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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

GlutenMama

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  1. Thank you all for taking the time to respond. It's comforting to know I have a place to ask questions and share my concerns. My daughter's antibodies are as follows: 1/9/17: 783.6 (before stopping gluten) 5/16/17: 69.7 8/14/17: 50.6 Her thyroid/hormones all in normal range. An endoscopy in May showed her villi looked good with minimal damage. Her B12 (checked on 8/14/17) is excellent. Her antibodies will be checked again when she returns home in Dec. She avoids gluten as much as possible, however she's away at college so cross contamination is likely. She eats extremely well -- mostly salads, vegetables, protein, fruits, rice. When on the go she supplements with kind bars, quest bars, or Rx bars. She'll snack on gluten-free crackers (Blue Diamond made from almonds), hummus, peanut butter, and popcorn. Once in awhile she'll treat herself to Tate's gluten-free cookies or Halo ice cream. She's in college so, yes, she drinks alcohol on occasion. Titos gluten-free vodka, but no beer! Since stopping gluten her stomach feels much better, less bloating and pain (her main complaints before stopping gluten). I do notice when she's home on break from college she will have a healthy, nice sized portion of food at each meal and say she feels very full afterward, yet shortly after she will feel hungry again and need to reach for a snack (always a healthy one). She takes 2 gluten free gummy Multi-Vites (same as Costco brand I believe) as well as vitamin D daily. She was diagnosed with celiac on 1/11/17, stopped gluten immediately, and her last period started on 1/13/17. For six years her period was very regular and it only changed once she stopped eating gluten. I have to believe there is a connection. The frustrating part is that nobody has any answers. I know my daughter would feel a lot better if her cycle returned. We will seek the advice of a nutritionist as well as continue speaking to doctors, but in the meantime if you have any more suggestions I welcome them (i.e., foods, supplements, vitamins, etc). Thank you all very much!
  2. My 20 year old daughter was diagnosed with celiac in January 2017. Her last normal period was just days after she stopped eating gluten last January and hasn’t had a period since (9 months!!!) She went to gyno and all hormone levels are normal and ultrasound showed no problems with uterus or ovaries, other than a few “normal” cysts which apparently we all have. Her doctor really didn’t have any answers and did not want to rush to put her on bc. My daughter is so frustrated and obviously concerned and I don’t know what to do. I’m wondering if my daughter should get a second opinion from another gyno or see a nutritionist. It can’t be a coincidence that my daughter’s very regular cycle completely stopped right after she stopped eating gluten.