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Celiac Disease & Gluten-Free Diet Forums

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Celiac Disease & Gluten-Free Diet Blogs

  • kareng's Blog
  • The Autoimmune Fix
  • brhea308's Blog
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  • Laurie is a "sleestak"
  • Oli's Blog
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  • GlutenFreeInSC's Blog
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  • An Unmistakeable Journey
  • Svastha's Blog
  • My tummy used to hurt....
  • caseyazfox's Blog
  • Brae14 first blog
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  • What do I eat now?
  • Feelinggoodatlast's Blog
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  • Nancy's Celiac Adventure Blog
  • Husband_of_Celiac's Blog
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  • The Patient Celiac
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  • Kerry's GF Life
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  • Colleen Markley
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  • Meemsy's Blog
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  • Trials and Tribulations
  • CeLiAc CeLeBrItY
  • Cee Cee's Blog
  • bunnyrobinson's Blog
  • ATC_BS_MS' Blog
  • learning2cope's Blog
  • Research on South African Celiac Tours
  • lindylynn's Blog
  • Celiaction's Blog
  • shelly184's Blog
  • Melissa.77's Blog
  • Keating's Not-so-Glutenfree life
  • AmandasMommy's Blog
  • Coeliac, or just plain unlucky?
  • bandanamama's Blog
  • megirae's Blog
  • Spunky's Blog
  • debnak's Blog
  • armetta's Blog
  • Ellenor Whitty's Blog
  • Mama Me Gluten Free
  • Ohmyword's Blog
  • KayJay's Blog
  • Karrera's Blog
  • Bear with me's Blog
  • nataliecooksgf's Blog
  • Blog
  • Scott's Celiac Blog
  • fitgirlie's Blog
  • Wall3424's Blog
  • Tabz's Blog
  • marshlakemom's Blog
  • Gluten Freedom
  • Angie Baker
  • Kimberly's Blog
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  • Techmom's Blog
  • Elizaeloise's Gluten-Free Adventures
  • marie1122's Blog
  • Jonesy's Blog
  • Julie anne's Blog
  • mitchellbarbara's Blog
  • Molly's Blog
  • javore's Blog
  • micheleg7's Blog
  • K-rizzle's Blog
  • jab1980's Blog
  • Shelby
  • Reinhard1's Blog
  • Silly Yak 08's Blog
  • kristie51270's Blog
  • NotMollyRingwald's Blog
  • Searchin for a Primary Care Dr. In Redlands That is Knowledgeable about Celiac disease
  • num1habsfan's Blog
  • Adare's Blog
  • Ms. A's Blog
  • Celiac-Positive
  • Jason's Mommy's Blog
  • HeathEdm's Blog
  • CB1039's Blog
  • Mlisa's Blog
  • Lauren Johnson's Celiac Blog
  • I love my plant Cactus <3
  • Chele's Blog
  • lexusca's Blog
  • Blues Boulevard
  • Is Heat enough??
  • corprew's Blog
  • Inspiration
  • Cindy Neshe's Blog
  • JonJonQ's Blog
  • Jema's Blog
  • What I've Learned
  • Da Rant Sheet
  • Michael Fowler's Blog
  • Living in Japan with Ceoliac Disease
  • mkmaren's Blog
  • MJ
  • kcmcc's Blog
  • x1x_Stargirl_x1x's Blog
  • AuntT's Blog
  • Joe pilk
  • melly's Blog
  • amh04's Blog
  • malfnutstudent's Blog
  • Lexi's Blog
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  • dazed's Blog
  • nikkilea's Blog
  • Gail Marie's Blog
  • Lov2BeMe's Blog
  • dani's Blog
  • adiftime's Blog
  • bugs' Blog
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  • 2babyangels' Blog
  • seeshell's Blog
  • My Blog
  • snash7805's Blog
  • GlutenFreeLexi's Blog
  • drewsant's Blog
  • SadAndSick's Blog
  • HONG KONG GLUTEN, WHEAT FREE PRODUCTS
  • Guth 101's Blog
  • YoAdrianne66's Blog
  • Gail Marie's Blog
  • Healthy Food Healthy You
  • SydneyT1D - Diabetic and Celiac YouTuber!
  • GFGF's Blog
  • Paramount's Blog
  • Naezer's Blog
  • Jcoursey's Blog
  • SMAS: www.celiac.com
  • gardener1's Blog
  • Naezer's Blog
  • JordanBattenSymons' Blog
  • JillianC
  • Sugar's Blog
  • Blanche22's Blog
  • Jason's Blog
  • Gluten-Free Sisters :)
  • Eab12's Celiac Blog
  • ohiodad's Blog
  • Newly Self Diagnosed?
  • misscorpiothing's Blog
  • anshika_0204's Blog
  • Petroguy
  • abqrock's Blog
  • WhoKnew?'s Blog
  • Soap Opera Central
  • nurcan's Blog
  • Cindy's Blog
  • Daughter_of_TheLight's Blog
  • nopastanopizza's Blog
  • w8in4dave's Blog
  • Mr J's Blog
  • Rachel Keating's Blog
  • paige_ann246's Blog
  • krisb's Blog
  • deetee's Blog
  • CAC's Blog
  • EmilyLinn7's Blog
  • Teri Kiefer's Blog
  • happyasabeewithceliac's Blog
  • quietmorning01's Blog
  • jaimekochan's Blog
  • Cheryl
  • Seosamh's Blog
  • donna mae's Blog
  • Colleen's blog
  • DawnJ's Blog
  • Gluten Challenge
  • twins2's Blog
  • just trying to feel better's Blog
  • Celiac Teen
  • MNBelle blog
  • Gabe351's Blog
  • moosemalibu's Blog
  • Coeliac Disease or Coeliac Sprue or Non Tropical Sprue
  • karalto's Blog
  • deacon11's Blog
  • Nyxie's Blog
  • Swpocket's Blog
  • threeringfilly's Blog
  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
  • prettycat's Blog
  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
  • mary m's Blog
  • Jkrupp's Blog
  • Oreo1964's Blog
  • keyboard
  • Louisa's Blog
  • Guts & Brains
  • Gluten Free Betty
  • Jesse'sGirl's Blog
  • NewMom's Blog
  • Connie C.'s Blog
  • garden girl's Blog
  • april anne's Blog
  • 4xmom's Blog
  • benalexander60's Blog
  • missmyrtle's Blog
  • Jersey Shore wheat no more's Blog
  • swezzan's Blog
  • aheartsj's Blog
  • MeltheBrit's Blog
  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
  • SmidginMama's Blog
  • lws' Blog
  • KMBC2014's Blog
  • Musings and Lessons Learned
  • txwildflower65's Blog
  • Uncertain
  • jess4736's Blog
  • deedo's Blog
  • persistent~Tami's Blog
  • Posterboy's Blog
  • jferguson
  • tiffjake's Blog
  • KCG91's Blog
  • Yolo's Herbs & Other Healing Strategies
  • scrockwell's Blog
  • Sandra45's Blog
  • Theresa Marie's Blog
  • Skylark's Blog
  • JessicaB's Blog
  • Anna'sMommy's Blog
  • Skylark's Oops
  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
  • Mia'smommy's Blog
  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
  • acook's Blog
  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
  • Linda03's Blog
  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
  • Robinbird's Blog
  • skurtz's Blog
  • Olivia's Blog
  • Jazzdncr222's Blog
  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
