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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Grumpopotamus

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  1. Final Update: The endoscopy showed no signs of celiac damage (several biopsies were taken). There was "minor inflammation - not clinically significant." As it happens, endometriosis may be the culprit concerning GI symptoms and back pain; we had a bit of an epiphany-week! Unsure why the weak positive showed on the ttg, but I will be going "gluten-lite" and monitoring my diet to see what causes flare-ups of symptoms. When I realized how difficult a celiac-style life change would be, that was the most worrisome aspect for me if I had shown positive for it on the biopsies. I plan to do some research and approach local restaurants, cafes, bakeries, etc., to get feedback on who provides a true gluten-free experience, and look at the potential for cross-contamination (hey pizza place, is your gluten-free pizza made on the same equipment as the regular stuff?). I hope to compile a good resource for a local family-style publication we have here, and maybe it will help local celiac families make decisions. If I were a true celiac, this would be my go-to hangout spot, as you all are very kind and compassionate around here! Thank you for taking the time to listen and give feedback.
  2. Just an update that may serve others well who are in this situation. The doctor himself called first thing yesterday morning and said he had misread the test results because of how they appeared on his computer screen (?), and promptly scheduled an endoscopy during my procedure next week. Moral of this story so far is that if something is confusing, ask until you get answers! If I hadn't spoken up an asked for a double-check and feedback, well... thank you folks for the encouragement.
  3. I'm going to run this by my primary care physician and see if we can't get another opinion. The reference range on the lab report said 0-3 is "Normal," and that 5 is "High." 🙄
  4. The nurse from the GI clinic called this morning and said the doctor "said everything is normal" (he had also ordered a CBC panel and TSH). I told her I was concerned about the one "high" value on the Celiac portion, and the response was "Well he is the hospital doctor and won't be back until next week. You can ask him about it at your procedure." I have a colonoscopy scheduled for next Wednesday, due to the symptoms I was having when he ordered the blood work. Talk about confused and frustrated
  5. Thank you; when I saw the "high" result, I immediately thought I should modify my diet, but I see why I should hold off for now. Yes, those are my hens, silly things 😜
  6. Thank you, cyclinglady. Your explanation is very helpful. My favorite part of your reply is when you said "keep eating gluten!" 😉 I didn't realize only one of those needs to be positive, and references ranges seem to be different everywhere. Thank you!
  7. Happy Monday friends, I am new to this forum. I'm a 36 y/o female, and am seeing a GI doctor for bowel changes and other unsavory symptoms. I have suspected Celiac, and although the GI doctor said he didn't think it was Celiac, he ordered tests to be thorough. I have waited a few days to hear from his office regarding the results, but I received the results via email. I'm awful at this waiting game. What the HECK does this mean? I'm seeing conflicting numbers online, and I'm utterly confused. Thank you for any light you can shed on these numbers: Endomysial Antibody Iga Negative T-Transglutaminase (Ttg) Iga 5 High Ref range: 0-3 U/ml Immunoglobulin A, Qn, Serum: 224 Normal Ref Range: 87-352 mg/dL