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Celiac Disease & Gluten-Free Diet Blogs

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  • Searchin for a Primary Care Dr. In Redlands That is Knowledgeable about Celiac disease
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  • JillianC
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  • Gluten-Free Sisters :)
  • Eab12's Celiac Blog
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  • Petroguy
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  • Cheryl
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  • Gluten Challenge
  • twins2's Blog
  • just trying to feel better's Blog
  • Celiac Teen
  • MNBelle blog
  • Gabe351's Blog
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  • Coeliac Disease or Coeliac Sprue or Non Tropical Sprue
  • karalto's Blog
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  • Nyxie's Blog
  • Swpocket's Blog
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  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
  • prettycat's Blog
  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
  • mary m's Blog
  • Jkrupp's Blog
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  • keyboard
  • Louisa's Blog
  • Guts & Brains
  • Gluten Free Betty
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  • Connie C.'s Blog
  • garden girl's Blog
  • april anne's Blog
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  • benalexander60's Blog
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  • Jersey Shore wheat no more's Blog
  • swezzan's Blog
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  • MeltheBrit's Blog
  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
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  • KMBC2014's Blog
  • Musings and Lessons Learned
  • txwildflower65's Blog
  • Uncertain
  • jess4736's Blog
  • deedo's Blog
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  • tiffjake's Blog
  • KCG91's Blog
  • Yolo's Herbs & Other Healing Strategies
  • scrockwell's Blog
  • Sandra45's Blog
  • Theresa Marie's Blog
  • Skylark's Blog
  • JessicaB's Blog
  • Anna'sMommy's Blog
  • Skylark's Oops
  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
  • Mia'smommy's Blog
  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
  • acook's Blog
  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
  • Linda03's Blog
  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
  • Robinbird's Blog
  • skurtz's Blog
  • Olivia's Blog
  • Jazzdncr222's Blog
  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
  • txplowgirl's Blog
  • Gluten Free Bread Blog
  • babygoose78's Blog
  • G-freegal12's Blog
  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
  • Tabasco's Blog
  • Amanda Smith
  • mmc's Blog
  • xphile1121's Blog
  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
  • wheatisbad's Blog
  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
  • lbradley's Blog
  • TheSandWitch's Blog
  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
  • allybaby's Blog
  • MGrinter's Blog
  • LookingforAnswers15's Blog
  • Lis
  • Alilbratty's Blog
  • 3sisters' Blog
  • MGrinter's Blog
  • Amanda
  • felise's Blog
  • rochesterlynn's Blog
  • mle_ii's Blog
  • GlamourGetaways' Blog
  • greendog's Blog
  • Tabz's Blog
  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
  • siren's Blog
  • myraljo's Blog
  • Relieved and confused
  • carb bingeing
  • scottish's Blog
  • maggiemay832's Blog
  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
  • nikky's Blog
  • Suzy-Q's Blog
  • mfarrell's Blog
  • Kat-Kat's Blog
  • Kelcie's Blog
  • cyoshimit's Blog
  • pasqualeb's Blog
  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
  • mailmanrol's Blog
  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
  • aprilz's Blog
  • the gluten-free guy
  • gluten-free-wifey's Blog
  • Lynda MEADOWS's Blog
  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
  • booboobelly18's Blog
  • Dope show
  • Classic Celiac Blog
  • Keishalei's Blog
  • Bada
  • Sherry's blurbs
  • addict697's Blog
  • MIchael530btr's Blog
  • Shawn C
  • antono's Blog
  • Undiagnosed
  • little_d's Blog
  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
  • Periomike
  • Sue Mc's Blog
  • BloatusMaximus' Blog
  • It's just one cookie!
  • Kimmy
  • jacobsmom44's Blog
  • mjhere's Blog
  • tlipasek's Blog
  • You're Prescribing Me WHAT!?!
  • Kimmy
  • nybbles's Blog
  • Karla T.'s Blog
  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
  • Costume's and GF Life
  • mjhere69's Blog
  • dedeadge's Blog
  • CeliacChoplin
  • Ravenworks' Blog
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  • celiac<3'sme!'s Blog
  • William Parsons
  • Gluten Free Breeze (formerly Brendygirl) Blog
  • Ivanna44's Blog
  • Daily Life and Compromising
  • Vonnie Mostat
  • Aly'smom's Blog
  • ar8's Blog
  • farid's Blog
  • Sandra Lee's Blog
  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
  • beetle's Blog
  • Sandra Lee's Blog
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  • totalallergyman's Blog
  • Kim
  • Vhips
  • twinsmom's Blog
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  • collgwg's Blog
  • Living in the Gluten Free World
  • lisajs38's Blog
  • Mary07's Blog
  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
  • covsooze's Blog
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  • electromobileplace's Blog
  • Adventures of a Gluten Free Mom
  • Fiona S
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  • Carla
  • jaru24's Blog
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  • SimplyGF Blog
  • Jim L Christie
  • Debbie65's Blog
  • Alcohol, jaundice, and celiac
  • kmh6leh's Blog
  • Gluten Free Mastery
  • james
  • danandbetty1's Blog
  • Feline's Blog
  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
  • KathyNapoleone's Blog
  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
  • miasuziegirl's Blog
  • KikiUSA's Blog
  • Amyy's Blog
  • Pete Dixon
  • abigail's Blog
  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
  • Deedle's Blog
  • krackers' Blog
  • cliniclfortin's Blog
  • Mike Menkes' Blog
  • Juanita's Blog
  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
  • myadrienne's Blog
  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
  • delana6303's Blog
  • psychologygrl25's Blog
  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
  • carib168's Blog
  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
  • mom1's Blog
  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
  • solange's Blog
  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
  • sweeet_pea's Blog
  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
  • glutenfreenew's Blog
  • Living in the Garden of Eden
  • toddzgrrl02's Blog
  • redface's Blog
  • Gluten Free High Protein
  • Ari
  • Great Harvest Chattanooga's Blog
  • CeliBelli's Blog
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  • redface's Blog
  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
  • jayshunee's Blog
  • lilactorgirl's Blog
  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
  • lilactorgirl's Blog
  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
  • quantumsugar's Blog
  • Littlebit's Blog
  • Kimberly's Blog
  • Dayz's Blog
  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • User Is it safe to use GB WhatsApp pro in 2024?
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
  • Trouble Eating Out Gluten-Free...Good or Bad?!
  • dilsmom's Blog
  • theceliachusband's Blog
  • amanda2610's Blog
  • Pancreas and Celiac Disease Link?
