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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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trents last won the day on June 7

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  1. 10-15 years ago there was not much general awareness in the medical community about celiac disease. I was diagnosed 15 years ago with celiac disease and what actually led to the diagnosis was I had mildly elevated liver enzymes for about 15 years previous to that which could not otherwise be explained. It all started with a rejection of my donated blood by the Red Cross because my liver enzymes were out of range. They checked me for all the hepatitis strains and I was not a drinker, didn't do street drugs, etc. My family doctor was clueless. I finally made an appointment with a Gastro doc who checked me right away for celiac disease which, of course, was positive. I did some research and found that about 18% of Celiacs have elevated liver enzymes. When I started eating gluten free my liver enzymes normalized and there seems not to have been lasting damage. You have a heart breaking story. I am so sorry. I have prayed that your husband will get a liver in time and that all your needs will be met. I'm wondering if you have any legal grounds for pursuing a law suit on the basis of medical negligence? If you search the net you will find that it is now well known that many Celiacs have elevated liver enzymes. Here's an example: http://www.liversupport.com/why-liver-problems-require-a-look-at-celiac-disease/ And this article is from 2012. If the liver is stressed too hard for too long, cirrhosis can result. Not trying to tell you what you should do. Just something to think about.
  2. The thrombocytopenia may not be related to the celiac disease. Our 34 year old adopted daughter has had thrombocytopenia since her teenage years. Initially it was thought to be either from aplastic anemia or myelodysplastic syndrome but in actuality the bone marrow cellular studies don't quite fit either of those. So it seems to be idiopathic in nature and has not progressed. She is not a celiac, at least that we know of. Her platelets hover around 40k. I certainly would seek a bone marrow biopsy if I were you.
  3. So after reading on the net recently that discontinuing long term PPI therapy can give you dyspepsic rebound, the light went on why I had always gotten heartburn within 2 days of attempting to quit daily PPI therapy, which I have been on for close to 15 years. Experts are now advising a slow taper when you try to quit. I was not aware of that and I don't think doctors were either back when I started it. But okay, I was three days into the cold turkey approach with a Gaviscon supplement when aboslutely necessary. This is the fourth day now and the dyspepsia is getting better. But what baffles me is how crummy I feel otherwise. Everything aches and I'm very tired like as if I had the flu but I don't. Can all this be caused by an unhappy tummy or is there some other connection, maybe related to sudden change in body PH? Has anyone else ever experienced this? I can't find anything on the net.
  4. I'm not aware that nocturia is connected to gluten intolerance but they are finding more connections all the time. I too suffered from nocturia but it was mostly related to enlarged prostrate which was fixed with a TURP. As we age most things get smaller but some keep growing.
  5. Plumbago has good advice. Several years ago I purchased an articulating bed for back problems and the reflux seems to have benefited from it as well. I have difficulty with not eating for 3 hours before bed. I typically get terribly hungry right before bed and can't sleep if I get in the sack that way. And I know losing about 30 lbs. wold help the GERD and other things as well. I often wonder if malabsorption of nutrients from Celiac disease increases our appetites. There seems to be a growing body of evidence that going gluten-free for many Celiacs doesn't arrest the SB inflammation as was previously assumed so that substantial recovery of the villi doesn't happen. At one point I considered the GERD lap surgery but the potential side effects scared me enough I just concluded that since the PPI worked so well I would just stay with that. Though as we all know, ongoing PPI use has significant long term risks as well.
  6. I have acid reflux, eat gluten free but I still must take PPIs regularly. If I try to go off them I start getting heartburn within two days. The old esophageal sphincter just doesn't seal like it used to. There may have been nerve and muscle damage to the sphincter from all those years of heartburn. Plus, I have a hiatal hernia. I've got some naturopathic stuff ordered that is supposed to help with heartburn. We'll see.
  7. It certainly wouldn't hurt anything to try it. As you know, B12 and folate are interdependent. Question for you though, where does a person go to get tested for vitamin an mineral levels? Most primary care docs don't seem interested in this. Does insurance pay for it? If not, how much does it cost? Is this something a naturopath would be inclined to do?
