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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

knitty kitty

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  1. Hello! When I find myself up at odd hours, I put on this celiac disease Mozart for Meditation... https://www.amazon.com/gp/aw/d/B000VFQ58U/ref=mp_s_a_1_1?ie=UTF8&qid=1516086445&sr=8-1&pi=SX350_PI_PJPrime-Sash-Extra-Large-2017,TopLeft,0,0_AC_SX118_SY170_QL70&keywords=mozart+for+meditation+celiac disease And I get out my dot to dot book, like one of these for adults.... https://www.amazon.com/gp/aw/s/ref=is_s_ss_i_0_5?k=dot+to+dot+books+for+adults&sprefix=dot+t&crid=2B42N4PRIT56H Sometimes I knit mindless objects such as hats, washcloths or socks. Knitting has a soothing rhythm to it and is easy to learn... Or I read a book about knitting and life... https://www.amazon.com/gp/aw/d/1603420622/ref=mp_s_a_1_2?ie=UTF8&qid=1516087016&sr=8-2&pi=AC_SX236_SY340_FMwebp_QL65&keywords=McPhee+knitting&dpPl=1&dpID=51fHYy2xXsL&ref=plSrch Or a knitting mystery.... https://www.amazon.com/gp/aw/d/B001LRLJUG/ref=mp_s_a_1_6?ie=UTF8&qid=1516087587&sr=8-6&pi=AC_SX236_SY340_FMwebp_QL65&keywords=knitting+mysteries&dpPl=1&dpID=51z43F8UuuL&ref=plSrch Knitting is really easy to learn. I find it soothing to work with natural fibers, organic cotton for washcloths or luscious alpaca for socks... But I find it inadvisable to shop online in the wee hours... 😸 I've got way too much yarn now...hee hee hee... besides, the light from electronic devices keeps your brain awake longer.... Hope this helps.... Knitty Kitty
  2. Melatonin Tablets and Coeliacs

    Have you tried tryptophan? It's an amino acid found in milk and turkey. Being allergic to milk, I use a tryptophan supplement, along with a calcium supplement, and I'm out like a light. Another amino acid supplement, L-theanine is good for relaxing and a feeling of well-being, though not sleepiness. And passion flower extract is really good for calming and relaxing. B6 will help with the dreams. Ennis is right. Hope this helps!
  3. Has your daughter been checked for nutritional deficiencies? Many newly diagnosed people have vitamin and mineral deficiencies. Iron deficiency can cause a loss of appetite as can deficiencies of B12 and vitamin D. Additionally, anxiety can be a symptom of vitamin D deficiency. If deficient, more than a multivitamin might be necessary to replenish the missing nutrients. Hope this helps.
  4. Celiac Disease causes malabsorption which results in malnutrition. Many newly diagnosed Celiacs have nutritional deficiencies. Here are a couple of articles that I hope will help. https://www.livestrong.com/article/460603-vitamin-deficiency-thinning-hair-in-women/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5315033/
  5. Hello, The symptoms you described after ingesting dairy are similar to iodine allergy symptoms. https://www.livestrong.com/article/448272-are-iodine-drops-dangerous/ I have an iodine allergy and dairy allergy. I used to could eat certain kinds of dairy, but can't tolerate any at all now. Different kinds of dairy products have different amounts of iodine in them and the iodine in the milk used to make those products can vary, too. https://www.livestrong.com/article/29195-list-iodine-content-found-dairy/ https://www.dietitians.ca/Your-Health/Nutrition-A-Z/Minerals/Food-Sources-of-Iodine.aspx I have to avoid seafood, too. Perhaps an iodine allergy test would be advisable. An iodine allergy can cause a severe reaction leading to anaphylaxis. I had a severe reaction to iodide contrast dye during a CT scan. Hope this helps.
  6. https://www.frontiersin.org/articles/10.3389/fnhum.2016.00130/full This article discusses how wheat and dairy products can produce opioids that can affect the brain and mess with your mind. Yes, I react to dairy. I have had some pretty weird experiences after consuming dairy. Yep, I would wake up in a panic with scary spiraling thoughts. Also vitamin and mineral deficiencies can sometimes alter your brain functions and cause altered mental states (like the B vitamins niacin, B12, and thiamine). Because these vitamins are water soluble, they can be lost or used up quickly when you're exposed to dairy or gluten, leaving you deficient and foggy minded. Hope this helps.
  7. Shaking hands "tremor"

    https://www.livestrong.com/article/363746-what-vitamin-deficiencies-cause-tremors/ Tremors can be caused by vitamin deficiencies. Vitamins B 12, B1, B6, Vitamin E and magnesium are important to nerve and muscle function. Many vitamins are often low in newly diagnosed Celiacs. B12 absorption is less efficient as we age. Your mother might benefit by getting checked for nutritional deficiencies. Hope this helps.
  8. Celiac and dairy

    https://www.ncbi.nlm.nih.gov/pubmed/12479649 https://www.ncbi.nlm.nih.gov/pubmed/15649828 Potatoes can aggravate leaky guts. Many gluten free processed foods use potato starch.
  9. Celiac and dairy

