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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

knitty kitty

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  1. Diagnosis confusion

    http://healthyeating.sfgate.com/nutrients-needed-red-blood-cell-production-5131.html More than just iron is needed to correct anemia. Several B vitamins, copper and vitamin A are needed, too, and are often low in newly diagnosed Celiacs. Celiac Disease causes malabsorption which results in malnutrition. Supplementation may be necessary until the body heals enough to absorb nutrients better. Checking for vitamin and mineral deficiencies might be a good idea. http://www.mdpi.com/2072-6643/5/10/3975/htm Hope this helps.
  2. Funny you should ask about Lectins because I am currently recovering from a recent run in with some pinto beans. After reading soaking longer than overnight helps break down those Lectins, I soaked them for twenty-four hours Then I cooked the spots off them! And still, they have wreaked havoc in my tummy. Ugh! So while recuperating, I did some research. While cooking can break down some of the lectins, the only way to get rid of them completely is to cook them in a pressure cooker. I was surprised to find that Lectins are histamine releasers! Lectins make Mast cells release all their histamine. Aha! The red wine and balsamic vinegars and the bottled lemon juice are all high in Sulfites. Sulfites are histamine releasers, too. Apple cider vinegar is lower in Sulfites. Lectins stimulate the autoimmune system: https://www.ncbi.nlm.nih.gov/pubmed/25599185 More on Lectins and autoimmune diseases: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/ And for Enis' affinity for chocolate nibs...(as well as my own)... Chocolate is a source of copper. Copper deficiency causes neuropathy. My neuropathy has gotten worse recently and my chocolate cravings have increased. Hmmmm...... https://www.ncbi.nlm.nih.gov/pubmed/19901719 More info on copper http://lpi.oregonstate.edu/mic/minerals/copper So...I'm wondering if I've neglected taking copper along with my calcium and magnesium. I'm starting supplementing this week. Is copper in any of your protein powders, Enis? I hope this helps.
  3. Just recently found this article about a woman suffering from neuropathy which was caused by copper deficiency caused by Celiac Disease. https://www.ncbi.nlm.nih.gov/pubmed/19901719 Copper deficiency myeloneuropathy due to occult celiac disease. "...the authors suggest that some cases of ataxia associated with celiac disease are likely due to copper deficiency myeloneuropathy."
  4. http://www.podiatrytoday.com/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes This article discusses many skin, hair and nail changes due to vitamin deficiencies. It says Beau's lines are caused by zinc deficiency.
  5. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/#!po=1.04167 Nutritional neuropathies are discussed in this paper. I find it amusing Celiac Disease was not specifically mentioned as a cause of nutritional deficiencies. Celiac Disease causes malabsorption which results in malnutrition. Deficiencies in several B vitamins and some minerals can cause neuropathy, sometimes rather quickly. I've had peripheral neuropathy that has resolved with vitamin supplementation. I hope this article can help you, too.
  6. Thyroid problems - maybe?

    JaneWhoLovesRain, Have you tried cutting out dairy altogether? Dairy can be hard to digest if your intestinal cilia are damaged from gluten. Have you cut your protein level too low? Protein is needed to grow hair and is a good source of B vitamins and various minerals. Are you eating beans as a protein source? Beans can be hard to digest, too. Are you getting enough calcium? Magnesium and calcium work together. You are supplementing magnesium and getting calcium from limited dairy... any other dietary sources of calcium like kale or collard greens? If you don't get enough calcium from your diet, calcium will get pulled from your bones causing osteoporosis. You might consider supplementing calcium, too. The recommended ratio of calcium to magnesium is 2 to 1, but if you're getting some dietary calcium, you can go with a one to one ratio. Don't forget zinc. Zinc affects hair growth, sleep, and metabolism. It's found in beef, beans and greens. We need some every day because the body can't store it. Omega 3 fats are very important to skin, hair and the brain! (Your brain is mostly fats.) Olive oil, flaxseed oil and coconut oil are good sources. Vitamin D level is important because a deficiency affects so many body functions, from building bones to brain function and mood. Many Celiacs often have low levels of fat soluble vitamins, (vitamins A, D, E, and K) because of problems absorbing dietary fats. What are you baking? Do you use any corn products? Corn can trigger the same type reaction as gluten in some people with Celiac Disease. Kelp is a good source of iodine for after your baseline tests. Most vitamins can be stopped two or three weeks before testing to give accurate results. Check with your doctor to get his preference. I'm not a doctor. This isn't medical advice. Just been there done that. I've had serious nutritional deficiencies and I hope what I learned can help. Kitty
  7. Thyroid problems - maybe?