  8. I am a celiac who has experienced low total protein and albumin numbers for many years. One or the other might be barely into the normal range but not both at the same time. However, finally within the last year for the first time in probably 20 years they were both into the normal range but just barely. My understanding is that this phenomenon is thought to be caused by the celiac's "leaky gut" so that serum protein is being lost into the intestinal cavity ("lumen") and passes out of the body with our stools. When my most recent blood work showed that both total protein and albumin were into the normal range I took that as a sign that there had been more thorough healing in my gut over a long time. My diet has always been fairly high in protein and at different times I have used protein supplements to try to boost total protein and albumin levels but it did not seem to make any difference. I think there is some kind of osmosis factor at work to maintain these low levels of serum protein and albumin. Doctors don't get excited when serum albumin and protein levels are a little out of range. But when they fall below a certain point they do get concerned because this can be associated with congestive heart failure.
  9. What Ranvenwoodglass said. It smells for everything like one of those web infomercials from "a sponsor" that goes on and on before it ever gets to the point. There is some element of truth to what he says but it is exaggerated by selective statistics.
  10. Yes, I do take a sublingual B12 supplement and B complex as well. Those are water soluble vitamins so no danger with overdose. The B vitamins play a role in iron absorption. People with pernicious anemia must get B12 injections. They lack an enzyme called "intrinsic factor" that enables them to assimilate B12 from the gut. I think folic acid comes into play there too.
  11. It may take awhile for your ferritin levels to catch up. If your hemoglobin level has responded so well to iron therapy it could be that going on a gluten free diet has allowed your gut to heal and now it's absorbing iron from your diet adequately. Just keep an eye on your iron levels. It could be that you just need a lower dose supplement. Chronically high iron levels can damage organs. Personally, I have taken an over the counter iron supplement for years with 60 mg of elemental iron and it keeps my hemoglobin in a nice range. If I stop the supplement then it will drop. I'm a 65 yr. old male celiac so I can't blame it on menses. Our bodies are all different.
  12. My wife who is not a Celiac has vaginal yeast infections from time to time and her obgyn doc is willing to prescribe the nystatin/diflukin meds without hesitation. Those drugs are effective but really can tax the liver. You don't want to be on them for extended periods of time or often. Of if you do, make sure you have your liver enzymes checked regularly. I get yeast infections occasionally in the peri area from perspiration after exercising and not changing my damp undies like I should. I had this recently and found that Gold Bond powder really worked well. I think zinc is the active ingredient. Not sure if this applies as you did not say where the yeast infections manifest themselves.
  13. Headaches are one of the documented medical conditions associated with celiac disease. They are more common in the Celiac population than the non Celiac population. But as others have said, they can be due to something else. It's important to figure out what kind of headaches they are and what triggers them if possible. Do they seem to center at the base of the head? Behind the eyes? Left side or right side? Do they come on with stress? What time of day or night does the onset typically occur? Are they posture related as when straining to see a computer monitor? Are they vision related? Is there need for a new eye glasses? Do they come on after consuming alcohol or certain foods? Are they related to allergies and congestion? That sort of thing. Have your friend look for patterns. Personally, I do suffer from severe, almost migraine headaches frequently. Sometimes I get them several times a week and then I will go for two or three months and not get one. Usually, mine start to set in about 2:00 or 3:00 AM as I'm sleeping. The migraine medication "sumatriptan" works very well for me and seems to produce no particular side effects. This is a vaso constrictor med so that tells me my headaches are caused by dilation of the arteries supplying blood to my head and brain. What triggers that dilation I don't always know but I do know that red wine is one of the triggers.
  14. Gallbladder? http://www.healthline.com/health/gallbladder-problems-symptoms#1 Let me correct one thing you said about Pataprozole as this is a medication I also am on and have been for a long time to treat acid reflux. It's a proton pump inhibitor type acid reducer and doesn't need to be taken before meals. It's not an acid neutalizer. I take 40 mg in the morning after breakfast and it works quite well for controlling my GERD. It is also used to treat peptic ulcers. I sympathize with you in your frustration about the inattentiiveness of your physician. Changes in the medical delivery system here in the USA have caused primary care physician patient care loads to increase dramtiacally. Now, the doctor has his hand on the door knob as he talks to you, trying to hurry the interaction along in order to get to the next patient.
  15. And these symptoms appeared after you have been trying to eat gluten-free? Or have these been present all along? Is there a chance you have been significantly exposed to some environmental toxin, perhaps in the work place?