  • epiphany's Blog
  • Patty55's Blog
  • The Latest Gluten-Free Food Recalls
  • kenzie's blog
  • CVRupp's Blog
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  1. Celiac.com 10/21/2023 - Celiac disease, an autoimmune disorder triggered by gluten consumption, has long been associated with a range of digestive symptoms. However, the story doesn't end in the digestive tract. For some individuals, celiac disease unveils itself through an unexpected medium: their skin. This presentation is known as dermatitis herpetiformis, and it's a vital but often overlooked facet of celiac disease. Dermatitis herpetiformis, affectionately referred to as "DH" by some, is a chronic skin condition characterized by intensely itchy, blistering rashes. It might sound like a mere irritation, but DH is, in fact, the skin's way of echoing an underlying immune response to gluten ingestion. Just as celiac disease affects the small intestine, DH is its external manifestation, giving voice to the body's immunological revolt. In our in-depth exploration of dermatitis herpetiformis, we delve into the intricacies of this unique condition. We'll unravel its connection to celiac disease, exploring why it appears and how it's diagnosed. We'll discuss the unmistakable and sometimes bewildering symptoms, along with the challenges of managing this skin condition. Moreover, we'll guide you through treatment options and offer practical advice for living a gluten-free life to keep DH at bay. Despite its undeniable role in the larger celiac disease narrative, dermatitis herpetiformis remains an enigma for many. It's time to shed light on this aspect of celiac disease that affects the skin and, in doing so, empower those who face this condition to navigate its complexities with confidence and knowledge. So, let's embark on this enlightening journey, demystifying the link between celiac disease and the unexpected language of the skin: dermatitis herpetiformis. Unraveling the Connection Between Dermatitis Herpetiformis and Celiac Disease For those who have encountered dermatitis herpetiformis, the initial onset can be perplexing. Unexplained rashes and relentless itching lead many on a quest to uncover the root cause of their skin woes. This is where the intricate connection between dermatitis herpetiformis and celiac disease comes into play. Celiac disease is a well-known autoimmune disorder, triggered by the consumption of gluten—a protein found in wheat, barley, and rye. When someone with celiac disease ingests gluten, it initiates an immune response in the small intestine. This response damages the intestinal lining, impeding the absorption of nutrients and leading to a host of gastrointestinal symptoms. So, what's the connection between celiac disease's internal battleground and the itchy rashes of dermatitis herpetiformis? The answer lies in the immune system's memory. Individuals with celiac disease have a particular genetic predisposition. When they consume gluten, their immune system recognizes it as an invader and produces antibodies, mainly tissue transglutaminase 2 (tTG-2). These antibodies don't limit their activity to the digestive tract; they circulate throughout the body. Here's where dermatitis herpetiformis makes its grand entrance. The same antibodies that target the small intestine are drawn to the skin. When they reach the skin's surface, they provoke an inflammatory response. This reaction results in the characteristic blistering and intense itching of DH. In essence, DH is the skin's way of expressing the body's rejection of gluten—manifesting on the exterior what celiac disease inflicts internally. But this dual-action response, where gluten triggers a reaction in both the intestines and the skin, also means that those with dermatitis herpetiformis often have underlying celiac disease. While not all celiacs experience DH, a substantial number do. As a result, diagnosing DH often leads to a celiac disease diagnosis, making it crucial to recognize the symptoms and understand the connection between these two conditions. The Symptoms of Dermatitis Herpetiformis Dermatitis herpetiformis is a skin condition known for its distinct and uncomfortable symptoms. Understanding these symptoms is crucial for timely diagnosis and management. Here, we delve into the key indicators of DH and how they affect those who experience this unique skin disorder. Intensely Itchy Skin: The hallmark symptom of DH is intense itching. Affected individuals often describe the itch as deep and unrelenting. This itchiness typically precedes the appearance of the rash and can be so severe that it significantly impacts a person's quality of life. Scratching the itchy areas can further exacerbate the condition. Blistering Rash: The most recognizable feature of DH is the appearance of a blistering rash. The rash typically consists of red, raised bumps or blisters filled with clear fluid. These eruptions often cluster together and create symmetrical patterns on the skin, appearing on both sides of the body. The rash's appearance can vary from person to person but is characterized by its tendency to group in clusters. Elbows, Knees, and Buttocks: DH often affects specific areas of the body, with a predilection for the extensor surfaces. This means that it frequently appears on the elbows, knees, and buttocks. However, the rash can also emerge on other body parts, including the scalp, back, and shoulders. Burning Sensation: In addition to itching, some individuals report a burning sensation or discomfort in the affected areas. This burning sensation can add to the overall discomfort and distress associated with the condition. Skin Lesions and Scarring: If left untreated, DH can lead to skin lesions, erosions, and secondary bacterial infections. Prolonged scratching or friction can result in scarring, which, in severe cases, may be permanent. Recurrence and Chronic Nature: DH tends to be a chronic condition with a relapsing-remitting pattern. Symptoms may improve and reappear over time, making it essential for individuals to have a long-term management plan. Understanding the symptoms of dermatitis herpetiformis is vital for early recognition and proper management. It is essential for affected individuals to seek medical attention for a definitive diagnosis and to initiate appropriate treatment, often in conjunction with managing the underlying condition, celiac disease. How To Diagnose Dermatitis Herpetiformis Diagnosing dermatitis herpetiformis can be challenging due to its resemblance to other skin conditions. However, a correct and timely diagnosis is crucial as it often points to an underlying condition, celiac disease. Here, we'll explore the key steps involved in diagnosing DH. Clinical Assessment: The diagnostic journey typically begins with a visit to a dermatologist. DH's hallmark symptom is its distinct blistering rash, but it can resemble other dermatological conditions like eczema, contact dermatitis, or even herpes. An experienced dermatologist will conduct a thorough clinical assessment, taking into account the specific characteristics of the rash, its distribution, and the accompanying symptoms such as itching and burning. The presence of the rash's unique pattern, which typically forms in clusters and symmetrical groups, can be a telling sign. Skin Biopsy: In many cases, a definitive diagnosis of DH requires a skin biopsy. A small sample of the affected skin is taken and examined under a microscope. The biopsy typically reveals specific markers such as granular immunoglobulin A (IgA) deposits in the skin layers, a key indicator of DH. These IgA deposits, also found in the small intestine of those with celiac disease, provide a crucial link between DH and the underlying autoimmune condition. Blood Tests: Alongside a skin biopsy, blood tests can be conducted to detect elevated levels of antibodies associated with celiac disease, particularly IgA-tissue transglutaminase (tTG) and IgA-endomysial antibodies (EMA). Finding high levels of these antibodies in the bloodstream adds another layer of evidence linking DH to celiac disease. Response to a Gluten-Free Diet: Perhaps the most compelling diagnostic tool for DH is the patient's response to a gluten-free diet. If the rash and other symptoms improve or disappear with the elimination of gluten from the diet, it strongly suggests dermatitis herpetiformis in the context of celiac disease. The diagnosis of DH can be complex, requiring a combination of clinical expertise, laboratory tests, and a dietary evaluation. Once confirmed, patients can begin effective management of both the skin condition and their underlying celiac disease, often with significant improvements in their overall health and well-being. In the following section, we'll explore strategies for managing dermatitis herpetiformis. Home Remedies for Symptoms of Dermatitis Herpetiformis While home remedies can provide some relief from itching, it's important to note that DH typically requires medical treatment, including a gluten-free diet. Be sure to consult a healthcare professional for proper diagnosis and treatment. Here are some home remedies that may help alleviate itching associated with dermatitis herpetiformis: Gluten-Free Diet: While not a prescription medication, adherence to a strict gluten-free diet is the cornerstone of DH treatment. Eliminating gluten from the diet can prevent the formation of new skin lesions and reduce the need for medications over time. Benadryl (consult a doctor before use in young children): First try the over the counter cream, but if that does work a member of Celiac.com's forum reports that the very best thing to stop DH itching is to grind up a 25mg pill of Benadryl (or perhaps get capsules and just open one) into two teaspoons of water, and then spread it over the rash and itchy areas with your finger. Just be careful not to use too much too often, as you can absorb the drug through the skin. Allegra (Fexofenadine): Those with DH report that taking Allegra, which, in the USA, is an over the counter allergy medication, provides relief. Be sure to read all package warnings before giving it to children. Cold Compress: Apply a cold, damp cloth or an ice pack to the affected area. This can help reduce inflammation and numb the itching sensation temporarily. Gluten-Free Oatmeal Bath: Adding colloidal oatmeal (available in drugstores) to your bathwater can soothe irritated skin. Soak in the oatmeal bath for 15-20 minutes and be sure the oatmeal is certified gluten-free. Baking Soda Bath: A baking soda bath may help relieve itching. Add a cup of baking soda to a lukewarm bath and soak in it for relief. Aloe Vera: Apply aloe vera gel directly to the affected area. Aloe vera has anti-inflammatory properties and can provide soothing relief. Calamine Lotion: Calamine lotion can help relieve itching and soothe the skin. Apply a thin layer to the affected area and allow it to dry. Topical Hydrocortisone Cream: