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Showing results for tags 'nausea'.
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Hey there! Before I get into the details, I just wanted to start off by saying how grateful I am to have come across this website. It is so comforting to know that there’s a community of people out there who understand the difficulties of celiac disease first hand. So thank you all for sharing your experiences. Below I’ve listed three main issues I’ve started seeing and I am seeking some advice. For context: I’ve been following an 100% gluten free diet for about 6 months now, but just started noticing these symptoms within the last couple of weeks or so. I’m not sure if anyone else has experienced these problems too but just thought it wouldn’t hurt to reach out. LACK OF APPETITE: Has anyone else experienced a lack of appetite after following a strict gluten free diet? I’ve personally always had a great relationship with food and eating regularly. But ever since following a gluten free diet, I haven’t been eating much, or anything at all for that matter. Sometimes I won’t even realize that I haven’t eaten anything by dinner time. I genuinely don’t feel hungry. Can others relate? Any tips? INSOMNIA: It just these last couple of weeks where I have been experiencing the worst insomnia. I can’t sleep at all anymore. I’m lucky if I fall asleep around 2-3 o’clock. It’s been so incredibly frustrating for me to deal with. I just feel so lost with this. I’ve tried googling and to my understanding, no gluten in my diet makes it harder to get tired? Idk. Feel free to correct me on that one. I’ve tried sleeping pills but I really want to avoid relying on them if possible. I have a vitamin b-12 deficiency, and have read that others have found that taking b-12 before bed has improved sleep. Im willing to try anything at this point, so I’ll see if it works. Haha as I’m writing this at 2:30 am. NAUSEA: I’ve noticed as I’m lying down to sleep I feel slightly nauseous. I just have to sit up which makes it harder to sleep. Disclaimer, i haven’t actually thrown up yet. It’s weird, it doesn’t reach or get to that point really, but I’ll still feel nauseous. Mainly at night but sometimes during the day. Has anyone else experienced this? If you have any advice please share.
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09/18/2023 - Vomiting and nausea are considered common symptoms related to gluten ingestion in treated celiac disease. However, the overall rates and associated factors of these symptoms after chronic gluten exposure, and acute re-exposure during gluten challenge, remain poorly understood. A team of researchers recently set out to explore the rates and factors associated with vomiting and nausea in individuals with celiac disease, both at the time of diagnosis and during gluten challenges. The research team included Iida Ahonen, Pilvi Laurikka, Sara Koskimaa, Heini Huhtala, Katri Lindfors, Katri Kaukinen, Kalle Kurppa, and Laura Kivelä. They are variously affiliated with the Celiac Disease Research Center, Faculty of Medicine and Health Technology, Tampere University, Tampere, Finland; the Department of Internal Medicine, Tampere University Hospital, Tampere, Finland; the Tampere Center for Child, Adolescent and Maternal Health Research, Tampere University and Tampere University Hospital, Tampere, Finland; the Faculty of Social Sciences, Tampere University, Tampere, Finland; and the University Consortium of Seinäjoki, Seinäjoki, Finland. For their study, the researchers collected medical data from 815 adult celiac disease patients at the time of their diagnosis, and an additional 74 patients underwent a three-day gluten challenge. Here are the team's key findings: At The Time of Celiac Disease Diagnosis About one in three patients presented with vomiting at the time of their celiac disease diagnosis. These patients were less likely to have been identified through screening, and more likely to experience various other symptoms. Specifically, patients who suffered from vomiting had about a 20% higher occurrence of abdominal pain, diarrhea, and weight loss, along with a nearly 30% higher rates of childhood symptoms, compared to those without vomiting. During a Gluten Challenge During the short-term gluten challenge, nearly 20% of patients experienced vomiting/nausea. Interestingly, those who