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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About trents

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  1. Yes, I do take a sublingual B12 supplement and B complex as well. Those are water soluble vitamins so no danger with overdose. The B vitamins play a role in iron absorption. People with pernicious anemia must get B12 injections. They lack an enzyme called "intrinsic factor" that enables them to assimilate B12 from the gut. I think folic acid comes into play there too.
  2. It may take awhile for your ferritin levels to catch up. If your hemoglobin level has responded so well to iron therapy it could be that going on a gluten free diet has allowed your gut to heal and now it's absorbing iron from your diet adequately. Just keep an eye on your iron levels. It could be that you just need a lower dose supplement. Chronically high iron levels can damage organs. Personally, I have taken an over the counter iron supplement for years with 60 mg of elemental iron and it keeps my hemoglobin in a nice range. If I stop the supplement then it will drop. I'm a 65 yr. old male celiac so I can't blame it on menses. Our bodies are all different.
  3. My wife who is not a Celiac has vaginal yeast infections from time to time and her obgyn doc is willing to prescribe the nystatin/diflukin meds without hesitation. Those drugs are effective but really can tax the liver. You don't want to be on them for extended periods of time or often. Of if you do, make sure you have your liver enzymes checked regularly. I get yeast infections occasionally in the peri area from perspiration after exercising and not changing my damp undies like I should. I had this recently and found that Gold Bond powder really worked well. I think zinc is the active ingredient. Not sure if this applies as you did not say where the yeast infections manifest themselves.
  4. Headaches are one of the documented medical conditions associated with celiac disease. They are more common in the Celiac population than the non Celiac population. But as others have said, they can be due to something else. It's important to figure out what kind of headaches they are and what triggers them if possible. Do they seem to center at the base of the head? Behind the eyes? Left side or right side? Do they come on with stress? What time of day or night does the onset typically occur? Are they posture related as when straining to see a computer monitor? Are they vision related? Is there need for a new eye glasses? Do they come on after consuming alcohol or certain foods? Are they related to allergies and congestion? That sort of thing. Have your friend look for patterns. Personally, I do suffer from severe, almost migraine headaches frequently. Sometimes I get them several times a week and then I will go for two or three months and not get one. Usually, mine start to set in about 2:00 or 3:00 AM as I'm sleeping. The migraine medication "sumatriptan" works very well for me and seems to produce no particular side effects. This is a vaso constrictor med so that tells me my headaches are caused by dilation of the arteries supplying blood to my head and brain. What triggers that dilation I don't always know but I do know that red wine is one of the triggers.
  5. Gallbladder? http://www.healthline.com/health/gallbladder-problems-symptoms#1 Let me correct one thing you said about Pataprozole as this is a medication I also am on and have been for a long time to treat acid reflux. It's a proton pump inhibitor type acid reducer and doesn't need to be taken before meals. It's not an acid neutalizer. I take 40 mg in the morning after breakfast and it works quite well for controlling my GERD. It is also used to treat peptic ulcers. I sympathize with you in your frustration about the inattentiiveness of your physician. Changes in the medical delivery system here in the USA have caused primary care physician patient care loads to increase dramtiacally. Now, the doctor has his hand on the door knob as he talks to you, trying to hurry the interaction along in order to get to the next patient.
  6. And these symptoms appeared after you have been trying to eat gluten-free? Or have these been present all along? Is there a chance you have been significantly exposed to some environmental toxin, perhaps in the work place?
  7. What you describe sounds like it could be a nutrient deficiency like low magnesium or one of the B vitamins. Celiac disease results in the mal absorbing of nutrients because of damage to the micro villi that line the small bowel. There is also something called restless body syndrome that is rather a mystery (similar to restless leg syndrome). My wife takes ropinirole for restless leg. It helps.
  8. I think it's pretty common for autoimmune diseases to come in multiples. After all, we are talking about an immune system that is malfunctioning to begin with.
  9. Did anyone see this? http://www.foxnews.com/health/2012/12/05/scientists-aim-to-treat-prevent-diabetes-with-worm-based-therapy/?test=latestnews I wonder if it has promise for Celiac disease?
