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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

crystallized11

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  1. SAME PROBLEM I have had two episodes of significant (unable to close my mouth to drink) swelling of just the right lower lip, both of which happened with severe glutening (yesterday from regular bread presented to me as gluten-free at a restaurant). It was accompanied by the itchy painful spots of dermatitis herpetiformis about 12 hours earlier, and about 24 hours after my meal. As a physician, I am interested in describing this lip swelling as a marker of celiac disease. Would anyone be willing to share their stories and/or pictures for a case report in the medical literature? You can email me privately at crystal.lumi@yahoo.com.
  2. Hi all! I'm a general surgeon and severely sensitive fairly recently diagnosed celiac (18 months ago), manifested as chest pain from decreased blood flow to my heart, and severe heart failure requiring emergency heart angiogram (which was normal) and several months of head-scratching by cardiologists. Turns out I'm the 27th world reported case of gluten-induced cardiomyopathy (impairment of heart muscle by an autoimmune cross-reaction to heart muscle cells) and pericarditis (the "shrink wrap" sac around the heart being inflamed). Having said that, irritation of the heart muscle, the heart sac (pericardium), or even the lungs CAN cause the chest pain described by many people (especially the movement to the neck, shoulders, or right arm). IF YOU HAVE THESE SIGNS IT COULD ALSO BE HARDENING OF THE HEART (CORONARY ARTERIES) AND SHOULD BE EVALUATED IN AN ER!!! Don't die of a heart attack ... and not everything is caused by gluten. With that disclaimer, our brains cannot tell the difference between our heart, pericardium, esophagus, stomach, gallbladder, liver, bile ducts (drainage tubes of gallbladder and liver), and the first part of the small intestine (duodenum). So pain from any of these sources can cause the grouping of symptoms that many people are describing. The comment about pain in between the shoulder blades is typical of *gallbladder* attacks -- belching, bloating, feeling pressure across the lower rib cage/chest/upper abdomen (either or both sides). Please consider talking to your doctor of the possibility of gallbladder disease, especially if the pains come after eating fatty foods (more stimulating to the gallbladder). Ulcers, celiac disease gradually remitting, hidden gluten, acid reflux [which can occur without chest pain -- just burping], irritation of the stomach, esophagus, or duodenum, poor emptying of the stomach ("gastroparesis"), OR heart problems are ALL possible. If your GI prescribes an acid-blocking medicine like Protonix, Prilosec, Prevacid, AcipHex, etc., and you're not better in two weeks -- it's likely not acid. I hope this helps, and I'm eager to learn things from this forum! Thank you.