• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

lunasea

Advanced Members
  • Content count

    5
  • Joined

  • Last visited

Community Reputation

0 Neutral

About lunasea

  • Rank
    New Community Member
  1. Wow. I'm quite surprised that this is so highly heritable. I mean, I knew there was a genetic component, but most things I've read have said that it isn't very well understood and that other factors play a part. This gives me a lot to think about.
  2. Thanks for the reply! I never thought about the damage to my system causing the problem with eating other foods - excellent point. Really gives me a lot to think about. With regard to my boys, don't fret for them =) They both eat two meals outside the house Monday through Friday, and of course being 15 and 20 have their own snacks, etc. (the 20 year old even has his own mini-fridge in his room.) Dinner is our only shared meal and they don't mind eating gluten free.
  3. This has been my life for the past three years! Oh man! I have had every muscle and nerve test known to man and...nothing. The doctors finally stopped trying and just referred me for cognitive behavior therapy. I'm still confused about the negative blood test though?
  4. Good morning, Ennis, and thank you for taking the time to respond to my post. Looks like just ignoring this is out of the question *grin* -- but seriously, thank you for letting me know what could actually happen. I'd searched but everything I was coming across was vague warnings of "bad things." Your post actually makes me wonder if perhaps some of the other issues I've had along my journey could possibly fall on celiac. I've had a lot of tremors (arm, leg, trunk) and balance issues, and at one point even had to walk with a cane. I've still got neuropathy in my arms and legs and was, after extensive testing at Mayo Jacksonville, diagnosed with a 'functional disorder' - in other words, they have no idea what causes it, but they suspected it to be psychological. I spent quite a bit of time browsing the 101 and going through the links; the kids and I just compiled our first gluten-free menu plan for the week. Interestingly enough, it didn't take too much to alter what we're already eating...I think I was cutting a lot of the "bad" foods out by instinct alone at this point. Thanks again!
  5. Hi everyone! I'm obviously new to the forums, but I'm also new to the idea of celiac/gluten free/etc. Lemme give you the Cliff Notes version of my journey: 1992: I'm diagnosed with CFS/ME. It sucks and I'm tired and sick all the time. 2014: I'm still tired and sick all the time, so I decide to become a vegetarian. Maybe that'll help, right? I began getting deathly ill when I ate. Vomiting and diarrhea, everything I eat seems to be a problem. I go to a doctor who runs a million tests. Nothing turns up. In among those tests is a celiac panel which has this result: no antibody detected and no serological evidence of celiac disease. No cause is ever found. I continue to suffer. Later in 2014: I notice that my stomach issues are triggered every time I eat a raw vegetable. I can eat bread or pasta no problem. Fake chicken? Great. Have a salad? I'm dying. This is a problem, as I'm a vegetarian. I nix the fresh veggies and continue to live my life. 2015: I'm diagnosed with Fibromyalgia. I realize that the problem with vegetables is worse than I thought. I can no longer eat cooked spinach, can't have lettuce on my sandwich, and stealing a single slice of cucumber set my stomach on edge for days. I'm becoming hypersensitive to veggies in food and protecting myself from their evil influence; my stomach thanks me. 2017: After a relative peaceful period, the stomach issues are back, worse. So I go to a new doctor (I've moved) and he recommends a colonoscopy and EGD (no labs). This was done yesterday. The full results will of course have to wait for the biopsies to be examined, but apparently there is scalloping "through the entire duodenum". Doc told my partner that he believes I have celiac and discharged me with orders to go gluten free. Now I'm sitting here alternately considering drinking alone in the dark and throwing things--I guess I'm wavering between the stages of depression and anger on my trip through grief for my lost favorite foods. But here's where the confusion comes in...everything I'm seeing says that I should give up bread and eat more veggies, but veggies make me sick. Does anyone else have this reaction to vegetables? Meanwhile I'm thinking back to the labs done in 2014 and wondering if its possible to have a negative test and still be positive for celiac? Also, what actually happens if you DON'T go gluten free?