    "Activation of the adaptive immune system is one prerequisite for the occurrence of celiac disease and is reflected by the development of gliadin antibodies and auto antibodies. Our finding that, in a fraction of coeliac patients, CM protein challenge may induce an inflammatory reaction of the same magnitude, as did gluten challenge, may also suggest an innate as well as adaptive immune response to CM, and casein in particular. However, lack of increased serum antibodies to casein in our casein-sensitive coeliac patients may suggest that casein is less prone than gliadin to drive adaptive immunity." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ Adaptive as well as innate immune response to casein is possible though not as common. Casein can cause a reaction as severe as gluten. http://journals.sagepub.com/doi/abs/10.1177/1082013207077954 "Rich sources of celiac-disease-potentiating peptides were wheat gliadins, barley hordeins and rye secalins as well as low-molecular weight fractions of glutenin. In addition, amino acid sequences with a high degree of identity to the toxic peptides examined were detected in maize zein, oat avenin, protein of rice, yeast and chicken muscles, as well as β-casein and galanin." Toxic peptides in corn and oats and casein and chicken. Interesting. Very interesting.
  10. Celiac and dairy

    There's this study... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/
  11. What blood tests best for DH?

    Playing the devil's advocate.....if you want to have a DH outbreak, eat foods high in iodine, such as seaweed or kelp, strawberries, cranberries, turkey, shrimp and dairy products like cheese and yogurt, or even idolized salt. I had really bad DH outbreaks after eating rye breads and thick chewy pizza crust. Here's a couple of articles that might help. https://www.celiac.com/articles/177/1/The-Gluten-Intolerance-Group-of-North-America-on-Iodine-and-Dermatitis-Herpetiformis/Page1.html https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3369470/ Hope you get diagnosed.
  12. DH or dry skin?

    https://www.livestrong.com/article/269105-skin-rashes-caused-by-vitamin-deficiency/ This article gives information on different kinds of skin problems caused by vitamin deficiencies. The eight B vitamins and vitamins A and D are extremely important to skin health! Rashes and itching and bumps are the first clues you could be deficient. I had severe malnutrition and have experienced many of the various skin problems described in the article. Consider diet revision to include the nutrient dense foods recommended in the article or supplementing. Remember, Celiac Disease causes malabsorption which results in malnutrition. Hope this helps!
  13. PHN

    I have suffered from this. Try increasing your vitamin D, zinc and vitamin C. My vitamin D was very low at the time. I got my vitamin D, zinc and C levels up with supplements and noticed great improvement. Takes several weeks though. Here's a study on the vitamin C helping with it. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5125947/ Hope this helps.
  14. Optic neuritis may be caused by nutritional deficiencies, especially deficiencies in vitamins B 12, D and A and some of the other B vitamins. This happened to me leaving me blind. B12 deficiency can also make DH worse. Vitamin A deficiency is often found in Sjogrens. Malabsorption goes with Celiac Disease. Please get checked for nutritional deficiencies. Hope this helps!
  15. Gluten free and still sick

    http://www.thepatientceliac.com/tag/mast-cell-activation-syndrome-and-celiac/ Here's an article or two on Mast Cell Activation Syndrome. It explains how some foods cause a release of histamine but they overreact and cause all sorts of problems. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3033552/ AutoImmune Protocol Paleo diet is also very helpful. http://www.saragottfriedmd.com/is-the-autoimmune-protocol-necessary/ https://ultimatepaleoguide.com/autoimmune-protocol/ I felt so much better after following the AutoImmune Protocol paleo diet. The AIP diet and the Fodmaps diet both allow broccoli, cabbage, and cauliflower, which are all cruciferous vegetables and notorious for producing abundant gas and bloating. I could never understand why they were included when they produce so much flatulence. Suggest you cut those out for a while, also anything fermented (sauerkraut,pickles, olives) or cured (ham, smoked salmon). And get your vitamin and mineral levels checked for deficiencies! Zinc deficiency, B12 deficiency, and vitamin D deficiency can all cause diarrhea. And these are all commonly deficient in Celiacs. Hope you feel better soon!