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TexasJen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by TexasJen

  1. TexasJen
    No😩. She really didn’t think that there is much chance that celiac is associated with enteropathic spondyloarthropathy at all. She did listen and is checking to see if there is a different autoimmune condition causing my arthritis. So, I could have a whole different problem. Sigh. 😔
  2. TexasJen
    I’m just now seeing this post but there is a type of enteropathic arthropathy related to celiac. I think I may have it and am searching for answers. It seems rare and I’m having trouble finding info or physicians that have heard of it. Scheduling an appointment with a rheumatologist. Hope she’s heard of it. 😬
  3. TexasJen
    Sure am hoping for good results with this trial .....would love to feel carefree in restaurants. Or, heaven forbid, eat real pizza!
  4. TexasJen
    Red Apple lipstick (I don't really like the colors they offer though) Colour Pop is marketed as gluten-free too. They are not too expensive.
  5. TexasJen
    I like all the ideas above! You've gotten some great advice. I wouldn't tell her until after it's official. No need to get her all worked up for no reason. Don't go into a lot of specifics until the diagnosis is final. After that, reach out to other parents in your school and find the other kids with celiac. Invite them over for dinner and hopefully...
  6. TexasJen
    Hi and Welcome to the Forum. I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya. People make a lot of foolish decisions in the world and it does not mean that you should do it too. Also, many people are gluten free for...
  7. TexasJen
    San Antonio is a lovely place. I lived there for a couple of years but I didn't have celiac at the time, so I can't really comment on eating out there with celiacs. It definitely would be on my list of cities to live in, though. There are a lot of fun celebrations in SA so you should visit during Fiesta, or at Christmas time - the riverwalk is beautiful...
  8. TexasJen
    Hi Joseph- The anti-transglutaminase IGA (Anti-TTG) is positive. It's hard to know about the endomysial Antibody without the reference range but usually positive is more than 1:10. So that's probably positive as well. Along with the endoscopy showing villous blunting, that usually makes the diagnosis of celiac. Celiac has over 200 symptoms and...
  9. TexasJen
    In Austin, all the gluten free eating is pretty spread out. In central Austin/downtown, Wildwood Bake House which is 100% gluten-free. There are also restaurants that are mostly gluten free - Piknik and Casa de Luz are almost 100% gluten-free. There is a new bakery called Zucchini Kill that is 100% gluten-free. In north Austin, GuacoTaco is 100% gluten...
  10. TexasJen
    Hi Boat Life- 2 things: You don't mention why you had the blood work done in the first place. Are you having symptoms? Do you have a family history of celiac? Certainly, the lab work is very suspicious for celiac but it's possible to have false positives. So get the biopsy to confirm, esp if you don't have many symptoms. Also, it looks like you...
  11. TexasJen
    Between Worlds of Fun and Liberty.....
  12. TexasJen
    Karen - what restaurants do you like to frequent in KC right now? My in-laws live there and we are headed up next week. I have not found too many places in the northeast part of town that I feel comfortable at.
  13. TexasJen
    Austin, Texas would actually be a pretty good choice. We have 3 gluten free restaurants and several others that are almost completely gluten free. We also have 3 additional gluten free bakeries spread out around the area...... Downside is that everyone else has figured out that Austin is a pretty great place to live so you'll have to compete for housing...
  14. TexasJen
    About a year after my diagnosis of celiac, I developed GERD out of the blue. My symptoms don't appear to be related to CC but to be honest, I'm still not 100% sure. I have found, though, in addition to cyclinglady's recommendations, that eating small meals with mostly whole foods, avoiding alcohol, dairy and all coffee/tea really seems to help. Hope...
  15. TexasJen
    I was sad too! I think that's part of a normal reaction to something that will change your life so much. But, it hasn't stopped us. My kids are young but seem to have a travel bug. Traveling is by far the hardest part! We went to New Jersey, DC, LA, Houston, and the mid-west this summer and I'm alive and healthy! I usually try to stay in a hotel...
  16. TexasJen
    I would say that your doc is wrong. There is some evidence that negative TTG levels does not mean that you are not getting some cross contamination here and there. So, annual antibody checking does give a bit of a false reassurance when the results are negative. The problem with repeat endoscopy is that changes seen on pathology can take 1-2 years to...
  17. TexasJen
    Reese's pieces and Reese's PB cups are safe. Also, plain Hershey kisses say gluten free on the package here in the US if you would prefer something labeled.
  18. TexasJen
    Oh, I missed the part about Canadian candy. Maybe you can buy some American candy on line - then you would know it's safe. Can you buy American candy on Amazon? I buy everything on Amazon! Can you call the Hershey's in Canada and ask them? Pick your favorite candy or two and research it? Just a thought....
  19. TexasJen
    Actually, an endoscopy refers to any scope inside the GI tract. An esophagoduodenoscopy refers to a scope in the upper GI tract - esophagus, stomach, duodenum and a colonoscopy is a scope through the colon. Typically, both are done when the diagnosis is blood in the stool as the blood can originate anywhere along the GI tract (or even in the sinuses/nasal...
  20. TexasJen
    There's so much candy that you can eat. M&Ms (except the pretzel), Butterfinger, Skittles, Starburst, Hershey's kisses, Reese's and Reese pieces.... https://www.verywell.com/gluten-free-candy-list-562806 You do have to be a bit careful though with seasonal varieties which may be made on shared equipment. Check the above list which is pretty...
  21. TexasJen
    Karen is correct. The blood in your stool justifies a GI appointment. What if you have Crohn's or ulcerative colitis that is going untreated? It could even be something more serious. You definitely don't meet the criteria for Celiac at this point, but that doesn't mean you don't have it. 10% of celiac patients are seronegative (antibodies are negative...
  22. TexasJen
    Hi Jennie- I'm sorry you feel so miserable. Do you have a copy of the labs results? That might help shed some light on how best to make your plea to the GI to get you in sooner. Regardless of whether you have celiac or not, it sounds like something is going on. There are several steps you could take depending on the results. 1. Labs...
  23. TexasJen
    Plantar fasciitis is common in general. I'm not sure if it's more common in celiacs in particular but I don't think it necessarily means anything ominous. I will say that you should make an appointment with a regular doctor that knows you. You should never go to an urgent care for chronic problems. Their job is to fix one problem and move on. They don...
  24. TexasJen
    If I had all the symptoms you described, I would get tested! It sounds like you have been feeling pretty poorly. There are a lot of symptoms of celiac so your symptoms could definitely be celiac or NCGS. Good luck!
  25. TexasJen
    That is a crazy thing about celiac. There are several hundred different symptoms and everyone seems to have a different combination. It could be celiac. Good for you for thinking of it! Now get tested so you won't be left wondering...... Make sure to keep eating gluten while you are waiting for the testing. About the equivalent of 1 piece of bread...
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