 fats, and B12 deficiency. Celiacs often have problems absorbing healthy fats and fatty vitamins, and often have low B12. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3896619/ The section called "Demyelination/remyelination and nutrients" explains how nutritional deficiencies contribute to these syndromes. Hope this helps.
  4. Has your daughter been checked for vitamin and mineral deficiencies? Celiac Disease causes malabsorption which results in malnutrition. Celiac Disease damages the intestines so that essential nutrients aren't absorbed. Hot flashes and night sweats may be caused by vitamin B12 deficiency. Slow growth, amenorrhea (no period) and constipation can be related to severe vitamin D deficiency. Deficiencies of iron, folate, calcium and magnesium could be contributing to these, and pancreatic insufficiency, too. Eosinophilic esophagitis (your daughter's feeling of something in her throat) is also a sign of severe vitamin D deficiency. Deficiencies in other B vitamins manifest as skin rashes. Supplementation may be necessary until the intestines heal a bit more and can better absorb nutrients. Probiotics containing lactobacillus and bifidobacteria might be beneficial to help reestablish healthy flora in the intestinal tract after all those antibiotics. You may want to consider removing processed grains of all kinds after reading this article. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945755/ I became severely vitamin and mineral deficient due to Celiac Disease. The doctor treated the symptoms, but didn't investigate the cause. When my doctor decided to humor me and test my vitamin D level (because my insurance would cover it), he was astounded. My vitamin D was so low, he was surprised I was still walking around. As my vitamin deficiencies were resolved, my health improved dramatically. Please don't discount how important vitamins and minerals are. Hope this helps.
  5. Jm34, How are you? We have been concerned about you and your progress. Has your health improved? Did you and your doctors discover what was wrong? We would love to hear from you. Hope you are feeling much better. Best regards, Knitty Kitty
  6. I think maybe this one is who you were thinking of. You may be right about the histamine issues.
  7. Have Celiac...DON'T CARE!!

    I disagree. Vitamin D supplements do not cause kidney stones. Look here: https://www.ncbi.nlm.nih.gov/pubmed/23739765 "Short-term nutritional vitamin D repletion in stone formers with vitamin D deficiency also does not appear to increase urinary calcium excretion." In plain English, taking vitamin D when it is low does not increase the calcium going through the kidney. Calcium is used to make those kidney stones. However, a deficiency of pyridoxine, B6, has a propensity to contribute to stone formation. https://www.ncbi.nlm.nih.gov/pubmed/10203369 "Large doses of vitamin B6 may reduce the risk of kidney stone formation in women." You said your B12 was through the roof. You MAY be experiencing toxic levels. https://abouttesting.testcountry.com/2010/02/10-important-side-effects-of-too-much-vitamin-b12-that-people-don’t-think-about.html http://vitamins.lovetoknow.com/Side_Effects_of_Too_Much_Vitamin_B12 http://www.livestrong.com/article/26012-side-effects-much-b12/ Too much vitamin B 12 can cause gastrointestinal inflammation, diarrhea, breathing problems, anxiety and panic attacks. You may be taking way too much B12 if you are taking Zip Fizz AND "the adeno form of B 12". Hypersensitivity to seemingly everything can be a symptom of molybdenum deficiency. Molybdenum is a trace mineral the body needs to break down histamine. Histamine is released when the body is exposed to an allergen. Too much histamine is detrimental to the body. https://www.ncbi.nlm.nih.gov/pubmed/17490952 This article explains why you feel better on gluten: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/ You're not alone. I understand what you are going through. I truly understand. I was severely malnourished. I developed a niacin (B3) deficiency and deficiencies of other nutrients. Not having enough niacin (and other nutrients like omega 3 fatty acids) affects your brain function and your thinking. Certain foods tasted like different colors. Changes in mood, intensity of emotions, the desperation, all happened to me when I was deficient. I encourage you to stop taking all that B12 for a while. Check with your doctor about your deficiencies and your B12 excess and Vitamin D 3 supplementation. Get on a good vitamin and mineral supplement that has 50 to 100 mg of all the eight B vitamins together. All avenues have not been exhausted, so that little pet needs to stick around a bit longer. I went through a horrible time because my nutritional deficiencies were overlooked and discounted by medical professionals. Don't let my experience be for naught. Get your deficiencies corrected. Please don't give up on finding answers. Hope this helps. K😺
  8. Celiac Disease causes malabsorption which results in malnutrition. Has your doctor checked you for vitamin and mineral deficiencies? Many Celiacs develop deficiencies in Vitamin D and the B vitamins, calcium, magnesium and zinc. Even on a gluten free diet, vitamin deficiencies can occur. Trying the low histamine diet may help, too. No grains, no processed foods, no dairy, no nightshades, no fermented foods. Hope this helps.
  9. Here's an article that might help explain the connection between wheat and anxiety. http://journal.frontiersin.org/article/10.3389/fnhum.2016.00130/full Hope this helps.
  10. Have Celiac...DON'T CARE!!

