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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

TexasJen

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  1. Any one ever heard of buying gluten free dental floss (or researching it)? I was just thinking the other day about things I put in my mouth and that is one of them! I don't get a lot of quick symptoms (most of mine are arthritis/anemia) so it would be difficult to know if I was getting glutened or why Any thoughts?
  2. Do you ever eat in restaurants or at other people's houses? I really can't imagine that anyone is 100% safe eating where gluten type foods are prepared. Also, are you sure the kids aren't sharing foods at school? At our school's there are frequently shared snacks. Maybe he's accidentally getting some of the treats - Halloween candy, birthday cakes, celebratory snacks, etc?
  3. Lenbh- I was diagnosed last year and I have wondered that very question. Not too long ago (before kids) I traveled quite a bit. The idea of traveling now with celiac is a bit overwhelming. I am pretty strict at home to avoid gluten and almost never eat in situations where CC is even possible- and as far as I can tell, I don't really get any symptoms of glutening. I have definitely heard that it is easy to travel to Ireland with celiac. In fact, many restaurants have 2 menus - a regular and a coeliac. They often cook the food in a separate kitchen as well. I can't wait to take my kids to Italy and am already thinking "how in the world will that ever work???" I have decided so far that I will do my best, not knowingly eat gluten, and try to buy food in stores or eat in "safe" restaurants -but understand that the more often I eat in restaurants, the more likely it is to be exposed to gluten. I guess it's just a risk I'm willing to take every once in a while so that I can explore the world with my kids. And, yes, Gelato! At least twice a day while in Italy...:)
  4. Palvyre- There are a lots of things that contribute to osteoporosis. I am wondering if you had your testosterone levels checked as well? There are many treatments for osteoporosis, depending on the cause. Fosamax (bisphosphanates) are certainly not the only ones! Hormones, Prolia, Forteo and there are several new ones ready to be approved by the FDA right now. If you haven't seen an endocrinologist, you could consider it. I figure it never hurts to ask a specialist a question. They could say there's no extra treatment right now or they could know of something that was meant just for someone like you. My fourth grade teacher taught me there are never any dumb questions! Good luck!
  5. Any generic medication can be made by a number of different manufacturers. You need to contact the pharmacy you purchased the Xanax from and ask them to contact their manufacturer and ask them directly.
  6. Wow! That's awesome. Congrats on your success. In my experience, successful dieting, whether it for weight loss, general health, muscle building, etc looks very different from one person or another. What works for one person may not work for another. This is due to a number of reasons: finances, family, time to exercise, motivation, chronic health issues, food preferences, etc The diet you are on is gluten free (as long as you verify that your shakes are gluten free). So, if it's working for you, it seems as though, to me, you wouldn't have to change it. I will say that about 3months into my gluten free diet after my diagnosis last year I suddenly gained 10lbs in 1month. My weight had been relatively stable (minus pregnancy) for the previous 10-15 years. I suspect it was because I was finally absorbing all of my food. This was disappointing to me. I am still working on getting used to eating less than I used to and I've only lost 5 of the 10 lbs. Good luck!
  7. I don't know about Carmex but I use Aquaphor....
  8. Hi- I'm wondering what your symptoms are that prompted her testing? There are several different types of immunoglobulins: IgA, IgG, IgM, IgE, IgD. Each one plays a different role in our immune systems. In very simple terms, IgE is typically what you find in your nasal passages, lungs etc and is involved in allergic reactions (think runny nose, sneezing, breathing trouble, lip swelling). However, many people have IgE reactions in the intestines which don't show the classic symptoms. IgA is often related to the GI system. IgG are long term immune system things (think chickenpox - even though you had chicken pox as a kid, your IgG will still protect you from getting chicken pox again years later). SO, you were not tested for celiac (unless there are some other tests that you did not put on this board). Those tests are IgA, DPG gliadin IgA and IgG, endomysial antibodies and anti-transglutaminase IgA. The positive IgE to gluten indicates a possible allergy, but often times there is further testing done through an allergist to prove it. Since celiac has 300+ different symptoms, is it possible that you also have celiac and should be properly tested? Personally I would. It looks like you have another autoimmune condition. The anti-TPO antibody is anti-thyroperoxidase - often found in Hashimoto's. But often times it's silent. The treatment is based on several other tests - TSH, Free T4 and possibly a thyroid ultrasound. It sounds like you've only had part of the workup for some complicated symptoms. Ask your doctor lots of questions and don't give up until you feel confident that you have the right answers! Good luck!
  9. My understanding is that most vitamin D actually comes from sun exposure to bare skin and good, functioning kidneys. Vitamin D can be found in some foods but that is not where we get most of it naturally. However, vitamin D is crucial in our ability to absorb calcium from our diet. So, when our vitamin D levels are low, it can lead to rickets (in kids) or osteomalacia (in adults) - both are weak bones. If one has untreated celiac and vitamin D deficiency, you could definitely have low calcium absorption.
