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Celiac Disease & Gluten-Free Diet Blogs

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  • Gluten Challenge
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  • Celiac Teen
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  • Coeliac Disease or Coeliac Sprue or Non Tropical Sprue
  • karalto's Blog
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  • Madison Papers: Living Gluten-Free in a Gluten-Full World
  • babinsky's Blog
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  • Celiac Diagnosis at Age 24 months in 1939
  • Sandy R's Blog
  • mary m's Blog
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  • Louisa's Blog
  • Guts & Brains
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  • Connie C.'s Blog
  • garden girl's Blog
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  • Jersey Shore wheat no more's Blog
  • swezzan's Blog
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  • MeltheBrit's Blog
  • glutenfreecosmeticcounter
  • Reasons Why Tummy tuck is considered best to remove unwanted belly fat?
  • alfgarrie's Blog
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  • KMBC2014's Blog
  • Musings and Lessons Learned
  • txwildflower65's Blog
  • Uncertain
  • jess4736's Blog
  • deedo's Blog
  • persistent~Tami's Blog
  • Posterboy's Blog
  • jferguson
  • tiffjake's Blog
  • KCG91's Blog
  • Yolo's Herbs & Other Healing Strategies
  • scrockwell's Blog
  • Sandra45's Blog
  • Theresa Marie's Blog
  • Skylark's Blog
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  • Anna'sMommy's Blog
  • Skylark's Oops
  • Jehovah witnesses
  • Celiac in Seattle's Blog
  • March On
  • honeybeez's Blog
  • The Liberated Kitchen, redux
  • onceandagain's Blog
  • JoyfulM's Blog
  • keepingmybabysafe's Blog
  • To beer, with love...
  • nana b's Blog
  • kookooto's Blog
  • SunnyJ's Blog
  • Mia'smommy's Blog
  • Amanda's Blog
  • jldurrani's Blog
  • Why choosing Medical bracelets for women online is the true possible?
  • Carriefaith's Blog
  • acook's Blog
  • REAGS' Blog
  • gfreegirl0125's Blog
  • Gluten Free Recipes - Blog
  • avlocken's Blog
  • Thiamine Thiamine Thiamine
  • wilbragirl's Blog
  • Gluten and Maize-Free (gluten-free-MF)
  • Elimination Diet Challenge
  • DJ 14150
  • mnsny's Blog
  • Linda03's Blog
  • GFinDC's Blog
  • Kim UPST NY's Blog
  • cmc's Blog
  • blog comppergastta1986
  • JesikaBeth's Blog
  • Melissa
  • G-Free's Blog
  • miloandotis' Blog
  • Confessions of a Celiac
  • Know the significance of clean engine oil
  • bobhayes1's Blog
  • Robinbird's Blog
  • skurtz's Blog
  • Olivia's Blog
  • Jazzdncr222's Blog
  • Lemonade's Blog
  • k8k's Blog
  • celiaccoach&triathlete's Blog
  • Gluten Free Goodies
  • cherbourgbakes.blogspot.com
  • snow dogs' Blog
  • Rikki Tikki's Blog
  • lthurman1979's Blog
  • Sprue that :)'s Blog
  • twinkletoes' Blog
  • Ranking the best gluten free pizzas
  • Gluten Free Product
  • Wildcat Golfer's Blog
  • Becci's Blog
  • sillyker0nian's Blog
  • txplowgirl's Blog
  • Gluten Free Bread Blog
  • babygoose78's Blog
  • G-freegal12's Blog
  • kelcat's Blog
  • Heavy duty 0verhead crane
  • beckyk's Blog
  • pchick's Blog
  • NOT-IN-2gluten's Blog
  • PeachPie's Blog
  • Johny
  • Breezy32600's Blog
  • Edgymama's Gluten Free Journey
  • Geoff
  • audra's Blog
  • mfrklr's Blog
  • 2 chicks
  • I Need Help With Bread
  • the strong one has returned!
