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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

artistsl

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  1. I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night. If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded unscientific guess.
  2. Sorry. I can't get the pictures to upload. If you are interested I can send them to your email. Since reading your post I got to thinking about handsoaps and lotions. I have no idea which brands do or do not contain gluten, but I tend to use Eucerin and Dove brands. Has anyone researched which brands to avoid and which can be considered go-to?
  3. It takes weeks, maybe months. The first two pics are days after I stopped eating gluten. The last picture is one week after I stopped eating gluten. Neosporin seems to help alleviate the open wounds. I keep it wrapped in gauze since it's on my hand, to keep from geeked infected. Good luck! It took me about four months to get it to go away completely the first time I stopped eating gluten.
  4. My son was borderline Hashimoto's. He tested out of range on his TSH. We removed gluten from his diet a week after having been tested and he was retested four months later. His thyroid is now within range. I plan to retest again. I have five family members with Hashimoto's and my son is suspected NCGS and myself celiac (hope to get positive biopsy via DH). Like you, I very much question the correlation between gluten sensitivity and thyroid syndrome.
  5. I called my dermatologist back and she said that it needs to be biopsied when a blister is starting to form. This makes sense to me because if I were to perform a twelve week gluten challenge then by that time the area in question would likely be all scab and no longer show any blistering. I'm going to try her method and let you know how it goes. I made an appointment for July 5th because my blisters are usually predictable and form within 2-6 hours after consumption. I'm relying on that consistency for the biopsy.
  6. My son had keratosis pilaris covering his entire torso at one point. I believe it was caused by elevated thyroid and/or gluten consumption.
  7. Please keep us posted on what you find regarding the process for DH diagnosis. I've had a bilateral rash on my knuckles for eleven years that drives me nuts. Sometimes it itches so bad that it consumes every thought and keeps me awake throughout the night. I went gluten free and after four months it went away entirely for the first time in eleven years. I've performed at least ten gluten challenges on myself and it comes back within 2-6 hours every time I consume gluten. I went to see a dermatologist and she said that she will perform a biopsy and to call her next week when a blister starts to form and from there she will biopsy. She said that sometimes it can take 3-4 biopsies in order to get a positive. So I am thoroughly confused as to whether I need to do a 12 week gluten challenge or just eat it a few times and have it biopsied. 😕 Hang in there though. Your rash will get better in time.
  8. Interesting. I will have to try niacin to see if it can control this agonizing itch. I'm currently doing a gluten challenge and this rash is driving me nuts!
  9. Have you considered trying a B12 supplement despite? My son tested within range on B vitamin yet I gave him B12 despite and his lingering symptoms disappeared.
  10. This sounds really weird, but have you tried giving him vitamin B12? The reason I ask is because you mentioned that he has a strong habit of touching his mouth. My son had a strong habit of touching his eyelids. Not all the time, only during times when he might be perceived as being in deep thought or very focused on something. This was his only lingering symptom after going gluten free. The neurologist diagnosed it as a "stereotypy". Despite not testing positive for vitamin b deficiency I decided to give him a high dose of B12. After 2-3 days the stereotypy disappeared and only comes back mildly when he is accidentally glutened. Sounds strange, but I almost wonder if your son might be experiencing something similar.
  11. Oh, and yes to question #1. Infact, I've been told by my dermatologist that it's common for those who test positive for dermatitis herpetiformis to have no GI symptoms at all.
  12. Yes, we had the MRI, EEG and a large amount of bloodwork. All negative. He would have episodes where he didn't know where he was, auditory hallucinations, insomnia, sensory processing issues, stereopathy, issues with balance and coordination, etc. They were trying to rule out encephalitis. His symptoms disappeared after going gluten free. The decision to go gluten free was discouraged by our neurologist, but desperate people do desperate things and turns out that our neurologist isn't quite as knowledgeable as we had so naively suspected. His symptoms abated after two weeks gluten-free and entirely resolved after four months gluten-free. He's had quite a few accidental glutenings since we started the diet and his symptoms are very consistent. They come back and persist for three long days if he eats a few pretzels. There is no disputing gluten as the trigger. It's mind blowing to witness. Thank you for sharing your knowledge and experience. I'm relieved to hear that there have been additional genes implicated because my heart breaks for every single person who suffers from the lack of knowledge.
  13. Building off of what Ennis_TX mentioned about serotonin, you can try a good multi strain probiotic. There are some strains noted for the ability to produce serotonin and dopamine. I use the Garden of Life brand for my son. My son experienced insomnia from eating gluten so it was quite the opposite situation that you deal with. B vitamins have helped him tremendously with his neuro symptoms. I'm not sure to what effect if any it has had on his sleep pattern.
  14. My son is five years old and suffers from neuro and psychiatric symptoms when he digests gluten. He tested negative for celiacs. We went to Boston Children's and they entered him in a genetic research study. We traveled to the Mayo Clinic and they offered to perform a gluten challenge and spinal tap from there. We have chosen not to pursue the food challenge/spinal tap, but has anyone here had success with this method as a diagnostic procedure?
  15. My intent is to get a positive on the DH. I guess I'm questioning the duration of a food challenge. My dermatologist told me to just eat gluten and call her next week when a blister starts to form. It only takes 2-6 hours for me to develop a blister after eating gluten. I guess I'll give it a couple of days of eating gluten and then call her back just to be sure. Sorry, this is all so confusing to me. Science really needs to get on the ball to develop a test that can diagnose immediately.