  • txplowgirl's Blog
  • Gluten Free Bread Blog
  • babygoose78's Blog
  • G-freegal12's Blog
  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
  • Tabasco's Blog
  • Amanda Smith
  • mmc's Blog
  • xphile1121's Blog
  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
  • wheatisbad's Blog
  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
  • lbradley's Blog
  • TheSandWitch's Blog
  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
  • allybaby's Blog
  • MGrinter's Blog
  • LookingforAnswers15's Blog
  • Lis
  • Alilbratty's Blog
  • 3sisters' Blog
  • MGrinter's Blog
  • Amanda
  • felise's Blog
  • rochesterlynn's Blog
  • mle_ii's Blog
  • GlamourGetaways' Blog
  • greendog's Blog
  • Tabz's Blog
  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
  • siren's Blog
  • myraljo's Blog
  • Relieved and confused
  • carb bingeing
  • scottish's Blog
  • maggiemay832's Blog
  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
  • nikky's Blog
  • Suzy-Q's Blog
  • mfarrell's Blog
  • Kat-Kat's Blog
  • Kelcie's Blog
  • cyoshimit's Blog
  • pasqualeb's Blog
  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
  • mailmanrol's Blog
  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
  • aprilz's Blog
  • the gluten-free guy
  • gluten-free-wifey's Blog
  • Lynda MEADOWS's Blog
  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
  • booboobelly18's Blog
  • Dope show
  • Classic Celiac Blog
  • Keishalei's Blog
  • Bada
  • Sherry's blurbs
  • addict697's Blog
  • MIchael530btr's Blog
  • Shawn C
  • antono's Blog
  • Undiagnosed
  • little_d's Blog
  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
  • Periomike
  • Sue Mc's Blog
  • BloatusMaximus' Blog
  • It's just one cookie!
  • Kimmy
  • jacobsmom44's Blog
  • mjhere's Blog
  • tlipasek's Blog
  • You're Prescribing Me WHAT!?!
  • Kimmy
  • nybbles's Blog
  • Karla T.'s Blog
  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
  • Costume's and GF Life
  • mjhere69's Blog
  • dedeadge's Blog
  • CeliacChoplin
  • Ravenworks' Blog
  • ahubbard83's Blog
  • celiac<3'sme!'s Blog
  • William Parsons
  • Gluten Free Breeze (formerly Brendygirl) Blog
  • Ivanna44's Blog
  • Daily Life and Compromising
  • Vonnie Mostat
  • Aly'smom's Blog
  • ar8's Blog
  • farid's Blog
  • Sandra Lee's Blog
  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
  • beetle's Blog
  • Sandra Lee's Blog
  • carlyng4's Blog
  • totalallergyman's Blog
  • Kim
  • Vhips
  • twinsmom's Blog
  • Newbyliz's Blog
  • collgwg's Blog
  • Living in the Gluten Free World
  • lisajs38's Blog
  • Mary07's Blog
  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
  • covsooze's Blog
  • HeartMagic's Blog
  • electromobileplace's Blog
  • Adventures of a Gluten Free Mom
  • Fiona S
  • bluff wallace's Blog
  • sweetbroadway's Blog
  • happybingf's Blog
  • Carla
  • jaru24's Blog
  • AngelaMH's Blog
  • collgwg's Blog
  • blueangel68's Blog
  • SimplyGF Blog
  • Jim L Christie
  • Debbie65's Blog
  • Alcohol, jaundice, and celiac
  • kmh6leh's Blog
  • Gluten Free Mastery
  • james
  • danandbetty1's Blog
  • Feline's Blog
  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
  • KathyNapoleone's Blog
  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
  • miasuziegirl's Blog
  • KikiUSA's Blog
  • Amyy's Blog
  • Pete Dixon
  • abigail's Blog
  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
  • Deedle's Blog
  • krackers' Blog
  • cliniclfortin's Blog
  • Mike Menkes' Blog
  • Juanita's Blog
  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
  • myadrienne's Blog
  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
  • delana6303's Blog
  • psychologygrl25's Blog
  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
  • carib168's Blog
  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
  • mom1's Blog
  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
  • solange's Blog
  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
  • sweeet_pea's Blog
  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
  • glutenfreenew's Blog
  • Living in the Garden of Eden
  • toddzgrrl02's Blog
  • redface's Blog
  • Gluten Free High Protein
  • Ari
  • Great Harvest Chattanooga's Blog
  • CeliBelli's Blog
  • Aboluk's Blog
  • redface's Blog
  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
  • jayshunee's Blog
  • lilactorgirl's Blog
  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
  • lilactorgirl's Blog
  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
  • quantumsugar's Blog
  • Littlebit's Blog
  • Kimberly's Blog
  • Dayz's Blog
  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
  • Trouble Eating Out Gluten-Free...Good or Bad?!
  • dilsmom's Blog
  • theceliachusband's Blog
  • amanda2610's Blog
  • Pancreas and Celiac Disease Link?
  • epiphany's Blog
  • Patty55's Blog
  • The Latest Gluten-Free Food Recalls
  • kenzie's blog
  • CVRupp's Blog
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  1. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine. Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods. Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies. References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine) following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al. While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
  2. hi guys, i have recently (July) been diagnosed with celiac disease however via blood results my ttg iga was 128 which is ten times over normal and endomysial was a strong positive. I also had high lymphocytes and low vitamin B12. My GP advised due to how high to start a gluten free diet immediately which i did, my bloating, brain fog, bowels etc got how they should be and anxiety also. The Gastro dept have contacted me asking for me to go onto a gluten diet for 8 weeks for a biopsy which i have been glutened and has caused me utter hell in past. My concern is why on celiac foundation website are we told if it is ten times over normal count that pt should not necessarily need an Endoscopy. I have had a MRI due to brain fog, and they had found white matter on my brain that is linked to celiac. PLEASE HELP I HAVE NO IDEA WHAT TO DO, HE JUST TOLD ME TO GO ON GLUTEN DIET NO ADVISORIES NOTHING, EVEN WHEN I AM A STRONG POSITIVE!!!! and i really do not know if it is worth the trauma.