  • sabrina_B_Celiac's Blog
  • Gluten Free Pioneer's Blog
  • Theanine.
  • The Search of Hay
  • Vanessa
  • racecar16's Blog
  • JCH13's Blog
  • b&kmom's Blog
  • Gluten Free Foodies
  • NanaRobin's Blog
  • mdrumr8030's Blog
  • Sharon LaCouture's Blog
  • Zinc, Magnesium, and Selenium
  • sao155's Blog
  • Tabasco's Blog
  • Amanda Smith
  • mmc's Blog
  • xphile1121's Blog
  • golden exch
  • kerrih's Blog
  • jleb's Blog
  • RUGR8FUL's Blog
  • Brynja's Grain Free Kitchen
  • schneides123's Blog
  • Greenville, SC Gluten-Free Blog
  • ramiaha's Blog
  • Kathy P's Blogs
  • rock on!'s Blog
  • Carri Ninja's Blog
  • jerseygirl221's Blog
  • Pkhaselton's Blog
  • Hyperceliac Blog
  • abbiekir's Blog
  • Lasister's Thoughts
  • bashalove's Blog
  • Steph1's Blog
  • Etboces
  • Rantings of Tiffany
  • GlutenWrangler's Blog
  • kalie's Blog
  • Mommy Of A Gluten Free Child
  • ready2go's Blog
  • Maureen
  • Floridian's Blog
  • Bobbie41972's Blog
  • Everyday Victories
  • Intolerance issue? Helpppp!
  • Feisty
  • In the Beginning...
  • Cheri46's Blog
  • Acne after going gluten free
  • sissSTL's Blog
  • Elizabeth19's Blog
  • LindseyR's Blog
  • sue wiesbrook's Blog
  • I'm Hungry's Blog
  • badcasper's Blog
  • M L Graham's Blog
  • Wolicki's Blog
  • katiesalmons' Blog
  • CBC and celiac
  • Kaycee's Blog
  • wheatisbad's Blog
  • beamishmom's Blog
  • Celiac Ninja's Blog
  • scarlett54's Blog
  • GloriaZ's Blog
  • Holly F's Blog
  • Jackie's Blog
  • lbradley's Blog
  • TheSandWitch's Blog
  • Ginger Sturm's Blog
  • The Struggle is Real
  • whataboutmary's Blog
  • JABBER's Blog
  • morningstar38's Blog
  • Musings of a Celiac
  • Celiacchef's Blog
  • healthygirl's Blog
  • allybaby's Blog
  • MGrinter's Blog
  • LookingforAnswers15's Blog
  • Lis
  • Alilbratty's Blog
  • 3sisters' Blog
  • MGrinter's Blog
  • Amanda
  • felise's Blog
  • rochesterlynn's Blog
  • mle_ii's Blog
  • GlamourGetaways' Blog
  • greendog's Blog
  • Tabz's Blog
  • Smiller's Blog
  • my vent
  • newby to celiac?'s Blog
  • siren's Blog
  • myraljo's Blog
  • Relieved and confused
  • carb bingeing
  • scottish's Blog
  • maggiemay832's Blog
  • Cristina Barbara
  • ~~~AnnaBelle~~~'s Blog
  • nikky's Blog
  • Suzy-Q's Blog
  • mfarrell's Blog
  • Kat-Kat's Blog
  • Kelcie's Blog
  • cyoshimit's Blog
  • pasqualeb's Blog
  • My girlfriend has celiacs and she refuses to see a doctor
  • Ki-Ki29's Blog
  • mailmanrol's Blog
  • Sal Gal
  • WildBillCODY's Blog
  • Ann Messenger
  • aprilz's Blog
  • the gluten-free guy
  • gluten-free-wifey's Blog
  • Lynda MEADOWS's Blog
  • mellajane's Blog
  • Jaded's Celiac adventures in a non-celiac world.
