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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Hellodee2

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About Hellodee2

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  1. I would kill for a thick gluten free pizza crust. Every crust is thin, watery and tasteless. If there is a thick gluten-free crust out there, please let me know!
  2. I have neuropathy. Mine is worse with cold. My hands and toes get so bad I cry. I don't know what to do to make it better but just wanted you to know you aren't alone. I hate feeling alone with this disease.
  3. I agree. Never buy Great Value anything that you eat. Their diced tomatoes even have wheat in them. Make sure you check every label. I've been reading every label of everything I buy so I don't get contaminated and I never eat anything that was processed someplace that also processes wheat. Don't believe Cheerios either. They make a lot of Celiacs sick. I got really sick when I ate Multi grain cheerios that were supposedly gluten free.
  4. I found out that most of my family is allergic to apples about 5 years ago. I don't think it's the apples. A couple of years ago I started having diarrhea episodes, like yours, every six months. The last one almost killed me. I was in the he ER hooked up to an IV. The doctors had no idea what caused it. Luckily it's been awhile since my last bout. Normally, I'm constipated and have to take Linsess. They don't know why I'm constipated either. I hope you feel better knowing you aren't the only one. Let me know if they figure your problem out. It might help me or my doctors. 😊
  5. My DR gave me pictures of my biopsy. First time that ever happened to me. Try not to worry too much. You'll be out for the biopsy and you won't feel anything. Except the dreaded IV of course. I think colonoscopies are far worse. Good luck and take deep calming breaths ☺
  6. I've been gluten-free for 11 yrs and I still have poop problems. My GI doc just gave me Linzess for my chronic idiopathic IBS w/constipation. I don't think I've had a normal poop since I was 20 yrs old. I hope you don't go the way my bowels have (I'm 52 and not looking forward to being like this until I die). Good luck. Thought you'd like some worse case scenario input. At least I don't have UC or Crohn's
  7. I tried saving receipts and itemizing everything one year. It came out just a few dollars below the standard deduction so I don't even bother anymore. Plus, I don't eat much bread or noodles, the older I get. The hassle of being gluten free has turned me into a fresh fruit, vegetable and meat person. Good luck.
  8. I feel your pain but instead of making the 3 others in the house conform to my standards, I just make my own meals w/or w/out them. I have my own appliances, my own shelf in the fridge and my own cupboard. They use as little flour as possible and use mine when it's in a recipe. Everything is separate. I've been doing this for 11 yrs and it still makes me feel like a freak but I watch everyone like a hawk in the kitchen and at the table. If in doubt, I ask what they used and I read all labels. It reminds me of living w/someone who eats your food so you have to hide it or write your name on it. The main goal is YOU not getting sick, so stand up to them and get yourself your own gluten-free area to work in. My kids were teenagers and I didn't get sick, so you should be able to teach the 13 yr old. Good luck. Stand up for your gluten-free self. Personal question, does your significant other brush their teeth before kissing you? I don't kiss my fiance unless he's just brushed and not had beer or other poison for me.
  9. Is elk meat gluten free

    I've eaten plenty of deer meat and elk and it's never bothered me. As long as you process it yourself you should have no worries. All of the steak and hamburger that we've had made for us never made me sick. I did not eat the sausage or jerky because it might be cross contaminated. Any meat, vegetable or fruit should be gluten free. There are weeds in your garden and driveway that you can incorporate into salads that are good for you and gluten-free.
  10. I love beer and have been totally offended by gluten free beer. I drink Omission and New Belgium Glutiny. None of these have made me sick and none have made me think "Wow, that's a great beer!" I'm trying to find a good tasting beer but have resigned myself to drinking hard ciders.
  11. I hope you get a definitive answer soon but from what you've said you have celiac. I used to get canker sores all of the time but haven't had one since going gluten-free. I would keep eating gluten until your endoscopy because my reaction is 100 times worse now when I eat gluten. I vomit until it's gone. Then I have the mental problems for a couple of weeks. From your description of your skin, I would say you have DH. But you really need the endoscope to tell you 100%. Good luck. If you have celiac, know that it is much easier to live with now than 50 yrs ago or even 10 yrs ago.
  12. I was diagnosed in 06 and still have stomach gurgling, constpation, right and left rib pain plus other stuff and I wonder if I'll ever be healthy. I never had a dietician but relied on books to inform me. I was just told to start Vit D supplements and I have to take linsess for my IBS-C. When I'm glutened I vomit unless it's very minor then I get that angular cheillitis on my mouth. I just had an endoscope and I guess my villi are ok. I think the pill cam would be best to determine damage through entire intestine. I have pain when bowel movement's move through me and I get cramps from just about everything even water. I've had multiple opinions because I move a lot and change doctors frequently. Your GI doc should give you a handout that lists safe foods. I just found out you shouldn't eat 'bleached' anything and you shouldn't use benzoyl peroxide. It makes my face swell. I would follow all the Celiac websites and the NIH. Carol Fenster has a lot of good informational cookbooks you could use for home cooking. My advice, learn what has gluten in it (spices,etc) then read everything you buy. When in doubt call the company and ask. Being sick sucks, so be proactive.
  13. Kissing someone drinking beer

    I make sure I don't kiss my S.O. Unless he's brushed his teeth. Food from his glutinous meals could cross contaminate me. I don't share straws or drinks with anyone eating or drinking gluten. I'm extremely paranoid about being glutened and I'm pretty sensitive to it so it's best to be on the safe side.
  14. The Vomit Comet

    I'm 11 yrs diagnosed and if I get glutened I puke like there's no tomorrow. Once it's all out I feel great but if I don't throw up, I suffer for days...to the point of having to go to the emergency room. I'm 52 yrs old and also going through menopause so none of this is fun for me. If I eat something and 2 hours later I feel nauseous; I have a bag or bucket with me and I let it fly. I think getting the gluten out as quick as possible is the best thing for you.
  15. Hi George, I wonder if that is what is wrong with me. I've had a pain/pressure on my right and left side. Just below or behind the bottom rib. The right side has been hurting since Sep. With numerous testing they have found nothing. I get diarrhea attacks a couple of times a year that last about 1 month but usually I'm constipated. They finally said I had idiopathic IBS w/constipation. The pressure intensifies when I eat and I can't lie comfortably on my right side. My liver enzymes were a little high so I cut back on the alcohol but nothing has improved. I'm at a loss because the only thing they haven't done is an MRI. I have arthritis in my hips so I have pelvic pain too. It looks like I have some reading to do by the links in this thread.