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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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  1. This is a good resource if you want to learn more about lectins. It's a recent book, may be available at a library. It has lists of foods to avoid and to eat. https://books.google.com/books?id=PwyxDAAAQBAJ&printsec=frontcover&dq=lectins&hl=en&sa=X&ved=0ahUKEwjz4Pj9n-DXAhVM_4MKHaQGAdMQ6AEIPTAE#v=onepage&q=lectins&f=false
  2. Don't forget it's not about the food. It's about being with your people. We've had good luck with Kroger's gluten-free turkey dinner from the deli area, if you don't care to cook. I didn't care for their sides, but the turkey was good. We now save turkey for Christmas and have brisket for Thanksgiving. A good BBQ place will offer it gluten-free on their catering menu with gluten-free and gluten condiments available.
  3. DH? Long and sad

    Did a dermatologist AND an allergist do allergy testing? Derm tests for specific skin allergies. If your skin is coming in contact with substances that you are allergic to, you can get reactions that get the catch-all eczema label. Same goes for allergies to dust, etc. that you may come in contact with. Years ago I would get deep itchy red areas that would surface; my skin would peel off until it was painful to touch anything. Best diagnosis I could get was dishidrosis. It tended to be mostly on the palm side of my hand. At some point allergy testing revealed an allergy to dust and mold, but avoiding these did not stop these episodes. Many years later I went to a good dermatologist who did skin allergy testing. After finding out I'm allergic to many fragrances and to nickel, I simply avoided these or wore gloves, and had no further flare ups. I recently went thru what I feared was DH. I had a rash with blisters that itched and burned. I had inadvertently used a hair product containing wheat protein, however it turned out to be the fragrance or dye in a dish soap I'd been using for a couple years. Perhaps they changed ingredients, who knows. After some light treatments, wearing gloves, and switching to a fragrance and dye free soap, my skin cleared up.
  4. Hi justsayno, I had GERD for a couple years, leading up to my celiac diagnosis. I had no other symptoms other than low Vit D and anemia. After starting the gluten-free diet, it took about 8 months or so for GERD to resolve. I had no problems with GERD until this April (about 4-5 years later). I had been eating very healthy, but in April started carrying a jar of peanut butter around in my car, and eating more chocolate. I had mild GI upsets from this. Everything went downhill after I had a milkshake in early May, and became even worse after trying 2 weeks of probiotics that contained inulin (chicory). As you've seen from this thread, I kept eliminating foods ... first dairy, then corn, then went on an acid reflux diet, in addition to starting Prilosec 2x daily. My GI thought all the GI distress / overproduction of acid, with delayed treatment (from self-treating) may have caused an ulcer. Priolosec 2x daily is a typical treatment for an ulcer. Despite all this, I was still having bloating. My Dr. finally added in low FODMAP, and this did the trick. I have no heartburn, no more feelings of excess acid sloshing around. I just saw my GI today. He said that this was likely coming on for awhile, and the dietary indiscretions just pushed it over the edge. He said the fact that low FODMAP worked suggests that I'm producing fewer enzymes. He cleared me to start decreasing Prilosec with a goal of being off it in a couple of weeks, and to start experimenting a bit with foods. So ... yes GERD can go away. Food intolerances might be causing your GERD. You might start by eliminating specific things that you think are triggers. I'd also suggest looking at acid reflux diets. I can't recommend the books by Karen Frazier highly enough. They are just so clear and give recipes and ideas of what to eat, as well as tips on how to manage GERD. If you decide to try low FODMAP along the way, she has one book called Flexible FODMAP that is a low FODMAP diet with info on how to modify that diet for acid reflex or IBS. Once again, everything is laid out very clearly and is very easy to follow. Good luck, and keep us posted!
  5. Hi Cristiana, Doing any better? I am finally on my way. My GI told me to add low FODMAP to my plan. I was already gluten-free, DF, CF, and on an acid reflux diet. I had a bad day a week ago, and made some low FODMAP chicken soup. I ate only that, Udi's white sandwich bread, rice crackers, and a little almond butter (thanks Ennis for that tip!) for two days. I felt a little limp, but could tell a difference in my stomach. After 2 days, I had microwaved salmon, 1/4 cup sweet potatoes, and squash and did fine. It's been a week and I've had no breakthrough heartburn, bloating is decreasing, and I haven't even thought of taking Tums or simethicone. I have even entertained dropping down to one Prilosec per day, but know that's premature. I am still limiting my diet to salmon, soup, bread, crackers, almond butter, but am adding in some different low FODMAP foods daily with no problems. I did try marshmallow root. It was initially lovely, then created a gas explosion in my stomach, so I guess that one is not for me. If you are interested in low FODMAP, I found Kate Scalata's website very helpful. She has food lists, shopping lists, and many recipes. If you read the comments under the recipes, you will learn even more. If you are following an acid reduction diet, too, you will need to watch for those ingredients in recipes. Here is a link to her food lists. You can get to recipes and the shopping list from this page. http://blog.katescarlata.com/fodmaps-basics/fodmaps-checklist/ I also picked up Karen Frazier's Flexible Low Fodmap diet, as these recipes are all low FODMAP, plus she lists substitutions or eliminations to make them for acid reflux. Here is a site that has some free stuff: https://www.lowfodmapdiets.com/tag/karen-frazier/ and here is her book: https://www.amazon.com/Flexible-FODMAP-Diet-Cookbook-Customizable/dp/1623158184
  6. Hi Ennis, I can't do nuts and seeds right now. Only soft stuff. Not sure what a coconut wrap is, but if it's soft it might work. Is this something you make or buy? How much marshmallow is in your capsules, and how much do you use at once? My bag of root powder arrived today. I am doing a ton better today, stuck with very small portions, limited fluids with meals, only the mildest foods that I tolerate, and separated fats from carbs as much as possible. No heartburn, burping, extra bloating. Getting ready for yet ANOTHER dinner of salmon, which continues to make me feel good and digests fairly well.
