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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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Estes last won the day on July 27

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  1. I bet $5 you have an ulcer. I took iron for years and doc says it caused my ulcers. I went off iron and took meds for the ulcers and the pain and nausea went away. That does not explain all your symptoms though. I ran a marathon then had babies. Now I am 42 with celiac. I am choosing not to run that much anymore because I need those nutrients and healing to feel healthy. Running would drop all than into "unhealthy" again. When I don't eat well, sleep well, push too hard...I get all the other symptoms you mentioned. Like my body screeming at me to put on the brakes and make a kale smoothly.
  2. Popcorn, wine, as well as coffee are my favorite things. Have you identified what is left to enjoy?
  3. Yes, we like peanut butter in the blender with frozen bananas and a liquid (juice, coconut water, almond milk...). You can add berries or even ginger and turmeric.
  4. I have both eoe and celiac and now that I have been gluten free for 18 months, my anemia is gone. It is good to get off the iron supliments because mine may have been the cause of my ulcers. It feels good to recover and heal! I may work my way down to fewer supliments and lots of feel great days despite eoe, celiac, ulcers, hiatal hernia, and acid reflux. I was on Flovent and omiprizol for a while but I am happy to be done with both! Best of luck! I am here if you have specific questions.
  5. I have enjoyed your posts and responses for a while. I appreciate your level of knowledge and willingness to share it. Your openness and honesty is refreshing. Thank you for all of it!
  6. Some of your symptoms sound like my ulcers. I take carafate before every meal now and they are much better. I have 3 ulcers possibly caused by taking iron supplements. They are worse when I eat spicy food and dairy. I might be wrong but for your sake I hope it's just ulcers. They were found by endoscopy.
  7. If you hear an ice cream truck playing morbid music, grab your money and run! They sell roasted sweet potatoes from a truck. Live on those. They are delicious. Eat them as you would eat a candy bar. It's just sweet potato. Maybe 300-500 yen for a big one. They are sold by weight. served hot and ready. I have purchased enough for a few days at a time and eaten them cold after refrigeration and loved them as well. 300 Yen per potato so plan accordingly incase you hear that truck.
  8. So sorry it is difficult. There is soy sauce (made with wheat) and fish flavoring in everything! I too have neurological damage from 40 years of gluten. I can feel your pain. Do you want me to look for a base contact for you? I still have a connection at my Okinawa church which is near Camp Foster.
  9. I lived in Okinawa for 4 years prior to diagnosis. My son however tried to go gluten free during that time. His school had no idea what I was trying to say and could do nothing for him. Everyone eats school lunch. Period. It was difficult. If I went back I would eat the percooked hard boiled eggs from Lawson's or your nearest convenient store. You may feel more comfortable rinsing them before eating them. I would also eat the plain rice onigri. If you know the contents of the mayo you could eat mayo/fish onigri. Stay away from the ones that use soy sauce. Maybe look at tins of fish while you are there to see if they contain soy sauce. The other idea is to connect you with someone on a base. They have great American grocery stores with lots of options and American doctors and hospital. They deal with American insurance companies. I looked into that for my father in law who came to visit while terminal. He had postal insurance and was 100% covered in Okinawa on base. Do you have military connections there? Camp Foster or Kadena grocery stores are the big ones with the best selection. The others may be too small for your needs.
  10. I believe deficiencies make a big difference so hopeful supplements help you! When I went no carbs until evening it made a big difference for me. Maybe worth a try? I am a 42 yo female.
  11. I have EOE and I was recently put on an inhaled steroid that I swallowed rather than breathed in. I felt like it helped quite a bit. Have you been tested for eosinaphalic esophagitis otherwise known as allergy esophagitis?
  12. I have had a hangover the next day. I thought it might have been all the sugar. I can't eat a lot of sugar without suffering the next day. Not sure if it's contaminated but I no longer eat it. I hope you find your answer.
  13. No, I was gluten free both times I had a scope. They found eosinaphalic esophagitis and most recently ulcers. The ulcers were the cause of the nausea apparently. i feel pretty good most of the time if I take all my vitamins, avoid sugar and carbs and lean toward the AIP diet. I then have a corn tortilla or popcorn with my dinner and it's enough carbs for good sleep.
  14. I have been gluten free for 15 months. I was ttg amd Iga positive. My ttg was 100 which maxed out the reading. Range was maybe 0-7. I have been retested and all are within the 0-7 range. I do not know if I carry the gene, never been tested. No relatives with celiac. I live in Iowa, USA.
  15. I wonder if this post is referring to me? I tested high positive with blood tests and was denied an endoscopy as it was seen as unnecessary. The Dr. said they already knew it was celiac based on the extremely high blood test. I immediately went gluten free and all further testing including endoscopy which I had to beg and barter and pull strings to get, have been negative. Might it be Pellagre instead? My fatigue is much better gluten free but carbohydrates seem to cause almost instant brain fog. I have at times doubted my diagnosis because it came from a misinformed Dr.