Sarah C

Thanks again Emma. I really relate to your sofa/ paddle board comment. We were on holiday and everyone was taking turns paddle boarding and I could only sit and watch. And I get my friends to tell me about their gym classes- a combination of self- torture and living vicariously! You are my new role model

Thank you ironic. Thank you Emma for taking the time to share. I found a paper by that doctor and it looks like I am the rarest of the rare - pure motor neuropathy. I am sorry you have had to deal with such an array of symptoms. The possibility of it taking 2 years to recover as much as is possible is actually encouraging in that I can retain...

Thank you. It is not exactly gluten ataxia but likely on the same spectrum. I am not ataxic and had no cerebellar signs on clinical exam Ennis thank you for your input.

Hi everyone After a long journey I am now believed to have a neurological presentation of celiac. My symptoms were an increasing leg weakness. By weakness I mean that the muscles simply stopped working and I was unable to walk on my toes, then my heels ( foot drop) then unable to stand on that leg. I did not feel weak at all. I just could not do things...