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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Found 9 results

  1. ok today is officially one week i've been gluten free and i haven't made any noticeable differences in feeling better. my first question is: how long should i wait to expect changes to occur? am i not giving it enough time? prior to going gluten free one of my issues was constipstion, as well as other health issues usually involving an upset stomach, nausea or an uneasy feeling in my stomach. but since going gluten free i have had a bowel movement different from usual. and today it was more loose and diarrhea like and it is very rarely like that. oh and about half way through the week i got a random rash pop up on one ankle???? advice or suggestions??
  2. Hello everyone, 4 years ago, I was diagnosed with rheumatoid arthritis at age 14. My doctor put me on methotrexate, a common medication for ra, as well as folic acid. Because I was young, I was lazy when it came to taking the folic acid, and after lots of research, there seems to be a correlation between methotrexate, not taking folic acid supplements, and celiac disease. And yes, I was diagnosed with Celiac disease pretty recently as well. QUESTION: Anyways, I was wondering, did anyone else hear of this correlation between methotrexate, folic acid deficiency, and Celiac disease? How many of you have both diseases (RA and Celiac) and which diagnose did you get first? What RA medication were you prescribed? I'm really trying to see if there is correlation, and would strongly appreciate if you helped out by leaving a comment! Thanks in advance!
  3. Years before I developed full gluten intolerance (probably celiac) while I could enjoy many wheat products, I would get odd, unpleasant reactions to Ritz crackers and Cheerios. I did not think much of it and generally just avoided those products. I periodically retried them thinking it was a temporary problem with the product. I subsequently developed the same problem with any wheat and gluten product. Has anyone else noticed a similar prodrome to any food products?
  4. Hi all, I'm just starting the process of testing for celiac disease but recently switched jobs after I got the initial blood test and no longer have insurance to follow up with the results. My doctors won't even entertain a call from me to inquire. Can anyone help me understand my results and what I should do in the next three months before my new insurance kicks in? And there after? Celiac disease panel: Range 0-19 my value = 98(*) Tissue Transglutaminase IGA : Range 0-19 my value = 74(*) Gliadin Antibodies IGA: Range 0-19 my value = 9 Any insight would be greatly appreciated =)
  5. No matter how strict my diet is, I seem to loose too much weight, it almost always is worse around this time of year...October-November. That happens to be when I was first diagnosed with cancer 10 years ago (I was 20 years old), now I am 30. I have gotten married which supposedly would put on a couple pounds right?? The old saying goes something like, once you settle down your tend to start gaining weight. Well, not for me evidently. I've had two kids too. Got really heavy for me, went from 118-170 with my first, almost that for my second. BUT STILL I have lost my breast fat, they are less than an A cup, my periods are wacky still, I've been trying to regulate this obnoxious phenomenon of turning into a 12 year old little girl again with progesterone cream, applying it everyday. Was suppose to get hormone therapy after cancer treatments but have read many negative experiences of that with unwanted side affects. Then got diagnosed celiac soon after cancer treatments were over, got hormone tests three times since then and they have always been wacky! The only hormones that are not affected are the testosterone and the DHEA. SO I've been reading more, I don't have Hashimotos, I just don't meet the symptoms. I might have Crohns but I'm already doing the best I can for that. My thyroid checked out okay from tests done in the past when I had much worse symptoms then now. I've had a full body MRI when I was 20 and nothing extra was found invading my important organs, e.a. tumors around the pituitary or ovarian cancer. Not really finding a realistic direction to search in here. Anyone have this experience? Anyone have suggestions to research? Anyone been through hormone therapy successfully and what side effects/experiences did you have during/afterward?
  6. Hi all, I've recently been diagnosed with Celiac and am basically a sponge for knowledge at the moment! Sorry for yet another question! I keep reading about other food intolerances and allergies in people with Celiac disease. Are these issues that were present before Celiac or because of Celiac? In other words, is there a higher likelihood of developing some new, additional issues with food that I've never had before? Also, how do you know if you have a food intolerance or allergy? I know I'm allergic to shellfish because I have had reactions in the past and had a test at the allergist. But how would I know what to get a test for, if I don't have any reactions to other foods? If there is a higher likelihood of other food issues with Celiac, is there anything I can do to prevent them or reduce my chances of developing these issues? My Celiac seems to be largely "silent" aside from acid reflux controlled by medication - so I really don't know when I'm having a reaction. Help! Thanks.
  7. I haven't been back to this forum in years, I've just been managing celiac disease as best I can. It doesn't bother me so much anymore than the Hashimoto's does, I've just gotten used to it. However, in September 2009 I developed arthritis which persists to this day. I'm only 27 years old but this makes me so depressed sometimes I just dissolve into tears. I've been to three rheumatologists and I've been tested for all manner of conditions that could cause the chronic pain in all my joints and in particular the horrendous fluid filled swelling in my knees (and occasionally my wrists and thumbs). As I write this my knee looks more like a disgusting grapefruit than a knee. You name it, I've been tested for it, and I've come up negative. I was sure it must be rheumatoid arthritis but I've come up negative three times now, and I've had xrays to see if there was damage to the joints. For four years I've tried to manage this just with aleve but honestly it doesn't really work. The only response I ever get from rheumatologists is "maybe it's related to your celiac disease". That's seriously it. The first time I heard it I called the guy a moron and got a new rheumatologist. Then the second one told me the same thing, so I switched again. Then the third repeated it. I don't understand how the heck this could be related to a condition I have well under control, I am obsessive about gluten free and I make sure that everything I eat is gluten-free, and believe me, I know when I've made a mistake because the consequences are horrible. I guess the reason I'm posting this is my recent experiences. My rheumatologist convinced me to try Sulfasalazine, however it turned out that DESPITE telling CVS the medication needed to be gluten-free they didn't check, and the result was me missing time from work and becoming violently ill for two weeks while I tried to figure out what I was eating that was provoking the celiac. When I finally found out that the pharmacist had mistaken "wheat free" to mean "gluten free", I asked my rheumatologist for a manfacturer that makes gluten-free medication but she just shrugged. The only company I know of that actively pursues gluten-free is Lannett and they don't make sulfasalazine, so I'm really depressed about that. Then last week, I thought I had a breakthrough. I thought that because my knee blew up after eating pretty much a massive amount of tater tots, I thought it must be potatoes. I removed them from my diet and for an ENTIRE WEEK I was symptom free and on cloud nine, I thought I'd finally done it. Then yesterday despite still eating no potatoes my knee blew up again. I can't overstate how crushed I am. I'd already previously tried completely elliminating dairy and that didn't work either. I've tried everything I can think of and I am just so depressed about this. What makes it worse is that I just KEEP TESTING NEGATIVE FOR EVERYTHING! Why can't 3 different doctors figure it out? It upsets me so much that they just say "maybe it's the celiac" but have no real explanation or reason why. Basically it's a cop out because they don't know. Has anyone else here experienced this? Does anyone know a company that will guarantee sulfasalazine as gluten-free? I just need some help. I am so tired of doctor fail I could scream.