Over-the-counter hydrocortisone creams can provide temporary relief from itching and inflammation. Follow the instructions on the product label. Keep Skin Moisturized: Apply a fragrance-free, hypoallergenic moisturizer to your skin regularly. Dry skin can worsen itching. Ben-Gay Cream: Some people with DH have reported that using Ben-Gay cream on the affected areas relieved the itchiness. Chiggerex cream: Some people with DH have reported that using Chiggerex cream on the affected areas relieved the itchiness. Avoid Irritants: Avoid foods high in iodine like seafoods and dairy products as iodine may exacerbate symptoms in some people with DH. Also avoid harsh soaps, fragranced products, and hot water, as they can exacerbate itching. Opt for gentle, hypoallergenic products. Wear Loose-Fitting Clothing: Tight clothing can irritate the skin. Choose loose-fitting, breathable fabrics to minimize friction. Antihistamines: Over-the-counter antihistamines may help reduce itching. Consult your doctor or pharmacist for the appropriate dosage and type. Niacin and Niacinamide (Vitamin B3): There is some evidence that niacin and niacinamide may offer some relief from DH symptoms. Stress Reduction: Stress can exacerbate itching. Engage in relaxation techniques such as deep breathing, meditation, or yoga to manage stress. Dietary Modifications: While not a home remedy, it's crucial to address the root cause of DH by following a strict gluten-free diet. Consult with a registered dietitian to ensure you are avoiding gluten-containing foods. Remember that these home remedies are not a substitute for medical treatment. If you suspect you have dermatitis herpetiformis or are experiencing severe itching, consult a dermatologist or healthcare provider for proper diagnosis and guidance on managing the condition, which typically includes a gluten-free diet and medication to control symptoms. Prescription Treatments for Symptoms of Dermatitis Herpetiformis Dermatitis herpetiformis is typically treated with prescription medications aimed at controlling the symptoms and underlying condition, which is celiac disease. The primary treatment for DH is a strict gluten-free diet, as DH is closely associated with gluten intolerance. Additionally, medications are often prescribed to manage the skin symptoms. Common prescription treatments for DH include: Dapsone: Dapsone is the most commonly prescribed medication for DH. It is an oral medication that belongs to the sulfone class of drugs. Dapsone helps reduce skin inflammation, itching, and the formation of new blisters. It is usually started at a low dose and gradually increased as needed. Regular blood tests are necessary to monitor potential side effects, such as changes in blood cell counts. Topical Steroids: In addition to oral medications, topical corticosteroid creams or ointments may be prescribed to reduce itching and inflammation. These are applied directly to the affected skin and should be used as directed by a healthcare provider. Oral Corticosteroids: In cases of severe flare-ups or when Dapsone is not well-tolerated, oral corticosteroids like prednisone may be prescribed for short periods to quickly control symptoms. Long-term use of oral corticosteroids is generally avoided due to potential side effects. Sulfapyridine: Sulfapyridine is sometimes used as an alternative to Dapsone. It is also an oral medication that can help control DH symptoms. Like Dapsone, regular blood tests are necessary to monitor for side effects. Immunosuppressants: In some cases, immunosuppressive medications such as azathioprine or methotrexate may be prescribed to control DH symptoms. These medications work by suppressing the immune system's response that leads to skin inflammation. They are typically considered when other treatments are ineffective or not well-tolerated. It's crucial to work closely with a healthcare provider, preferably a dermatologist and a gastroenterologist, if you have dermatitis herpetiformis. They can properly diagnose the condition, monitor your progress, and adjust your treatment plan as needed. Additionally, regular follow-up appointments are important to assess the effectiveness of treatment and manage any potential side effects of medications. Remember that self-diagnosis and self-treatment are not recommended for DH, and medical guidance is essential for effective management.
  2. To All, I don't have as much time as I once did.....to focus on the forum but I wanted to share this new research that I came across that explains (summarizes) perfectly (IMO) all the research I have done on this topic over the years. Entitled "Acne Vulgaris Is a Special Clinical Type of Pellagra" https://www.sciencepublishinggroup.com/journal/paperinfo?journalid=254&doi=10.11648/j.ajcem.20210906.13#:~:text=Foam cells are an important pathological change in,that patients with acne are deficient in niacin. This is “SMOKING GUN” research that proves that Acne Vulgaris is sign of Pellagra…..or as they say is a “Sub-Type” or Special Clinical form of Pellagra! And I would say (IMHO) that the DH of Celiac disease is a special "Sub-Type" of Pellagra that shows up in Celiac patients......or if you prefer their terminolgy.... that DH is a "Special Clinical" form of Pellagra in Celiac's.... Now to be fair.....I wasn't the first to seize on this idea.....the International Journal of Celiac Disease more than 7 years ago now.....I was just the one....who has beat the drum the most.....I agree! Here is the original researsch. http://pubs.sciepub.com/ijcd/3/1/6/#:~:text=Celiac Disease%3A Intestinal%2C Heart and Skin Interconnections The,versa%2C multiple cardiac manifestations exist in celiac disease. Here is the article Scott graciously agreed to publish on this topic... If someone wants to read the whole article just click on the PDF link.....which I highly recommend you do if you have DH....the special form of Pellagra in Celiac disese (IMHO).... Where they make a great point!!!! and this is the same in Beri Beri (to a great degree as well).....unless you are an alcoholic or homeless you can't have Beri Beri or Pellagra in America (it commonly thought and taught)....but what if the wrong people got.....like GI patients.....then the doctor's can't see it....they are EYE Blind too it! quoting "The current diagnostic approach to pellagra does not provide a basis for early warning, definitive diagnosis, timely treatment, nor prevent pellagra from deteriorating and aggravating. Medical doctor cannot diagnose a patient as mild and moderate pellagra clearly." Until a doctor can SEE Pellagra they can't diagnosis it......and if they see Acne, Psorsias, Ezcema, DH etc.....then they can't see the forest for the trees! As a matter of fact a/this link between Ezcema (skin issues) in babies has been tied to Niacin levels in the Mothers Children has been established but the doctors can't SEE it today.....beause this form of Niacin deficiency is subclinical and being diagnosed as a seperate skin disease.....totally unaware of these established connections... Not surpisinlgy this research is 5+ years old.....but mothers and babies still suffer from low Niacin levels going clincially unregnozied as metabolic Pellagra.... https://www.thehealthsite.com/news/high-levels-of-vitamin-b3-during-pregnancy-may-lower-the-risk-of-eczema-in-babies-ag0916-436755/ Which I think this research conclusively proves IMO! Where they summarize it well... "Summary: Based on an analysis of the clinical feature of acne patients, pathological changes in acne lesions and the therapeutic effects of niacin on acne, we propose that acne can be diagnosed as a specific clinical type of pellagra, and niacin is the first choice for the treatment of acne vulgaris." Note: Similar studies have been found in the study of DH in Celiac disease as well.....but these conditions are no longer assoicated......and therefore it goes un/misdiagnosed too this day! I hope this is helpful as always but it is not medical advice. 2 Timothy 2:7 As always, “Consider what I say; and the Lord give thee understanding in all things” Posterboy by the grace of God,

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  4. New to this forum. Hi guys! So for the last few weeks I've been battling this insanely itchy rash. First started on my elbows, cleared up after 10 days ish with a steroid cream. Then broke out on my knees, ankles and now it's moved on to my thighs. Does it look like DH to you? I've mentioned dapsone to my dermatologist and she's looking into it. I've stopped eating gluten completely in the last month and I'm feeling better. My GI symptoms have improved. I'm more regular (was chronically constipated despite a healthy diet). And if I eat anything gluten I instantly have what it feels like the worst hangover in the world. Severe migraine and nausea. It's awful. Starting about 6 months prior I had to give up alcohol completely. Even just one glass or white wine or one beer (with plenty of water) would do the same thing. Feels like I had 12 shots of tequila. It sucks! I'd love to know everyone's opinions. https://pasteboard.co/iGTRLfWInUWW.jpg https://pasteboard.co/NOhMJnIO7jiX.jpg
  5. I had a positive tTg-IgA of 11 U/mL (0-3 standard range, 4-10 weak positive, 11 and greater positive), have been experiencing multiple symptoms off and on throughout the years. I had my GI consult and scheduled for EGD with biopsy. One of the symptoms I have had off and on for many years is a skin rash that flares up randomly and I couldn't correlate anything to the specific flares of the itchy, red, bumpy rash that lasts for months and then goes away. I'm still on a gluten containing diet (and always have been) as I'm pending EGD/more bloodwork possibly. For those who have dermatitis herpetiformis; I'm curious if anyone has any ideas of how to make it flare up while still on a gluten containing diet and not seeming to be directly linked to specific gluten ingestion per se. I know that DH is obviously due to gluten but since I have always been on gluten and don't have rashes popping up constantly I was wondering if there is a way to exacerbate a rash or trigger a DH flare if that is indeed what I have flaring up at times. If these rashes were DH, would I be having them much more consistently or have you heard of DH kind of popping up here and there with no rhyme or reason while on a gluten containing diet prior to being diagnosed with DH? I know that sounds a little crazy but now that I know I could have a biopsy around the area of the rash when it erupts and it could potentially be DH I am curious (and would give me more confidence in a diagnosis of Celiac). The problem is, the rashes have never been very consistent but once they appear are here to stay for months on end. Anyone ever been through anything like this or tried to make a DH like rash flare up in order to have it biopsied?? I may be a little bonkers for asking this question!! Yikes! Thanks to anyone who reads this!
