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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Binti1962

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About Binti1962

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  1. Thanks, Cycling Lady! I’m going Thursday so that is helpful to know.
  2. Hello, i need some input. Two years ago I had an upper endoscopy with 6 biopsies showing some interepithelial lymphocytes and shortened villi so I was sent for blood work which came back negative but I had been on a gluten feee diet for 2-3 months prior to bloodwork. What are the chances I had a false negative with the blood tests? I’ve now been on a gluten free diet for 3 days and the change in my intestinal issues is remarkable. Painful joints feel slightly better too. What should I do? Oh, I also carry a gene which increases the likelihood of celiac. Should I go back to eating gluten and ask for the blood tests to be repealed ??? thanks; Sarah
  3. Thank you both for your replies and advice. I’m happy to know I just need a gluten free multi.
  4. Hi! I wasn’t sure where to post this inquiry so I’m sorry if it is in the wrong place! My blood work was negative for celiac although biopsy was suspicious. I have severe joint pain and GI issues so have decided to eliminate all gluten to see if that helps. I hear I may need to supplement my diet with vitamins to make up for what I’m missing, but I don’t know what vitamins they are! Can anyone help? Thanks, Sarah
  5. Thanks for the info and replies! I didn't know that the biopsy results alone weren't sufficient for a diagnosis. Perhaps somethine else is causing the villi damage. I will keep eating gluten and maybe have the blood test repeated in 12 weeks
  6. Thanks for the reply CherylS. I appreciate your feedback, because I was thinking along those same lines.
  7. Hi, again. I posted previously about my biopsy. Got my labs for blood work back, and I don't think the Doctor requested a "panel" only Immunogloubin A which was 99 out ot a range of 81-463, and Tissue transglutaminase AB, IGA which was 1. No antibodies detected. Do I need to have done more blood tests, or is this sufficient? He still says the biopsy indicates celiac, but told me that since these two tests were normal that I dont have celiac. He's just overlooking the biopsy since it was mild. Should I see a celiac specialist? I should add that I had only been eating gluten for 3 weeks when the test was done.
  8. Thanks for your replies, notme! And cyclinglady. I'm going to wait for the lab to send me the blood test results and then go to a celiac specialist. I like my GI but I think he knows little about celiac, and he doesn't seem interested in figuring out the positive biopsy. I appreciate your taking the time to post.
  9. Well, my blood test came back negative so it conflicts with the positive biopsy. Doctor says I'm "fine" and doesn't say much about the positive biopsy. Should I just relax and be happy that I'm fine or get a second opinion from a celiac specialist? I guess I don't want to keep eating gluten if I do in fact have celiac disease and the blood test was just negative for some reason. Thanks
  10. Wow, Positron, that's pretty harsh! He didn't do the endoscopy and biopsies looking for celiac. So you can't really say he did it backwards on purpose. I was having issues which necessitated an endoscopy and he took 6 biopsies of my esophagus, stomach and duodenum as there were some unusual changes he saw while during the endoscopy. Now that the biopsies look positive for celiac he told me we need a positive blood test to confirm it. He's a highly respected gastroenterologist affiliated with a national university. Not a health care fraud specialist. Of course, you are entitled to your opinion.
  11. Thanks for the welcome and info! Yes, they did the endoscopy for reflux issues and the biopsies were all done our of an abundance of caution. The positive result blew me away! Wasn't expecting that at all. I think he's being cautious until we get the blood work back,. I'll check out the other possibilities as well.
  12. My biopsy came back positive for celiac disease, but my doc said we need a blood test to confirm. I'm waiting for the results, which I hope I get before Christmas. What are the chances I have something else? What else could it be? Thanks for any input!