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  4. Celiac.com 06/04/2020 - Currently, in order to properly diagnose celiac disease based on serology and duodenal histology, doctors need patients to be on gluten-containing diets, even if they are causing symptoms, and this is called a "gluten challenge." This is a problem for many people, especially those who have already given up gluten, and see benefits from the gluten-free diet. For those people, going back on gluten for several weeks can be demoralizing. For many, it's a deal breaker. This can present challenges for doctors attempting to diagnose celiac disease. According to the University of Chicago Celiac Disease Center, a gluten challenge should be done as follows: Eat gluten prior to celiac disease blood tests: The amount and length of time can vary, but is somewhere between 2 slices of wheat bread daily for 6-8 weeks and 1/2 slice of wheat bread or 1 wheat cracker for 12 weeks 12 weeks; Eat gluten prior to the endoscopic biopsy procedure: 2 slices of wheat bread daily for at least 2 weeks; A Three Month Gluten Challenge May be Necessary, and the Length Can Differ Between Kids and Adults In a 2013 study by Maaike J. Bruins, of the DSM Biotechnology Center, The Netherlands, found that: Future Tests May Spot Celiac Disease Without Prolonged Gluten Consumption Research on systemic cytokine release that occurs after gluten sensitive individuals ingest gluten may lead to new tests that can spot celiac disease without gluten consumption, however, until further research is done, and such tests are developed and made available, a gluten challenge will be necessary to make a formal celiac disease diagnosis.
  5. Celiac.com 01/22/2018 - Celiac disease is marked by HLA-DQ2/8-restricted responses of CD4+ T cells to gluten from wheat, barley or rye. Currently, in order to properly diagnose celiac disease based on serology and duodenal histology doctors need patients to be on gluten-containing diets. This is a problem for many people, who prefer not to begin ingesting wheat again once they have adopted a gluten-free diet. This can present challenges for doctors attempting to diagnose celiac disease. It is known that HLA-DQ–gluten tetramers can be used to detect gluten-specific T cells in the blood of patients with celiac disease, even if they are on a gluten-free diet. The team set out to determine if an HLA-DQ–gluten tetramer-based assay can accurately identify patients with celiac disease. The research team included Vikas K. Sarna, Knut E.A. Lundin, Lars Mørkrid, Shuo-Wang Qiao, Ludvig M. Sollid, and Asbjørn Christophersen. They are variously affiliated with the Department of Immunology, Oslo University Hospital – Rikshospitalet, Norway; the KG Jebsen Coeliac Disease Research Centre, University of Oslo, Norway; the Department of Gastroenterology, Oslo University Hospital – Rikshospitalet, Norway; the Department of Medical Biochemistry, Oslo University Hospital – Rikshospitalet, Norway; and with the Centre for Immune Regulation, Oslo University Hospital – Rikshospitalet and University of Oslo, Norway. For their study, the team produced HLA-DQ–gluten tetramers and added them to peripheral blood mononuclear cells isolated from 143 HLA-DQ2.5+ subjects. There were a total of 62 subjects with celiac disease on a gluten-free diet, 19 subjects without celiac disease on a gluten-free diet due to perceived sensitivity, 10 subjects with celiac disease on a non-gluten-free diet, and 52 seemingly healthy individuals as control subjects. The team used flow cytometry to measure T cells that bound HLA-DQ–gluten tetramers. They then used researchers blinded to sample type, except for samples from subjects with celiac disease on a gluten-containing diet, to conduct laboratory tests and flow cytometry gating analyses. They also conducted analysis on test precision using samples from 10 subjects. They found that an HLA-DQ–gluten tetramer-based test that detects gluten-reactive T cells identifies patients with and without celiac disease with a high level of accuracy, regardless of whether patients are on a gluten-free diet. This test could conceivably allow celiac diagnosis while suspected patients are still on a gluten-free diet. The team notes that their results require a larger study for validation. Could reliable celiac diagnosis be done without making patients consume gluten? Will that become common? Stay tuned for more developments. Source: Gastrojournal.org
  6. Celiac.com 12/10/2022 - Increased awareness and celiac disease-specific diagnostic tests have aided the diagnosis of celiac disease. For instance, blood antibody testing has become a useful tool for screening suspected cases of celiac disease. These blood tests can be very sensitive in the detection of patients with severe intestinal damage, but invariably are negative in patients with mild lesions(1). Furthermore, some pathologists are not experienced in recognizing and detecting cases in which mild intestinal damage or even partial villous atrophy is present in biopsy samples. Yet, for these tests to be accurate a patient must be on a gluten-containing diet and doctors often put patients on an oral gluten challenge only after the patient has been on a gluten-free diet and/or their blood antibody tests prove negative. The oral gluten challenge requires a patient to ingest gluten at the direction of a specialist such as a gastroenterologist for testing purposes such as preparation for an endoscopic exam with biopsies of the small intestine, still considered the gold standard of diagnosis. The demands of the oral gluten challenge are time-consuming, can exacerbate or provoke symptoms, and intentionally put celiac patients at risk for further intestinal damage. As a patient, I was gluten-challenged because I had already instituted a gluten-free diet (despite negative blood antibody tests), three weeks before my appointment with the gastroenterologist. I suffered intense and severe symptoms that were provoked by the gluten challenges—not to mention the psychological impact posed by the challenges. At the direction of my gastroenterologist, I was instructed to "make complete damage" in a span of several days upon the first of three, short gluten challenges. At one point, I was ingesting gluten up to seven times in one day. After the close of the third gluten challenge, I felt chronically cold; it was difficult to walk without extreme fatigue and weakness; and I found it difficult to eat or drink due to intense, unrelenting stomach spasms. I had already lost ten percent of my weight before the gluten challenges but lost an additional seven percent after the gluten challenges. Furthermore, I began experiencing heart symptoms and suffered constant and severe joint pain in my extremities. The gluten challenges devastated my already compromised health and made my recovery more difficult and fraught with further complications. It has become clear that there is a need for methods of testing which do not expose patients to the health risks of an oral gluten challenge. Also, tests that offer more sensitive diagnostic value are needed for prompt and early diagnosis. Several research studies have evaluated the diagnostic potential of various methods without the requirement of an oral gluten challenge. Some of these studies examine the possibility of challenging intestinal biopsies with gluten outside the body in culture media (in vitro). Other studies have tested the immune response elicited by sites outside the small intestine. In vitro gluten challenge Today, anti-endomysial antibodies (EmAs) and anti-tissue transglutaminase antibodies (tTGs) are being used in the detection of celiac disease because of their sensitivity (detection of true CD-positive patients) and specificity (omission of non-celiac patients)(2). However, the blood antibody screening tests have not proven sensitive enough in the presence of mild intestinal damage or whereby only an increased intestinal lymphocyte (a type of white blood cell) count is present as a sign of the immune activation(1,3). Therefore, the production of EmA in cultured intestinal biopsies challenged with gliadin has been evaluated for its usefulness in celiac disease diagnosis. Carroccio et al found that EmA positivity of cultured biopsies challenged with gliadin for 48 hours correlated with the degree of intestinal