    Thought maybe this article might be helpful. It explains what all goes into making the thyroid function properly. http://hypothyroidmom.com/10-nutrient-deficiencies-every-thyroid-patient-should-have-checked/ Perhaps ensuring you get the proper nutrients may help your thyroid and your overall health. Sometimes supplementation is necessary, even on a gluten free diet. Hope this helps.
  8. Overwhelmed and unable to accept

    "the shocked \ disgusted reactions people display when the celiac secret comes out..." "Not to mention having to admit to celiac in front of people and watching \ hearing the sarcastic reactions for the hundredth time." http://www.wavlist.com/movies/085/agd-horror.wav "Embrace the Horror!" People in general fear what they don't understand. They have those reactions because they are ignorant of what "being Celiac" entails. They fear what would happen to themselves if they got the same diagnosis. And to make that fear go away, they ridicule and minimize, to make themselves feel better. It's a reflection on them, their ignorance and fear. NOT you. Don't let their reactions stop you from doing what you want to do. When I do get to feeling alienated, I watch or remember this movie... https://m.youtube.com/watch?v=d4aGxG-SBSE It's about an alien race that tries to blend into human society. There's some dietary differences that are really interesting. I don't want to spoil the movie for you. Some days I feel like an alien trying to avoid certain dangers on Earth, and some days I'm the only human surrounded by aliens... (They eat what???!!!???!!!) It's not you, it's them. Like Enis said, let the fat alien waddle off to the gluten strudels.... You're going to be a much healthier human in the long run. You are in a much better situation because you've educated yourself and you know what needs to be done. Do it well, do it bravely. And do it with your lunch box in tow. The more you do something, the better you get at it, like Victoria said. Practice, practice, practice. Decorate your lunch box with Celiac slogans and the gluten free symbol. It can be a conversation starter similar to Enis' gluten free food booth or my knitting bag. When people get that digusted/shocked look on their faces, break the ice, say "I don't think I'm contagious anymore. Do you see any green spots?" And wink. And smile. And go on your way. Once they see you're okay with it, they will be, too. But you have to be okay with it. That's why I say "embrace the horror". You have celiac disease, don't let celiac disease have you. Celiac Disease is worrisome and a bother and different from what was previously and different from others. But it's yours. Do it well. Do it bravely.
  9. Stay on a diet containing gluten until all your tests are done. Removing gluten will cause your body to stop making the antibodies against gluten. The antibodies you make are what is being measured in those blood tests. http://www.thepatientceliac.com/tag/histamine-and-celiac/ This page is very helpful. Be sure to read her connecting pages on Mast Cell Activation Syndrome and sulfite intolerance. When you do go gluten free, try the low histamine diet. I had great success with it. Hope this helps.
  10. http://www.podiatrytoday.com/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes I found this article very helpful. There are many skin, hair and nail changes that take place when your vitamin levels get low. Remember, Celiac Disease causes malabsorption which results in malnutrition. Sometimes healing Celiacs need some help from supplements because they aren't absorbing all the vitamins from foods well. When I get glutened, I get chicken skin and DH. I've found increasing vitamins A and D helpful in clearing up my skin. Various B vitamins help, too, as does omega 3 fats and vitamin C. Hope this helps.
  11. Enzymes and Probiotics

    Real scientific study "Maize prolamins could induce a gluten-like cellular immune response in some celiacdisease patients." https://www.ncbi.nlm.nih.gov/pubmed/24152750 And another real study discusses grains and their effects on the mind and body. "Bread and Other Edible Agents of Mental Disease." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/
  12. Whew, glad your gallbladder is fine! And glad you've switched meds and are feeling better. My low histamine diet seems very similar to your low vasoactive amines diet. https://www.mthfrsupport.com.au/dao-deficiency-and-histamine-the-unlikely-connection/ I thought this article about histamine intolerance was very interesting and helpful. Histamine production is sometimes triggered by certain drugs like Cymbalta and Zoloft. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2248201/#!po=11.3333 And one more about nutrition. I'm so glad you're feeling better.
  13. Ennis is right about removing suspected problem foods for a time then reintroducing them later and watching for any reactions. Severe, I hope this doesn't worry you further. I've been doing some research and it appears that Cymbalta MAY cause liver damage in SOME people. It might be worth mentioning to your doctor and getting your liver, gallbladder and pancreas checked. These studies say it's a rare occurrence, but it does happen. Better safe than sorry. I can not remember what antidepressant I was on when I had my gallbladder removed...I wonder.... https://www.ncbi.nlm.nih.gov/pubmed/20815829 https://www.ncbi.nlm.nih.gov/pubmed/26467777
  14. Severe, I guess I should have phrased my question better. Whenever I had a bad bout of depression or anxiety, I tested my glucose level at that time. Sometimes it was too high or too low. Either I didn't have enough glucose in my system so none was available for my brain cells (low blood sugar) or I didn't have enough insulin to get the glucose into the brain cells so the brain cells still didn't have any glucose for fuel (high blood sugar spikes like after a meal or exercise). Either way, it caused an alteration in brain function. I was wondering if perhaps something similar was happening with you. Switching to the ketogenic AIP diet really helped me keep my blood glucose levels regulated. I've had my gallbladder removed, so fatty, greasy meals can be a problem (because gallbladders produce bile which aids in fat digestion). I notice that "distinct smell" if I've had a meal that was too fatty. Not that I mean to make you worry about something else, but it is something to make note of in your food diary. Perhaps avoiding really greasy foods might help. (Ha ha, I have input/output columns in my food journal.) Do you have a problem with corn? Some medications use corn starch as a filler. Corn can trigger a gluten like reaction in some Celiacs (like me). I'm hoping you feel better soon.