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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

artistsl

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  1. Has anyone ever suffered a reaction from swimming in the pool? Is that even possible? Just curious. Thanks in advance
  2. Rash

    Cortisone cream for the itch and neosporin for the sore.
  3. I've experienced POTS along with some strange issues with my peripheral vision when driving. Water definitely helps. I've heard iodine intake can cause DH to flair. I wonder if the high water intake flushes iodine. 🤔 Again, just another deep thought from Stephanie.
  4. Lotions

    Thank you! Words cannot describe how much this sucks. I am about to lose my mind over this rash. I think I'm going to go back to the dermatologist today to have it swabbed again for infection. It seems like either the infection may be coming back, my DH is flaring like crazy or both. While I'm there I'll see if she can prescribe some dapsone. After that I'll run to CVS to find a gluten free lotion. Also, is there a gluten free shampoo you guys recommend?
  5. I'm just thinking, if you have sores in your mouth then wouldn't the antibody be present at that site, just as it would be with dermatitis herpetiformis, and could this area provide promise for a positive biopsy?
  6. Lotions

    I have a rash that is suspected DH. The biopsy results won't come back for another 7-10 business days. I am currently recovering from a gluten challenge where my DH had subsequently turned into a very nasty bacterial infection. It is such a miserable situation. If I eat anything with gluten blisters will form underneath the infection sight. So in addition to not eating gluten, I would like to find a lotion that does not contain gluten. Some of the infection is starting to clear up and is really dry. It definitely could use some moisturizer, but I in no way want to use anything that could make my situation worse. Does anyone have a recommendation for a good lotion that they use regularly?
  7. I've had it twice and it was served to me different each time. The first time it was served warm in a sealed bag. The second time it was served warm, not in a sealed bag, but on their traditional paper. I should have refused the possible contaminated order, but I was hungry and in a hurry so I accepted it. My symptoms are a rash so it's not extreme intolerance, but I can say that I'm disappointed in their inconsistency. 👎
  8. I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night. If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded unscientific guess.
  9. How do I know my DH is healing?

    Sorry. I can't get the pictures to upload. If you are interested I can send them to your email. Since reading your post I got to thinking about handsoaps and lotions. I have no idea which brands do or do not contain gluten, but I tend to use Eucerin and Dove brands. Has anyone researched which brands to avoid and which can be considered go-to?
  10. How do I know my DH is healing?

    It takes weeks, maybe months. The first two pics are days after I stopped eating gluten. The last picture is one week after I stopped eating gluten. Neosporin seems to help alleviate the open wounds. I keep it wrapped in gauze since it's on my hand, to keep from geeked infected. Good luck! It took me about four months to get it to go away completely the first time I stopped eating gluten.
  11. My son was borderline Hashimoto's. He tested out of range on his TSH. We removed gluten from his diet a week after having been tested and he was retested four months later. His thyroid is now within range. I plan to retest again. I have five family members with Hashimoto's and my son is suspected NCGS and myself celiac (hope to get positive biopsy via DH). Like you, I very much question the correlation between gluten sensitivity and thyroid syndrome.
  12. DH biopsy question

    I called my dermatologist back and she said that it needs to be biopsied when a blister is starting to form. This makes sense to me because if I were to perform a twelve week gluten challenge then by that time the area in question would likely be all scab and no longer show any blistering. I'm going to try her method and let you know how it goes. I made an appointment for July 5th because my blisters are usually predictable and form within 2-6 hours after consumption. I'm relying on that consistency for the biopsy.
  13. Keratosis Pilaris?

    My son had keratosis pilaris covering his entire torso at one point. I believe it was caused by elevated thyroid and/or gluten consumption.
  14. Trying to get diagnosed

    Please keep us posted on what you find regarding the process for DH diagnosis. I've had a bilateral rash on my knuckles for eleven years that drives me nuts. Sometimes it itches so bad that it consumes every thought and keeps me awake throughout the night. I went gluten free and after four months it went away entirely for the first time in eleven years. I've performed at least ten gluten challenges on myself and it comes back within 2-6 hours every time I consume gluten. I went to see a dermatologist and she said that she will perform a biopsy and to call her next week when a blister starts to form and from there she will biopsy. She said that sometimes it can take 3-4 biopsies in order to get a positive. So I am thoroughly confused as to whether I need to do a 12 week gluten challenge or just eat it a few times and have it biopsied. 😕 Hang in there though. Your rash will get better in time.
  15. I read something so bizarre about dh

    Interesting. I will have to try niacin to see if it can control this agonizing itch. I'm currently doing a gluten challenge and this rash is driving me nuts!