  6. I was diagnosed with celiac disease four years ago (through a biopsy and blood test). I immediately stopped eating gluten and have followed a rigid gluten-free diet ever since (I sometimes eat at restaurants and cafés but am always careful when I do). Around the same time (i.e. four years ago) I started having occasional rashes on my tush. I had previously had rashes on my elbows and knees that were thought to be eczema. The progression usually goes like this: an itchy red bump, followed by a raised yellowish blister (also itchy), spreading to a more diffuse pink splotch, finishing with a dark red scab, and then healing. I have always noticed that this usually occurs symmetrically on my body. Eventually it started appearing on my knuckles and fingers, and occasionally on my back and stomach. About a year ago it started to appear fairly intensely on my scalp. At night the itching (especially on my backside) wakes me up. I went to the GP several times and received a variety of possible diagnoses (rarely with any degree of certainty): eczema, fungus, scabies, herpes. I was swabbed for herpes three times with negative results each time. I was prescribed a variety of creams and topical steroids, none of which really worked, except that the steroid (Eumovate) does reduce the itching. More recently I've been using an essential oil mixture that also seems to help the itching. I occasionally get periods of remission, often when I travel, and most recently when I had the flu and my skin cleared up completely for a week. I'm never able to really identify anything different in my diet during these periods of remission. At one point the herbalist put me on the Gaps diet, which I did for a couple months with limited success. My questions are these: 1) are there other people here who have adopted a strict gluten-free diet but still have DH? 2) my GP told me that even though I have been gluten-free for a long time, a biopsy of my skin would still give good results, because I have active symptoms. Does anyone have experience with this? I'm open to any other advice and information people would like to add. I've been reading this part of the forum and have already learned a lot. Thanks
  7. Hi everyone I am new here and still trying to get a diagnosis for the hideous rash that I have been living with for over a year but I have started to go gluten free while I wait and I am just wondering how long it takes for the rash to clear up once strictly gluten-free? It’s only been one week and so far I cannot tell any difference But I’m thinking maybe that’s too soon to know anything? Would love any and all input from you lovely people!

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  9. Help! Type 1 diabetic here with horrible skin rash that itches and burns on scalp and legs only My Derma said it’s folliculitis. My twin has Celiac. I’ve had this rash since June and have tied soooo many creams, Rx, shampoos.
  10. I have been on the AIP diet now for 61 days. The good news is that the past 3 days I have had no itching, plus I have only taken 25 mg. of dapsone 1 day. The diet seems to be working and some of my rash, which is everywhere, looks like it's starting to fade. I'm not sure what to do about my scalp. It has scaly-like dandruff all over it. I have tried different shampoos and nothing seems to make an improvement. I do not normally have dandruff. Has anyone experienced this?
  11. Celiac.com 04/28/2021 - Dermatitis herpetiformis is an external skin manifestation of gluten sensitivity. In people with dermatitis herpetiformis, an autoimmune response targets transglutaminase 3 (TG3) in the skin. Transglutaminase 2 (TG2) is a celiac disease autoantigen marked by the presence of enteropathy, while TG6 is the autoantigen that plays a role in neurological manifestations of gluten sensitivity. Researchers don't fully understand the interplay between B cell responses to these three transglutaminases in developing the clinical spectrum of disease manifestations. They also do not fully understand the individual or combined diagnostic and predictive value of the respective autoantibodies. To get a better idea of those values, a team of researchers recently assessed rates of TG6 antibodies in a group of patients with dermatitis herpetiformis. The research team included Marios Hadjivassiliou, Timo Reunala, Kaisa Hervonen, Pascale Aeschlimann, and Daniel Aeschlimann. They are variously affiliated with the Academic Department of Neurosciences, Sheffield Teaching Hospitals NHS Trust and University of Sheffield in Sheffield, UK; the Department of Dermatology, Tampere University Hospital in Tampere, Finland; the Celiac Disease Research Center, Tampere University and Faculty of Medicine and Health Technology in Tampere, Finland; and the Matrix Biology and Tissue Repair Research Unit, College of Biomedical and Life Sciences, School of Dentistry, Cardiff University in Cardiff, UK. The team looked at rates of TG6 antibodies in a group of 33 patients with dermatitis herpetiformis. Thirteen of the 33 patients (39%) were positive for TG6, 11 for IgA, three for IgG, and one for both. This was substantially higher than the 14% rate seen classic celiac disease cases in a Finnish population. Sixty percent of dermatitis herpetiformis patients with no enteropathy, ten patients in all, were TG6 positive, compared with 17% percent of those showing overt enteropathy, twelve in all (Marsh IIIB). Gluten-Free Diet Improves TG6 Antibody Levels After one year on a gluten-free diet, repeat testing showed that seven patients were TG6 negative, while 85% (11 of 13) showed reduced titers for TG6 antibodies. Four patients seroconverted and tested positive for TG6 antibodies at one year, due to the ongoing exposure to gluten. The team reports another patient who presented with encephalopathy leading to the diagnosis of celiac disease, who was intermittently adhering to a gluten-free diet. At baseline serological testing, the patient was positive for antibodies to all 3 transglutaminases. Eleven years later, he developed dermatitis herpetiformis, and eventually developed ataxia and peripheral neuropathy. Even though TG3 and TG6 autoantibodies are associated to certain disease expressions, TG2, TG3, and TG6 autoantibodies can be present across the spectrum of GRD patients, and may develop years before extra-intestinal symptoms appear. This supports the idea that gluten-dependent adaptive immunity is a necessary, but not sufficient condition for the development of organ-specific damage. TG6 antibodies seem to develop more frequently in patients with gluten intolerance, but, either there was no development of the molecular state driving the tissue damage in the gut, or more likely perhaps, a greater resistance to developing the phenotype in the first place. Read the full report in Nutrients 2020, 12(9), 2884
  12. Hey all, I am noticing much more stringy / mucus with my poop now that I have gone gluten free (about four days now). I know it can take a while to reverse the effects of gluten, so is this normal? To have more of that mucus than before?