consumed gluten-free oats less frequently were about 30% more likely to experience these symptoms. There were no significant differences between the two groups in terms of other clinical-demographic characteristics, duration of a gluten-free diet, or other symptoms. Literature Review The study also conducted a literature review, which revealed a wide range in the prevalence of vomiting/nausea in celiac disease patients, both at diagnosis (ranging from 3% to 46%), and during gluten challenges (ranging from 13% to 61%). Overall, vomiting and nausea appear to be relatively specific symptoms associated with gluten ingestion in individuals with treated celiac disease. At diagnosis, those experiencing vomiting tended to have a higher rates of other gastrointestinal symptoms and an earlier onset of symptoms in childhood. During a gluten challenge, reduced consumption of gluten-free oats was linked to a higher likelihood of vomiting/nausea. The prevalence of these symptoms varied widely in the existing literature. This research provides valuable insights into the presentation of symptoms in celiac disease patients, shedding light on factors associated with vomiting and nausea both at diagnosis and during gluten challenges. Read more at bmcgastroenterology.com
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Hi everyone, I’ve recently joined this group because I’ve been experiencing symptoms for the past 6 weeks or so upon returning to the US from a trip to the UK that I feel could possibly point to celiac. I know symptoms associated with this disease are numerous and that presentation in adults can vary widely, but I just wanted to reach out to see whether anyone else has experienced anything vaguely similar. -2nd day before returning home, started feeling extremely bloated after eating. Nothing else, just overall very uncomfortable for several hours until it somewhat passed. Admittedly, I did eat a lot these last two days of the trip. -Once home, bloating continually got worse after every meal, and was soon accompanied by nausea, cramps, acid reflux, headaches, and worse constipation than my usual. -Symptoms continued for several weeks, along with decreased appetite. -Eventually, gastro symptoms abated slowly until my appetite mostly returned, though these symptoms still come and go, just to a lesser degree. -As gastro symptoms improved, the rest of my body seemed to go downhill. Worsened headaches, dizzy spells, and intense brain fog took over and affected my quality of life. -Have felt itchy all over my body on and off, but no signs of rash (could be a seasonal allergy thing, though?) -Started having occasional numbness in hands, knees, lower legs, and even lips. -Trouble sleeping (more so than usual), inattention, and forgetfulness from the brain fog caused difficulties when returning to work for the new school year (I’m a teacher) -Have had diarrhea twice, but the rest of the time is constipation -Just an overall feeling of “weirdness” that’s very hard for me to explain. What’s bothering me is that many of these symptoms kind of come and go, and it has me wondering if it’s all just in my head. I genuinely don’t feel as though it’s all due to anxiety, but I suppose anything’s possible. Anyway, I’ve met with a new doctor who’s ordered a celiac panel as well as an ultrasound, but won’t get the results until two weeks from now. I’m going to listen to whatever my doctor believes it is, of course, but until I know for sure, I’m just sort of twiddling my thumbs and wondering what else it could be if I do test negative. Does this sound at all like any of you who have been diagnosed celiac, NCGS, etc? Any other thoughts or suggestions you might have for me? Thanks so much for taking the time to read and comment.
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Hi everyone!:) I’ve been diagnosed as celiac for a couple months now, and have been feeling a large margin better, but still nauseous frequently. I’ve found to have a lot of trouble with lactose, which I learned can happen to people with celiac. I make gluten free desserts frequently, and today I made brownies, and they caused me a lot of nausea and gas. I’m thinking that maybe I just can’t handle heavier foods yet? My appetite seems a bit small and a lot of things seem to be taxing for my digestive system. Is this normal, should I bring it up with my gastroenterologist?