damage, the shorter the treatment with a gluten-free diet (i.e., newly diagnosed celiac patients), and higher counts of inflammatory cells (i.e., white blood cells including lymphocytes) in the intestinal biopsies(2). A higher proportion of celiac patients with more severe intestinal lesions (95%) were EmA positive in their gliadin-challenged cultured biopsies as compared to celiac patients with mild intestinal damage (75%) who were EmA positive. However, this test still had higher sensitivity to detect 58% more celiac patients with mild intestinal damage than the blood EmA tests which were positive in only 17% of them. Furthermore, in newly diagnosed celiac patients, 90% of patients were EmA positive in their cultured biopsies before the addition of gliadin and 96% with the addition of gliadin. Finally, those patients who were EmA positive with the biopsy culture challenge with gliadin had significant higher numbers of inflammatory cells than those who were negative. Sixty-two percent of celiac patients on a gluten-free diet (GFD-treated) for 12 months, were EmA positive in biopsies challenged in culture with gliadin for 24 hours(4). EmA was not observed in any of their pre-challenge biopsies. However, EmA was detected in all of the cultured intestinal biopsy samples, challenged with gliadin after 72 hours. In addition, none of the control (non-celiac) patients had EmA detectable in their biopsies challenged in culture with or without gliadin. Local Challenge of Nasal Tissue and Oral Lining Other exciting prospects in the diagnosis of celiac disease are on the horizon which offer easy access to testing. For instance, other sites outside the intestine such as the nasal tissue and the oral lining are being studied for whether they can elicit a gliadin-specific immune response. In a study of GFD-treated celiac patients, gluten provoked a significant but only mild gliadin-specific inflammatory response in the nasal tissue scrapings (not biopsies) of the celiac patients via activation of lymphocyte cells but not in control patients(5). Another study involved the injection of gliadin into the oral lining of ten GFD-treated celiac patients who were negative for EmA(6). After a 24-hour gliadin challenge, oral biopsies were taken and the number of lymphocytes was significantly increased in celiac patients but not in the controls. Further evaluation of these methods, including studies of untreated patients, is needed to confirm their usefulness in the diagnosis of celiac disease. Rectal Gluten Challenge The rectum is an easily accessible site for which a gluten challenge can be performed and rectal biopsies taken7. The test does not require any patient preparation or the more invasive procedure of an endoscopic exam with biopsies. Also, no pre-challenge biopsies are required for comparison. The diagnostic power of the rectal gluten challenge is demonstrated by its ability to recognize gluten sensitive patients whose blood antibody tests are negative at presentation or whose biopsies are inconclusive(7). The four-hour rectal gluten challenge provided both 100 percent specificity and sensitivity in the diagnosis of gluten-sensitive patients in comparison with blood EmA which had only a 70% sensitivity and 98% specificity. In a group of 45 untreated patients, the rectal gluten challenge showed a significant increase in the numbers of lymphocytes responding to gluten whereas the non-celiac group of patients demonstrated a negative response in their lymphocyte populations. Furthermore, celiac patients on a GFD for two or more years still had more rectal lymphocytes than non-celiacs(8). Post rectal gluten challenge results of biopsy samples disclosed a significantly increased inflammatory infiltration of lymphocyte cells in celiacs but not in control patients. Inherently, the traditional oral gluten challenge is designed to cause intestinal damage to a celiac patient and may exacerbate or provoke symptoms, which may not be acceptable to the patient. The true cost of a diagnosis of celiac disease is the overt and acute as well as silent and chronic damage to the celiac patient caused by the undertaking of an oral gluten challenge. However, the future use of alternative diagnostic tests in practice offers the patient choices outside the risks and complications of oral gluten challenges. Since rectal gluten challenges, as well as the oral or nasal gluten challenges, must be taken internally, more studies must be done to evaluate the safety of using these potential methods of diagnosis. Some of these studies sought to find a more sensitive way to detect early events in the staging of celiac disease. Others also sought to find if the immune system could identify gliadin outside the gastrointestinal tract to make testing more accessible and easier on the patient. Both the sensitivity and specificity of methods such as EmA detection in cultured biopsies challenged with gliadin may one day change the way celiac disease is currently diagnosed, in the presence of more severe intestinal damage or villous atrophy. Instead, these alternative methods to oral gluten challenge have the potential to facilitate early diagnosis of celiac patients with inconclusive biopsies, those with only mild intestinal damage and negative blood antibody tests as well as high-risk patients such as relatives of celiac patients, and patients with associated autoimmune diseases. References: Tursi A, et al. 2003. The symptomatic and histologic response to a gluten-free diet in patients with borderline enteropathy. J Clin Gastroenterol 36: 13-17. Carroccio A, et al, 2002. Production of anti-endomysial antibodies in cultured duodenal mucosa: Usefulness in coeliac disease diagnosis, Scand J Gastroenterol 37: 32-38. Tursi A, et al. 2003. Prevalence of antitissue tranglutaminase antibodies in different degrees of intestinal damage in celiac disease. J Clin Gastroenterol 36: 219-21. Picarelli A, et al, 2001. Forty-eight hours of biopsy culture improve the sensitivity of the in vitro gliadin challenge in the diagnosis of celiac disease, Clin Chem 47: 1841- 1843. Torre P, et al, 2002. Immune response of the coeliac nasal mucosa to locally-instilled gliadin, Clin Exp Immunol 127: 513-518. Lahteenoja H, et al, 2000b. Local challenge on oral mucosa with an alpha-gliadin related synthetic peptide in patients with celiac disease, Amer Jour Gastroenterol 95: 2880-87. Ensari A, et al, 2001. Diagnosing coeliac disease by rectal gluten challenge: a prospective study based on immunopathology, computerized image analysis and logistic regression analysis, Clin Sci 101: 199-207. Troncone R, et al, 1996. In siblings of celiac children, rectal gluten challenge reveals gluten sensitization
  7. Hello, First, I want to apologize for my English, I am not a native speaker. I would like to know your opinion about DNA testing for genes associated with celiac disease. I believe I have a problem with gluten/wheat but I don’t know if it’s celiac disease or just non celiac wheat/gluten sensitivity and I would like to do a genetic test to know if I have one of the genes associated with celiac disease, in this case I would to a gluten challenge. If it turns out that I have none of these genes, I would consider it’s rather non celiac sensitivity. Are the genetic home tests accurate? Would you recommend me a specific company? I read that saliva sample are more accurate than mouth swab, but I don’t know if this is true. The two home tests I looked at are those of 23 rd and me and Genovate. https://www.23andme.com/dna-health-ancestry/ https://www.genovate.com/product/dna-celiac-test/ I also want to ask my doctor to do a genetic test but I live in France and my country is very restrictive and conservative about genetic testing, so I guess the answer will just be “no, do a gluten challenge instead”… I read that https://nationalceliac.org/celiac-disease-questions/ancestry-type-testing-for-celiac-genes/ And the sentence “Rarely, people with only 1/2 of the DQ2 gene (ie. DQ2.2, DQ2.5 or DR5) will get celiac disease but this occurs in <5% of people with celiac disease.1 If the genetic test used does not have the ability to “look for” and identify all of these possible variations, the consumer may receive inaccurate test results »frightened me a little bit… genetic testing seems to be a complex topic! Do home genetic test detect those variants? I am