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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About gaceff

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  1. Digestive problems do cause suffocation like symptoms, and people who complain about shortness of breath are not mad. For a comparison, when you have the flu and feel tired, no doctor says you are mad and should see a psychiatrist... In the case of food intolerance, the immune system of the body is triggered, and this normally cause short of breath - remember how some people do suffocate when bitten by wasp or snake, and a harmful substance entered the blood stream, causing the immune system to react violently. Moreover, tissues (digestive membrane) can inflamate, another cause for feeling very tired. And not to forget that the digestive system communicates fondly with the nervous sytem, and it use this communication path to signal that something goes wrong inside it that it can't handle, and these signals may provoke "weird" sensations to the digestive suffering person. This shortness of breath is not to be completely ignored, and when possible the person accusing it should rest, possibly lying in bed, but without overdoing it. (should take short walks when he/she feels better). I wish best of health and strong morale to all the people suffering from this very unpleasant thing.
  2. You can be gluten intolerant with inconclusive biopsy result, as it happened in my case. I have had no less than 3 biopsies, spread over a 18 months period, all of them coming "inconclusive" (meaning that they did show some duodenum membrane damage, but not as much as expected of celiac disease). In this respect, doctors seem to name true celiacs only those that have severe villi damage. But sincerely, gluten sensitivity will sooner or later turn into gluten intolerance, and gluten intolerance will force you to stop eating grain containing foods. So don't jump to do an endoscopy / biopsy, because it is not only less accurate than blood tests, but it is also frustrating to undergo this highly unpleasant procedure only to hear 3 weeks later that it was... inconclusive.
  3. A friend of mine that had no significant health problems all his life and definitely did not experience any food related trouble, was forced to take a endoscopy of stomach and duodenum; doctors found him have shorter than normal villi (2:1 length/width, instead of expected 4:1). He does not believe gluten has anything to do with this. Does anybody know what other things could cause duodenum villi to get shorter?
  4. The elimination time depends on the element that you want to test your tolerance to. For gluten it should be a several months period (say 3). For dairy, I would say 3 weeks are enough. For fruits/vegetables even less time will show improved health condition if they were making you ill. As for when should you start reintroducing new foods, this is definitely the hardest and most individual-specific thing. Definitely you should let some full weeks pass, weeks during which you had no relapse, no digestive trouble. Good luck!
  5. I was not aware that yeast can have negative effects on the GI tract when used in moderate quantities. I this is the case, then rice bread may also be banned from my future diet. Yikes.
  6. I believe gluten sensitivity accompanies us from birth. I am 25 years old, and have been diagnosed 2 yrs ago, but I have had stomach and bowel problems all my life; it's just that starting 3 years ago my situation shifted to an unbearable condition. The trigger I believe to be eating a lot at fast-food restaurants, very spicy and very sweet foods and lots of pretzels at university. From what I read and heard from other Celiacs, the age of 20 is very susceptible of showing this disease in its true severity.
  7. I also began being very sensitive to hair and skin related industrial products, to the point of not tolerating shampoos. As a man, I was able to eliminate fancy hair products and I currently use concentrated tea (that I prepare myself) to wash my hair: boiled nettle, mallow, bur and camomile. Very probable women will dislike this solution, but for me it works.
  8. I happen to have blood Type B, which is supposed to be the most probiotic compatible. Yet, I do encounter negative effects when ingesting them. A general medicine doctor told me that a possible explanation would be this: the lactobacilus creates a highly acid environment in my bowels, which is bad for inflamated bowels and especially the duodenum, a delicate part for celiacs. What do you think of this?
  9. The use of probiotics was highly recommanded by all my doctors, since the friendly bacteria are always needed when our digestion is impaired. So, full of hope, I started with Lactobacillus acidophilus and saccharomices boulardii, both which are known for helping digestion and vitamin absorbtion. But! After several days of taking them I felt worse and worse, with severe nausea and diarheea. I paused taking them for some days. Then, again, with the same unpleasant effects. The products I use are with moderate-low probiotic dosage, and are gluten free. What happens? Aren't probiotics supposed to have benefic effects ONLY?
  10. Careful with low calcium intake: celiacs tend to improperly absorb calcium and also eliminate milk products from their meals. Just be sure you get enough calcium (1g per day is needed, I believe, check other sources too). And yes, I, too, suffer from different forms of skin problems (incl dandruff), that get worse when my digestive problems get more severe, and I'm pretty sure they are related. However, you indicate even worse symptoms than I ever had, so you should have a trip to a city with better doctors to check your condition.
  11. There are 2 aspects of the recovery: - digestive tube (duodenum) recovery; - rest of the body (that feels the effects of the crisis, too); You should apply indigestion recovery measures (diet with mint tea, for ex.) and flu-like recovery tactics (rest to bed, may be some mild vitamin supplem, preferable by injection because many tablets can contain gluten and injected vitamins have quicker effect). Best wishes. Andrew.
  12. Dear Mariann, I am sorry to disappoint you about the "Baby food" products: they made me feel even worse than the natural fruits, simply boiled. In a way, this was to be expected, since these baby foods do contain many things (they are "enriched"). So if you are to keep trying with veggies and fruits, I advise you to stick with natural carrots and apples that you boil them a long time. However, I must tell you that even these make me feel bad in about a week of eating them, forcing me to stop for some weeks before I can attempt to eat them again. Your (our) best bet remains the enzymes products. And let's hope our boat keeps sailing.
  13. Casein is not a sugar as far as I know (like the lactose), but a protein (like the gluten). It is contained in every dairy product - cheese, not only milk.
  14. You need not be too paranoid in your endeavour, like examining shampoos or every product that you use for other purpose; just pay attention at foods, and generally try to eat everything made in the house, simple. It does take a while (>1month) with ups and some downs before the gluten-free diet shows full efficiency.
  15. Thanks very much for the specific enzyme list. How comes that I can eat meat and cheese, but not veggetables? Isn't meat supposed to be the toughest to diggest? I eliminated veggies from my diet months ago because I was feeling sick when eating them. I must point out that I was able to eat plenty vegetables and fruits some years ago, until Celiac dis occured.