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Celiac.com 03/30/2022 - I am the mother of two teenage children—both recently diagnosed with celiac disease. I manage an International Student Exchange program based in New Jersey. My hobbies include writing fiction and painting and I hold a black belt in Karate. Do I have celiac disease? I believe so. As a matter of fact I made myself very sick trying to prove it. What can I say? I was desperate! I spent the past twenty-five years doing everything the doctors told me and I was getting sicker instead of better. All I concentrated on was eating healthy and doing anything that promised to settle my stomach. Nothing worked. Whenever I complained to a doctor they would run a few tests and tell me that I probably had irritable bowel syndrome (IBS). Their advice was to lose weight and watch what I eat—easy for them to say! Since it wasn’t the in bed, out of work, desperately ill kind of sick at that point, I did my best to manage daily life. For the most part my family understood I had a “sensitive stomach” and learned to live with it—but I knew it was slowly getting worse and I was getting scared. Finally, I came to the point where I would just break down and pray to God, “I don’t care what it is, just give me an answer. Any answer!” When I first explained to doctors that I seemed to always be in the bathroom with severe nausea, stomach cramps, gas, and bloating they would say: “Must be something you ate.” To which, I’d answer, “Everyday?” and they would just shrug their shoulders. It wasn’t like I was dying, losing vast amounts of weight, or exhibiting symptoms that would raise the red flag—but I was in pain and embarrassed. I don’t think the doctors realized what it took for me to come forward with my complaints. As before, I left the doctor’s office without any answers and went on with my life, managing it as best as I could. One minute I could feel fine and the next I would be overcome with cramps. Some days I could barely manage to leave the house. It got so bad I would just not eat as I tried to “shut down” the digestive process. Doctors kept saying IBS. Frankly, I didn’t think that was much of a diagnosis. I mean, I already knew my bowels were irritated! What causes it? What can I do about it? I was told over and over again, “everyone gets it.” Watch what you eat, avoid junk food, alcohol, etc. Yeah right, I’d been trying that for years and it didn’t work. One day I’d eat something and be fine, the next day I’d eat the same thing and get sick. What did that tell me? I’d keep food diaries, take vitamins— even those made me nauseous— but I wasn’t feeling any better. Finally, I resigned myself to carrying a pack of Imodium in my purse wherever I went. It was so bad that everything I ate caused pain. If I had to do any traveling I would just not eat the day before or the day of the trip. Everywhere I went I just resigned myself to not eating. Once I got home and felt safe I would be so hungry that I would stuff everything I could find into my mouth. Of course, that would make me as sick as a dog. My biggest question was why could I eat something one day and be fine, then eat it a week later and be extremely sick? The medical community answered with “It’s IBS.” I know the real answer now. It’s because different brand names use different ingredients. One burger restaurant may add wheat, the other might not. Though the years I developed other problems. Lethargy made me go back to the doctor for blood tests, and I was diagnosed with hypothyroid. The medication for this gave me more energy but did nothing for my IBS. Scourge of my life. When I complained about having rough, blister-like breakouts on the back of my legs and arms I was told it was either eczema or “winter dry skin.” The recommendation was to use moisturizer and someone even told me to take vitamin E. None of this healed my skin but it did ease the breakouts a bit. Since the IBS was an even bigger problem, I pushed these other stressful problems to the back of my mind and tried to find foods that I could eat. At that point everything made me sick. I again mentioned the problems with my stomach during one of my normal thyroid checkups, and the fact that even a plain old slice of bread made me nauseous. “How could that be?” I cried. “Bread was what you give to sick people!” The doctor stopped and looked at me for a moment, then told me about his mother who had celiac disease. He told me I probably didn’t have it because of my weight—5 foot 6 inches and 160 pounds—because “people with celiac disease are very thin,” a belief that I later found out was incorrect. When I pressed him for more information he wrote down the name and told me to look it up on the Internet, but he still doubted that I had it. At this point in my life I was desperate for an answer and I prayed to God everyday that he would send me a clue as to what was tormenting me. Could this be it? I logged onto my computer the first chance I got and started reading everything I could find on this disease. I started looking into how many things in our everyday life contain gluten—breads, cereals, pastas, pizzas, and cakes were the obvious sources, but I was soon to learn that gluten is also mixed into many other processed foods. I immediately started a quest to get gluten out of my diet—which was a lot harder than I ever imagined. As much as ninety percent of the soups, canned foods, and prepared foods on the market today contain gluten. It is also used in certain medicines, sauces, spices, cough drops, stamps, and even envelope glue! For a while it seemed like everything I looked at had gluten in it. Another issue was cross-contamination. I needed to thoroughly clean those things which could be contaminated with gluten, including: toasters, cutting boards, pans, and plastic spatulas! It was incredibly depressing—yet the more research I did