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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

knitty kitty

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  1. I was so curious about this! I found a study about polycythemia being related to vitamin B 12 deficiency! https://www.ncbi.nlm.nih.gov/pubmed/22424943 And then another: https://www.ncbi.nlm.nih.gov/pubmed/25730455 Even though the usual blood tests found "normal" B 12, the people in these studies still had a B 12 deficiency as measured by other means. Remember B 12 needs folate (not folic acid) to work best. Hope this helps!
  2. Hi! Vitamin deficiencies play a big part in skin health. Niacin, B6, biotin, vitamins A, E, & D, and the essential fatty acids (omega 3) have all helped mine. https://www.ncbi.nlm.nih.gov/pubmed/23763270
  3. Hi! I thought that a doctor's mask or disposable filter mask might prevent your son putting his hands in his mouth while playing. Get him some little scrubs, and he can pretend to be a doctor. Another idea is to dress him as a cowboy with a ten gallon hat and bandana over his mouth. Kids like to dress up. Wearing a costume might take attention away from wearing mittens in the summer.
  4. Here's another article on vitamin deficiencies that occur in a similar malabsorption disease. https://www.ncbi.nlm.nih.gov/pubmed/28216963
  5. Christiana, Low ferritin (iron) is often accompanied by low vitamin B 12, folate (another B vitamin), vitamin C, calcium, and vitamin D. These vitamins and minerals all work together. The B vitamins are water soluble and need to be replenished every day. Malabsorption from Celiac disease can make getting enough nutrients difficult without supplementation. Here's an article that may help. http://www.livestrong.com/article/459886-canker-sores-and-vitamin-deficiencies/ Be sure to discuss supplements and vitamins with your health care provider. Hope this helps!
  6. So glad the articles were helpful! You may have been given magnesium sulfate in your IV after delivery. Many Celiacs develop sulfite/sulfate sensitivity. I am highly allergic to sulfites/sulfates. I must be extra careful with supplements because the label may say "magnesium" or "manganese", but they are chemically bound to sulfur molecules, and cause an awful reaction. Ennis and Poster boy are correct to advise taking magnesium citrate. Here's an article about magnesium types. https://drnibber.com/understanding-different-types-of-magnesium/ Here's an article about sulfite sensitivity. The connected articles about Mast Cell Activation Syndrome may be helpful to you, too. http://www.thepatientceliac.com/2013/02/21/happy-sulfite-intolerance/ Hope this helps!
  7. http://www.progressivehealth.com/vitamin-b-and-its-impact-on-sleep.htm https://www.ncbi.nlm.nih.gov/pubmed/19154566 Thought these articles would be helpful.
  8. heatman, the symptoms you described may be due to vitamin deficiencies... Celiac Disease causes malabsorption which results in malnutrition. Even on a gluten free diet malnutrition may occur. https://www.ncbi.nlm.nih.gov/pubmed/12144584 Deficiencies of the B vitamins can manifest as skin problems, intestinal upsets, and headaches. https://www.celiac.com/articles/24658/1/A-IDifferential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html The nine B vitamins work together, so all should be supplemented if one is low. https://www.ncbi.nlm.nih.gov/pubmed/26828517 Celiacs that supplement B vitamins do better. https://www.ncbi.nlm.nih.gov/pubmed/19154566 The B vitamins are water soluble and need to be replenished every day. They are used up quickly when under stress. Fat soluble vitamins, A, D, E, and K, may need to be supplemented, too. You may want to consider discussing vitamin and mineral deficiencies with your doctor. I thought I was getting glutened somewhere, but after turning my house upside down, changing my shampoo five times, and lots of research, it turned out I had vitamin deficiencies. After only a few days of supplementing my B vitamins, my skin began to clear up and I started feeling much better. I hope my experience can help you on your journey to wellness.
  9. Hello, I think the problem might be dairy consumption. Celiac Disease results in damaged villi in the small intestine. The damaged villi can't absorb nutrients well, and they can't produce digestive enzymes that break down the sugars in milk. Taking lactose pills may help break down the milk sugars a little, but the protein in dairy products, casein, can elicit a reaction just as if you've eaten gluten. You may want to consider going dairy free for several months in order to give your body time to heal. You may be able to reintroduce dairy after you've healed more. https://www.ncbi.nlm.nih.gov/pubmed/17302893 Celiac Disease causes malabsorption which results in malnutrition. Damaged intestines can't absorb nutrients. One frequently deficient vitamin is Vitamin D. There is a well studied connection between low vitamin D and anxiety. Low B 12 may also cause anxiety. The B vitamins are often low because of malabsorption. They all work together, so if you're low on one, supplementing them all would ensure proper functionality of each. https://www.ncbi.nlm.nih.gov/pubmed/26828517 Hope this helps.