now 29 and I realized I had a problem with wheat/gluten when I was 22. I had a lot of acne and I discovered that eating less gluten improved my skin greatly. I can still get acne under the influence of my hormones, for instance in the ovulatory phase of my cycle, but there is a big difference between getting 4-5 pimples and getting 30 or more… Back then I didn’t know what was celiac disease and I just reduced dramatically the amount of wheat/gluten in my diet, but I have never been strictly gluten free (I used to eat some gluten when eating out or travelling). Family : no family history of celiac disease, but my dad who has a lot of digestive issues (bloating, etc.) + joint paint, still eats gluten, has agreed to do the antigenic blood test. Other symptoms I have that may be related to gluten/wheat - Mouth ulcers, seem to improve while on a gluten free diet - Dental enamel erosions : teeth becoming transparent, showing the dentin + small brown spots on two incisors, a big brown spot on one molar. I have been told by the dentist that the spots were the result of my tea and coffee consumption. Could I post pictures to have your opinion? I was surprised to discover that celiac disease could cause dental problems, I had never heard of that… nor my dentist, I guess :/ - Reflux : I did a ph-impedance-monitoring and I have been told that I have “non acidic reflux” (PH above 4) and that it was not dangerous, not taking currently any medication, but I feel it sometimes in my throat. - Belching : constant belching after eating - Chronic diarrhea : doesn’t improve on a gluten free diet, must be the result of SIBO - SIBO : diagnosed 2 months ago via lactulose breath test, positive for both hydrogen and methane. I haven’t treated it yet, I need to figure out first if I have an underlying issue with gluten, since people with celiac disease are at risk for SIBO. Other details about my health - I have a diagnosis of ASD (autism spectrum disorder) and ADHD, both seem to increase the risk of celiac disease (and SIBO) - I am underweight, 46 kg for 1m64 - Last blook work show vitamin D deficiency (improved after supplementing), low iron (but not deficient), normal vit B12, normal-low vit B9, iodine deficiency, low cholesterol (both HDL and LDL) Gluten challenge 2021 I did a previous gluten challenge in april-may 2021, I only did 6 weeks but now I read that it could be better to do 3 months… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3847752/ I was eating gluten on a daily basis during those 6 weeks, but maybe I wasn’t eating enough, I hadn’t read the “4 to 6 slices of bread” info. After six weeks, I had a blood test for anti-ttg antibodies, result was negative : < 3 U/mL, results considered negative by the lab if > 7 U/mL But the doctor never ordered the total IGA = if I am deficient in IGA, this test was not accurate… I had an endoscopy but the gastro-enterologist only took 1 sample of biopsy in my duodenum, and it was normal. But now I read that the norm is to take 4 to 6 samples to detect the lesions… What is a complete blood test to detect celiac disease ? Can I take supplements while doing the gluten challenge? I usually take : iodine, vitamin D, omega 3, magnesium. Could it change the results? Sorry for writing such a long message! In 2021 when I was told by my doctors that I didn’t have celiac disease, I believed them, now, when I look back, I think the procedure was not 100 % reliable… Any thoughts, comments would be welcome Best regards,

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  9. Hi everyone, I recently did the gluten challenge for six weeks but had a negative blood result. Since going gluten free again I have been feeling rubbish still and have managed to deduce that I have histamine intolerance. As it has occurred after the gluten challenge, could this be a sign I have celiac or just coincidence? I have the alpha subunit for DQ8, a lot of celiac symptoms and have Hashimoto’s and Sjögren’s syndrome. I have been referred to a gastroenterologist but don’t know when so have stopped eating gluten until I see them and then will start again before biopsy.
  10. Hi everyone, I have my biopsy in a month and my gastroentorologist said I need to eat a lot of gluten before. He suggested that I eat like 2-4 slices of bread every day or similar to make sure I'm eating enough gluten. But, unfortunately, I've recently had a relapse with my restrictive eating disorder (I am receiving professional support). The typical foods that are high in gluten (bread, pasta, baked goods, etc.) are also very high in calories so it's going to be very difficult for me to eat these foods at the moment. I was wondering if anybody knew of any types of foods or food brands that contain gluten but are low in calories so I can prepare for the biopsy properly? Thank-you. ❤️
  11. Celiac.com 10/01/2020 - People with celiac disease, even those on a long-term gluten-free diet, with healed mucosa and no obvious gut damage, still show signs of ongoing disease at the molecular level, and may not be "healthy," according to the results of a new study. In these people, a gluten challenge will trigger hyperactive Wnt-signaling, and leave a clear, secretory cell type signature. This makes gluten challenge studies important for uncovering the mechanisms that drive celiac disease. A team of researchers recently set out to reveal early gluten-induced transcriptomic changes in duodenal biopsies and to find tools clinics can use to measure the level of intestinal injury to celiac patients. Molecular histomorphometry might be one such tool. The research team included Valeriia Dotsenko, Mikko Oittinen, Juha Taavela, Alina Popp, Markku Peräaho, Synnöve Staff, Jani Sarin, Francisco Leon, Jorma Isola, Markku Mäki, and Keijo Viiri. For their study, the team collected duodenal biopsies from 15 celiac disease patients on a strict long-term gluten-free diet (GFD) prior to and post gluten challenge (PGC) and from 6 healthy control individuals (DC). They conducted morphometric analysis on each biopsy, and put biopsy RNA through genomewide 3’ RNA-Sequencing. They used the sequencing data to find differences among the three groups, and to compare against sequencing data from the public sources. The team's gluten challenge trial gave them a way to study the transition from good health to celiac disease. When the team compared the gluten-free group with the healthy control group, they found 167 differentially expressed genes, 117 of which were upregulated. A comparison of the prior-post-gluten challenge vs. gluten-free groups showed 417 differentially expressed genes, with 195 genes downregulated and 222 genes upregulated. Their results show that even gluten-free, seemingly healthy celiac patients reveal patterns of ongoing disease on the molecular level. Meaning that even seemingly healthy celiacs on a gluten-free diet were not “healthy”. What the results of this small study mean for the ongoing treatment and management of celiac disease remains unclear, as do the health implications for celiacs. Certainly, the idea that molecular damage may be ongoing in healthy, gluten-free celiacs is a bit concerning, at the very least. Further follow-up of people with celiac disease might be warranted, to assess any ongoing damage. Also, is this molecular damage related to ongoing, even low-level, gluten-exposure? The data invite many questions. Further study will help to shed some important light on this subject. Stay tuned for more on the ongoing health and wellness challenges faced by people with celiac disease. Read more in Cell Mol Gastroenterol Hepatol 2020 The researchers are variously affiliated with the Faculty of Medicine and Health Technology, Tampere University Hospital, Tampere University Tampere, Finland; the Department of Internal Medicine, Central Finland Central Hospital, Jyväskylä, Finland; the Carol Davila University of Medicine and Pharmacy; the Alessandrescu-Rusescu National Institute for Mother and Child Health, Bucharest, Romania; the Department of Obstetrics and Gynecology and Tays Cancer Centre, Faculty of Medicine and Health Technology, Tampere University Hospital, Tampere University, Tampere, Finland; the Laboratory of Cancer Biology, Faculty of Medicine and Health Technology, Tampere University in Tampere, Finland; Jilab Inc, in Tampere, Finland; and Celimmune LLC, Bethesda, Maryland.
