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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

trents

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  1. Wheat provides certain nutritional elements that would need to be compensated for after going gluten free. This is especially true with commercially produced wheat containing foods because they are "fortified" with added vitamins. Does your daughter eat healthy and does she use a quality brand gluten-free multivitamin? If you live near a Costco they sell vitamins and supplements that are gluten-free. Personally, I use their Kirkland multivitamin, B complex, B12 and D3. I also take iron. Even though I am a male and eat gluten free I find I start to get anemic if I don't take the iron. Even after going gluten free many Celicacs find their assimilation of nutrients never returns to being fully normal due to leaky gut or permanent damage to the villi or whatever. There are still things that we don't fully understand about celiac disease and going gluten-free, as essential as it is, does not necessarily restore the gut to normal health. There probably is a greater likelihood of more complete healing if the disease is caught quickly and at a relatively young age. Your daughter has that in her favor. Having said all that, I would suspect the real issue is something not related to nutrition. The fact that this menses issue started soon after going gluten free may be coincidental. And I agree with what others have said. Your daughter needs to have follow-up blood work done for the Celiac antibodies and I would also think a follow-up endoscopy is in order to see what is the condition of her villi. And recommending the thyroid check is also an excellent suggestion.
  2. Not sure what you mean by "celiac growth spurt." How was the celiac diagnosis arrived at? Based only on symptoms? Genetic testing? Endoscopy? Are you making sure that your daughter is strictly following a gluten free diet? Gluten is hidden in so many manufactured food products you really have to be scrupulous with checking ingredient labels and also be very careful when eating out. It's not just avoiding bread and pasta. You have to eliminate even minor amounts of gluten from the celiac's diet. It can be very daunting at first and there is a real education curve involved. In time, you almost get to know instinctively what things to be suspicious about as possibly/probably containing gluten and what things are probably safe out there in the wild. Has anyone else in you or your spouse's families been diagnosed with Celiac disease?
  3. After doing some research, apparently there is a connection between Celiac Disease and sex drive. Here are just a couple of links I found: https://www.youtube.com/watch?v=PnGq_Vz6TuE http://www.naturalnews.com/037361_sex_bread_gluten.html
  4. Are you on any prescription meds? Particularly, a statin?
  5. How old are you? Have you had your testosterone levels checked? You say it "came to light that it could be the gluten." Do you mean that it occurred to you that gluten could be causing the ED or do you mean you were told that by a physician or somehow ran across information to that effect? I personally have not heard of a connection between gluten sensitivity and ED but that doesn't mean there isn't. I don''t keep up with the science connected with gluten issues like I used to and maybe research has more recently shown there is a connection.
  6. Yeah, I think we need to see this kind of experimental therapy be repeated and vetted before people jump on the bandwagon and start ordering home kits.
  7. But what doesn't make sense to me is that this procedure would seem to only transfer microbiota from and into the lower intestine whereas Celiac Disease involves the upper section of the intestine. Do you suppose they crawl up?
  8. Ah, makes sense now. I was thinking that was a pretty articulate post for a 3 year old. I 'm thinking a turkey baster would work well for the transfer. People could probably do it at home.
  9. What do you mean by saying you are "actually 3 years old"?
  10. Yes, Rachel. Our thoughts and prayers are with you. Please keep us posted.
  11. I find it interesting that the doctors have ruled out congestive heart failure because most or all of the symptoms your pop is having would seem to fit with CHF. When there is fluid buildup in the body like that the serum protein levels become diluted and those numbers will be low.
  12. I wonder if he has refractory celiac disease. Also, has he been checked for pernicious anemia? Are they giving him diuretics to remove the water?
  13. Please help!

    10-15 years ago there was not much general awareness in the medical community about celiac disease. I was diagnosed 15 years ago with celiac disease and what actually led to the diagnosis was I had mildly elevated liver enzymes for about 15 years previous to that which could not otherwise be explained. It all started with a rejection of my donated blood by the Red Cross because my liver enzymes were out of range. They checked me for all the hepatitis strains and I was not a drinker, didn't do street drugs, etc. My family doctor was clueless. I finally made an appointment with a Gastro doc who checked me right away for celiac disease which, of course, was positive. I did some research and found that about 18% of Celiacs have elevated liver enzymes. When I started eating gluten free my liver enzymes normalized and there seems not to have been lasting damage. You have a heart breaking story. I am so sorry. I have prayed that your husband will get a liver in time and that all your needs will be met. I'm wondering if you have any legal grounds for pursuing a law suit on the basis of medical negligence? If you search the net you will find that it is now well known that many Celiacs have elevated liver enzymes. Here's an example: http://www.liversupport.com/why-liver-problems-require-a-look-at-celiac-disease/ And this article is from 2012. If the liver is stressed too hard for too long, cirrhosis can result. Not trying to tell you what you should do. Just something to think about.
  14. The thrombocytopenia may not be related to the celiac disease. Our 34 year old adopted daughter has had thrombocytopenia since her teenage years. Initially it was thought to be either from aplastic anemia or myelodysplastic syndrome but in actuality the bone marrow cellular studies don't quite fit either of those. So it seems to be idiopathic in nature and has not progressed. She is not a celiac, at least that we know of. Her platelets hover around 40k. I certainly would seek a bone marrow biopsy if I were you.
  15. So after reading on the net recently that discontinuing long term PPI therapy can give you dyspepsic rebound, the light went on why I had always gotten heartburn within 2 days of attempting to quit daily PPI therapy, which I have been on for close to 15 years. Experts are now advising a slow taper when you try to quit. I was not aware of that and I don't think doctors were either back when I started it. But okay, I was three days into the cold turkey approach with a Gaviscon supplement when aboslutely necessary. This is the fourth day now and the dyspepsia is getting better. But what baffles me is how crummy I feel otherwise. Everything aches and I'm very tired like as if I had the flu but I don't. Can all this be caused by an unhappy tummy or is there some other connection, maybe related to sudden change in body PH? Has anyone else ever experienced this? I can't find anything on the net.