the easier it got. People with celiac disease can live normal, healthy lives, and I found a lot of support on the Internet. There, people from all over the world join together to share hints, problems, and commiserate. It made the transition much easier. I also went to my local health food store with a printout from a company that makes gluten-free foods, and they ordered some of them and now stock a wide variety of gluten-free products. I’m finding gluten-free pastas, breads, and even some cookies that are so good most people wouldn’t know that they were not made from wheat flour. There are also several good mail order bakeries that have good breads, bagels, and other products made from rice, tapioca or potato flour. I order online in quantity and freeze them. It definitely gets easier as time goes on. Within a month on a gluten-free diet my “IBS” and stomach cramps were gone! The nausea took a bit longer to improve but each day it improved. When I returned to the doctor and shared that I believed that I had celiac disease he was doubtful. At my insistence he ordered the blood test. At that point I had been off of gluten for about six to eight weeks. The test was negative. By this time I had met other people with celiac disease through the Internet who informed me that the tests would not be accurate unless I had been eating gluten daily for at least six prior to the test. I verified this information online and found it to be correct. My dilemma now was whether or not to go back on gluten for an accurate diagnosis. It was a hard decision. I have two daughters and I felt I needed to know since this can also be hereditary. My father suffered for years with gastrointestinal problems before dying at age 65 of colon cancer. I’m sure now that he had celiac disease. With all of this hanging over my head I decided to go back on gluten to get a definitive answer. My first meal was a pizza! Yum! The next day I was fine. So I continued to eat gluten. Within two days the cramps and diarrhea were back. By two weeks I was sick everyday and having trouble getting myself to work, but I didn’t give up. My husband thought I was crazy. He kept telling me that I already knew what was making me sick—so why was I doing this to myself? But I had already made the decision to find out if I really had celiac disease—so on I ate. On really bad days I took Imodium and sometimes didn’t eat until I was at home. The nausea was constant. Some days the cramping and pain were so bad that I just couldn’t eat at all. I don’t know if this hurt my test results or not but there were times when I just couldn’t bring myself to swallow any food at all. Eating caused the pain to worsen. This continued for six weeks! On the day of my blood test I did not eat before I went to the lab at two in the afternoon. I was afraid that if I ate anything at all I’d get sick at the lab and that would be too embarrassing. Have you ever sat in a room full of people waiting for your turn—fighting nausea and just knowing that everyone in there was watching every time you got up to use the bathroom—five times in a row?! Let alone having to sit still long enough to get the blood drawn. The blood work all came back negative. At this point I dragged in my sixteen-year-old daughter for a blood test. The doctor thought that I was crazy. She didn’t fit the profile. I asked him to do it anyway to put my mind at ease—so he did. The blood work was positive. After that my nineteen-year-old daughter tested positive as well. Both of them opted out of the endoscopes, even though this is thought to be the gold standard for diagnosis. They went gluten-free and both are feeling much better on the diet. Two weeks later I went for my endoscopy. I asked the gastroenterologist how many biopsies he was planning to take and he told me: “Enough, don’t worry.” But I did worry. What if it’s not enough? Celiac damage can be patchy and I desperately wanted an accurate diagnosis. The doctor called two days later and said the biopsy was fine. So I am an undiagnosed celiac. I went gluten-free the day of my endoscopy and today I am feeling better than I have in my whole life! The “IBS” is gone, my skin is clearing and I never get nauseous. Today I feel healthy and I am living a much better life. Traveling still makes me nervous but it’s getting easier as I learn to trust my body once again. Would my tests have been positive if I had been tested before going gluten-free? I don’t know and at this point I don’t care. I know what makes me sick and I avoid it. It’s as simple as that. I only wish I had understood that before going on the gluten challenge as it would have saved me a lot of pain. My biggest problem now is when people say things like, “Oh, I couldn’t live without pasta!” Would they say to a diabetic: “I couldn’t live without sugar”? I hope not. To these people I just say: “You could if it made you sick.” I also thank God everyday for the answer I prayed for so often: celiac disease. It’s a different way of life that takes some getting used to, but it is quite do-able. Pizza never tasted as good as being healthy feels! ©A Personal Touch Publishing, LLC. This article originally appeared in the book A Personal Touch On...™ Celiac Disease.
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Hi, I am new to celiac disease, so I am still trying to figure out how to know if I accidentally had gluten. Last Friday someone made me a gluten free cake, which I ate twice on Friday and felt incredibly nauseous, never felt so nauseous before, especially not for as long as I did that day. Saturday I had it again and felt nauseous again. Sunday the same, and then it occurred to me that it could be the cake. Then during this week I've been feeling that my vision gets blurred at times, I am slightly bloated and 2 massive painful pimples appeared in my back. Had anyone experienced something like this before?
