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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

PammyAnne

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  1. Dear kareng, in my original post I mentioned the Benadryl rep stated none of their formulations (tablets, capsules etc) were gluten free. Is that helpful enough for you? (And I've already addressed above the difference between the company not wanting to make the claim of gluten free for legal reasons and definitely stating a product does have gluten; the rep stated that gluten is an ingredient).
  2. My apologies to Starcaster2358, I didn't mean to go off on a tangent. You mentioned taking Benadryl at night, I just wanted to bring it to your attention as something you might want to check on. Their rep did tell me, possibly inaccurately, that it definitely contained gluten. (It's a popular and inexpensive binder, I've found it in a lot of my OTC meds, sometimes listed in the ingredients, sometimes not), It could be adding to your troubles.
  3. My first question is always "is it gluten-free"? If the answer is yes, then it's thank you and hang up. If it's no, then I ask if the product actually contains gluten, i.e., wheat, barley or rye, or if it's produced in a facility that also processes those ingredients, or if they just can't speak for the handling practices of their suppliers. (I'm familiar with the legal departments' CYA statements. I tried to get info on gluten in my cosmetics, but that's a different post!) But I want to know if it's a definitely-contains-gluten, in which case I'll put it on my "do not buy" list or if it's a "maybe-trace-cross-contamination" and if it's something I really, really want, I might try it and see if it bothers me. Benadryl's rep told me it did contain gluten. I didn't pursue the matter any further as to the specific grain, I just wrote it on my "do not buy" list. And expressed my frustration and disappointment that they chose to include a known allergen in their product. They may not market it or claim it's for allergic reactions, but they must be aware that many people's first thought when they seem to be having an allergic reaction is to take a Benadryl. And that they should at least indicate on the packaging that it did contain gluten. It shouldn't take having to call during business hours, Monday thru Friday, to be able to find out there's gluten in the product. Maybe she was a new rep, but she said she'd pass on my comments (for all the good it'll do!!) So that's the experience I'm drawing from.
  4. I didn't even get to the end of your post yet because I was struck by your saying you took Benadryl. Benadryl contains gluten! I found out after I had taken some (generic store version) for an allergic reaction to toothpaste. After I got worse, I checked on the store brand and found it contained gluten, so I went to buy some name brand Benadryl and called their customer information number from the store because nothing on the packaging or the ingredient list indicated gluten. But the woman I spoke to said none of the Benadryl products--tablets, capsules, etc.-- were gluten free. I asked her why would a product that people take to lessen an allergic reaction contain a known allergen? She said they do not claim to be for that use.