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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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  1. With the exception of Barley tea, tea, like coffee is naturally gluten free. Barley tea is actually rare in China, it is more common in Japan and Korea, and it is more often served cold. Tea is serious business in Asia countries. Tea plantations specialize in their specific type of teas, and take pride in its purity (I have visited tea plantations before in Asia, very massive and very green, pretty sight to look at). High quality teas are pure. I drink both the green tea and barley tea served cold during the summer (my daughter has celiac, not me). Any self respecting Green tea will not contain Barley tea, or vice versa, because they each have distinct flavors, and different colors. Now, you mentioned your Chinese lady served you "exotic" teas , so I don't know what "exotic" means, sometimes, they add certain fragrant flowers into the tea leaves, or it could means it grows in an unique region, which makes the tea exotic, you should find out or just say "no, thank you". " 大麦茶 " is the Chinese word for Barley tea, you can ask your student if her exotic tea includes this.
  2. " Has anyone else had a seemingly normal exam during endo. But the biopsy came back positive? " Yes. Right after my daughter's endoscopy, the GI doctor told me that the intestine looked pretty good. Then two weeks later, they called to tell us that the biopsy results were positive for celiac.
  3. " My question is:. Will I experience physical symptoms after being gluten free. " I can only give you an input on the above question. My daughter is a silent celiac. She was diagnosed with blood test and endoscopy 3 years ago at the age of 10. She is now 13, and she is still a silent celiac. When she was first diagnosed, I was told that after going gluten free for a while, she might develop physical symptoms, but that is not our case. So, it probably vary from person to person.
  4. My daughter's TTG was through the roof high at age 10. Her doctor offered to formally diagnose her with celiac without the endoscopy. We decided to go with the endoscopy anyway to confirm the diagnosis. We heard that blood tests can be wrong, and we did not want to accept that she has celiac. The endoscopy was a simply procedure, she has celiac disease. The gluten free lifestyle for celiacs is not easy, I would want to be certain before taking it on.
  5. Chinese food is very difficult for celiacs. Unless we are going to PF Chang's, when I had to go to a Chinese restaurant with family, I would bring a home made gluten-free meal for my celiac daughter. I usually buy these frozen gluten-free potstickers, and cook them at home and bring them to the Chinese restaurant for my daughter.
  6. We were diagnosed with Diabetes first, but I think she already had celiac prior. Our doctor told us that she has celiac only 3 months after diabetes. Her TTG was off the chart high. Our endo offered to formally diagnose her with celiac without the endoscopy, but I refused to believe she had celiac. She had no symptoms. An endoscopy confirmed it. We went gluten free. She still is a silent celiac. We would never know about her celiac if it weren't for her type 1 diabetes. They did all sorts of blood test on her. I think her ttg was already off the chart high when she was first diagnosed with diabetes, but since the diabetes is so overwhelming at first, they simply waited 3 months before telling us about the celiac too. I think this was a kind thing to do. Looking back, she did have a symptom, she stopped growing for a little over a year! My daughter was always tall for her age, she was a huge toddler, 90th percentile. One of the tallest kids in her class, then suddenly, I noticed that she became the shortest among all her friends. At the time of her diagnosis, she was 10 years old, and was only 25th percentile in height. She is 13 now, and is growing and gaining height. She is about 5' 2" now. So while she does not get sick with gluten, we take her gluten free diet very seriously. Our TTG has been dropping continuously over the 3 years, and it is getting VERY close to be under normal range. Just on the border, but not quite there...yet.
  7. You are not alone. My daughter also has elevated TTG after 3 years on very strict gluten-free diet. My household is also gluten-free. My daughter is a silent celiac. So, I have the NIMA gluten tester, and also use the EZ Gluten test kits to test outside foods. I understand that you are careful with her gluten free diet, as we are careful with our gluten free diet. This is just frustrating! We were offered to do another endoscopy to see if there are still damages to her stomach lining. But we decided against that. Because she is growing, and gaining height. My daughter does have Type 1 diabetes, and this can contribute to her elevated TTG. I suppose if you really want to know if your child is healing, you can ask for another endoscopy, and see if there are still damages there. Or just keep going with your gluten-free diet, as long as your child is healthy and growing normally.