  12. This was just released. Dr. Fasano, a world leading celiac disease researcher, does not recommend a gluten challenge during this COVID-19 pandemic.
  13. So, my doctor has put me on a 2 week gluten challenge for a celiac test because of continued gut problems, but I'm a little concerned about how it's going. Also, I'm worried that it will all be for nothing, as I've been pretty much gluten free (aside from the occasional cheat) for a few years now. They think that I might be celiac, although I have just been treating myself as gluten intolerant since finding out I felt better cutting gluten from my diet. I'm on day 3 and although day 1 and 2 were horrendous, the symptoms do seem to have become more tolerable - which is kind of making me even doubt my own previous convictions on my sensitivity. Is this normal? I am getting more neurological symptoms than digestive ones, when previously I always had a lot of pain in my guts when I ate gluten, as well as bloating, acid reflux and all that fun stuff. I'm also surprisingly managing to eat a lot more than normal, even though gluten has generally made me lose my appetite and have gastroparesis-like symptoms. I don't really know why my hunger levels are so crazy, and I'm worried that I'm going to put on a load of extra weight, only to get a negative celiac result and feel like I've wasted my time. I was wondering if anyone could relate to any of this or would be able to explain it? I've been told to eat wheat for every meal, or at least 3 times a day, so that it's the equivalent of 4-6 slices of bread... I'm not sure whether this is going to be worth it, but also confused as to why my symptoms are fluctuating so much. Yesterday I felt drugged and headachey and today I just feel lethargic and bit depressed but nothing much more. I seem to be getting weird pressure changes in my ears and head and my lymph nodes are swollen but I'm not sure if that's related. I'm just surprised by the lack of pain...if anything I feel quite numb. Anyway, any light on this all would be much appreciated! I've rambled somewhat.
  14. Celiac.com 02/08/2019 - I've been reading a lot about the gluten challenge, which makes my stomach curl. It is rare that someone with celiac disease will have a negative antibody test result. If your tests were negative but you continue to experience symptoms, consult your physician and undergo further medical evaluation. Don't just continue to suffer—keep exploring. You are not alone in this "Gluten Maze". That title can be attributed to me over thirty years ago, and I am still using it, particularly when answering the phone lines at our local hospital's dietitian office. I feel so sorry for the young people who phone in regarding symptoms that seem so common to me, but not to people who are new to celiac disease. Also for those who have stopped searching after consulting only with their family physician, or after only one referral to a gastroenterologist. If you are frequently on a gluten-free diet your physician may recommend a gluten challenge to allow antibodies to build up in your blood stream prior to screening. Recommendations as to how much gluten to eat during a challenge range from ½ slice of bread or a cracker daily for 12 weeks, to eating 3 grams of gluten daily for two weeks. A gluten challenge should only be done under direct supervision of a physician trained in celiac disease, and one who can immediately refer you to have a biopsy done if your symptoms are severe. You should never undertake a gluten challenge while pregnant. Did you know that, depending on the complaints you have listed to your family physician, your family physician may, at least here in Canada, refer you to an anatomical pathologist, general pathologist, endocrinologist, gastroenterologist, or internal medicine specialist? Medical professions have become so specialized now that you have to go into your doctor with a specific list of your symptoms, and as a new celiac your doctor has to be "on the ball" with regards to what he thinks your symptoms may represent. If they send you for blood tests they could find out that your thyroid results are out of range for your age, and could prescribe medicine to treat it and send you on your way without a further referral. If you have celiac disease your thyroid may be "out of whack" as far as the numbers show, and you may also be experiencing symptoms of celiac disease, but without a list of ALL your symptoms you cannot blame your family physician for not assessing you for it. To make things more complicated most people with celiac disease do not have any symptoms. Those “lucky” enough to have symptoms will hopefully get a blood screening for it, and then a referral to a gastroenterologist. My Doctor Experience When I first reported my symptoms of abdominal pain, diarrhea, and terrible sores with intractable itching all over my head, thighs, shins and upper arms, my family physician diagnosed me as being neurotic, and then prescribed me a drug called Loxapine. It was a drug given to the elderly in nursing homes to sedate them, and in many cases caused them to move their mouths in horrible ways that looked like they were mentally ill. Eventually their tongues stuck out of their mouth in a clockwork way that completed the picture with me. It could have gone on to the head movements and feet stamping and the inability to type properly because of shaking hands. This situation caused me to retire from my full time nursing job because I could not take blood pressures, or draw up medications in a syringe, so basically to me it ruined my life. My Celiac Disease and Dermatitis Herpetiformis Diagnosis Once I was diagnosed with celiac disease and dermatitis herpetiformis, it was a great relief. There were many steps to become what I call “my new normal.” I eventually did get back to the nursing I loved, but in a totally new way. I loved writing medical articles, and I enjoyed volunteering in schools and hospitals, and regained some of my self worth lost through this experience. I had never been neurotic, I may have been a perfectionist, but, particularly for women in their middle years, and often what are called the menopausal years, I was wrongly diagnosed and sent on a quest for over ten years to rid myself of tardive dyskinesia caused by prescribing the wrong drug to me, a drug called Loxapine that will forever change my life. My Treatment and Recovery from Celiac Disease After being put on a gluten-free diet to treat my celiac disease, I recall being thrilled to even have a diagnosis, so I diligently followed the diet, carefully reading all labels at stores, asking questions whenever I was invited out, and seldom going out to restaurants, at least until some restaurants came out with gluten-free menus. I came up with rules for attending restaurants or going out for meals at the home of friends, and began purchasing gluten-free items from grocery stores. It is a learning curve, and occasionally I still make mistakes, and I am still learning. Luckily there are now so many more gluten-free foods available in stores, and they no longer taste like softened cardboard, or bread-like frosted rice flour that was not fully cooked and needs toasting to even resemble bread. Above all, I hope you learned not to write yourself off when doctors tell you that you do not have celiac disease. There are other possibilities like gluten-sensitivity or non-celiac gluten sensitivity. May you never have to go on a challenge!
  15. I have my Endoscopy -finally- scheduled for February 5th. Long road with some uninformed doctors. I've been gluten-free/DF for about 3 months. I know I have to do a Gluten challenge. Should I start today? How much Gluten per day Should I be having? And a month is enough for the endoscopy correct? How long do results typically take? My follow up with the doctor is February 20th, not sure it's enough time. And should I stick with eating gluten until this check up? Also, should I go ahead and eat dairy again as well? I know it's definitely a problem because after accidentally having it recently I had some reactions. Or Should I mostly be concerned with getting the Gluten in my system? Sorry for so many questions Thank you!!