  8. I am going to my doctor as soon as he is back off holiday but I would like to know if this could possibly be Celiac, if anyone can help? Every now and again I would always seem to get an upset stomach. All my life I've suffered from constipation, only going once a week, twice if lucky lol. I also have chronic fatigue, find it hard to concentrate/suffer from brain fog. A few weeks ago things started to get really bad, I bloated so much and had stomach pains, cramps, gas, lack of appetite and feeling full quickly when eating, I also felt pressure in the middle of my stomach a while after eating. The bloating never stayed constant, it went down a while and came back. About a week passed and the bloating and other symptoms stayed although my appetite increased slightly. The symptoms were the same up until this week were I have felt all the same symptoms other than lack of appetite, this time I've been feeling so hungry I eat more than ever. I went on a diet in November and was losing 4lbs a week and then gaining 2lbs or so. The only thing that has changed is that I am eating more pasta, noodles and wholemeal bread than ever before. I only ever have a small amount of milk in a coffee as the slightest bit too much starts to make me feel nauseous and I don't eat other dairy products either. I also had a sharp pain last week on my left side near my belly button, it feels slightly tender now but I havn't had the same feeling since. Also I have dry skin mainly on arms and scratches don't seem to heal I end up with scars from small things. Also really easily irritated lately and my family have noticed it too. None of my immediate family seem to have these problems other than me, there has also not been anyone in the family diagnosed with Celiac. Thanks for any help.
  9. I've noticed a lot of post from college students lately so I thought I'd let you all know what I did when I was in college (miss those days ). Personally, I lost a TON of weight when I was in college, 90 pounds to be exact. I switched my diet to a "bodybuilding" style gluten-free diet and worked my A$$ off, but the results I achieved were definitely worth it. I always prepared my food for a few days to a week in advance and then loaded it into tupperware containers. Tupperware soon became my best friend, and it will become yours. Whenever I was hungry I simply heated up my container of food (or ate it cold if I could stomach it and didn't have a microwave) and ate it! All of my meals consisted of meat or eggs for protein, a leafy green vegetable, and a few meals of the day I'd add carbs in, usually Bob's Red Mill Gluten-Free Rolled Oats. Here's a sample of my daily meals: I've broke them down into macronutrients ( P = Proteins, F = Fats, C = Carbs ) PROTEIN/FATS/CARBS Meal 1 8 Egg Whites - 32/0/0 1 Whole Egg - 6/5/0 1 Cup Oats (Bob's Red Mill) - 12/5/54 Multi-Vitamin Total Macros - 50P/10F/54C Total Cals - 506 WORKOUT ((Post Workout)) 1 Scoop Whey - 24/1/4 1/2 Cup Oats (Bob's Red Mill) - 5/3/27 Total Macros - 29P/4F/31C Total Cals - 276 Meal 2 7.8 Oz Chicken - 51/3/0 8 Oz Sweet Potato - 4/7/45 1 Cup Broccoli - 2.5/0/6 Total Macros - 57.5P/10F/51C Total Cals - 524 Meal 3 7 Oz Canned Tuna In Water (Chicken of the sea brand, broth is made of soybeans) - 51/2/0 1 Cup Oats (Bob's Red Mill) - 12/5/54 1 Cup Broccoli - 2.5/0/6 Total Macros - 65.5P/7F/60C Total Cals - 565 Meal 4 7.8 Oz Chicken - 51/3/0 1 Tbsp EVOO (Olive Oil) - 0/13.5/0 1 Cup Broccoli - 2.5/0/6 Total Macros - 53.5P/16.5F/6C Total Cals - 386.5 Meal 5 6 Oz London Broil - 60/6/0 1 Tbsp EVOO (Olive Oil) - 0/13.5/0 Total Macros - 60P/19.5F/0C Total Cals - 415.5 Meal 6 1 Scoop CytoSport Complete Casein Protein Powder (Gluten-Free) - 24/1/3 ----- 2 Scoops on workout days - 48/2/6 2 Tbsp Natural PB - 7/16/8 Total Macros - 31P/17F/11C --- 55P/18F/14C (Workout Days) Total Cals - 321 --- 438 (Workout Days) Total Cals on non W/O Days -2664 - Total Of ALL Macros - 317.5P/74F/182C Total Cals on W/O Days - 3057 - Total Of ALL Macros - 370.5P/79F/216C I hope this can help some of you out. I know this seems like a lot, but I promise it was worth every second of my time that I put into it.
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