  13. Wanted to thank you all here at the forum for your messages, in the course of past two years it has been of much help and encouragement for me to read it and to know that I'm not alone in what I have been going through. I'd like to share my story in case somebody would get any benefit from reading it and in case there is anybody who can suggest something... I got first problems in 2009 when my fingertips started cracking all the time - deep cracks, bleeding, painful, etc. a continuous vicious circle. I just lived with it, it was manageable. I saw a few doctors, they said it was dishydrosis and that was it. In 2012 or so I got first eczema on my right hand little finger that then went on to grow and spread steadily during the following years and ended up to cover my entire right hand palm and moved on to my left hand little finger. At the end of 2015 I experienced first major problems that forced me to go on a strict diet (I saw an article in the internet that explained such eczemas by candida overgrowth). I stayed on that candida diet for something like two months and got a complete relief from all symptoms. The symptoms were overall fatigue, skin peeling off on my forehead, further growth of eczema on my hand, terrible itch and pain becuse of the eczema (I remember dropping on the floor in tears because of the agonising pain), and the last drop was hair loss... That diet helped and I now knew that my problem could be managed. I started reading stuff online trying to figure the connection and what was actually wrong with me. I did some lab tests, I did not have candida, I actually did not have any problems, all lab tests came back clear. I spent 2016 staying on diet on and off, balancing between flareups. I gradually started getting bloating episodes that lasted up to a week with certain discomfort breathing, walking, etc. Through experiments I figured that certain products made me feel worse and made the eczema worse. First was gluten. Avoiding gluten really helped. I could eat gluten one-two times but after several times I had a full flare up (no noticeable stomach problems though), so I started cutting down on gluten. Then soya joined the blacklisted gluten. And then came the spring of 2017 that I will never forget. I am attaching three photos to show what my hand was like. I could hardly use my hand, it would swell, burn, itch, pain. I started getting spots of eczema all over the my hand, spreading on to my left hand and it got really out of control spreading too fast. I tried going to doctors again, tried taking their medicines, all to no avail. Returning to diet and finally cutting out lactose removed the agony within two weeks. So, here I am now - intolerant to gluten, soya, nuts, any forms of sugar (including fruits), lactose. On top of that I am vegetarian (well, now a forced vegan). The reason why I am writing here is although I am strict with gluten I still get some (milder) flareups that are caused by even smallest amount of anything that's off the "diet" things. I can get a some flareup by cleaning some dusty drawers, by sleeping on a bed with dusty floor undernearth, by using spice mix that obviously has something wrong mixed in it, well and of course by eating something wrong when I get weak (and stupid).... Just to give you an idea, when I go to a store I cannot buy any snack at all that would be safe for me. All food that I take has to come from my kitchen and my pots... I have stuck to absolute diet for 3 months but within a week after I started adding some food like fruits or nuts to see if I was still intolerant to it, but I again get back to having problems... I have tried getting tested for allergy (nothing), for stomach problems (nothing), ultrasounds (nothing), blood test for clieac (nothing). Doctors here do not know the cause and do not get concerned also (the doctors just say oh if you feel you cannot take certain foods, then don't take them - duh, but when the list of those tihngs is that long?). Stomach biopsy is not done in my country (unless the patient is dying I guess). The only medicine that I take that helps me is an absorbent that is supposed to take out allergens out of the guts and is taken during poisoning (someting similar to activated charcoal). I took antihistamines almost every day in spring 2017 and I ended up always getting too drowsy for one-two days (even from the non-drowsy ones), so I have stopped taking them. The reason why I am writing all this and why I'm happy you have read till the end is that I feel disheartened and it is very hard for me to actually come to terms with this kind of diet especially because all lab tests come out clear and objectively there is no proof that I do have any allergies or intolerances or stomach problems. I'd appreciate to hear you take to it and perhaps some advice...
  14. I have been on the AIP diet for 38 days now. It was my only answer after dealing with another serious outbreak of my rash. I have been on a strict gluten-free diet for more than a year and seemed to be getting it under control until last August. I'm on Dapsone but this time the itching would not stop. I re-cleaned everything and tried to figure out if there was some way I was getting glutened, but came up with zero answers. My rash is slowly starting to heal, (I have it everywhere, legs, back, stomach, armpits, scalp, arms). The itching has stopped for the most part. I eat only AIP How do I start to re-introduce a food? There's lots of info for Celiac but not for DH. We have different symptoms. I don't think I have an immediate reaction when I accidentally eat gluten. I'm pretty certain that I am allergic to other foods, but don't know what it is, yet.
  15. Celiac.com 12/11/2020 - Researchers and clinicians have recently begun to understand dermatitis herpetiformis as an external, skin-affected form of celiac disease. Over 90% of people with DH have an associated gluten-sensitive enteropathy, but just 20% of dermatitis herpetiformis patients show classic gastrointestinal symptoms when first diagnosed. A team of researchers recently released a survey study describing the frequency of dermatitis herpetiformis among patients included in the iCureCeliac network, along with demographics of patients with dermatitis herpetiformis and underlying celiac disease. The research team included Bridget E. Shields, MD; Joel M. Gelfand, MD, MSCE; Lynne Allen-Taylor, PhD; and Misha Rosenbach, MD. They are variously affiliated with the Department of Dermatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia; the Department of Biostatistics, Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia; the Biostatistics Analysis Center, Center for Clinical Epidemiology and Biostatistics, Perelman School of Medicine, University of Pennsylvania, Philadelphia; the Deputy Editor, JAMA Dermatology Dermatologists may be the first to diagnose patients with celiac disease via their dermatitis herpetiformis, but very little nationwide data exists on the demographic characteristics of patients with dermatitis herpetiformis and celiac disease. Using a patient-powered research network (PPRN), their study describes the rate of dermatitis herpetiformis, records the demographics of patients with dermatitis herpetiformis and underlying celiac disease, and assesses the amount of gluten-free diet counseling received by patients with and without dermatitis herpetiformis. The understanding of dermatitis herpetiformis as a definite external manifestation of celiac disease is new, and offers powerful insight into new treatment approaches for dermatitis herpetiformis. Read more on their study in JAMA Dermatology. Published online October 7, 2020.
  16. To All, Who might read this Posterboy blog post. Some house keeping to start with by way of some notes: This is as I see it currently so this a "Cliff Notes" version as a working hypothesis to keep it short enough to read…. I didn’t mention Magnesium or explain how Magnesium Is necessary for the body to use….Thiamine as an example… see Addendum at the end if you have more interest of learning how Pellagra, Beri Beri and Pellagra Sine Pellgra presents today ALL together in the same person today in America as NCGS and/or Celiac disease with or without DH as a presenting symptoms and How and Why this is possible! If their is interest this Posterboy blog post can be made into an article....I am just trying to get it out their in "Grey Paper" format... As a Posterboy blog post.... .in my eclectic, rambling style.... So people can find it.....and react to it if they wish....my forum time has been reduced lately...so I am just sharing to get this "off my chest" so to speak....and I hope Lord willing, it helps someone else......I can't be the only one! The B-Vitamin and Immune Health document mentioned B5 Panothenic Acid and Biotin being important as well possibly Folic Acid…. but I am not sure how they fit in the model. I think it is as least 6 to 8 things (Vitamins/Minerals) that are needed to regulate our immune system… I have identified these 4 four In this Posterboy blog post B1, B2, B3, and Zinc…..with Magnesium definitely being a fifth one (beyond the scope of this blog post)….. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6478888/ Maybe Knitty Kitty can pick up the mantle and add to this discussion…. At least one researcher also mentions a Cooper deficiency as a possible cause of Villous atrophy….but they might be just noticing the Zinc deficiency common in Celiac's since Zinc/Copper have a symbiotic relationship in the body.... Kind of like Vitamin D/Calcium or Magnesium/Calcium.....they are Co-Factors for each other...and why this is very hard to figure to out! but you can only cover so much in one blog post… But I think these 5 are a great place to start (Note: I include Magnesium) in this list as a Co-factor for Thiamine but I don’t’ have time to explain it here in this blog post… If you want to see more how Magnesium is important in Chronic Fatigue specifically see this online article about Magnesium’s role in ME/CFS. http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/ As always, I hope this is helpful but it is not medical advise. This blog post starts now..... This Posterboy blog post was triggered by the thread “Unique antibody profile differentiates people between non celiac gluten sensitivity aka NCGS and Celiac disease” This theory, opinion and hypotheses are not endorsed by Celiac.com they are the ideas of the Posterboy alone and should not be considered medical advice. I am not trying to diagnose by sharing my insights, ideas and research but only to educate and inform that B-Vitamins, in part, help regulate our Immune System and this idea needs further study and research on this topic to confirm this working hypothesis. It is based on this latest research entitled “Metabolism of Dietary and Microbial Vitamin B Family in the Regulation of Host Immunity” published in the Frontiers of Nutrition Circa 2019. