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knitty kitty

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knitty kitty last won the day on March 10

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About Me

Celiac.com Forum Moderator

There is no wealth like knowledge.

No poverty like ignorance.  

 

  1. Welcome to the forum, @BunnyBrown! Many people with Celiac Disease become deficient in vitamins and minerals even if following a strict gluten free diet for years. Thiamine deficiency disorders can present with dysphagia, difficulty swallowing. I had developed nutritional deficiencies and experienced dysphagia. High doses of Thiamine are administered...
  2. https://pubmed.ncbi.nlm.nih.gov/29555204/ Seems just the cows milk protein can stimulate tTg IgA antibody production even on a gluten free diet. Removal of cows milk protein stops the production of tTg IgA antibodies.
  3. @Momkaren, There's the fecal test for gluten immunogenic peptides (GIP). Biomarkers to Monitor Gluten-Free Diet Compliance in Celiac Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5295090/ A multivitamin is not sufficient in people with poor absorption. More of the water soluble B vitamins are needed, especially if there's been...
  4. @Momkaren, Welcome to the forum! Antibody tests shouldn't be used to test for compliance to a gluten free diet. Reliability of antitransglutaminase antibodies as predictors of gluten-free diet compliance in adult celiac disease "Conclusions: In adult celiac disease patients on a GFD, IgA-tTG-ab are poor predictors of dietary transgressions...
  5. @Lrgthrcl, We call it a food/mood/poo'd journal. Keeping track of mood swings helped me track high histamine reactions to certain foods. Good plan! Great advocating for your daughter! Looking forward to hearing from you! Best wishes
  6. POTS and elevated liver enzymes are symptoms of Thiamine Deficiency Disorders. Thiamine deficiency disorders: a clinical perspective "Thiamine deficiency also causes depletion of ATP in the liver, which may result in elevated liver enzymes..." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ And... https://www.hormonesmatter...
  7. Welcome to the forum, @NikkiRose96! While only having one allele for Celiac may put you in a lower risk group for developing celiac disease, it also may put you at higher risk for ulcerative colitis. Not diagnosing. HLA-DQA1*05 Associates with Extensive Ulcerative Colitis at Diagnosis: An Observational Study in Children https...
  8. Welcome to the forum, @Lrgthrcl. Get your daughter checked for nutritional deficiencies. Many of the symptoms you related are related to vitamin and mineral deficiencies due to malabsorption caused by Celiac Disease. Talk to the doctors about testing for deficiencies before starting vitamin supplements on your own. Get testing done for more...
  9. Updated Guidelines on doing a gluten challenge can be found here.
  10. @emilyyy, Yes, eating gluten sporadically and not eating gluten for a week can impact your biopsy results. You owe it to yourself to do the gluten challenge appropriately. Go all in so you will get unequivocal results. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten...
  11. There's a higher risk for Celiac people to develop chronic urticaria. First generation antihistamines like hydroxyzine are helpful in reducing histamine levels. Does urticaria risk increase in patients with celiac disease? A large population-based cohort study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3896876/ Histamine release...
  12. @emilyyy, Have you thought about getting a DNA test? Celiac Disease is genetic. You must have at least one of the genes for celiac disease to develop. You don't have to be consuming gluten for a DNA test. What is being done for your low iron? Low iron is common in newly diagnosed Celiacs. In the early stages of celiac disease, intestinal...
  13. @B1rdL0ver, Keep in mind that gluten free processed facsimile foods are not required to be enriched or fortified with vitamins and minerals. Gluten based foods are required to be enriched with vitamins and minerals lost during processing. So when you go gluten free, you have to buy your own vitamins. Do you eat any vegetables? Veggies are an...
  14. @B1rdL0ver, welcome to the forum! Minocycline is a tetracycline antibiotic that can interact with Thiamine Vitamin B1 in your body resulting in Thiamine deficiency. Some acne can be caused by deficiencies in any of the eight essential B vitamins. Diets high in carbohydrates can induce a thiamine deficiency. Thiamine deficiency symptoms...
  15. @ceslater, Ask your doctor for an Erythrocyte Transketolase test to check for Thiamine deficiency. Although, you can have normal blood levels and still have a clinical thiamine deficiency. Palpitations, irregular heartbeat, and migraines are associated with Thiamine deficiency. Weight loss (without trying) is another symptom. Dry eyes are associated...
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