• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Kirsty40

Advanced Members
  • Content count

    16
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Kirsty40

  • Rank
    New Community Member
  1. Oh I will get off. It’s just that with stage 3 or 4 adrenal fatigue, I need a doctor to monitor things. Does anyone of you want to chat with me via Facebook Messenger? Would like to hear more about your stories. If so, send me a private message here.
  2. Celiac has already been excluded. I had a biopsy recently and also about ten years ago. Also the standard blood test several times.
  3. Thanks. Will see what the doc has to say next week.
  4. Gluten free 01, I totally agree that gluten free light is not good. I sometimes have to eat every hour. This seems to be related to low cortisol and low female hormones. Maybe also other deficiencies. I don’t think going gluten free is the only solution to this problem. I am sure with the help of a good doctor I will get there. And yes, so true that the food you get bad withdrawal from is usually very bad for you. How long did withdrawal last for you?
  5. Victoria. Yes I got tested for Addison’s but passed. The first test I barely passed. I have had adrenal issues for a while. Adrenal fatigue, but not advanced. I always had a lot of food intolerances. But gluten was fine. Histamine and salicylates where a problem though. Mast cell activation syndrome. In hindsight possibly caused by Lyme and my genetic makeup. Then I tried psych meds and they put me on valium to counteract startup side effects. I actually had a paradoxical reaction, not side effects. And after waiting that out I could not stop valium at once. I went to a very heavy withdrawal process for a year. That is when my mast cell actvation syndrome gt way worse and I became gluten intolerant. Had hardly any foods left. And because the withdrawal of gluten was so heavy, I could not go through with it fully. I hoped it would just go away after withdrawal was over. But I still have this limited diet and am gluten intolerant 2,5 years afer withdrawal. But the withdrawal process really hurt my adrenals and my nervous system. I can’t even tolerate most supplements. I guess the valium withdrawal and damage it did is also the reason that stopping gluten gives such bad withdrawal.
  6. Hi Matt, I was never fully glutenfree. Tried it and then got such bad hypglycemia. My blood sugar started to drop dangerously low every hour. After that I decided to take it step by step. I had only 2 slices of bread left. But still have 1,5 slices of bread left. Right now I fall asleep after meals with only tiny amounts of carbs, even if that is non gluten. This is because my cortisol has gotten too low. And my female hormones as well. This all got this bad upon tryng to cut out gluten. As there is no doctor yet to support me in this, it is too dangerous to continue on my own.
  7. Hi Matt, So you say your hypoglycemia resolved going gluten free. In my case, it got worse trying to get off. Now my cortisol, progesterone and estrogens are low. The extreme stress from trying to cut it out of my diet offset my menstrual cycle. That leaves me with a lot of anxiety, blood sugar issues worsen at specific times of my cycle. So I want the doctor to stabilize me hormonally, as far as that goes while being on gluten. I agree that I’d have to fully stop eating gluten. Not just a bit. Even though I removed all gluten except 1,5 slices of bread, I still experience the above symptoms. Some of those symptoms might be because of the hormonal situation. But they always worsen after eating gluten. My appointment with a hormonwise doctor is in 10 days. Seems such a short time, but hate waiting. Kirsty
  8. No milk in my diet. I don’t consume the major allergens.
  9. Yes I eliminated high glycemic foods. Eating only small amounts of carbs. No fruits, added sugars, starchy grains. Eating lots of fibrous veggies. Eating olive oil, as I don’t seem to tolerate the saturated fats or MCT oil. Allergic to nuts and seeds unfortunately.
  10. I often get rapid heartbeat after meals that raise the blood sugar. But especially so after eating gluten, which is only once a day now. Sometimes I have days where it won’t get up or falls too fast, other days it gets and stays to high. In general, the more inflamed or stressed (usually from my cycle) I am, the more the blood sugar shoots up. Most important is that when I stop all gluten, it won’t get worse. I am asking a doctor for help. Endocrinologist did not take it seriously. I often have blood sugar problems without extreme values. The gastreneterologist did not think gluten was the thing to stop, but wanted me to try anti allergy medication, which made me more ill. Now I am going to see a holistic doctor, who is specialised in adrenals, female hormones and food issues. Maybe she can have a chat with my gastroenterologist. I need the backup of a doctor. Victoria, I am so glad you got over it. I don’t care if it takes a year. As long as the stomach and gut problems and itching subside.
  11. As for the hypoglycemia, it seems, with some people it gets better after gong gluten free, with others it got worse.
  12. I exlored them. But wondering for the total of my symptoms if that all sounds very gluten like. Just feel so alone with all these weird, nasty symptoms.
  13. I already eat only non processed. Not too many ingredients, because of other intolerances. Only the reaction after eating gluten is so pronounced. Just wondering if all those weird symptoms are from gluten. Thank for th answer Ennis.
  14. Can you tell me if my symptoms can be caused by gluten intolerance? burning sensation in mouth (gums, lips) quickly rising blood sugar after eating gluten, then high heart rate I only eat gluten once a day. Later in the day, blood sugar won’t rise as much, but also goes down too much, despite eating a good combination of protein, carbs, veggies. No matter if I eat less or more. burning esophagus burning stomach stool that passes so quickly that I have bad cramps for a while afterwards and feel nauseous often joint pain itching burning skin constipation ringing in my ears nightmares stiff muscles, especially in my arms anxiety after eatng gluten temper tantrum after eating gluten (crying, anger, anxiety, ocd thoughts) hunger after eating gluten; sometims for hours, even at night shortness of breath/air hunger/not being able to breathe in deeply yawning I am feeling so desperate. I had blood tests and biopsy and it showed no celiac disease. I do have symptoms of itching, burning mouth, high heart beat, nausea shortly after eating gluten, so I know I am sensitive. I tried to stop gluten and then got such bad hypoglycemia, that I did not know how to continue. So I tapered slowly. But in the meantime, not really getting better. The hypoglycemia is now worse and seems to have to do with my hormonal cycle, which is also messed up. Tryng to stop gluten actually worsened pre-existing mild hypoglycemia. Also when teying to stop, I felt very dizzy, as if my blood sugar was too low all the time (couldn’t measure, no meter back then). I got very anxious, a lot of itching, my menstrual cycle got messed up, pain in my calves and cramps in my feet. When I cut out a small bit, I had it milder. Especially the dizzyness, brain fog and not being able to think clear got better. Can I expect the hypoglycemia to get better? I am so fed up with feeling sick all the time. But I am afraid too, what will hapoen when I stop, as I know the last time I tried was bad. Thanks in advance for taking the time to answer my questions. Kirsty
  15. Is it common to experience reactive hypoglycemia and anxiety after eating in the gluten withdrawal phase?