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6478888/ The problem is we can’t wait another 20 years if this is right….people are suffering from B-Vitamin deficiencies today! It will be at least that long before Clinical practice catches up with the research that Host Immunity IE Celiac disease can, in part, be triggered by low B-Vitamin status. I have learned to say in, in part……. This is only part of the equation….but it is an important part of the equation….that has been too long overlooked! Now back to the thread that triggered this thought idea… We know B1 can thin Villi… From the above thread we know that Vitamin B2 kicks up our immune response. From a previous thread/research we know Vitamin B3 can treat a Leaky Gut in Alcoholics… See this research entitled “Intestinal permeability (IE Leaky Gut) and oxidative stress in patients with alcoholic pellagra” https://pubmed.ncbi.nlm.nih.gov/16713031/ See this thread where this topic is discussed in more detail… In this thread user/moderator kareng pushed me to be more inclusive/comprehensive in my views…. Not restricting myself to one Vitamin alone……so, in part, this is a response to this criticism… IF the data doesn’t fit the facts you must iterate… Here is what is happening (IMO)….B1 (Thiamine), B2 (Riboflavin), B3 (Niacin) vitamin deficiencies are being diagnosed as Celiac disease today… Think of it as a 3 alarm fire! The first alarm is Vitamin B1 aka Thiamine….you get thin villi and your immune system is triggered and you develop NCGS. The 2nd alarm is Vitamin B2 aka Riboflavin….your auto-immune response is ratcheted up…. And you are diagnosed as having Celiac disease. The 3rd alarm is Vitamin B3 aka Niacin or Niacinamide….your GI tract begins to leak from the Oxidative stress it is now under… What I don’t is how and what other Vitamins play in this auto-immune reaction…. At least, in part, Zinc plays a role in host immunity by changing/modifying the Th1/Th2 balance….IE Immune Homeostasis…. which almost 60% of Celiacs’ are low in at the time of their diagnosis… See this research from the Journal of Infectious diseases entitled “Effects of Zinc Deficiency on Th1 and Th2 Cytokine Shifts” https://academic.oup.com/jid/article/182/Supplement_1/S62/2191506 It shouldn’t surprise us/you by now that this research is 20 years old….because doctor’s don’t know how to incorporate Vitamins in to a genetic model! Being low in Vitamins/Minerals are making us sick, sometimes very sick! Again, see this research 20 years old (not surprisingly) has been overlooked for 20 years… Entitled “Zinc-Altered Immune Function and Cytokine Production” from the Journal of Nutrition…. https://academic.oup.com/jn/article/130/5/1407S/4686394 And since Zinc Is not a medicine (Or other B-Vitamins to be matter of Fact)…..it can be ignored as a possible treatment… See this recent research on low Zinc blood levels in Corona virus patients… Entitled “Lower zinc levels in the blood are associated with an increased risk (2.3x rate) of death in patients with COVID-19” https://medicalxpress.com/news/2020-09-zinc-blood-death-patients-covid-.html How long can we afford to overlook the fact that nutrition governs our genes…. Can you wait another 20 years before medical science wakes up to the fact that B-Vitamins are important for Immune Homeostasis! And could be triggering a 3 alarm metabolic fire showing up eventually as Pellagra being misdiagnosed as DH instead. Let’s recap for easy review…B-Vitamins never deficiencies never occur alone IE uncomplicated. B-1 deficiency occurs with a B-2 deficiency. Having one or both will lead to Villous Atrophy and a subsequent NCGS or Celiac disease depending on the stage of the metabolic fire. Is it a stage 1 alarm fire or a stage 2 alarm fire! If it is a stage 3 fire IE a stage three alarm fire then you have developed Pellagra being diagnosed as DH instead today! How do we know this…because DH was once treated with Niacin (hence we can say for sure DH is Pellagra in disguise today) and not just once….but good studies exist from more than 15 years before antibodies tied DH to Celiac disease…? In fact, as late the 1950’s DH was regularly being treated with Niacin! Being conservative we know it was until the late 60’s and early 70’s until antibodies tied DH to Celiac disease seemingly for good discarding approx.. .. 15 plus years of good clinical practice of using Niacin(amide) to treat DH! IE, Of DH responding to Niacin(amide) treatment…has been lost to history for 50+ years! The Dermatology Advisor confirms this reporting DH responding to Niacinamide treatment in less than a month or 2 to 3 three weeks on average when Dapsone treatment fails for the treatment of DH. https://www.dermatologyadvisor.com/home/decision-support-in-medicine/dermatology/dermatitis-herpetiformis-duhring-disease/ Here is the link to the original research if there is any interest… https://core.ac.uk/download/pdf/82674034.pdf Every now and then an intrepid researcher will rediscover this fact…..that DH can be treated with Niacin(amide)…. but it promptly is forgotten! or not believed??? or Dismissed as being a "Small Study".... See this research entitled “Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide” as published in 2018 https://pubmed.ncbi.nlm.nih.gov/30390734/ This is good news! And should be shouted from the roof tops! But people get hit with a “genetic” dumb stick because we don’t think Vitamins can regulate our genes…. but about 90% of the time today we think it is a one way street… But we get stuck in our genetic silos believing it is our destiny! See the a the movie “The Knights Tale for this logic/way of thinking our “destiny in written in our Genes/Stars”…. Well it is time to realize/admit our nutritional status can and does affect our genes and trigger disease! He changed his “Stars” destiny fortune and you can change your health too if you are willing to try and take some B-Vitamins for health! I did mine! PTL! It is a two way street, Genes and Vitamins interact to regulate our health! If you want a big picture view (analogy) of how this happens see happens see this Posterboy blog post about how I lay this out analogy as a child that grows up into adult hood (Pellagra) as the disease develops through its stages! 2 Timothy 2:7 As always, “Consider what I say; and the Lord give thee understanding in all things” this included. I hope this is helpful, but it is not medical advice. Posterboy by the grace of God, ADDENDUM: This from the thread “Been severely let down and at my wits end” started by the user Never Like Rollercoasters…. and how you can feel when you low are in B-Vitamins! I will quote from it IE from the Posterboy (me) because it summarizes well what I said in a few short paragraphs with out me having to retype everything again… Never Liked Roller Coasters and Cyclinglady et Al, I have written a Posterboy blog post that might help you. I have tried to share my experience so that others might be helped by my suffering going undiagnosed. The symmetrical rash could be the first sign that Pellagra is developing.... It (Pellagra) like Cyclinglady notes about Beri Beri too is hard to diagnose by tests.....instead just taking the B-Complex with Benfotaimine is usually enough to treat the symptom's and/or with Magnesium Glycinate/Citrate (as a Co-factor) to help active the the fat soluble Thiamine IE Benfotiamine you are now taking! Cyclinglady (correct me if I am wrong) JM34 (Or someone close to that name) once tested for a Niacin deficiency and they found him to be borderline low....then we lost contact with him.... B-Vitamin deficiencies don't happen in uncomplicated way (usually) they occur together.... See this article about a case of Pellagra in America... https://casereports.bmj.com/content/12/9/e230972 I will quote the test results... "Vitamin testing revealed normal B12 and folate levels but undetectable levels of Thiamine (B1), Riboflavin (B2) and Niacin (B3). Her symptoms and signs resolved entirely with appropriate vitamin supplementation. Pellagra in Italian means "rough skin" and hence the name that comes to us... The clinical delay in recognizing vitamin deficiencies in Celiac's is causing many treatable co-morbidities like fatigue to go untreated when a simple supplementation program can help in addition to going gluten free.... These are complimentary things.... Micronutrients are low in Celiac's.....it is not well known but recent research is now bearing this out... And it should be noted that Low Thiamine levels has been shown to Thin Villi in Mammals.... Here is an article about it... I would also recommend this youtube link to you...entitled "Is Thiamine Deficiency Destroying Your Digestive Health Why B1 Is ESSENTIAL For Gut Function" It is little over an hour....so I will give you some notes (bookmark) of things to look for that I made for myself.... so you won't have to watch it all.....and give you some points to look at briefly... 30 minutes GI or Intestine contractions 35 minute reduces brush border enzymes like Lactose Interolance Note: they were diagnosed with Pellagra a CAPSTONE diagnosis but they had already developed Beri Beri and Pellagra Sine Pellagra (which is what happened to me) evidenced by undetectable levels of Riboflavin and Niacin. Meaning they (the doctors) had already missed two CORNERSTONE diseases triggered by B-Vitamin deficiencies BEFORE the capstone symptom's developed of per fuse skin lesions....(see research from the 1950s above) showing how Niacin treats DH! As I once said in a Posterboy blog post Vitamins these days have a KIA problem....Knowledge, Image and Awareness problem. As always I hope this is helpful but it is not medical advise. I could go on and on and on . .. but there is no need for that. I need to stop for now. Either you will believe and be helped or go on suffering needlessly if indeed Pellagra and Beri Beri is the parent disease(s) and GERD, IBS, UC, Chrons, NCGS and Celiac disease it‘s unruly children. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” ****Again this is not medical advice but it is too easy, simple and cheap not to try and see if it works for you . . . Remember Occams’ Razor. . . The Simple answer is a Vitamin. But convincing people of that fact has not been simple or easy. I can’t convince you either way. You will have to decide for yourself . . . I only know it help’s those (of my friends) who have tried it for themselves with their heartburn aka GERD and IBS, UC, NCGS etc.. .(for those not already on an acid reducer like a PPIs already....) Praise bee to God and I want other’s still suffering from Pellagra (if you have developed DH) and Beri Beri disease if the research is to be believed being diagnosed as Celiac disease or NCGS to be the next to be helped Praise bee to God! But I know now you will have to discover it for yourself. I stand as your witness. I tried! As always, “Consider what I say; and the Lord give thee understanding in all things” 2 Timothy 2:7, this included. Posterboy by the Grace of God,
  17. I’ve had this rash appear on my elbow many many times. Not very itchy but noticeable. I’ve also had it appear once on both knees and hands. I’ve had ongoing stomach problems but a negative celiac blood test three times. I do have the celiac gene. Could this be DH?