  7. Thank you again, Ennis. I tried salmon with spaghetti squash, and a few peas and carrots, and it did digest better. However, now I'm hungry! I recall feeling this way on the Suzanne Somers diet years ago. Everything digested quickly, I was always energetic, always had that "light" feeling, but had to keep eating. I will continue to try it this week, as it's something I can easily do since I've done it before. Thank you, again.
  8. Thank you, Posterboy. I ordered some marshmallow powder, which should arrive tomorrow. Package says nothing about how much to use, though.
  9. Hmmm .... Wonder if I might tolerate egg whites. I will try. Eggs, avocado, macadamia milk, almond milk, purity protocol oatmeal, and bananas fall into a category where I can have them just once or twice, then they disagree. I believe I can tolerate all as ingredients in a recipe.
  10. Darn! Psyllium doesn't usually sit well with me.
  11. My bakery doesn't offer keto breads, but I'll look into these as well to see what ingredients they use. Is Julian available online?
  12. Thank you, Ennis. I will look into the marshmallow capsules. The ketogenic diet is not likely to work for me, since I seem to better without eggs and avocado, and with less fat, poultry, and red meat. Also, I notice that I digest better if food is well cooked, softer, and well mashed (e.g. sweet potatoes). I appreciate your point about mixing carbs and fats. I had used the Suzanne Somers diet for years, and always noticed how efficient my digestion was on that plan. It separates fats from carbs in meal; you have a meal with either fats or carbs. When I'm mixing now, it's sometimes minimal, like salmon with a scant half cup of cooked white rice. Or some sweet potato with a little tuna mixed in. But I'll watch this as well. Thank you again.
  13. Based on my research and talking to both my allergist and GI doc, it is possible to develop these sensitivites (dairy, then corn) when in the midst of a GI upset. Maybe I was a bit sensitive to these all along, and the reflux issue made them temporarily intolerable. Both docs felt I could reintroduce foods after I stabilize. Right now, I'm having brown rice crisps with soy milk for breakfast, sweet potatoes with peas / corn and tuna for lunch, brown rice pasta with a bit of olive oil, salt, veggies as a snack during the day, and salmon / white rice/ veggies for dinner. I think the salmon and brown rice products have made a big difference, too. I feel exceptionally well the next day if I have salmon for dinner. Not the same with cod. I do eat some other foods ... like coffee with soy milk, Enjoy Life chocolate chip cookies (sometimes some of their sugar cookies, but these are more iffy) ... but the brown rice, tuna, salmon, sweet potatoes are my staples throughout the day. Karen Frazier distinguishes between ground turkey and ground turkey breast, and also specifies that beef must be low fat. I was eating regular ground turkey and whatever ground beef we had on hand, so picked up ground turkey breast and 8% fat beef to try this week. I'm going to look up the marshmallow tea that Posterboy recommended. I am reluctant to try much in the way of herbals, etc. as they can interact with meds and can be problematic in general if they are taken in excess or by people with certain conditions or allergies. However marshmallow sounds safe enough. I still haven't seen slippery elm anywhere locally so I haven't researched that much. Not sure I've ever seen marshmallow around here, either.
  14. Thanks, will take a look. My Dr. did say I may have an ulcer from the length of time I was over producing acid without controlling it, hence the current plan. I am good with short term use. I was on it before for a long time, prior to my celiac diagnosis, and got off cold turkey after being gluten-free for several months. However, I'm always interested in learning more, and staying ahead of any problems. I can honestly say this is the closest I've come to recovery from all this acid, so I am encouraged by my success ... so far.
  15. https://www.amazon.com/Acid-Reflux-Escape-Plan-Heartburn/dp/1942411154/ref=asap_bc?ie=UTF8 https://www.amazon.com/Easy-Acid-Reflux-Cookbook-Comforting/dp/1623158745/ref=asap_bc?ie=UTF8 The first link is the earlier book, the second may be slightly better. I really like them both. I got both in the Kindle version as I wanted to start right away. I liked them so much that I ordered them in print and am happy I did.