  10. Hello, I think the problem might be your dairy consumption, Ysali. Celiac Disease results in damaged villi in the small intestine. The damaged villi can't absorb nutrients well, and they can't produce digestive enzymes that break down the sugars in milk. Taking lactose pills may help break down the milk sugars a little, but the protein in dairy products, casein, can elicit a reaction just as if you've eaten gluten. You may want to consider going dairy free for several months in order to give your body time to heal. You may be able to reintroduce dairy after you've healed more. https://www.ncbi.nlm.nih.gov/pubmed/17302893 Celiac Disease causes malabsorption which results in malnutrition. Damaged intestines can't absorb nutrients. One frequently deficient vitamins is Vitamin D. Vitamin D is extremely important in regulating inflammation in the body. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4070857/ Your doctor may prescribe D 2 (synthetic) if you're low, but D 3 is the most bioavailable form. Other vitamins that help with inflammation are discussed in this article. https://www.mindbodygreen.com/0-18353/9-inflammation-fighting-vitamins-minerals-and-where-you-can-get-em.html B vitamins are very important. They all work together, so if you're low on one, supplementing them all would ensure proper functionality of each. https://www.ncbi.nlm.nih.gov/pubmed/26828517 I hope this helps us all on our journey towards health.
  11. Hi! I had a problem with any variety of enriched rice. I switched to Organic Basmati rice and no longer have a problem. Organic rice does not have any added ingredients. It's just rice. Enriched rice has vitamins and minerals added by spraying or by dusting them onto the rice kernels. Hence the taboo against rinsing enriched rice. The vitamins will wash off. Another method of enriching rice is by combining a "vitamin premix" with rice flour and forming kernels by extrusion. These enriched kernels are then mixed with regular kernels. The "vitamin premix" may use wheat as a source of B vitamins and may contain sulfites. Basmati rice has a lower glycemic index than Jasmine rice, so it doesn't make one's blood glucose go too high. That's important to my type two diabetes. Hope this helps. Here's further information on rice: http://www.ffinetwork.org/about/faq/faq_rice_industry.html
  12. Hello, Glutenfreebacon. I'm sorry to hear you're having such disturbing problems. The problems thinking and trying to have a conversation that you described sounds very similar to what I experienced when I was severely deficient in B complex vitamins. Deficiency of many B vitamins can cause changes in mental health. B 12, thiamine, and niacin deficiencies often have alterations in thinking associated with them, as in pellagra and wernicke's syndrome. The B vitamins are water soluble. They aren't stored in the body very long. Most will run out within two weeks, so they need to be replenished daily. I hypothesize that your binges on cheese and bread supply you with B vitamins, but then your fasting and dieting quickly deplete them. Perhaps you get some B vitamins from your diet, but they are used up fairly quickly, hence your symptoms coming and going. I strongly suggest you get the possibility of vitamin deficiencies (B vitamins and vitamin D) checked by a doctor. If not corrected, some deficiencies may lead to permanent damage. Celiac Disease causes malabsorption which results in malnutrition. Doctors often fail to recognize malnutrition symptoms outside of alcoholism. Here's a couple of articles for you. This one is about the opioid effect of dairy and gluten. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/#!po=18.2432 This one's about vitamin deficiency symptoms and mental health. http://www.mdedge.com/currentpsychiatry/article/64985/depression/vitamin-deficiencies-and-mental-health-how-are-they Please get checked for deficiencies of B12, thiamine, niacin, and vitamin D. The B vitamins all work together and should all be supplemented if deficient. Vitamin D and omega 3 fats are required for optimal brain function. I hope you feel better soon. Hope this helps.
  13. Celiac Disease causes malabsorption which can lead to vitamin deficiencies. Many vitamin deficiencies show up as alterations in the skin. Low levels of vitamins A and D and many of the B vitamins can show up as different types of rashes on different areas of the body. Thought you'd like to compare notes: http://www.livestrong.com/article/269105-skin-rashes-caused-by-vitamin-deficiency/ http://www.podiatrytoday.com/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes
  14. Hi, I hope your daughter is feeling better. Sometimes gluten derivatives are added as thickened in dairy products like ice cream, sour cream and yogurt. Most recently, genetically manipulated microbes are cultured to produce microbial tissue transglutaminase (mTg) which is used as a texture enhancer in some manufactured foods, like gluten free bakery products and dairy products. It is also called meat glue because it is often used in formed meat products like luncheon meats, sausages, and chicken patties. Recent studies are finding that this food additive mTg resembles human tissue transglutaminase (one of the blood tests for celiac disease measures this, tTg), and has a similar effect. "mTg is immunogenic in children with celiac disease and, by complexing to gliadin, its immunogenicity is enhanced." https://www.ncbi.nlm.nih.gov/pubmed/27640315 I found I had to severely limit gluten free processed foods and all dairy because I kept getting sick. Curious as to why, I came across this study. I was shocked. Weren't gluten free foods supposed to be safe? I hope this can be helpful to your daughter and others.
  15. Hello, Was the popcorn contaminated with gluten, maybe a flavoring? Corn has "stuff" in it that may trigger a reaction. https://www.ncbi.nlm.nih.gov/pubmed/24152750 Corn is also high in Sulfites which can cause problems for some people if they developed a sensitivity or have asthma. It's not all in your head. You're body is trying to tell you something....just have to figure out what it's saying. Hope this helps.