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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About NicoleAJ

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  1. I have an 18month old now. I started taking prenatals 6 months before I got pregnant with her, so my folic acid was fine, but I wasn't supplementing vitamin D beyond the 1000 IU that were in my prenatals. By 8 weeks I was so significantly vitamin D deficient (despite drinking lots of milk, eating cheese, etc) that I got a severe infection and starting bleeding. I thought I was losing the baby, and it was terrifying. The doctor prescribed me some antibiotics and after the second infection at 15 weeks she tested my vitamin D (since low vitamin D and pregnancy are two factors for bacterial vaginosis). I was very deficient. She recommended I start taking 5000 IUs of Vitamin D daily along with what I was already getting through diet and prenatals, and I stopped getting infections and my daughter was born perfectly healthy and full term. And now that I'm no longer pregnant, I don't supplement vitamin D and my levels are perfectly fine. The baby needs a lot of vitamin D--don't be shy about taking what you (and your child) need for this very short period of time.
  2. celiac disease Symptom Or Pregnancy

    I had all of these symptoms during my celiac diagnosis 6 years ago and when finding out about my pregnancy 8 months ago. The stress on your body of knowing what's going on and what's coming up this week could definitely delay your period. I would take a pregnancy test today and another on the morning that you're supposed to go in (just in case it was too early to produce a positive test)--you don't want to mess with the medications and things if you are pregnant, but it's likely that celiac disease could be accounting for all of your symptoms too.
  3. Camera Capsule?

    I've done the pill cam twice now, and it hasn't shown anything conclusive, whereas my biopsies from the endoscopies have been inconclusive as well but have provided much more info on the nature of the abnormality and inflammation going on. Both times with the pill cam we were looking for Crohn's since I already had a solid celiac diagnosis and had already healed (DQ2 positive, biopsy and blood test). The doctors see inflammation and bleeding, but they can't provide a sure diagnosis. The test isn't difficult or painful, it's just an inconvenience and can be pretty pricey.
  4. Scared!

    I'm 32 weeks pregnant now, and it was no harder to get pregnant for me than it is for anyone else (I went completely gluten free almost 6 years ago). I've had celiac symptoms since having a serious illness that landed me in the hospital for 6 weeks during my infancy, but I was not diagnosed until I was 24, so my damage was pretty severe. My OB told me that as long as I follow the gluten free diet as carefully as I always have, I shouldn't have any complications due to celiac. For the most part this has been true. We've had to stay on top of my vitamin D, B-12, and iron/ferritin levels because I've developed deficiencies here and there that have needed to be taken care of, but actually the slowed down GI tract during pregnancy has been a welcome side effect for me. Because we knew that I might be more susceptible to deficiencies, we've kept a closer eye on things and have always caught everything with plenty of time to take additional supplements (beyond my regular prenatals and DHA)so that the baby can get what she needs. Good luck and don't stress yourself out too much.
  5. I would second tarnalberry's endorsement of FAM. I was having cycles that would last between 40-55 days, oligo-ovulation, and my doctor basically told me that ovulation kits would be expensive and pretty much useless for such long cycles because I'd never know when to use them or would spend a small fortune on them without getting a lot of info. I used FAM to prevent pregnancy for 11 months and then when we were ready to try, we got got pregnant the first month because we understood my cycle.
  6. Possible Celiac Mum To Be

    I was on Neurontin for trigeminal neuralgia, and that it clears the system in 48 hours as well. However, my neurologist still suggested that I wait a month or two to start trying to get pregnant and to go on prenatals in the meantime. I actually ended up waiting several months because it just worked out better for our schedule. A lot of drugs taken for neurological disorders can zap your folate, which is not the best symptom to deal with right before conception. I'm 29 weeks pregnant now, and I'm happy I gave myself some time to readjust to life without meds before dealing with the first trimester. Good luck TTC.
  7. Bone Loss

    When I first found out about my bone loss three years ago (at 27), I signed up at my local Curves location. I hadn't been working out before that, so it was easy to fit into my schedule and not overly strenuous, so that guaranteed that I would keep up with it. The workout is quick--30 minutes or an hour depending upon how many times you go around the circuit, and the nice part is that every machine provides resistance, which is exactly what you need. They train you in exactly how to use all of the equipment, so there's no need to hire a personal trainer. Once I burned out on Curves after the first year, I joined a real gym and started doing other things. Now I'm 6 months pregnant, so I only walk and do yoga to keep up my bone strength. Make sure you're getting enough vitamin D. You might want them to check your levels. I was on the low side of normal (34) this summer, but after 8 weeks of pregnancy I became deficient. It's best to know where you stand.
  8. Crohn's Disease

    I was diagnosed with celiac in 2004 and Crohn's in 2007, only to find out later that the Crohn's diagnosis was premature (I also had a severe reaction to the Asacol they put me on). Every time I see a new GI for the severe and regular rectal bleeding and occult bleeding in my gi tract, they assume I have Crohns, and then they get in there and the test results are abnormal but inconclusive. My doctor at Hershey medical center said that though it is rare to have patients with both celiac and Crohn's, it is possible, and she has had some cases of this (these diseases are her specialties).
  9. Help Me Before I Litterally Waste Away.

