Jadesmom

Months ago, we saw a Celiac specialist (M.D.) who charges $400 per hour and doesn't take insurance. She said she wondered if she has SIBO because it can also cause villous atrophy (and maybe not even Celiac given her negative serology) and she put her on VSL3 probiotics. She took them daily for about 2 months. It did not help. She never had a breath test...

Thank you for your reply. Yes, all were normal except Vitamin D was low in April. Put her on liquid D supplements and her D was at a great level by July. She's incredibly difficult about taking supplements claiming everything "bothers her". She'd been off most grains (only brown rice and some tapioca) all along, nightshades, soy, all forms of dairy for...

She never had a colonoscopy so we are repeating the endocopy and also doing colonoscopy in a few weeks to see if duodenal bulb villous atrophy is healed and look at lower intestines to rule out Crohn's or Colitis. ugh.

Thanks for the suggestion. Celiac specialist and regular gastro do not believe it to be the issue. Asked for the medication to try it but gastro does not want to prescribe it.

tessa25, she did not have every antibody test run initially (January), but did have TTG IGA, IGA and EMA and they were negative. This was prior to endoscopy in March. As of March, she's been 100% gluten-free and they didn't feel testing would be beneficial. Last month, I pushed for the full panel (every celiac antibody test now including TTG IGG, DGP IGG...

I hope someone can offer suggestions or ideas. My 14 Y.O. daughter was diagnosed with Celiac Disease in March. She's been strictly gluten free for five months (don't eat out, our family all went gluten-free at the same time and we only eat certified gluten-free or whole foods). She's been gluten-free for five months and there has been no improvement in her...