  8. Patti's Perfect Pantry in Morgan Hill is a 100% gluten-free bakery, and they also make gluten-free breakfast and sandwiches. They are just off of Highway 101, when you are about to leave the San Francisco/San Jose area on your way to L.A. This would be a good place for you to stock up something to eat, because there are not much options (or city like areas) between Morgan Hill to Santa Barbara (5 to 6 hours drive). Here is their address: Patti's Perfect Pantry 435 Vineyard Town Center Morgan Hill, CA 95037
  9. Copita Tequileria Y Comida in Sausalito (just north of San Francisco) is 100% gluten-free restaurant. Great restaurant too! We love this place. http://www.copitarestaurant.com/
  10. In Santa Barbara ( 2 hours north of LA along 101), right on State Street, there is a 100% gluten free bakery. We think it is the best gluten-free bakery in the world! You must go there and eat something! They also make great sandwiches. http://lilacpatisserie.com/
  11. " I'm asking about bubble tea in general. If contamination were not a problem, is bubble tea usually gluten free? " Yes. My celiac daughter likes boba tea. I have tested her favorite tea with ezgluten test kit as well as NIMA, and they have always tested negative. We only get our tea at this one specific tea shop (they have 3 different locations). They pretty much only sell tea and coffee, and some snacks that are usually kept in a window display and in their own plastic casings. Boba tea is just milk tea and tapioca. You can order with black tea or green tea, and with or without milk. These places generally don't use flour or soy sauce in their "production line". I would avoid tea places that also sell food.
  12. We loved Peru! We found Peru to be pretty gluten-free friendly. It is the land not just corn, but also potatoes. So, lots of corn and potatoes, and grilled meats, ceviche, etc. They are also big in farming, so the vegetables and meats were very fresh. Lots of dishes were naturally gluten-free. We spent 3 nights in a small town in Sacred Valley, and found a local farm that offered an organic farm lunch, and everything was 100% gluten free away!! (Except the dessert, but they remembered to bring my celiac daughter a bowl of fruit instead.) Cusco has a few restaurants that marked their menu with gluten-free options, and we ate at our hotel restaurant once, and they very easily accommodated us. We don't speak any Spanish, but found all the restaurants we went to had English menus, and the staff spoke English, I did not even have to pull out my Spanish restaurant card. We went on a 4 day Inca Trail hike. The trekking company accommodated our dietary restriction. The chef made gluten-free dishes just for my daughter, even her own soup, when the soup for the rest of us had gluten in it. We also visited the Amazon. The jungle lodge and river cruise boat all accommodated our gluten-free dietary restrictions. Of course, when I booked these things, I let them know that my daughter has celiac, and required strict gluten-free meals, and I reminded them again a week or two before the trip.
  13. I agree it is very handy for international travel. We just took it to Peru for 2 weeks. I wish we had this when we went to Europe for a month the previous summer. We love our NIMA. It is just a tool. When I shop or when we go out to eat, we still have to ask questions, then sometimes I like to test the food with this device. It is compact, and so easy to run a test. It only takes 3 minutes. It does have limitations, and NIMA tells you that it can not detect things like soy sauce, so it does not work well with gluten-free Asian foods, so I still use the EZ Gluten test kits for those. I will tell you that it seems that NIMA is a tougher test to pass than EZ Gluten. The same food that had tested "low gluten" by NIMA, was tested negative by EZ Gluten. This happened twice. I keep a record of all tests I run on my daughter's favorite foods. I also re-test some of these foods once in a while. I think if you like to travel, and like to eat out once in a while, the NIMA is a good tool to have in the purse.
  14. Thank you both very much! We love Canyon Bakehouse's gluten-free bread and bagels, so it is nice to know that we can go there to get sandwiches. We will be sure to go that crepe place in Vail! My daughter loves crepes. Yes, I have noticed that most high end ski resorts have good gluten-free options, but it varies from resort to resort. Last year we went to Whistler in Canada. They had great gluten-free options on the slopes and in the village. We did not need to bring our own gluten-free lunch. I was hoping for the same in Colorado. Sometimes, my celiac child just want to pick up a hot lunch to put on her tray like the rest of us.
  15. Hello! My family is going to Colorado to snowboard for one week in February. My 13 year-old has celiac. We are going to stay in the Frisco area, and are planning to go to the different big ski resorts there: Vail, Breckenridge, Keystone, Copper, and A-Basin. Anyone know if we expect to find gluten-free lunch options on the slopes of these ski resorts? Any general and specific restaurant information will be appreciated!