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Hello. I was diagnosed celiac via bloodtest in November of 2020, and just got my "official diagnosis" today, as the hospital confirmed I have celiac after going through a gastroscopy December of 2020. I started having symptoms in June 2020, but it took me a few months and a couple of visits to the doctor to figure out why I was feeling so bad. Because of that, I've only been off gluten for about 4 weeks now, after my gastroscopy. My question is, is it normal to feel nauseous and have little to no appetite most of the time? I've already lost a lot of weight without doing anything, and I can't deny I am quite scared. I'm only able to eat very little without feeling really nauseous. I currently am eating nuts, some fruit (both fresh and dried), gluten-free oatmeal and gluten-free crackers, in various small portions throughout the day. I also get incredibly nauseous if I talk for 45 minutes to an hour, and I'm not sure if this is normal. I miss being able to talk to my friends and my family, but as I am right now I can't without feeling awful. I hope this post isn't too messy, it's my first time writing here, though I've looked through the forums as best I can for some answers beforehand. Thank you very much for reading.
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Hi all, I am 19, Male and live inside the UK. I weigh around 10st and I am 6ft 4. To cut a long story short, I am not officially diagnosed with celiac disease but gluten causes me crippling pain to the point where I can't even walk, severe diarrhea and loss of appetite. The crippling pain literally disappeared within two days of going gluten free. I am now three weeks down the line and I feel almost back to normal except I feel nauseous all the time during the day. My symptoms goes as follows: Tenderness at the top of the abdomen Nausea 1 - 2 hours after eating (sometimes even after water), Usually lasts for a few hours Nausea is relieved/improves immediately after eating If I don't eat anything I have zero nausea Nausea is usually completely gone in the evenings (after 7-8 PM or so) Stomach pain/heartburn is more severe when I haven't eaten for a while or lying down I have had a blood tests for quite a few things such as liver function, thyroid, diabetes, Iron and B12 levels just to name a few. I have had a full body CT scan, all clear but had slight inflammation of the terminal ileum (bit connecting small intestine to colon). An ultrasound of the abdomen (including gallstones) which again was all clear. Urine tests were clear. I had these exact same issues, nausea and pain two years ago so had an MRI done. Showed exact same inflammation in terminal ileum as now so had a colonoscopy done which showed lymphoid hyperplasia (was put down to an infection). Symptoms went away during the summer holiday due what I believe a change of diet (as in I stopped consuming a baguette and muffin each day). I still didn't feel 100% since then but the nausea was so minimal I didn't even notice but I still felt drained, lethargic and had brain fog. I'll be having another colonoscopy on the 29th just to check for Irritable Bowel Disease because out of all the tests I have had done, the only thing that is abnormal is the terminal ileum in the CT scan. I have not had an endoscopy. Did anyone else experience nausea almost 24/7 except midnight or before breakfast? The Doctor suspects gastritis and so have been on 20mg of omeprazole for three days. I am literally begging for answers right now, as I've been bedridden since August (up until I went gluten free in the first week of December which now leaves the nausea) and should be enjoying my life at university but I am instead stuck at home feeling nauseated each day. I've been admitted to A&E three separate times due to severe pain and haven't seen anyone besides the people that live in my house or the doctors since August. It literally feels like I have been to hell and back so any ideas, literally anything will do. Finally, I am 2000% sure I am not being cross contaminated, using stainless steel pans and there is currently no gluten inside the house. Thank you for reading