  10. I had a similar problem! I had occasional heart burn before but it was pretty bad for 2-3 weeks after the gluten-free diet started. Celiac can caused gastric emptying issues. So, the food and acid stay in your stomach longer so easier to get heartburn. Also, I figured that unknowingly I was eating carb-containing foods when I was feeling slight heartburn (sort of self-treating). When I was eating bread etc, their was nothing in my diet to "absorb" the acid. I took Prilosec OTC for 2 weeks and then stopped and it seemed to get better after that. Hope you feel better soon.
  11. I'm so sorry. This must be very hard for you and your family. The guidelines for which family members to test and how often are a work in progress. Currently, I believe the guidelines state to test all first degree relatives every 2-3 years or if they ever develop ANY suspicious symptoms. (Remember 50% of people with celiac don't have GI symptoms so it can go undiagnosed for years). For example, when I was diagnosed 10 months ago, there were just vague guidelines to test first degree relatives. Our pediatrician emailed a well - respected gastroenterologist who basically told us there were no specific guidelines. Now the guidelines are more specific, but I suspect that will be modified in the next 5 years as people learn more about celiac. I had both my kids tested last year shortly after my diagnosis. My sister tested negative, but as far as I know, my parents have refused to get tested. Oi! One thing to note is that you can't ever develop celiac if you don't carry one of the genes DQ2 or DQ8. So, in retrospect, I realized that I should have had my kids get both a routine celiac panel and the genetic testing. That way, if they are DQ2 and 8 negative, they never have to be tested again!. In 3 years when they get retested, I'm doing both. As for teaching your son, teaching our kids to eat healthy is one of our toughest jobs as parents and now yours is twice as hard. I would think about making your entire household gluten free, especially if you have other kids. Kids are messy and not great at self control. The ones that can eat gluten will probably leave crumbs every where. And, the one with celiac will have less temptation if it's not around - Sometimes my kids go into the pantry to grab a snack. If there's real crackers or cookies in there, your celiac kid may not realize and eat it accidentally. The non-celiac relatives will get plenty of gluten at other places - work, school, parties, etc. As for specific, day-to-day stuff, I would reach out here as well as at allergy websites. Severe peanut and dairy allergies have a lot of issues in common with us celiacs regarding safe eating outside the house, restaurants, cc etc. Good luck!
  12. Here's an explanation from the University of Chicago's Celiac center as to why Anti-Gliadin antibodies can cause a false positive. http://www.cureceliacdisease.org/faq/is-the-anti-gliadin-antibodies-aga-test-reliable-for-diagnosing-celiac-disease/ Did they do the other celiac tests and an IgA level? If not, you might want to follow up with those blood tests now. The thing is that getting an accurate diagnosis from the beginning is really important. A biopsy is the gold standard to do this. The celiac version of a gluten free diet is substantially more difficult that the non-celiac gluten sensitivity version of a gluten-free diet. A celiac diet can be socially isolating and expensive. It is worth the effort to get an accurate diagnosis now..... Good luck!
  13. This gluten-free fest is going on in Central Texas next month - And there's a Groupon for it right now if any one is interested.. http://www.glutenfreefoodallergyfest.com https://www.groupon.com/browse/austin?lat=30.2687&lng=-97.7452&address=Austin&query=gluten&locale=en_US
  14. In N Out is about the only fast food place a celiac can eat.....Order a protein burger and make sure to mention your wheat "allergy". You can eat everything there except the bread. Even on a busy day, they seemed to make a great effort and preparing my meal safely
  15. I'm sorry! (and it does suck)......I was diagnosed 9 months ago and the one thing that I still have a bit of a hard time getting used to is the not eating in restaurants. I do miss it quite a bit. We didn't do it very often - maybe once a week but it was my break from the kitchen and my own cooking. I tend to get stuck in ruts and eat the same things over and over again. I am the primary cook for my family and I make one dinner every night and it's gluten free. There are quite a few things that we eat that everyone enjoys. They don't get everything that other kids eat - but I keep telling myself that it will all be fine in the end. I grew up in a pretty small town without exposure to a lot of different kinds of foods - and I turned out ok. I love my crock pot! I make chili, soups, chicken tacos, pot roast, red beans and rice, and black beans for burritos in it. Beans and eggs are the cheapest things that you can make on the gluten-free diet and I would say that we eat them each at least once a week for dinner - yes, we have breakfast tacos for dinner once a week! I buy gluten containing cereals, bagels and English muffins for breakfast during the school week. I make sure to clean up after breakfast very carefully. I send real bread sandwiches to school (and let them leave the crumbs there) and they get plenty of pizza at birthday parties. Good luck!