  10. Hello, Joy. I know it must be frustrating to have so going wrong with you and never seeming to climb out of the hole. I work in a healthcare setting and I can tell you many medical professionals suspect you may never really get rid of MRSA once you have it. You an beat it back so that it goes into hiding ("colonizes") but it's hanging around waiting for an opportune time to make a comeback. Keep your immune system strong through healthy eating and regular exercise. Sounds like you're immune system may be on edge as well with the high ANA and sometimes short-term immuno-suppressant therapy can help with that.
  11. Okay then, its the ELISA test. When you get the results, don't take it as absolute gospel. There are a number of problems with ELISA testing that can produce inaccurate, misleading results. You should do some research on this issue on the internet. What is really telltale in this regard is if you were to have your blood sample sent to several different labs. What you find is that the results from each lab can vary considerably. The other big issue withe ElISA testing is that the lab results often don't correlate well with what you actually experience in real life symptomatically. For instance, the ELISA test results may indicate you have a strong allergy to peanuts. But when you eat peanuts you suffer not ill effects. Or it may indicate that your are not allergic to soy but you know that every time you use soy you get a gut ache, diarrhea or nasal congestion. So with ELISA testing there can be and usually are some false positives and some false negatives. Having said all that, there is value in ELISA testing. It's a place to start. It gives you things to look for and to challenge or test in your actual day to day eating habits. ELISA testing is more valuable if you can afford to have blood samples drawn and sent more than one lab so you have results from more than one source to compare and contrast.
  12. Is this a blood draw allergy test or a skin prick test? No, the fact that you are eating gluten free will not change the test results as in the testing the various allergens will be introduced either into your blood or your subcutaneous tissues.
  13. Basically, Celiac Disease is an "auto immune" condition, meaning the body attacks its own tissues. In this case, we know that gluten triggers the body's immune system to attack the lining of the small bowel. The lining of the small bowel, when looked at under a microscope, is normally a highly textured surface with lots of little finger-like projections sticking up into the open area of the bowel similar to how stalactites and stalagmites line the walls of an underground cave. This creates a lot of surface area for the absorption of nutrients from the digested food as it passes from the stomach on its way to the large intestine. The immune system's attacks when gluten is ingested by a person with Celiac Disease destroy this texture over time and wear down the finger-like projections, thus greatly reducing the surface area where nutrients are absorbed. Instead, they pass on to the large intestine and are eliminated from the body in stool. Theoretically, once you eliminate gluten from the diet the lining (i.e, "mucosa") of the small bowel heals and symptoms disappear. In real life this doesn't always happen as neatly and completely as we would like. There can be and often are several reasons for this: 1. Age. Celiac disease research has shown that going gluten free brings healing much more reliably in young people. After about age 35 the rebound of the SB mucosa doesn't happen as well. Age also has an adverse effect on healing in many or most diseases so this is not surprising. 2. Permanent damage to other physiological systems because of the length of time it takes to diagnose Celiac disease. It takes on the average 10+ years to diagnose celiac disease. Thus, nutrient deficiencies and other spinoffs of celiac disease damage organs and nerves over time and this may not be entirely reversible. The best example of this is bone density loss. 3. The great challenge of eliminating gluten from the diet. Most of us, despite all our efforts, still get "glutened" now and then. It is said that it only takes an amount of gluten the size of a quarter of a grain of rice to precipitate an auto immune Celiac attack in some people. These attacks can last for days or weeks. Gluten is not only in foods but in personal hygiene products and medicines, things that go into our mouths that you would never suspect as containing wheat products. 4. And then there is something called "refractory sprue" or Celiac disease that does not go into remission when gluten is eliminated. It does not respond to the usual anecdote of going gluten free. A certain percentage of Celiacs have this form. Its a mystery and doctors don't know why. Having said all that, it's easy to get discouraged and just give up on going gluten free. But its really the only choice you have if you're a Celiac. Even if it only brings partial improvement we all have an obligation to do what we can do. If we will do that perhaps we can head off some of the problems that would accrue if we just ignore it. And, there is a lot of research being done on cures for celiac disease these days. Sooner or later someone will come up with something that's pretty effective I think. Hope this helps.
  14. How old are you if you don't mind me asking? Could this be unrelated to going to gluten free? Are you at the age where arthritis might be starting or is there a strong family history of RA?
  15. No, the test would not be valid if you quit using gluten. But the important thing is to see how symptoms respond to going gluten free. That won't cost you anything.