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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

razzle5150

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  1. he wrote me this message While people with DH are at the same risk for the complications suffered by people with celiac disease, as many as 20% of people with DH will have a normal intestinal biopsy. However, DH patients with a normal intestinal biopsy and normal celiac serology (blood test) will still respond to a gluten-free diet. You can learn more about DH here: https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ Please let me know if you have any additional questions. Sincerely, Celiac Disease Foundation
  2. yes I have had 3 endoscopy with biopsies and I can post results here but have to figure out how to do it .. and yes I did take Dapsone 200 mg for 3 months and it did absolutly nothing so quit taking it ... I am going back to Mayo on May 18 so we will see what they say this time. keep ya posted
  3. saw my Dermatogist yesterday and we had a very long appointment . and he said yes you can have DH without Celiac .. he swears by it . also I have break outs on my face and he said I am his 2nd patient with DH that has it on the face. Does anyone else have it on there face.. I believe in my dr as he has been a dermatologist over 30 yrs. He also said that you can be on a gluten free diet and still break out. I had another Endo last Thrus and dr gastro called last night and said NO CELIAC and she also said you can get DH without celiac too. I am going to try one more thing when I go back to Mayo in May I made another appointment at the dermatology clinic and see what they say one more time , this time a different dr. first dr I saw said yes you can have DH without Celiac.
  4. and yes I i get my blood checked once a month and it has been fine..
  5. I have been on gluten free diet now for a year in april but still break out all the time.. so from what I am reading you have to have Celiac to have DH correct . why are these drs telling me different ... I dont know what to do
  6. is it gluten free heard it was
  7. is there any forzen yogurt that is gluten free
  8. all I know of is Dapsone and I went from 25 , to 50 and now 100 its still not working very well. still on a gluten free diet lost over 25 lbs so now seeing a dietician... I am 101 and 5 ft .... I have a problem with protein intake .... and of course constipation.. ugh
  9. no never had the sweats with DH
  10. I was diax with DH and I dont haVE cELIAC. Dermatologist said anybody can get it. I was tested 3 times for Celiac and do not have it. Also had 2 dermatologist look at me and both agree DH . hAD A BIOSPY of my knee.. one was here in sioux city and the other at Mayo. Just to let people know. Roz I am on Dapsone and its not doing a good job . up to 100 mg a day..
  11. does anybody else have contant belly aches with this... dont know whaqt to do
  12. same here have lost 30 lbs and need to gain help
  13. just regulat chapstick
  14. iS THERE anybody on here that has taken dapsone and really got better with no side effects...please let me know as my dr wants to raise dosage and I am allergic to sulfa
  15. I have just the rash DH not celiac and dr wants me to start dapsone ..... I am allergic to sulfa but he doesnt think I will have a problem . He is starting me out on 30 mg . I am really scared but itching so bad I cant sleep at night . what do yall think..