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Hey there everyone! So I finally have my diagnosis TOMORROW! I’m 22 years old and feel like I’ve been dealing with this for 4 years now, but within the last year everything has got progressively worse. I guess I should’ve asked some of these questions months ago. But hey here we are... Anyway, I had the Endoscopy and Colonoscopy done about two weeks ago, with stool samples, and biopsies. My question is: Has anyone who is diagnosed, experience these specific symptoms. when I wake up I feel as if I’m hypoglycemic, my body is tingly, cold sweats (no matter how I dress myself when going to sleep) and then the urgency to go release a bowel movement (usually extremely oily, Diarrhea, or thin stringy) Also I feel as if my joints and bones are popping out of place a lot more frequently and a lot more painfully then they ever had ( this was a hard one to pin point because I use to dance competitively and so my joints naturally crack and pop in and out of place) I have ALLLL of the other symptoms that all lead to Celiacs, but I truly just want to know if anyone else had the same morning routine/experience. (if anyone is wondering my back story, I’ve always been a fit young girl, never had health problems, ate pretty good, except for the occasional gatherings, and parties. I recently got diagnosed with Endometriosis last November as that was something else I had suspected I had FOR YEARS. I’m glad I finally went to the Gastroenterologist but geez this celiacs seems like no freakin joke, if it ends up being the answer)
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I was diagnosed with Celiac Disease 8+ months ago, overall have seen improvement in gut issues, however, I have continued to experience dizziness (feels as if I am on a boat upon movement) and severe fatigue each and every day. My symptoms are by far worse in the morning, as well as worse following physical activity. I have been passed around from specialist to specialist (multiple GI doctors, endocrinologist, cardiologist, neurologist, dietitian), and none have come up with an answer as to why I am still experiencing these symptoms. I am aware full intestinal recovery can take up to 2 years post-diagnosis, however, I was wondering if anyone else has experienced these symptoms and how long it took for them to finally feel better? As one can imagine, I'm drained from trying to function daily with these symptoms concurrently, as well as I'm becoming very discouraged despite staying positive to the best of my abilities. As far as diet goes, I am very strict with myself and have not had any type of gluten product in my household since time of diagnosis. I have had other food allergy testing performed, although all results come back insignificant for all other foods (eggs, corn, dairy, etc.). I am currently on a 6 week low FodMAP diet as prescribed by my dietitian, but have yet to see any positive results. The only other supplements I have recently began are riboflavin, feverfew, and magnesium, all prescribed by my neurologist for migraine prevention. I am open to any and all possible suggestions and encouragement! Thank you!
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Hey guys, quick background on me. I am a highly active, 30 year old male, and was diagnosed with Celiacs a little over two months ago, immediately went gluten free and many of my symptoms began to resolve within about a month (diarrhea, major weight loss, extreme fatigue, tiredness, brain fog, headaches, to name a few). I returned to working out like I have the majority of my life (primarily weight lifting with high volume 5-6x/week) and have remained extremely diligent in proper diet. However, at approximately the two month mark of being strictly gluten free, I’ve began feeling extremely sickly again without reason I can identify (extreme fatigue has returned, have come close to passing out multiple times, frequent nausea, whole body weakness, dizziness, tinnitus, headaches have returned). Aforementioned, I have remained gluten free, have even significantly limited dairy/lactose, but still feel horrible and on the brink of anxiety each day. Mornings are by far the worse time for me, as I am extremely nauseous, dizzy, and feel as though I will pass out with any activity. Furthermore, I know it has only been around 8 weeks since diagnosis, however, I have been unsuccessful in putting any weight back on despite going on a high calorie diet (3,500-4,000) each day. As a former athlete and still extremely active today, my body has been used to accepting high caloric days as normal. From a diet perspective, I have switched from whey protein to soy/pea proteins, take a recommended multivitamin daily, take an iron supplement daily, take a recommended prebiotic/probiotic/digestive enzyme supplement, eat plenty of lean meats, fruits and veggies, rice and beans, and refrain from eating any type of processed food. I had food sensitivity blood testing done and all food categories came back insignificant or negative for sensitivity (except tTg-IgA testing at time of diagnosis for gluten of course). My overall question is, why all of a sudden is my health beginning to deteriorate again after when I thought I was making good progress after going gluten free? Has anyone else experienced this by chance? Is there some type of “rebound effect” associated with going gluten free that anyone else may have experienced around the 2-3 month mark? I welcome any and all feedback, please! I am becoming extremely frustrated, worried, and anxious as this is a major life change for me. - Eric P.
