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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Paigie

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  1. Thanks for your help. I have no idea how many samples she took, hopefully more than a couple. Have to wait two weeks to get the results in the mail.
  2. Had the endoscopy and the dr. only biopsied the duodenum....is that the typical place to test for celiac?
  3. Jen, Thank you for posting the links. I found this from the first link and it really helped in my understanding: "The degree or type of symptoms that a person with celiac disease presents with does NOT depend on the severity of the disease where you take the biopsy. In celiac disease the damage starts in the intestine just after the stomach and works its way down. The small intestine is about 26 feet long and has a tremendous ability to compensate. So if the damage is mostly near the stomach (which is where biopsies are done) then you may never have diarrhea; the rest of the small intestine can compensate and absorb all the liquid and food that passes by the first few damaged feet. When somebody presents with severe diarrhea and wasting, that means most of the small intestine is damaged and it is not able to compensate for the damage closer to the stomach. So it is the amount of the small intestine that is damaged which determines the symptoms. If you have all of the small intestine damaged you'll have diarrhea and weight loss. If only a small portion of the small intestine is damaged, you may have pain, bloating, and discomfort after eating but not diarrhea."
  4. I haven't been dx'd yet, I go for the biopsy next week. If it comes back positive for celiac I will be one of those who have chronic constipation and weight gain.
  5. I can see why you might think that, however, I can have a cup of decaf with heavy cream and it doesn't bother me, in fact I can have several cups in a row. It's just the lattes that seem to be the culprit. I'm thinking that may be because I use MUCH more cream in a latte then a cup of coffee. In fact, in a latte it's only two ounces of coffee per 8-10 ounces of cream..depending on the size. I went and bought the lactaid today and plan on taking 4-6 pills before I do my test latte to see if that helps. I have the biopsy next week so I'll have a better idea what to do after that is done and the results are back. I have a feeling that I'm not celiac or lactose intolerant as much as I am suffering from slow motility, but my doctor wants to test first for celiac and SIBO then we'll go from there.
  6. Thanks for the suggestion. I would if I liked cold coffee, it's just one of those things that I like hot, even extra hot..bummers, huh? The good news is, if I turn out to be celiac and or lactose intolerant I'm really good at giving up things I shouldn't have. I've just decided to spend the days leading up to the biopsy eating and drinking things that I may have to give up to have that one last hurrah and experiment and pay closer attention to reactions. Thanks again!
  7. Thank you everyone for sharing your experiences, it's been so helpful. I really appreciate it! I think I'm going to try the extra lactaid one last time as an experiment and see what happens. I don't have a latte everyday, but it's just one of those special treats that brings a little joy in my life, so I don't want to give them up if I don't have to. If I'm convinced either by experiment or testing that I'm lactose or casein intolerant than I will. I don't know if there are levels of intolerance, so I'm wondering why I can eat cheese, yogurt, butter and even skim milk and not be bothered? Perhaps it is the heating of the cream as I do order my lattes "extra hot" and make them extra hot at home, I think I'll try making my experimental one less hot at home and see if that helps. Again, thanks for everyone's help!
  8. This may be a silly question, but does Almond milk taste like almonds, or milk?
  9. Thank you for your input. If I ate that much bread for that long I shudder to think what I would weigh as I don't have the weight loss with this, (whatever it is) like most those who have celiac. But, I think I'll make sure I get gluten for the next week, just in case. Thanks again.
  10. Yes, I sure do. That's part of the reason why I describe it as if someone has punched me.
  11. The gluten challenge sounds horrific, I'm sorry you're having such a rought time. I'm scheduled for a biopsy July 18th and though I haven't deliberatley cut out gluten I do eat low carb, so I don't get alot of gluten in my diet. Do you think a week of the gluten challenge would help the biopsy show if it's gluten intolerance?
  12. You know, the funny thing is regular skim milk, cheese nor yogurt seem to give me the kind of reaction having a latte will. I do get lattes from Starbucks, but mostly I make them at home. I have, at both places, a decaf latte made with heavy cream and sugar free vanilla. I use the heavy cream because I've low carbed since the year 2000 and the heavy cream has no carbs. They've just recently started giving me stomache upsets with the bloat, constipation and heart burn of all things. It seems like the cream just lays in my stomache. Now, mind you I can have sugar free ice cream and not get the same reaction. I will definatley dread giving up dairy far more than gluten and I can't imagine how hard that's going to be. It's pretty confusing to me and I sure appreciate your insight.
  13. Nancy, Thanks so much for your detailed explanation of your experience, it helps greatly. I had gone up to 142lbs from my normal 110lbs in 2000 when I decided to do low carb and no sugar, I went down to 108 at one point, but on low carb you don't eliminate wheat, just the bad carbs. When I was very, very strict I wouldn't eat any form of wheat and when I re-introduced carbs from whole wheat the weight gain started, but not right away. I've been eating low carb ever since 2000, but not as strict as at first, so I'm wondering if I'm doing what your body has done? I've got back up to 146lbs and on my barely 5'2" frame it shows. The bloat only makes it look worse, if I wasn't post meno you'd swear I was pregnant! Now, if I could only loose weight eating doritos and Reese's peanut butter cups, (my two very favorite snacks! (LOL) I've been advised not to go gluten free til after the biopsy which is scheduled for next week, but after that I plan on doing just that to see if it will help. I can't imagine what on earth I'll be able to eat to lose weight while giving up gluten and dairy. I'm not looking forward to it at all. Thanks again for all your help.
  14. Thanks for your input. Right now is one of the times for no reason I can explain, the rash is gone. I never know when it will come or go, so I'll have to have the other biopsy... just my luck. And thank you for letting me know to not go gluten free til I've had the biopsy. Would you suggest not going diary free til then as well? Thanks again for your help.