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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

TexasJen

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TexasJen last won the day on February 28

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About TexasJen

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  1. I live in a house where some people eat bread. I do not use the toaster that toasts regular bread. All sandwiches are made in a special area of the kitchen and I do not prepare any of our other food there. If you have touched bread, you have to wash your hands before you touch anything else in the kitchen. After you eat bread, the dishes go directly (and only) into the sink. I rinse any plates and forks extremely well that have had bread on them and then I put them in the dishwasher (they essentially get washed twice). Then I rinse out the sink. I have a separate dish scrubber that I use when the plates have had anything with gluten on them. We don't cook with flour or bake with real flour(except once a year when I let my kids make their birthday cakes). The flour goes everywhere and coats the surface of countertops. Do you make all your soups from scratch? A lot of soups have flour as a thickener. Also Nuts are often times made in facilities that process wheat. Planters nuts seem to be pretty safe or shop at Nuts.com - they have quite a few options. Hope you feel better soon!
  2. I'm sorry you have been sick for so long.....One of the problems with celiac is that a lot of the symptoms are vague and can be attributed to many other illnesses. As for getting tested, I would. When you go on a gluten free diet AND have celiac, all of the tests become normal. SO, if you are on a real gluten free diet and do all of the testing, the tests will be normal if you have the disease or not. So, then you will always be wondering...... The thing is that a gluten free diet if you have celiac is a lot different than the fad gluten-free diet. In reality, you have to read EVERY label of everything you put in your mouth including tooth paste, mouth wash, gum. You can't just eat at a party (due to cross contamination or not being able to read labels) and you can't eat in most restaurants. It is very socially isolating. Don't commit yourself to the strict celiac diet unless you really need to.... I hope you find the answer!
  3. I had no GI symptoms at all. I had some restless leg syndrome and palpitations from iron deficiency anemia. In retrospect, I had worsening migraines and worse PMS which are notably better on a gluten-free Diet. I didn't even think celiac when I was struggling with those 3-4 years ago. And, still today, I can't tell if I've been glutened! so, yes, you can have celiac with no GI symptoms
  4. You should go to your doctor and let him/her check it out at least. Get their thoughts on what could be causing it - without the blood work. Just because a doctor recommends a test you don't have to do it. Sometimes, swollen lymph nodes can be something serious. I wouldn't ignore it...... If they think it could be serious, then consider getting the labs.
  5. Did you call the person who put the crown on a couple of months ago? It sounds like a complication from his/her procedure? Maybe you could work a discount/payment plan since this sounds like it was an unexpected outcome? Hope you feel better soon!
  6. The sensitivity of the Anti-TTG IgA antibodies is 81-100% (so not perfect). However, there are no blood tests that you can do that can 100% rule out celiac. You didn't mention if you are still eating gluten - if you have cut it out, your tests might be falsely negative. If you really think you might have it, I would push for a full celiac panel (and maybe even an EGD since you have a lot of GI symptoms) Good luck!
  7. I gave up BlueBell when I was diagnosed because I read there is significant issues with CC. Is that still true?
  8. Yes! I never really had GI symptoms, but I did have palpitations and restless leg syndrome from anemia. These went away within the first month. But myalgia and joint aches aren't better after 1 year. Waiting to get my antibodies re-tested and see if they're negative.....
  9. I will just share an experience I had..... I went to a steak house where there weren't a lot of safe options for me. So, I decided just to order a drink and eat later. I asked the bar tender about how they made their margaritas - fresh lime juice, fresh orange juice and gluten free tequila. gluten-free all the way. My husband went back to order for me and noticed that the bartender was juicing the limes and serving bread to the customers at the bar at the same time. I would have totally drank that margarita had he not seen him doing that. I decided to skip the margarita because of the high chance of CC
  10. I'm sorry that life is so hard right now. Really. I can't imagine working 3 jobs and trying to manage this terrible illness. I think about American society and their obsession with food often. Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies. A loaf of gluten-free bread will last me 4-6 months in the freezer. I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty. I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated. Good luck!
  11. Texas children's hospital in the med center has a celiac center now. https://www.texaschildrens.org/departments/celiac-disease-clinic Good luck!
  12. Since this post is going around again, I thought I would add my recent experience at Rudy's. The staff was very helpful and accommodating. I ordered my family's food first put it on a tray and then ordered mine separately. I ordered only chicken and turkey. The staff changed gloves and used a new cutting board and knife. My server washed his hands, wiped down the scale and put my meat separately into a tray. I washed my hands before I ate. I did not eat any of the side and brought my own fruit to go with it. Since I don't get immediate symptoms, I can't tell you if that was enough. But, their meat (except the pork - maybe ) is gluten free. I think I did everything I can to avoid CC and the staff was extremely helpful . This is the only restaurant I have eaten at in 4 months if that tells you anything. I love Rudy's!!!
  13. Insurance is a pain! But, one of the interesting things about the Affordable Care Act (ObamaCare) is that it set individual out of pocket maximums. This year it is $7100. I realize that it is a HUGE amount of money, but if you started to pursue the work up this year and don't delay, you could get everything done (scope, labs, doc visits) and know the answer in a couple of months. The most you would pay is $7100 for everything. Most hospitals have payment plans and some offer discounts if you pay cash. It's just a thought, but sometimes getting all your healthcare needs answered at once can relieve a lot of anxiety and be more affordable in the long run. I wish you luck. I hate insurance issues.
  14. I'm so excited! The Austin area has a new gluten-free restaurant - Guaco Taco. I'm going there tomorrow night for dinner. I love Mexican food and miss being able to eat it out.
  15. I don't know if there is a simple answer to your question but I try to use "choose my plate" as a guide for my meals. https://www.choosemyplate.gov/MyPlate It basically suggests that when you sit down to a meal - 1/2 of your plate is fruits and veggies and the other 1/2 is dairy, carbs and protein. It's a really simple way to look at my meals and see if they are balanced enough. It also suggests getting very few calories in liquid form and avoiding snacking..... Good luck!