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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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Beverage last won the day on January 18

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  1. Everyone here has been so nice and supportive to explain why it's so important to stay gluten free for your disease. I however am going to have to take the tough love way in hopes you will see the seriousness of this. Going to the bathroom several times a day is just a minor symptom of your body destroying your ability to absorb nutrients, for which all organs and systems in your body require to work properly. Have you seen the list of diseases this can lead to? I chose to try to not get fibromyalgia, dementia, alzheimer's, colon cancer, type 1 diabetes, other organ failures, and on and on....these are not just diseases for old people, you can trigger them at any time if you keep pushing your body to it. If you do not take care of it, this disease will eventually kill you, in a slow and painful and drawn out miserable way... worth it???
  2. I strongly suggest a different doctor, find one who is more educated on NCGS. He/she gave you very bad advice. Doctors work for you, find one that have help you better.
  3. I use Andalou shampoo, body wash, and body lotions, absolutely wonderful stuff, I ask Santa for it as my Christmas present. Afterglow cosmetics (a lot like Bare Minerals which I had used for eons but does not guarantee gluten free). Also Red Apple Lipstick...I just tried their mascara and I absolutely love it, not gloppy. These are verified or certified gluten free. You can sign up for their newsletters and they send out special discounts regularly. For every day to keep lips from cracking, I use EOS which I get a 6 pack from Costco...these are marked gluten free, not certified, but I have been using them for 2 years and no problem. And remember if you are kissing on anybody, their body products should be gluten free also ;oO
  4. Thyroid problems - maybe?

    I also went through a discussion (that's mildly putting it) with my doctor who refused to do the complete thyroid panel. My TSH test came back on the low end of normal, but I had all the typical symptoms. There are plenty of good articles out there about the full panel and why it is important. You definately need a different doctor. Only testing for TSH (thyroid stimulating hormone, produced by the pituitary gland to stimulate the thyroid into action) is like only checking if your gas tank in your car has fuel, but your car still is not running well. Of course you have to check all legs of the overall system...fuel pump, fuel lines, carburator, spark plugs, etc. etc. Well, duh. I had to finally go to a naturopath who did the complete panel (T3, T4, reverse T3, reverse T4). I was very low in T3. Also before taking any treatment, checked for antibodies to rule out Hashimoto's. Treating thyroid without ruling this out is like putting gasoline on a burning fire, and it will kill off what's left of your thyroid, have to rule that out before going forward. Came back negative for Hashi's. I first tried the typical supplements that help all parts of the whole system to work (selenium, zinc, etc.), but only got mild improvement. I am now on a small dose of synthetic T3 supplementation and feel TONS BETTER. No more hair loss or dizziness or extreme tiridness. I'm still tired for other reasons, but the extreme I just can't take another step tired has stopped. Also, any x-rays for the rest of your life, dental or anything else, insist on a shield to protect your thyroid. Good luck...get another doctor.
  5. I mean I might get a prescription refill, or a new vitamin pill for example, and take it for awhile, with absolutely no symptoms. As we know, no symptoms does not mean no damage being done. I will feel fine for weeks, but then I start feeling awful, like a bad flu coming on. I never did get the intestinal symptoms others get. This for me is the hardest part of having Celiac's, figuring out what did it. Last month I ended up with pneumonia because I thought the achey symptoms I was having was from gluten, maybe from cross contamination even though my kitchen is off limits to gluten, maybe from some new prescription, maybe from some new tea I was trying, maybe from new vitamins (marked gluten free but not certified, those have gotten me before), so I stopped taking all of that but didn't feel better and kept getting worse. It took me awhile to figure out I actually had a flu and by that time it went to my lungs and had to go to urgent care.
  6. Ennis_TX, can you please post a link to that deficiency chart? I can't read it even when enlarged. Thanks!
  7. I had the candida test done via a blood test, testing for antibodies, as it can be in many places in your body and a huge burden to the immune system.
  8. Ennis_TX, can you please post a link to that deficiency chart? I can't read it even when enlarged. Thanks!
  9. I went to a naturopath because of gradually decreasing kidney function and was diagnosed with Celiac's. For me, when I get accidentally glutened, I don't get symptoms until I've had that gluten for awhile, like several weeks. Then, I start feeling like I've got a bad flu coming on. Everybody is different. It's not like an allergy where symptoms are a direct result of exposure.
  10. Back from ER

    You say that you are involved in frying foods? Is there any loose flour involved in that? Airborne flour gets into the nose which drains down to the stomach, so same as eating it. Hope you get better soon, it is so very very frustrating trying to figure out where the gluten is coming from.
  11. Also remember that a negative in celiac tests, especially the biopsy, is NOT CONCLUSIVE, is NOT PROOF YOU DO NOT HAVE IT.
  12. The biopsy is not required for an official diagnosis. Positive blood test and response to gluten free diet is all that is required. It was sufficient for me, along with the DNA test (shows potential only), to convince me what I need to do to stay healthy.I have a "prescription" letter for gluten free diet from my doctor based on those things. And pre-existing condition only applies if you had a period without insurance, it's like if you wait for your house to burn down, then go buy fire insurance and expect coverage. As long as you've had continuous coverage, this is not a consideration.
  13. I found a decent gluten free hot dog in the health food section of my Fred Meyer's in Washington state. It's Organic Prairie brand, grass fed, free of icky stuff, and it actually tastes like beef. Maybe you can find the web site and see where they are sold near you.
  14. For me, gluten was causing severe systemic inflammation, which is hard on the kidneys. So getting rid of the root cause had an effect. Sad thing is not too many doctors see the connections.
  15. I tested positive on the antibody test, declining kidney function being what I had gone to a naturopath for. I did not want to do the endoscopy, so did a trial of the gluten free diet. I felt like a truck hit me for about a month, like a bad flu coming on, as tons of inflammation left my body. I was not terribly overweight, but lost it all in that month, dropping 30 lbs, and ended up looking emaciated after. I also did the DNA test, which only says if you have the potential for it, and that was positive. After 2 years I've now gained back muscle and bone and look healthy and fit for my height, and I'm 60 years old. I have an official Celiac's diagnosis from a naturopath doctor based on the blood test, DNA test, and response to the gluten free diet. Lots of docs think Celiacs is a totally intestional disease and disregard it unless you have all the diarrhea and underweight symptoms. I had NONE of that. Oh, and on my last test, kidneys came back from 40% functionality to just basely into the normal range. :o) Good luck.