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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

JJav123412

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  1. Just an update... I took my daughter to the GI dr today. He reviewed her results and said that her AGA IgG result either means nothing or is a false positive. He doesn't want to scope (neither do I for that matter). He said that he doesn't know what the ttg/dgp test is but her IgA is normal even with her total Iga is borderline so that is the test most likely to show celiac. He isn't sure what to make of her results because the Aga usually isn't run anymore and NCGS is "controversial." So bottom line is I got no answers. He wants to repeat with a full, complete panel & genetic testing in about a year. He said, besides her constipation issue, she is within the 20th percentile for height and weight and is overall healthy. So frustrated. But, to be honest, I wasn't going into this appointment very optimistic. I kind of knew I wasn't going to get answers.
  2. Thank you all so much for all of your opinions, suggestions and comments!! I am definitely following up with a GI specialist and maybe an allergist. I also started keeping a log of what she eats during the day (she tends to gravitate towards gluten-free stuff more often then not so for her result to be high when she is eating mostly gluten-free is concerning as well). And the reason she eats a lot of gluten-free is because she was allergic to milk until the age of 2 so we bought a lot of allergen free products that she is just used to eating still. Don't get me wrong, she still eats some gluten everyday but not a lot. I am going through a similar situation with my oldest as well. She is 7, has the gene for celiac, is IgA deficient and has a high ttg-igg result. They never performed more thorough tests like the DGP or AGA or EMA on her. Yet they told me she was positive for celiac, when she was 18months, based on her ttg-igg result and performed a biopsy which of course was negative (knew it would be given her age). I was then told she doesn't have it and that was that. It is very frustrating but I need to follow up with both children. My husband as well tested high on the ttg-igg test but drs told him he is fine but can't give an answer as to why both have an elevated ttg-igg level. Told him to just see if symptoms get worse and retest every year. Back to my youngest, her primary still has not called me about her results - thank goodness I can view them online myself! I'm not even sure they will call me. I get dismissed a lot. But I am a concerned parent and I will keep pushing for answers! Good luck to you too Celiac's Wifey! I hope you get the answers you are looking for as well!
  3. My daughter (5) just had bloodwork done due to severe constipation. They tested for celiac (family history) and other bowel disorders. These are her results... Her Antigliadin IgG is very high (moderate to strong positive). Everything else normal. I keep reading different things but can not get a definitive answer on the high antigliadin. The doctor has not given me any guidance yet - I just seen the results posted online. Any ideas if this points towards celiac or something else? Or is it normal? Bowel Disorders Cascade Atypical pANCA Negative Reference Range: Negative Note: Cascade continues Antigliadin IgG (native) 42 HIGH Reference Range: 0-19 units Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 . tTG/DGP Screen Negative Reference Range: Negative Saccharomyces cerevisiae, IgG <20.0 Reference Range: 0.0-24.9 Negative <20.0 Equivocal 20.1 - 24.9 Positive >or= 25.0 Celiac Disease Panel Immunoglobulin A, Qn, Serum 53 NORMAL Reference Range: 51-220 mg/dL t-Transglutaminase (tTG) IgA <2 Reference Range: 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 . Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstr- ated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Endomysial Antibody IgA Negative
  4. So my husband had a celiac panel done (family history). He has basically no gut symptoms. His Gliaden Iga & Igg were negative. His ttg Iga was negative. However, his ttg Igg was elevated (28, normal less then 20). He went to the GI dr who told him that having an elevated ttg Igg alone was no indication of celiac and that he does not have the disease. He said that some people just have elevated ttg Igg for no reason. There has to be a reason for the elevation, correct? His cbc bloodwork was all normal. Dr said there is no need for further testing (ie, EMA, vitamin deficiencies or genetic testing). Do you agree?
  5. He had an endoscopy back in 2011. It was negative. He doesn't want to repeat the endoscopy. I will have him see GI to see what they say. They may want additional testing & /or genetic testing. He doesn't have GI symptoms but he has random tingling in his hands. Could be unrelated but I remember reading that could be a symptom. I wish testing was like a pregnancy test - positive or negative!
  6. I just picked up the report. They did not do the EMA. The ranges for all tests above (with exception of total iga) are <20. The only elevation is the ttg igg. Is this blood test, along with his mother having the disease, enough to diagnose? He does not want another endoscopy.
  7. So I had my husband repeat the blood work (initially it was done in 2011), Here are his test results. I am waiting for the full report with the ranges and EMA results - I was hoping someone might be able to shed some light? All we were told are is ttg levels are elevated and see a GI dr. CELIAC PANEL 2017-04-15 IMMUNOGLOBULIN A 246 GLIADIN IgG 16 GLIADIN IgA 6 TTG IGA 7 TTG IGG 28
  8. 2 questions: My husband tested a weak positive for celiac, however his biopsy was negative. He can eat gluten and has no issues. He does say he sees a little blood in his stools. Does a weak positive mean he has celiac? (FYI, his mother has celiac). My daughter, 7, has an Iga deficiency (19). The GI dr, at age 1, said she was positive for celiac but her biopsy was negative. We did nothing at that point and continued with her regular diet. I had additional testing done on her recently and she was positive for DQB1 02 but her ttg Iga & ttg Igg were negative. She doesn't complain of abdominal pain when she eats gluten but I have noticed that she has cut back on eating certain foods (pasta, pretzels, etc) all things that she liked before. I don't want to do another endoscopy on her but I wonder everyday if she could have it?