  18. hi All, I had been getting so gradually sick that I don't know when it started, (but I am now assuming 1994). In 2008, I succumbed to pressure from my insurance rep to get more insurance, and they would even come to my house to test my blood. I was denied insurance and recommended to see my doctor, who told me I had the liver of a severe alcoholic. I very rarely drink. I went for tests and the doctor was baffled. He said I should lose weight. He said it was likely fatty liver disease. That was 2008. For the next few years I got tests, tried to eat healthy, and every so often I would see if it was helping my liver numbers. I got stomach aches when I ate toast or a sandwich, but didnt link it to the toast except later, in hindsight. How could toast give me a stomach ache? Anyway, on the advice of my doctor, I tried very hard to lose weight, so went lo-carb. One day, I had had no breakfast and at church 'goodie-time' was unable to resist all the carbs. Later that afternoon, I felt like someone had literally poisoned me. This was now 2011. I decided to not eat or drink anything but almonds and organic cold pressed apple juice in a glass jar, and ate only those things for the next 3-4 days while I looked for symptoms on the Internet. I narrowed it down to celiac disease and went to the doctor. I refused to eat gluten to get the test. I decided not to eat gluten and I got better. I then started a job in China. I learned how to say things like "no soy sauce" since it's made from wheat. I got so much better. I knew what my reactions were to gluten, especially the one that happened first: I would get a shakiness inside, like my blood system was micro-vibrating. i got the flu and was in bed for three days straight eating only mandarin oranges and water. After a couple of days, I got that shakiness, suddenly, lying in bed. I was astounded, cause I had only water and oranges. Then I remembered that I had taken two Advil, in the gel cap form. I looked on the Internet, and sure enough, the gel caps contained gluten. Wow. Even that small amount in two gel caps set it off. I was very vigilant. Then one day, back in Canada, I was making hot dogs for a four-year-old and I had fresh bakery buns. I couldn't resist. I guess I thought, well, it's been a couple of years gluten free, let's see what happens. I ate one and a half huge bakery hot dog buns on impulse. Big mistake. I got so, so sick. I was sick for 6 weeks with various symptoms. Spleen pain, liver pain, kidney pain, migraine headaches, stomach issues, constipation, dizziness, brain fog, irritability, etc. This was 2013. After one week of still being sick, I thought it's probably too late, but I should get that celiac test to see if there are detectable antibodies. I went to the doctor, who didn't think it was necessary and insisted it was fatty liver disease and not celiac. He humoured me and gave me the requisition anyway. It wasn't too late! One week later. i was shocked to see that my antibody level was 99. ( If you have less than 20 you don't have Celiac. It is called tTg test). If you have 100, they say you don't really need a biopsy and it's pretty much confirmed celiac. The doctor was a little bit embarrassed and said, "looks like you've diagnosed yourself". So finally he shut up about fatty liver disease. I got so much better living in China. I occasionally slipped. I then went back to canada for a year. I developed DH, as I got these lesions starting on my thumb and then on my fingers and palms. Finally after 6 months I cut out dairy. I had heard it was also somehow bad for Celiacs from the Internet but I really didn't want to cut out dairy as it was bad enough without gluten. I finally did and the DH cleared up. Then back to China. I would go back to Canada twice a year for the time off from spring and summer holidays. It was really hard to be around western food temptations and I would get "glutened" even though I tried hard. I began to get a strange pain in my leg and the doctor in canada said it was likely arthritis in my hip. i went for an xray but it didnt show anything. it really killed me to get that pain in my leg and then in my hip. i would cry out and have to sit down. i started riding my bike to work in china cause it was painful to walk very far. I had started to reintroduce dairy while in China and found that I could eat yogurt, which I love. I had heard that people blamed their gluten reactions on Roundup, or glyphosate, because they could eat flour products in other countries but not North America. One day about six months ago I made cookies for my students. I wore gloves and was very careful. Before this, I wouldn't even be in the same room with flour. But nothing happened. Then I tasted a cookie. Nothing happened!! The next day, I ate a whole cookie. Nothing happened!! I began to think there was something to the theory of North America and roundup. I still avoided flour in general cause I didn't want to push it, but I started eating soy sauce and relaxed a bit - started going to restaurants in china, etc. instead of micromanaging food in my kitchen, cause I was evidently not reacting to gluten in China. I then realized that the only episodes of pain I had had were when I was in Canada the previous summer and spring. Very strange. So. I got back to Canada, last spring, had my usual gluten free meal on the airplane, and then visited my mother. I ate only organic yogurt. Nothing else, and a few hours later I was attacked by almost every gluten related pain I had ever had. My hip was suddenly shooting pain and I cried out and limped to the couch. My mother asked, what did you eat? I said, nothing! Only organic yogurt! Of course after any glutening, it takes weeks for these pains to subside, and I endured pain stabs in my spleen for a while. Then back to China, where I was able to eat normally. No pains, nothing. I ate yogurt, made myself with uht milk imported from Germany or Australia, and I was fine. Until the day when I ate one of the chocolate bars I had brought from Canada as prizes for my students. Instant reaction! Spleen pain! I had heard that sugar cane was as bad as flour for being drenched in roundup. Now I was convinced. It was definitely stuff from Canada that was the culprit. Only farm products. Yes, they say the yogurt is organic, but I'm sure they feed the milk cows hay that has been exposed to roundup. Now I know exactly what I can eat and where. I love the food here, and it's safe. There are exceptions. They use pesticides on fruit, cause I get a stomach ache when I eat certain fruits, but it's a different reaction that the gluten reaction, I can eat flour products without a huge reaction, but I still have celiac, because I do get reactions even from Chinese flour, just not as bad as I did before. A mild sick feeling, like something is off, kind of unbalanced, and of course the inevitable shakiness. I react much worse to Canadian chocolate. But there is a huge difference between food here and food there. A very painful difference. Hard to figure out, but I think I have. so here's my theory, roundup actually causes the celiac disease, or whatever disease you might happen to be genetically susceptible to. (My uncle has arthritis in his hip). If you keep ingesting it, you will get gradually sicker and sicker and get some kind of disease. If you stop eating roundup completely, you will heal with a healthy diet. If you already have a disease like celiac or DH you can manage it and stay healthy if you are totally roundup free. My dad died of nonHodgkins lymphoma and he insisted it was the roundup the neighbor had been spraying on his farm, right next to my dads organic hobby farm. Now I believe him. I wish I'd been able to piece this together a bit earlier. Since 1994, many diseases have hugely increased. That's when they started with the roundup and there is a one on one correspondence on the graphs with roundup use and many diseases. sorry for the novel but I just can't keep this all to myself, I'm like the canary in the mine. But roundup is everywhere so I don't know if you can really avoid it in North America, sadly. My advice is to move elsewhere and figure it out like I did. i saw a youtube video by an MIT researcher that they are now figuring out that glyphosate actually takes up the place of the essential amino acid glycine in your body. Because they are molecularly similar, glyphosate gets in there and stops glycine from being able to do it's job in your body. So it causes all sorts of problems in a gradual way and eventually you will have trouble. i hope this helps! Stay away from farm products! I hope it's not true what the conspiracy theorists say (that they are spraying chemicals, chemtrails etc. I don't know if they are spraying roundup) but if it is, that's the end of the world as we know it. I don't really want to go there, I just know what I know and I'm sharing it. this is just the short version but I've tried to include important info. Anyone else have a similar story in any way?
