Barbie Wickham
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Levi reacted to a post in a topic:
DH Photo Bank
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In regards to the MacDonald French Fries - I was informed somewhere in this forum that they toss a handful of regular all purpose flour onto the frozen fries before cooking in deep fryer. Why? It stops them from sticking together. Also, another big “hidden gluten” can be in Sushi Rice, Dr. Tom O’Bryan did a podcast about Japanese restaurants that also ...
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MendyLou and RainJane, I got relief within 72 hours of starting the Dapsone, 50 mg a day and a strict gluten-free diet. After a month, I dropped dosage to 25mg a day am almost completely free of rash. Only a few bad, stubborn blisters on my bottom. Best of luck to you.
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Barbie Wickham reacted to a post in a topic:
DH Photo Bank
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Possible DH - It is driving me crazy
Barbie Wickham replied to Metoo's topic in Dermatitis Herpetiformis
MeToo & Squimingitch, I too had many biopsies & cultures that came back negative which I now know is because they were not performed properly. I wholeheartedly agree on NO to the cortisone shots, I had two big loads, a week apart, and initially my rash started to get better, but, within 2 weeks, it came back with a vengeance and a life of its own...
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I am a recently diagnosed & confirmed Celiac with DH. I had the Rash for 1 1/2 yrs with my bottom being the worst, then my elbows, hands, wrists & top of knees. I started 50 mg of Dapsone a day (I too am allergic to Sulfanomides, but my pharmacist & Doctor researched the molecular components of Dapsone and both felt it would be ok to try and...
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Barbie Wickham reacted to a post in a topic:
DH Photo Bank
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Barbie Wickham reacted to a post in a topic:
DH Photo Bank
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Barbie Wickham reacted to a post in a topic:
DH Photo Bank
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How Soon After Eating Gluten Do You Have Breakouts?
Barbie Wickham replied to tomcallahan's topic in Dermatitis Herpetiformis
Hi SugarSue, I find that after accidentally “glutening” myself, I first feel the itch about 4-6 hours later and then within a few more hours, a bump will start to form, either on my hands or fingers, or my worst area, my bottom. My bottom has almost completely healed, however, it is still discolored all over with a purplish tone, almost like a slight bru...
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Pre-Diagnosis Dr Experiences/Tests
Barbie Wickham replied to Jane87's topic in Dermatitis Herpetiformis
Wishing you and your daughter a speedy recovery. I think going gluten-free and feeling better is a good sign in which way to go. For all the negative test results I received, the full Gluten Panel bloodwork finally showed I was sick from gluten and with my family history of Celiac Disease it all made sense. The biggest proof for me though was my body responding... -
My fingers went from little bumps to huge fluid filled itchy blisters that would pop, refill, pop again and then would finally scab over. Almost like a burn blister. Just an incredibly painful experience. I so hope you get a proper dx and you’ll be amazed how quickly you will begin to heal & feel better!
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Jane, my rash didn’t go to the bloody, pressure filled blisters until about a year in. They would get filled with so much fluid they would pop on their own, especially my bottom area and elbows. I hope for you you get a proper dx quickly as I found with each passing week my rash worsened and basically took on a life of its own! Of course, I was poisoning m...
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Jane your fingers look exactly as mine did! So very painful, I remember feeling like I had broken a glass and shards were stuck in my fingers and hands....
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Those elbows look very familiar! I had that rash for a little over a year and a half, and with each break out, the blisters would change, worsen in appearance and the itch got insanely itchier. The only topical product I found that helped a bit, was GoldBond lotion or liquid spray with Lidocaine.... Drs had me then just use Aquaphor (the Vaseline jelly type...
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You might want to give a try to Aquaphor, (the jelly type, just like Vaseline) instead of the Vaseline. I had several Drs tell me it is much better for your skin than petroleum based Vaseline. I found it protected the rash and blisters really well, but I also felt like my skin was able to “breathe” easier than with the Vaseline... Best of luck to you wit...
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Victoria- In reference to my previous replies to Jane, Squirming Itch & Cast Iron Tummy, I’m trying to upload a few more pics of my ever changing (& daily worsening of my DH rash). Site only allows small uploads... I think the iodine is not just bad for the Celiac Disease but your Thyroid Gland as well, it’s not intended as medical advice, just a r...
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Jane, oh I feel for you... I can’t imagine even trying to exercise at the height of my unyet dx’ed DH.... just getting dressed was a dreaded experience for me. The symmetry and bilateral rash and blisters were big clues to my Hero of our family Dr. (not the dozens of specialists I saw!), along with rash on the pressure points of my body... hands, elbows, to...
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A picture is worth a thousand words!