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My 17-yr old was diagnosed a couple of weeks ago after finally getting an upper endoscopy. She's been in the hospital for over a month after intractable vomiting and weight loss. First she was in a regular pediatric ward, then they moved her to an eating disorders unit after misdiagnosing her with an eating disorder. Fortunately, they had ordered a Celiac antibody test, and when the blood work finally came back positive, they ordered an endoscopy. But she is still stuck in the eating disorders unit. She is still on an NG tube & they are still trying to re-feed her as though she has an eating disorder - a 'normal' diet [edit: a normal gluten-free ovo-lacto vegetarian diet]. Yes, 'we want all the macronutrients represented' (dietician's statement) - in her vomit. When throws up, she throws up the tube and it has to be replaced and they check the position with an X-ray - sometimes several to get the position correct. I don't see what would be so bad about doing a limited diet in view that her gut is terribly damaged and needs time to recover [edit: due to possible malabsorption or additional sensitivities]. Maybe just rice for a day or two (she's still getting Osmolite for most of her calories, so no worries on nutrition), then add new items in slowly. Does that not make sense? Any advice on diet or anti-nausea drugs* would be appreciated. I seriously think she would be better off at home. We could substitute the NG tube feedings with a shot glass full of Ensure Plus every 30 min for 12-14 hrs, if necessary. No more X-rays. I gather it may take months for her gut to heal. *she's already taking Zofran
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Hello I made this account tonight because I am need of help by those with more experience than me. Basically since June I've been feeling horrible every morning throughout the entire day. My main symptoms were extreme nausea (no vomiting), stomach pain, constipation, and diarrhea. I was in and out of the doctors doing blood work and taking medicines for other things like ibs and gastritis until we started to think about a month and a half later that it could be celiac or a gluten insensitivity. My typical day was wake up around 9 am, feel nauseous, eat little while drinking water, and feel okay enough to fall asleep around 3 pm for a few hours and wake up feeling better with almost no nausea at all. After seeing a Gastroenterologist and having extensive blood work done, everything came back looking normal (beginning of august). We kept up with gluten free diet while taking protonix and eventually things started to turn around. I was waking up less nauseous and it would only last a few hours or a couple compared to all day. It ended up getting better to the point where i woke up later than 8 or 9 am with finally no nausea or hunger pains and i would be able to eat a fair amount throughout the day and not have any symptoms besides occasional bloating. Something happened last thursday where I woke up with nausea and it lasted a couple hours. It has been the same thing since then and even today was one of my worst days with eating little and nausea being present after eating any meal no matter how small. I never use to get nausea at night and for the past two days i have had it for a couple hours before bed. I canceled my endoscopy that was scheduled for the 27th this monday about a week prior to that date because i had felt so much better but now i regret it. We think ive been glutened but i keep a food journal and i havent been eating anything different than before i had made great progress. Does anyone else have this problem? Does this sound like ive been glutened? Something feels different and although i havent been officially diagnosed celiacs I just dont understand why id be feeling this way after making such great progress. This all comes when im starting up school and an internship and is very inconvenient and depressing. I have my own utensils and cookware that I use and I am extra paranoid and safe about making sure my areas in the kitchen are gluten free and clean. Does anyone have any tips or knowledge about this? Should I call up my doctor again? The nausea was so bad this summer i couldnt work and couldnt do anything besides pace around the house while sipping water with the air conditioner running. Im really hoping i can go back to feeling the way i felt just a week ago so that i can start up my internship and make it to school everyday. I appreciate any and all feedback!