    I would go to a high risk specialist now rather than waiting around for another month. A 30 lb weight loss is significant. It's very good news that your little one is measuring ahead--this probably means that she's getting what she needs but is sucking you totally dry. By 18 weeks pregnant I was still down a 1/2 lb from my pre-pregnancy weight, and I was not vomiting and was getting all of the calories I need (I started at 134 at 5'6")--although the nurse seemed concerned, my doctor said that some women don't really gain weight until the baby starts packing on the pounds. She wasn't concerned since my weight loss was very minor. I'll be 22 weeks tomorrow, and I've now gained 5 lbs in these last few weeks; my little girl is also measuring ahead and is healthy. However, my doctor has been closely monitoring different levels of nutrients to make sure that baby and I have enough. I had a vitamin D deficiency, so she started me on 3,000 IUs of D daily. Then my chronic B12 deficiency started to rear its ugly head, so I'm now taking it sublingually on a daily basis. I also take Rainbow light prentals, which are gluten free and am taking a gluten free version of DHA daily. She'll check my levels again at 28 weeks. Hopefully you'll start packing on the pounds soon, but you should definitely be seeing someone with a little bit more knowledge of fetal health. The good ultrasound is an excellent sign, but there might be something else going on. I agree with everyone else about the thyroid levels. Good luck and keep us posted.
  10. You might want to try Pre-seed. It's a lubricant that does not kill the sperm (unlike all the kinds of lube you get at the pharmacy). We used it and got pregnant in our first month of trying (after charting and preventing pregnancy for 11 months). I'm 20 weeks pregnant now. I've had plenty of friends who have done everything right and who have taken 8 months or more to conceive. Try not to get frustrated, and don't obsess about it in the two weeks after ovulation since the pregnancy tests won't be positive until then. I didn't get my positive pregnancy test until 14 days past ovulation. Good luck!
  11. Thinking About Another Pregnancy

    In addition to the advice provided above, have particular nutrient levels checked. I knew I've had problems with low B12 in the past, so I asked my doctor to check it out before I got pregnant, so I knew I was fine there. Unfortunately, I didn't have my vitamin D levels checked until I was already 16 weeks pregnant and suffering from constant bacterial infections. It turns out that I was deficient in vitamin D, so now I'm loading up on it and going out unprotected in the sun to try and make up for the deficiency before this becomes a real problem with the baby's brain development, immunity, or my own health. I wish I had known this before I started trying to conceive because I would have gotten my levels up before becoming pregnant.
  12. Personally, I wouldn't take anything that could have a completely unanticipated effect on the baby. I know it can be really difficult. My stomach is just recovering today after about 5 days of almost constant D and feeling awful. You should be checked out for the spotting, even though it's probably nothing. You might have a touch of an infection, which could be irritated your cervix. You can also spot after sex or an internal exam though too.
  13. I had been charting for a while just so I'd know my cycles, which were super long. Technically there were some months in there where we weren't specifically trying that things ended up being timed so that I could have gotten pregnant (and secretly I hoped I would be). However, I waited until I defended my doctoral dissertation. Then we timed everything properly and used pre-seed, and I was pregnant that first month. I finally "gave birth" to my diss (after a 24 month gestation) and then immediately got pregnant!
  14. That's great that all your bloodwork checked out. You shouldn't need extra iron if you're not anemic. Luckily, the baby doesn't really require many calories in the first trimester and the prenatals should give you the nutrients you need. Even with diarrhea, you're probably absorbing more nutrients than you know--since your celiac panel showed that you're following the diet very well. It's always best to call the OB to check. I feel bad for those moms who can't keep any food down. My SIL was vomiting everyday all day until the doc put her on nightly Zofran. Yikes!
  15. I'm pregnant and have had watery stools off and on--it hasn't affected my nutrient levels though. I've been trying not to take anything for it, though my OB said I could take Kaopectate if I really needed it. I get bloody stools a lot, and every time I'm tested for Crohn's, the tests come back abnormal and show a lot of bleeding, but they are not perfectly specific for Crohn's. I just avoid leafy vegetables, popcorn, red meat--things that cause me to be in pain, and I take my prenatals and DHA daily. Is your iron low? If so, then take iron supplements, which will definitely slow things down. I don't know about pancreatic insufficiency, but as far as IBD is concerned, I definitely wouldn't take anything that's category C, especially in the first trimester. The risks would not outweigh the benefits. I haven't taken any drugs at all (I'm 13 weeks now), and the baby is measuring perfectly, the heartbeat is right on track. A lot of women in the pregnancy forum I participate in have been dealing with diarrhea all 3 trimesters, and their babies are doing just fine. Be sure to get important levels checked though--B12, D, thyroid, etc.