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Dark Angel

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  1. I finally received a diagnosis. I tested positive for Lyme Disease and two other tick associated infections. It explains everything for me and wanted to thank everyone for their support.
  2. I just got the test results from the endoscopies and no celiac.  I went to the allergist today and he did not want to test me for MCAS because a previous tryptase test was normal.  He did skin testing and although the skin tests were negative, I had a full allergic reaction to somethings out of the six.  Even though I became hoarse, short of breath, chills, raynoud's symptoms, swollen lip and burning mouth he denied allergy.  Gave me a zyrtec and sent me home.  I have no other options.  My only thoughts are going on a low histamine diet and staying on zyrtec until things balance out.  I hope soon,  I have lost 30 pounds which puts me very much underweight.  The main reason for this message is to thank you for the information on MCAS,  Even though I will not be tested or believed, I have found the direction I need to take.  And I cannot thank you enough.  There is an old saying that if you save one person, you save a world.  

     

     

  3. Thank you, everyone for all the information. It will help me move forward in navigating the system which has been extremely challenging.
  4. I tried going back on gluten for the testing and had to stop first day because of angioedema. So, no, I haven't tested positive and did wonder about the biopsies. Where ever I am on the autoimmune spectrum, I know that gluten is a huge problem for me. Thank you for the information and about mast cell activation. I will ask. As far as how I am managing...
  5. I am waiting to have an endoscopy to test for celiac. I have had anaphylactic reactions to foods and now multiple chemical sensitivities requiring an inhaler. This has all happened within the last year along with many other symptoms that seem related to celiac disease. I have been following an autoimmune paleo diet since September which has been amazing...
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