  19. Has anyone who has a DH-like rash been taking Trazodone and/or using essential oils. I had been taking Trazodone for years for sleep (loved it), then I started using essential oils and started getting a DH-like rash. I stopped using essential oils, but the rash continued. The rash started going away after 5 or so months when I stopped Trazodone. The rash has stopped. Maybe it all was a drug eruption (as lesion biopsy suggested). But with a family history of Celiac, and the pics of DH matching what I had, I'm wondering if anyone else had a similar rash from Trazodone. Also wondering if anyone ended up on this site after using essential oils thinking they might have DH, but didn't. Anyone? Thanks!
  20. Hi new here. I have suffered from DH since I was a teen. Never had a positive diagnosis for DH. Even the derm I saw a few years ago during a bad flare said it was dermatitis/excema with a secondary infection. Treated with cortisteroid and or tetracycline which if course made it worse as soon as I stopped treatment. Here’s the weird thing. Last two flare ups started during the course of taking prescription of antibiotics for an infection. Both times I’ve checked and the drugs are supposedly gluten-free. But maybe they lower my bodies natural ability to protect against cross contamination or the occasional accidental ingestion? the worst part is I get my DH on my face so I can’t hide it. Starts at the outside corners of my nostrils and spreads down my labial facial folds and then across my chin if it progresses to a full on flare. So essentially I have DH goatee. Nice. ? Anyone have similar? And also I’ve never had dapsone I’m going to clinic to ask. The feeling of the flare up is almost worse than how it looks. It’s driving me crazy with the itchy burn.
  21. I saw a gastroenterologist for the first time yesterday, after being gluten free since November. She said all of my symptoms (before November) were consistent with celiac. She ordered the genetic blood test, and I’ll also have an endoscopy (in case there is still damage in small intestine and to rule out anything else going on) and a colonoscopy (dad passed away from colon cancer in 2015)) in a week and a half. She explained and I am aware that I will probably not get an official diagnosis since I have been gluten free for months. She said the only way to get an official diagnosis would be do to the gluten challenge, and she doesn’t suggest it because it would be bad for my health. Anyway, this rash on my thigh has popped up and I’m wondering if it could possibly be DH. I don’t want to go to dermatologist if it’s definitely not, thoughts? I guess I should say even though I have been gluten-free since November, I have accidentally been glutened several times since then. The most recent being about a week ago. Thanks in advance for any input - this forum has been so helpful.
  22. Hey, I have had this rash on the fingers of my right hand for about a year now. When I first got it, it showed up a bit on my toes as well, but having it on my fingers is much more common. I've been to many doctors and no one could figure out what it is. I've done a lot of my own research and put myself on a million diets. With trial and error, a lot of error, I've come to the conclusion that a gluten free diet is the key! My rash subsided for a few months until I accidentally consumed something I shouldn't have. Anyway, 80% of the time I have it sort of under control but recently i used a lotion on my feet that contained wheat & oats. (Dummy me, I didn't even think of lotions) Now, my toes are so riddled with blisters that putting on socks & shoes is out of the question. I have never felt a painful itch of this extreme with my fingers and now I want to know once and for all, what's going on with me. So, is there anyone out there who knows of a good doctor that can officially diagnose me on or near Long Island? Any help or info is much appreciated!
  23. I wanted to share what has cleared up my DH rash within a matter of days -- a histamine free diet. (gluten free too of course). You can search online for various diet plans for specific foods to avoid and what to eat. I had been gluten free for over a year, then ate what I thought was custard, only to realize to late it contained cake. That brought on the worst DH I'd ever experienced and nothing offered even the slightest relief. I work in the field of holistic health & wellness and am very much against taking powerful antibiotics. Dapsone, also prescribed for leprosy and HIV patients, didn't make sense to me. I'm a certified Nutritional Therapist, my first thought was the "leaky gut" diet plan, but my rash was still flaring like crazy. (The "leaky gut" foods are nearly all high histamine foods.) Then I started to connect the dots-- rash, histamine response, etc and realized the histamine free diet made sense. Which meant everything I ate that I *thought* was healthy & healing was causing my elevated histamine levels to go even crazier. (I've always eaten clean--my daily diet was about avocados, yogurt, bananas, lentils, cheese, sauerkraut, oranges, tomatoes, etc--- all high histamine-impacting foods!!). When I replaced the histamine containing, histamine releasing and DAO blocking foods, I felt relief within 24 hours. In 48 hours the angry redness had nearly disappeared. On day 3, I must have said 100 times "OMG I'm not itching!!". I had been taking supplements (L-glutamine, quercetin, caprylic acid and PABA) which I know are helping my gut, but the histamine-free diet instantly helped the horrible DH. I wanted to test this and I ate 1/2 a banana (a histamine food) and my skin felt prickly within minutes. I hope this offers someone some relief. If you're doing everything right yet not finding relief, consider the histamine-free diet.
  24. Hey guys so I have had this rash going on for a few months and my doctor just looked at it and said she didn't know what it was and to just use a steroid cream. The cream only works sometimes and generally just stops itching and the blisters from getting bad but never clears it up. I have questioned gluten sensitivity in the past because every time I eat it I immediately get hiccups. Anyhow my rash is on the sides of my ring and middle finger about 2 inches long. It starts as little clear water pockets under the skin and is incredibly itchy. Then it turns to red scaly and peeling and the blisters become raised. Does this sound like something anyone is experienced? Any suggestions for how to get my dr. To look into it more? I'm just nervous because last visit she charged me 800$ to tell me she didn't know what it was and send my home with a prescription that doesn't even work really. Thanks so much in advance!
  25. Okay. Long story short - I've had itching blisters coming and going for at least 10 years, I'm 27 now. When I was 23 I got diagnosed with an autoimmune kidney disease. Ever since then I've been very careful with my diet and avoiding, but not completely cutting out gluten. I've had stomach problems since I was a kid. Had acne since I was 14. Diagnosed with PCO. Always feeling tired. Can eat tons of food and never gaining any weight. Recently I found out I am anemic, Ferritin was 7 (range is 10-70 I think) I was also deficient in D-vitamin. They took transglutaminas tests but it was negative. I started eating gluten again in February, and my blisters and ezcema like rashes came back quite quickly. I know a gastroenterologist and told him about my low iron, my blisters etc. And he immediately said that it sounds like celiac disease. He scheduled a gastroscopy (they go in with a camera through the mouth and take biopsies from the small intestine) that I did today. The doctor took 3 biopsies and said that it looked like the villi was flattened. He also said that I could start a gluten free diet if I wanted to before the test results comes back. I'm just confused right now... shouldn't they do a skin biopsy on my blisters as well? I read about ppl having DH who do that and get diagnosed that way. how can the blood tests be negative and the biopsy not? if i go on a non gluten diet now, my blisters and rashes will go away which is good ofc, but then if the biopsy come back negative, they can't do a skin biopsy? It would make so much sense to me if I'm celiac. Therefore I'm scared the biopsy wont show anything since I've been going on and off gluten for years. Although the doctor said it looked like I am celiac? And the blisters can't be anything else than DH!! And the low iron and everything. Ugh. I just want the results now... And know for sure.
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