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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About s_berry

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  1. My older brother was diagnosed about 5 years ago when he was in college. He was so sick that he had to drop out. The doctors didn't know what was wrong with him. The thought he had cancer, Rheumatoid Arthritis, IBS, everything BUT celiac disease. He ended up being hospitalized because his celiac disease was so bad. While he was in college he did everything he could do to "bulk up". He was always skinny and so he tried eating more pasta and stuff to gain weight. He was doing everything he shouldn't have been doing basically. Once he was dignosed, my mom got really depressed. She blamed herself for him being sick. The really funny thing about it is that both he and I have celiac disease and our grandmother had it too....I mean really, you'd think doctors would look for family connections first! Anyway, when I was a junior in college, I dropped 30 pounds in one semester. I was living at home and commuting to school as well as working nights as a bartender. I can't tell you how many times my mom freaked out at me thinking I was either bulimic or on drugs. I couldn't figure out why I was losing weight but I wasn't making the connection between that and the other symptoms I was having. It was my brother who finally put two and two together and told me to go see someone about it. Sure enough, I have Sprue also. The point I want to make is that while you don't see it all the time, your parents go through a lot with you being diagnosed too. Its a lifestyle change for everyone and a lot of people are in denial at first. Just remember that they're people too. Deep down they want you to be happy and healthy but to get there they first have to admit that as your parent, they missed something big that was going on with your life. They might feel like they failed as parents and so they're denying that anything is wrong with you. They'll get over it. As cheesy as it sounds, get them involved. Have baking days on the weekend and make gluten-free stuff with your mom. Get her involved in a way that makes her think she's getting involved in your life. Be sneaky about it. You can educate them and they won't even realize it! -Steph
  2. Beki- You can get your gluten-free food as a prescription???? Thats awesome. Here in the states it's bad too. Supposedly there is a tax break here for people with celiac disease but it involves keeping all of your recipts from grocery shopping the entire year and it sounds like a pain. I've discovered that there are cheap ways to eat. When you want to eat out, go for Indian. I know there are some great, inexpensive Indian restaraunts in London or you could try Thai food too. Sushi is good as long as you bring your own gluten-free soy sauce. I basically live off of rice which I buy in bulk. I put it in soup, use it in casseroles that require pasta and it's just as good. The most difficult meal for me is lunch. So many meats have gluten in them and so do most salad dressings. I work in a large hospital and you would think that they'd be accomodating, but they're not. I usually stick to salad with my own dressing. I hope everything works out for you in the end and if you find that people, you doc, insurance company, or your government aren't being accomodating to your needs, then raise hell and "rock the boat". We need to bring as much attention to celiac disease as possible anyway! Cheers! -Steph
  3. I Am 18 W/cd.

    Hey All, Erin- I believe there is a company from Germany that has begun to make gluten-free sacrament wafers (endorsed by the Vatican too I believe). I can remember as a kid, there was a girl in my school who had celiac disease. She used to bring her own to church every Sunday and the priest would bless it. Another option is simply to opt out of taking communion. I know it's a big part of the mass but God wouldn't want you to be sick. To all of you in college- I was diagnosed in the middle of my Senior year of college but I was sick long before that. Being in a sorority made things difficult because you are expected to take part in social events (almost always involving alcohol consumption). I discovered that hard cider was a way to get around the beer question. Beer is one of the WORST things for me, I am so sensitive to it and I'm sick for days after drinking it. Hard cider comes in a bottle that looks like microbrewed beer. Most people will simply see you just holding a bottle and not question what it is. Those that do usually think it's pretty cool that you like to be adventurous and try new things. Also, while wine and many distilled alcohols are gluten-free, be really careful of beverages like Smirnoff Ice or wine coolers. They're malt beverages and give a similar reaction to beer. I think Boone's Farm is Apple Wine and therfore probably gluten-free but I don't know for sure. More Importantly, you don't have to drink. Amazingly enough most people will respect your desire to be "straight edged" and not drink if you're firm and don't give in to peer pressure. College was an amazing time but I am realizing now that I am out and recovering from my gluten full days that I felt physically crappy almost the whole time. I think about how much more fun it would have been not to be tired and sick all the time. Be thankful that you were diagnosed when you were. Your diagnosis isn't a curse, it's a blessing. Now you know what to do and not to do to make yourself 100% your best and enjoy life to its fullest. Good luck to all of you! Steph
  4. Try some brown sugar or maple syrup (REAL) on your acorn squash. Its really really good!
  5. Obesity

    I have gained abouut 15 pounds since being diagnosed with celiac disease in May. My older brother was diagnosed about 5 years ago and I can remember him gaining about 30 in the first few months so it seems to be a pretty normal course of action. I think when you're in active Celiac mode it's like a starvation diet. While you're eating normal or even excessive amounts of food, your body can't process or absorb much so it thinks its being starved. Once you go gluten-free and your body begins to heal itself you pack on all the weight you lost plus some because your body is protecting itself from starvation mode. The unfortunate thing is by the time your body has healed itself so it can absorb nutrients, your metabolism is so screwed up that you can't drop what you've put on. I don't know what the ultimate answer is but I think it probably is a combination of several things including exercise and eating gluten free. You might also want to try to eat in a way that will help you to restart your metabolism. I think they say that eating small protien rich mini meals several times a day can do this as well as weight and resistance training. I am just beginning to take my celiac disease seriously. At first I liked the fact that I went from a size 12 to a 6 and wanted to stay that way. Now I'm back to a 10 and I'm trying to lose the right way because while being a size six might be appealing, I can't fit into my "skinny" clothes when I'm bloated anyway so it's pointless and too painful to continue. Good luck to everyone, I hope you are all successful and remember that if you're healthy it will show in more ways than one and you will be beautiful regardless of how much you weigh
  6. Need Advice

    Hello All, I was diagnosed with celiac disease in May. I'm the younger sister and grand-daughter of 2 celiac's so one would think the transition to a gluten-free diet would be easy. It hasn't! It's been horrible. All of your suggestions have been extremely helpful as I am constantly on the road (I travel 2+ hours once a week for grad school) and fast food is always tempting. One of the most dissapointing things for me was not being able to eat Hidden Valley Ranch dressing...I used to like it on everything. i have since discovered that Newman's Own dressings are gluten free. Well the Ranch is anyway. There is also an all natural line called "Annie's" which isn't bad. Now if only Dunkin' Doughnuts had a gluten-free menu!