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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

JM075

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About JM075

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  1. Thank you for sharing your knowledge. I do suspect my son and my mother - they both have tummy issues but I can't convince my mom to see a dr for her sudden and tremendous weight loss let alone this. My son doesn't have health insurance at the moment but as soon as he gets it, he's willing to go. I'm sorry about your niece's Crohn's diagnosis. My other son's drs thought he had that but thankfully he didn't. He also suffers from chronic constipation and has had so many tests and none of his drs can figure out why.
  2. Well, the Dr answered my request for the EMA and DGP tests by quoting his previous message (stating that my results mean that I have some Celiac genes and that I am at risk of developing it but it doesn't mean that I have it or that I will develop it) and that if I needed to discuss it more I would have to make a follow-up appointment. *shrugs*
  3. Oh, I just assumed what I had done was the complete panel. I'll definitely ask for those two tests, thanks so much. Pretty disheartening to hear that even with negative blood results people may still be walking around with it feeling terrible. Glad yours was caught
  4. I had to google that as I'm not familiar with the terms. That's just another name for Celiac Disease, right?
  5. Sorry. I just figured out how to quote lol. No, those were all of them.
  6. I was recently tested for Celiac Disease because of symptoms I've been experiencing for years. My primary doctor ran the first test a few months ago after I had been gluten free for about 6 months or so (I resumed eating gluten for about 4 weeks, then had my blood drawn.) The test was negative. Primary doc diagnosed me with Non Celiac Gluten Sensitivity because of the negative test (and because I told her how much better I had felt when I was off of gluten), and referred me to a gastroenterologist to follow up because of my symptoms. I continued eating gluten until I saw the gastro in case he wanted to run other tests, so I was back on gluten for roughly 15-16 weeks before he ran a comprehensive celiac panel. The results were: No evidence of celiac disease by serology but Celiac risk alleles are present. HLA-DQA1 Genotype value 01, 03 HLA-DQB1 Genotype value 06, 03:02 Celiac Risk Haplotype value Positive IgA value 204 (range 78-391) Transglutaminase Ab, IgA value 3 (range <20) Celiac Category value 2 (DQ8 and other low risk allele - Moderate) I don't see him again until June, so I messaged and asked what the results meant and he told me that I have some Celiac genes and that I may or may not get it but I don't have it now. My question is, should my family be tested also? My mom (father is deceased), grandmother, aunt, and my children? Are the genes common in the general population? I don't want to make a big deal out of it if it's nothing to worry about, but I also don't want to ignore it completely if there's a risk my family might have undiagnosed celiac disease. He's having me do other tests also (lactose, fructose, and glucose breath tests, EGD, manometry, and colonoscopy), but I think celiac disease's been ruled out. Is there anything else I should ask for or does that pretty much cover it? At my appointment, he had mentioned that my symptoms could be caused by the glucose (or was it fructose?) in the foods and not the gluten. Hm... Anyway, thanks so much in advance. I look forward to hearing your input!