    Another PO'ed Celiac, What nutritional deficiencies have you been tested for and when??? What were your levels? Were you taking vitamin supplements when you were tested? Celiac Disease causes malabsorption which results in malnutrition. You may not have gastrointestinal problems, but if your body is not absorbing the proper nutrients, your body can't function properly. Ehlers-Danlos syndrome, POTS, Sjogren's syndrome, hypersomnia, eye problems, post-bariatric surgery problems, and anxiety and depression all have ties to various vitamin deficiencies. The one vitamin deficiency all these diseases have in common is vitamin D deficiency. Vitamin D deficiency is also linked to "female" problems and arthritis. There is no vitamin D listed as an ingredient in your Zip Fizz energy drink mix. It does contain a high level of B12. High levels of one vitamin can unbalance the other vitamins and minerals your body needs. For example, high B12 intake can mask a Folate deficiency. Zip Fizz seems to be lacking sufficient vitamin A. Vitamins A and D are important for eye health. Vitamins A, D, E, and K are fat soluble vitamins. If you are having problems absorbing fats, you may be deficient in these fat soluble vitamins. The B vitamins are water soluble. They can't be stored in the body very long (less than three weeks). The B vitamins are used and stored in the tissues of the body. Some circulate in the bloodstream, like B12. You can have enough circulating, but still be deficient because there is not enough in the tissues. The eight B vitamins all work together. When there's plenty of one, like that B12, there may not be enough of the other B vitamins for them to properly function inside the cells of the body. B12 needs Folate (B9) to function properly. Without folate, B12 can't get into the cells and work properly. Some forms of vitamins work better than others. Some Celiacs may have a gene, Mthfr, that requires methyl forms of some vitamins, like Methylfolate and Methylcobalamine (B12). Minerals are important, too. Zip Fizz has very little calcium. Calcium is vital to your bones and to cellular function. You need calcium for muscle contraction, blood pressure regulation, and thinking. You are supplementing magnesium, but magnesium needs calcium so they can work together properly. The bacteria that normally live in your gut and help with absorption and production of some vitamins have been disrupted by the Candidiasis. Probotics containing Lactobacillus and Bifidobacteria are the most helpful to restoring balance. You might feel better after eating gluten because you are getting those B vitamins that gluten foods are enriched with. You might feel worse when gluten free a few weeks because your body is not absorbing enough B vitamins and you become deficient and then have gastrointestinal symptoms. A deficiency of Niacin, B3, causes gastrointestinal symptoms. If you remove the enriched sources of B vitamins and don't eat enough of other sources of B vitamins like meat, you could become deficient. Problems taking steroids can be because of vitamin D deficiency. I'm not a doctor. I had stupid doctors who did not recognize malnutrition and vitamin deficiencies and their consequences when I walked into their offices. I suffered through a long horrible experience that could have been avoided IF my nutritional status had been checked and addressed. I had many of the problems you mention. Bone fractures, unnecessary hysterectomy, obesity, POTS, hypersomnia, sleep apnea, type two diabetes, and EYE problems that has left me legally Blind. I urge you to rethink your ZipFizz supplements and get on a vitamin and mineral supplements that are more balanced and beneficial. Ennis has wonderful suggestions for them. I found the low histamine diet to be helpful. No grains, no dairy, no processed foods, no nightshades, nothing fermented. Vitamin D levels should be above 80, especially during illness. Vitamin D 3 is better absorbed than synthetic D2. Once my vitamin D level started rising,and my B vitamin deficiencies resolved, my health improved drastically for the better. But don't neglect the other vitamins and minerals that your body needs. They all work together. They all should be supplemented at least until you get past this crisis and your health improves. Hope this helps.
  11. Another scary study about PPI's: https://www.ncbi.nlm.nih.gov/pubmed/28220520 And our discussion: https://www.celiac.com/gluten-free/topic/117685-atrophy-associated-with-ppis-nsaids-and-ssris/ What POSSIBLY could be happening: http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ Pellagra is a real thing. I had it. Doctors missed it. Nearly died. I won't take ppi's ever again! Have you ever tried old fashioned baking soda and warm water to settle your tummy? Don't wait to rethink your diet. Your tummy is asking for help now. Try the low histamine diet. You could easily do this diet for the two weeks you've decided to take the ppi's. I had great success following the low histamine diet, which is basically a ketogenic diet. Yeah, no carbs sounds scary, too. No grains, no potatoes, no legumes (beans), no processed foods. No dairy. But it really gave my tummy and intestines a vacation. And they thanked me for it. Correct any nutritional deficiencies. Talk to your doctor about checking Vitamin D, B12, folate, iron, and the others mentioned in the articles. Makes a world of difference. Your body can't repair itself without the proper nutritional building blocks. The changes in your diet require changes in thinking about how you view food. Some folks even go through stages of grief. Down the road, after you've healed for a while, you can add back arsenic rice and dairy once in a while.. Buy organic. If you go to your local farmers market, you can ask the farmers themselves what they use on their produce. And maybe buy some fresh corn on the cob! Hope this helps!
  12. Well, there's always this creepy explanation... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945755/ Glyphosate (Roundup) use and GMO's might have something to do with the increase in Celiac Disease... It's scary out there....
  13. Here's a list of allowed sulfite used in foods. http://www.ehso.com/ehshome/FoodAdd/foodadditivessulf.htm Remember that if sulfurous or sulfuric acid is used in processing, it may not be on the ingredient list. Here's more information. http://extoxnet.orst.edu/faqs/additive/sulf_tbl.htm http://edis.ifas.ufl.edu/fy731 And, yes, Sulfites are used in processing corn into tortillas and corn chips. I found the low histamine diet to be very helpful. https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ http://www.thepatientceliac.com/tag/mast-cell-activation-syndrome-and-celiac/ After reading about Mast cell Activation Syndrome, I began the low histamine diet and noticed improvement quickly. Hope this helps.
  14. Magnesium and nightmares

    Vitamin C is supposed to be helpful in relieving constipation. And it helps with the absorption of some minerals. Hope this helps.
  15. Pin prick bleeding under the skin

    Have you tried increasing your vitamin C? It MIGHT be Petechiae. (Not a doctor.) Here's a site that tells about vitamin deficiencies and their effects on the skin. http://www.podiatrytoday.com/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes