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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

salledell

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  1. From my experience, I believe I have always been gluten sensitive. I can recall incidents of "indigestion," bloating, and stomach pain, as well as a 20 pound weight loss accompanied by occasional diarrhea, occurring over many years. I was finally diagnosed in 2003 after suffering through about 12 years of "irritable bowel syndrome, during which I was prescribed Prozac, psyllium, Imodium, and Lotronex. Also went through several tests including ultrasound and barium enema, as well as sigmoidoscopy. Not once was gluten or celiac mentioned, although one doctor mentioned "dumping syndrome" when I landed in the ER for rehydration after a prolonged bout with diarrhea. One does not wake up one morning with celiac disease. It is a long process of damage caused by gluten, often without noticeable symptoms.ever having been a fan of pizza, pasta, or bread, I could go for long periods without having much distress, other than occasional bloating or flatulence. I had always been rather anemic. I was diagnosed with hypothyroidism in 1994--Hashimodo's was mentioned--and found I had quite severe osteoporosis around 2000. All this time I ws being treated for IBS. There are so many symptoms, often ignored by doctors, that are indicative of gluten sensitivity. If a patient has a high score on fasting blood sugar levels, most doctors will monitor the patient for pre-diabetic syndrome. In my opinion, any patient with two or more symptoms of celiac disease should be tested for gluten sensitivity to make certain that is not the cause of those symptoms. i wonder if the food industry sponsors lectures at medical conferences on the "danger of going gluten-free" in the absence of diagnosed celiac disease. With the ubiquity of gluten-containing ingredients in processed foods, it would certainly impact this industry if millions of consumers started choosing foods without gluten, forcing manufacturers to come up with alternatives for thickening and flavoring their products. So it seems to me that gluten sensitivity is simply a condition which precedes celiac disease, much as insulin resistance precedes diabetes. Would a doctor tell a patient to wait until s/he has full blown diabetes before treating it? Maybe a patient will not develop celiac disease, but there are many other conditions which can cause trouble and expense to both the patient and the medical profession. I know my celiac disease cost me years of pain and physical symptoms, and a number of expensive tests and diagnostic procedures, all of which could have been forestalled by a simple blood test. Incidentally, I have never had a biopsy, but have been symptom- free for 14 years, and my recent bone density scan returned with a diagnosis of normal.
  2. Hello, Dolly It is possible that "Silent Celiac Disease" is simply a description of the disease before it has been diagnosed. I have suffered with it for years, off and on, probably because I have never been a big fan of pasta, pizza, and bread. Some people have it but never have the symptoms of diarrhea, weight loss and other signs usually associated with celiac. I was diagnosed after a nutritionist suggested "wheat or gluten allergy." Bingo-I realized that my daughter had celiac disease when she was a toddler but I didn't know that adults could get it. So I went off all the gluten that I knew about, and my symptoms improved. I got the ELISA gluten tests about 4 months later and after loading up on cookies, pasta, etc. for a few days I tested at 100 or above on all 3 tests, 30 being a strong positive result. I never had a biopsy because I felt so much better being gluten-free and I did not want to go back on a gluten diet in order to have the test. If you get tested ask for the ELISA test as it is more sensitive. Check it out on the internet. At any rate, if you are even gluten sensitive, the only way to go is totally gluten-free. Otherwise, it is possible to develop such ailments as anemia, osteoporosis, thyroid problems, diabetes and even lymphoma, as my doctor informed me today. I have had all of the first three-I no longer have the anemia or osteoporosis but I take thyroid medication. Read EVERY label-I have found gluten or wheat in things like sour cream for baked potato in Wendy's, the rotisserie chickens at the grocery, sliced ham in the deli. And root beer is brewed with barley, nearly ALL cereals are flavored with barley malt-even rice and corn cereals which celiacs could eat otherwise. A gluten-free diet is not so terrible-just a nuisance at times when eating out. There are rice pastas which are quite acceptable and more gluten-free products are coming out all the time. I just found Stagg's chili makes 5 different chili versions that are gluten free. MY KEYBOARD IS STUCK ON CAPS> SO LONG FOR NOW>
  3. Hi! I live in Mesa part-time. Just got back from there. I've been on gluten-free diet for just over three years and I don't mind it. The only thing is it's hard to keep from getting gluten inadvertently. I was in Wendy's recently and noticed that the sour cream(or whatever) contained modified food starch. So now I avoid anything which might have sour cream. I do love not having to deal with diarrhea, cramps, gaaas, and generally never knowing if I would be feeling okay or not when we are traveling or have something important going on. I've found that I can eat the food at Tom's barbecue (no bun) on McKellips, and most Mexican food. I always go at odd times when they are not busy so I can have time to ask if there is any flour or wheat in the food. I am 71 going on 40, married to a guy who is now convinced that HE has celiac, and we love cats but got tired of the humongous vet bills as our old cats spun out the last of their nine lives. Had dogs when the kids were young, and did the crafts, sewing, knitting, crochet bit B.C. Before computer. I spent a lot of time on the computer looking up gluten related stuff at first. Sally