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Hi there! I am looking for insight from anyone that may have insight on what is going on in my body. I have had 6 years of fuzzy head and GI issues (bloating, constipation, nausea, pain, discomfort). I cut out gluten 3 years ago. Then did a IgG mediated food allergy test with a holistic doctor and did a food elimination diet based on those results. So I now avoid dairy and gluten and tomato. I notice i have flare ups when I consume corn so I am trying to be more strict about it lately but I get a week long of nausea/heartburn/acid reflux when i do eat it. I also started following a low fodmap diet a few months ago due to still not feeling great and when I follow all of these things (gluten free, dairy free, corn free, low fodmap) I feel the best I ever have, although it is very hard to sustain. Also, i still have random spouts of horrible heart burn and nausea occasionally and cannot pinpoint it. I also am on a PPI for this. I have had a hydrogen breath test in 2015 and it was negative. I also have had multiple EGD's and Colonoscopies that have been unrevealing besides a stomach ulcer which is now healed and some esophagus irritation most recently. I am now scared of eating so many foods because I have had so many days of not feeling right. I have considered getting more strict on the corn restriction or maybe considering nightshade free because I am not sure what to do/if Fodmap is really helping since it isnt all the time and I am stressed about what I can even eat anymore. Any suggestions or thoughts are appreciated! Thanks in advanced, Sara
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- acid reflux
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Hello, I dont know if this is the correct way to post and get replies I hope it is if not sorry ? I'll start from the beginning a year ago I fell ill and couldnt shake off the nausea I went to the doctor they thought I was bulimic because I'd lost so much weight they did a celiac and hpolyri test they both came back negative so I was diagnosed with ibs and anxiety ? Anyway through the years I kept cutting out gluten on and off but not bothering with cross contamination because it made me feel less nauseous ? But I still had stomach pain ?So about 4 months ago I cut out gluten for good and I thought even though I have bad flares of nausea evey now and again and the fact I can eat in the morning due to nausea I thought I had got on top of my weight but between november and january I lost another 6lbs? I did accidentally eat barley at christmas time I swelled like a balloon but didnt have nausea ? My question is there a chance I could still have celiac even though my blood tests were negative and I have pains even though I'm gluten free? ? Also if I have to start eating gluten again before a biopsy is there a chance my body will react to the gluten quicker than 6 weeks? ? Can celiac cause dark hard stool and constipation as well? ? Thank you
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- bloodtest
- glutenfree
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Hi everyone, Once again I am here looking for your help. I was diagnosed with Celiac less than a year ago. It took quite a while to find out because I didn't experience any particular symptoms after eating gluten. I was always tired, had memory problems and was frequently ill; sometimes I had gastrointestinal issues, but they came and went. Last night I went out for dinner, to a Thai place I trust(ed). Later, I could hardly sleep, I had horrible nightmares, those where you can hardly tell apart when you are awake or not. I expected to have high fever but nothing! Today all my body aches, I am very tired and was nauseated all day. A little bit gasy and bloated as well.. Was I glutened?? Did I already clean my body enough that I now start to react in this fashion? If so, why does that happen? There is also gastroenteritis going around, that would be the alternative explanation. I thought I excaped it. I also didn't vomit or have diahrrea like the rest. What do you think?
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Hi Guys, I am still kind of new to this whole gluten-free thing. I had been really sick earlier this fall. Weight loss, cramping, diarrhea, fatigue, anxiety. I had a colonoscopy in August with nothing present. Then Had went to the ER and had a normal CT scan. Normal blood work, no celiacs. Then a week before my scheduled upper endoscope I went gluten-free and my symptoms drastically decreased. I spoke to my GI doctor and he said I was probably NCGI or possibly had celiacs, but since I was gluten-free a week before the endoscope I probably wouldn't get an accurate biopsy. He told me to avoid gluten and I should be fine, and to come back for the upper endoscope if things got worse. I am still trying to figure out what I can and can't eat. I was still getting the symptoms when I had corn, so cut that out. Then was only having left rib pain and silent reflux, so I cut out processed gluten-free food and bread. Now all I really eat is meat, fruit and veggies. For the last 5 days I have had slight nausea, not gurgling or anything like that, just very minimal nausea. This started after I ate gluten-free chicken strips and a gluten-free microwave meal last Wed., then had some Red wine and cookies with almond flour on Saturday (which I think messed me up). It is now Mondsay and I still feel a slight bit of nausea. I basically went gluten-free On Oct. 1st. Has anyone ever had this happen to them this far out from going gluten-free? Also, has anyone ever tried going gluten-free without having a positive blood test or endoscope? I am wondering if I should just get the endoscope. I was so worried before it may be stomach cancer, but maybe I should just rule it out. Just want to know if anyone else has experienced this. I have gained back about 10 pounds ( I was down 20), its just the light nausea that bothers me know, Thanks for your input!
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ok today is officially one week i've been gluten free and i haven't made any noticeable differences in feeling better. my first question is: how long should i wait to expect changes to occur? am i not giving it enough time? prior to going gluten free one of my issues was constipstion, as well as other health issues usually involving an upset stomach, nausea or an uneasy feeling in my stomach. but since going gluten free i have had a bowel movement different from usual. and today it was more loose and diarrhea like and it is very rarely like that. oh and about half way through the week i got a random rash pop up on one ankle???? advice or suggestions??
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