  16. Hello! I have been searching extensively for a topic similar to this and I haven't been able to find anything - sorry if this has already been addressed. I had a blood test for lots of different things a few months back and it transpired I had shown up as having Coeliac disease. The doctor suggested I go on a gluten-free diet (what a turd) before getting my appointment for a gastroscopy to 'rigorously confirm' my diagnosis. Went on the gluten-free diet - felt amazing. Two months after this I had my appointment date for the gastroscopy and started my 6 week Gluten Challenge. First three weeks were okay - minor tummy discomfort, lots of tiredness but generally fine. Last three weeks weren't great. I had my gastroscopy on Thursday 5th July - it was awful but quick. I had no sedation and went home the same day with some discomfort but nothing unbearable. Since then, however, things haven't been fantastic. For the last few days I've adopted a low FODMAP diet (as well as back to Gluten-Free) to try to ease my problems which has helped, but it seems like on the two occasions this weeks I've eaten/tried kidney beans/haricot beans/chickpeas/lentils I have THE WORST STOMACH EVER. What is going on?! I'm Vegan and I gotta say this stuff makes (and made) up quick a large chunk of my diet. Has anybody else had any extra sensitivities after their Gluten Challenge/Gastroscopy? I'm taking charcoal tablets, drinking peppermint tea.. All that jazz. I was so looking forward to going back to normal and it's just not happening. Would love to know if I'm not alone with these issues! Yours fed-upedly, Beth
  17. Hi All! I just found out I have the celiac gene. My brother has it too; he was diagnosed with celiac. My sister also has the gene but she was diagnosed NCGS. I have tried twice to do the gluten challenge so I can get proper blood work and this last time (last Friday) I got so sick I missed two days of work this week. I am just today feeling like myself again. I only stopped eating gluten about two months ago (except for the two times I ate gluten in the last two weeks). Do you think my blood work would still come back positive or is it a waste to test at this point without doing the gluten challenge? Or maybe the challenge gets easier the longer you do it? I would like to get a proper diagnosis but I can't lose my job. Thanks in advance for any advice.
  18. Hi guys. I know this has been asked a lot and there is probably no true answer, but wanted your opinions anyway. My sister has celiacs and I have the DQ8 gene. I was having a lot of stomach issues earlier in the year and then went on a keto diet (pretty much no gluten) for a couple weeks and felt amazing. I then decided to get tested for celiacs. I ate gluten only one week and tested negative. My doctor did order me another blood test and it has been 9 weeks on gluten now. Should I wait the whole 12 weeks? At this point would cutting out gluten for only 2 weeks, followed by 9 weeks of heavy (believe me all kinds of stuff) gluten be a safe bet of not producing a false negative? Seven years back I had tested positive on Enterolab, but I got a blood test & endoscopy and it showed negative. Also for you kaiser people have you had any luck getting a referral for endoscopy without positive blood tests? Would they order more than the IGG and IGA? I didn't even ask because from what I've read I've seen they typically don't. Thanks so much!!
  19. Hello I'm wondering if any of your children had to do the gluten challenge, and if so how long did you do it and did you get positive results. I'm very worried about my daughter. She did the gluten challenge and got to 7 weeks plan, she has been a bucket of sick since starting, was to get to 12 but she caught a cold and it hit her so bad that she ended up in the ER with breathing difficulties so I took her in the next to get her blood tests. I figured we could go in and get a referral even if the results are negative. I'm terrified I made a mistake by not waiting longer. We did the bloodwork on Monday and still haven't heard from the doctors. I am trying not to panic but there is something going on with my kid and I want answers. I'm not feeling very patient. thanks for listening
  20. My 8yo daughter has been doing the gluten challenge for almost a month now. There is one thing I've noticed has been getting worse and to the point she has to leave her classroom to go for a walk to get away from the noise or needs to wear sound cancelling headphones. She says she can't concentrate with all the noise. Her brother also has autism and he stims, and repeats words or sounds over and over again. She seems to get super anxious and begs him to stop. I asked her if the noise was hurting her ears and she said no. She said it's like her brain is all jumbled. Does that sound like something brain fog would do? I have tried to google brain fog to get a better understanding of what it might feel like but I'm not sure.
  21. Hi everyone, Back story: I was diagnosed with a borderline wheat allergy as a toddler, but the same allergist told my mother that spelt and Kamut (types of wheat) were ok to feed me. So, I have no idea how reputable that doctor was, and I’ve been eating wheat most of my life. I’ve got tons of issues because of it, and recently went to a gastroenterologist familiar with celiac to see if I needed to worry about complications developing or anything like that. He said I needed to do the gluten challenge and serology testing to find out whether I have Celiac, or gluten sensitivity with some other condition, before he could move forward. After much deliberation, I decided to do the gluten challenge, and I am currently two weeks in. I am miserable, worried it’s affecting my job stability, and struggling to get through my days. The doctor told me I could do the gluten challenge for a minimum of two weeks, but that I should really do it for a month if I can. I can’t. I’m going to try and get through a third week and then give up. Question: The doctor’s nurse told me to go in for the blood test 4 weeks after I stop the gluten challenge. I can’t find anything about waiting any length of time between the challenge and the serology. Does anyone have experience with this or know anything about that waiting period? Thanks for your time, Cassandra
  22. Celiac.com 03/05/2018 - While people with non-celiac gluten sensitivity (NCGS) have neither celiac disease nor wheat allergy (WA), they often do have intestinal and extra-intestinal symptoms that are related to gluten consumption. Using a double-blind placebo-controlled (DBPC) gluten challenge with crossover, a team of researchers recently set out to conduct the first assessment of NCGS rates in children with chronic, gluten-associated gastrointestinal symptoms. The research team included R Francavilla MD, PhD, F Cristofori MD, L Verzillo MD, A Gentile MD, S Castellaneta MD, C Polloni MD, V Giorgio MD, E Verduci MD, PhD, E D'Angelo MD, S Dellatte MD & F Indrio MD. They are variously affiliated with the Department of Pediatrics, San Paolo Hospital, Bari Italy; the Department of Pediatrics, Santa Maria del Carmine Hospital, Rovereto TN, Italy; the Department of Pediatrics, Catholic University, Rome, Italy; the Department of Pediatrics, University of Milan, S. Paolo Hospital, Milan, Italy; the Department of Pediatrics, Santa Maria Incoronata dell’Olmo Hospital; Cava dei Tirreni SA, Italy; the Tandoi Group Factory, Corato, Italy; and the Interdisciplinary Department of Medicine-Pediatric Section, University of Bari, Bari, Italy. Their team looked at 1,114 children with chronic gastrointestinal symptoms, but no celiac disease and WA. For children showing a positive connection between symptoms and gluten ingestion, the team offered a four-stage diagnostic challenge that included: run-in, open gluten-free diet (GFD) and DBPC crossover gluten challenge. Patients randomly received gluten (10 g/daily) and placebo (rice starch) for 2 weeks each, separated by a washout week. The gluten challenge was considered positive when accompanied by a minimum 30% decrease of global visual analogue scale between gluten and placebo. Out of 1,114 children, 96.7% showed no correlation with gluten ingestion. Thirty-six children were eligible for the diagnostic challenge. After the run-in and open GFD, 28 patients underwent gluten challenge. Eleven of these children tested positive (39.2%). This is the first such study to demonstrate the need for a DBPC for diagnosing NCGS in children, since the diagnosis is ruled out in more than sixty-percent of cases. Source: The American Journal of Gastroenterology. doi:10.1038/ajg.2017.483
  23. Hey guys!!! I am in NYC and have had drs tell me “Oh you don’t have celiac. It’s really hard to maintain a gluten free diet.” Oh, well. OK then I’ll decide not have it! WTF! I’ve been gluten-free for 11-12 years. For financial reasons, I kinda wanted to have a diagnosis, but I was freaked out about going back on gluten. In the past yr, I’ve had SEVERE stomach pain unlike anything I had before I went gluten-free. A doctor scoped me and I had a buncha stomach ulcers. They cleared up a little but my stomach is constantly affected by gastritis which won’t go away. So I’m on Omeprazole, Rantitidine (or whatever) and Sucralfate pretty much all the time now. This whole situation may be exacerbated by my bipolar medications. I finally did the 23andme genetic test and the markers were there indicating increased risk for celiac including some pretty seious ones. It’s the DQ8 plus some other weirder ones. Anyway, I thought it said no there was no chance when I looked at it but I was still really freaked out to go back “on” gluten again. Then I found out one of the pastas I got at this super amazing store hereafter referred to as the Gluten Free Promised Land was not gluten free. They had so many gluten-free pastas I just didn’t look as closely as I might - it was Sfoglini “Hemp Radiators”. I was wondering why it was so good! And I wasn’t getting sick. Then I looked at the ingredients and saw wheat and looked at the box and realised it didn’t say gluten-free anywhere on it - I just was tricked by it being Hemp. So, freaked out totally, I tried a sandwich and got no reaction. So then I just started eating whatever I wanted which was amazing! But then I looked at my 23andme result again and saw that it wasn’t negative but that the markers were there. I mean, I still have stomach problems beyond the gluten thing so it’s hard to say what my current upset stomach is all about. But then I thought well I can do this for a month or two and then go get the biopsy again. One of my celiac friends who’s a total celiac nerd and I were talking and we thought maybe it was possible that maybe my villii was so far healed up after 11 yrs that I wasn’t getting sick. Yet. This is my 8th day of eating gluten (and kinda a lot of it cause let’s face it, tat s&*t is yummy! Looking online, I was unable to find anyone who had gone back on gluten after such a long period of time. I saw a few ppl who were on gluten-free diet for like 2 years and got totally sick right way after eating gluten. But nothing in excess of 2 years about. I’d ask the guy I went to for the ulcers who is supposedly some sort of “celiac expert” according to Zocdoc, but the dude told me if I had like a donut a couple days before an endoscopy then that would be sufficient to see the results in the biopsy. After I refused to go back on gluten for the test, he scoped me and said I “definitely don’t have celiac” based on a stomach lining that’s been 11yrs on a gluten free diet. So.....I’m not feeling the trust here. Hopefully there are ppl on this list who are totally nerding out on the current research and can offer up an opinion - seeing as how the drs are 100% toally and thoroughly useless, even in NYC - is it possible that my villi just aren’t damaged enough to be sick yet and as we go along it’ll get bad? Cause I’m not sure I want to destroy my health just to get a diagnosis when I might be able to keep looking and find a dr that can diagnose based on the genetic tests and the fact that a gluten-free diet helped. And do you guys think it’s reasonable to maybe be able to find a doctor that will be willing to do that? Thanks, guys. Love this site.
  24. Looking for advice and also to help those undergoing testing. I went to my general practitioner back in August with nausea, bloating, diarrhea, migraines, sluggishness, and a feeling of general unwellness. I was eating a gluten diet at the time. My doc ordered the dual antigen screen- it came back positive for celiac. He set up an appointment for me with a specialist. I called the specialist and they could get me in 8 weeks later. I asked the specialist if I went gluten free is this would affect any testing. They said “no” that I was in a gluten diet for so long I would be fine. However, 8 weeks later, the blood test showed no celiac- my results were normal after 8 weeks on a gluten free diet. I felt great, for me the turnaround was almost immediate- in a week or 2 I felt amazing. But that didn’t help with getting accurate results (mostly wanted to rule out another autoimmune disorder). I then went on gluten for 7 weeks (I ate a lot of gluten- like at least a bagel a day and much more on some days- I wasn’t messing around, I wanted an accurate diagnosis)and repeated the blood test at 7 weeks. It came back a very weak positive for deamidated gliadin abs iGg. I then underwent a endoscopy because the doc said that number, although positive, was not high enough to go off of. The endoscopy came back normal- however, the doc noted that higher levels of antibodies were found but not in the “abnormal range.” So, they were present, just not in crazy levels. I then kept eating gluten- I should note my doctors SUCK (could do a whole other post just on this- I have been my own doctor pretty much). I just took another blood test at 3 months eating gluten. My levels are now SUPER high for deamidated Gliadin abs IgG. The doc is confident I have celiac. Question is- my doc is so bad, I wanted to check here to make sure that it indicates celiac. I also wanted to help others as I know there’s lots of conflicting information on how long to do a gluten Challenge. For me, it took 3 months. My gut tells me I am early stage celiac- I don’t have full blown damage yet, but if I keep eating it I am sure it will do some damage. Just wanted to highlight this as if your case isn’t super bad yet, you may have to eat gluten longer- everyone is different. Any advice on my results would be awesome!
  25. Hi everyone! I'm hoping for some guidance on the gluten challenge. My doctor ordered the blood test, but doesn't seem to know much about it. Thus why I'm here. I've been doing a gluten challenge for two weeks now and I'm miserable. But I never really cut gluten out of my diet 100% before. I would occasionally have breaded chicken, soy sauce, a flour tortilla etc. maybe once every couple days or so. I starting really noticing reactions which prompted me to ask for the test from my doctor. I had been on a limited gluten diet for less than two months. I'm not sure why I'm so affected by it all of a sudden. So my question is, with the limited amount of gluten I was eating before and the short length of my limited gluten diet, could I be fine to take the test now? I really don't want to get a false negative. But holy cow I'd love to feel better again. Symptoms: diarrhea gas floating, smelly, hard to flush stool extreme fatigue (like I have to lie down within a couple hours of eating gluten, and lately I've just been in bed virtually all day.) I'm losing my hair! Depression. Also, I've always had problems with my digestive issues, but it's definitely gotten worse in the last year or two. Thanks for for your help! Alyssa
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