  • booboobelly18's Blog
  • Dope show
  • Classic Celiac Blog
  • Keishalei's Blog
  • Bada
  • Sherry's blurbs
  • addict697's Blog
  • MIchael530btr's Blog
  • Shawn C
  • antono's Blog
  • Undiagnosed
  • little_d's Blog
  • Gluten, dairy, pineapple
  • The Fat (Celiac) Lady Sings
  • Periomike
  • Sue Mc's Blog
  • BloatusMaximus' Blog
  • It's just one cookie!
  • Kimmy
  • jacobsmom44's Blog
  • mjhere's Blog
  • tlipasek's Blog
  • You're Prescribing Me WHAT!?!
  • Kimmy
  • nybbles's Blog
  • Karla T.'s Blog
  • Young and dealing with celiacs
  • Celiac.com Podcast Edition
  • LCcrisp's Blog
  • ghfphd's allergy blog
  • https://www.bendglutenfree.com/
  • Costume's and GF Life
  • mjhere69's Blog
  • dedeadge's Blog
  • CeliacChoplin
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  • celiac<3'sme!'s Blog
  • William Parsons
  • Gluten Free Breeze (formerly Brendygirl) Blog
  • Ivanna44's Blog
  • Daily Life and Compromising
  • Vonnie Mostat
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  • ar8's Blog
  • farid's Blog
  • Sandra Lee's Blog
  • Demertitis hepaformis no Celac
  • Vonnie Mostat, R.N.
  • beetle's Blog
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  • Kim
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  • twinsmom's Blog
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  • Living in the Gluten Free World
  • lisajs38's Blog
  • Mary07's Blog
  • Treg immune celsl, short chain fatty acids, gut bacteria etc.
  • questions
  • A Blog by Yvonne (Vonnie) Mostat, RN
  • ROBIN
  • covsooze's Blog
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  • Adventures of a Gluten Free Mom
  • Fiona S
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  • Carla
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  • SimplyGF Blog
  • Jim L Christie
  • Debbie65's Blog
  • Alcohol, jaundice, and celiac
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  • Gluten Free Mastery
  • james
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  • Feline's Blog
  • Linda Atkinson
  • Auntie Lur: The Blog of a Young Girl
  • KathyNapoleone's Blog
  • Gluten Free and Specialty Diet Recipes
  • Why are people ignoring Celiac Disease, and not understanding how serious it actually is?
  • miasuziegirl's Blog
  • KikiUSA's Blog
  • Amyy's Blog
  • Pete Dixon
  • abigail's Blog
  • CHA's Blog
  • Eczema or Celiac Mom?'s Blog
  • Thoughts
  • International Conference on Gastroenterology
  • Deedle's Blog
  • krackers' Blog
  • cliniclfortin's Blog
  • Mike Menkes' Blog
  • Juanita's Blog
  • BARB OTTUM
  • holman's Blog
  • It's EVERYWHERE!
  • life's Blog
  • writer ann's Blog
  • Ally7's Blog
  • Gluten Busters: Gluten-Free Product Alerts by Celiac.com
  • K Espinoza
  • klc's Blog
  • Pizza&beer's Blog
  • CDiseaseMom's Blog
  • sidinator's Blog
  • Dr Rodney Ford's Blog
  • How and where is it safe to buy cryptocurrency?
  • lucedith's Blog
  • Random Thoughts
  • Kate
  • twin#1's Blog
  • myadrienne's Blog
  • Nampa-Boise Idaho
  • Ursa Major's Blog
  • bakingbarb's Blog
  • Does Celiac Cause Sensitivites To Rx's?
  • delana6303's Blog
  • psychologygrl25's Blog
  • Alcohol and Celiac Disease
  • How do we get it???
  • cooliactic_BOOM's Blog
  • GREAT GF eating in Toronto
  • Gluten-free Food Recommendations!
  • YAY! READ THIS!!
  • BROW-FREE DIET BLOG
  • carib168's Blog
  • A Healing Kitchen
  • Shawn s
  • AZ Gal's Blog
  • mom1's Blog
  • The Beginning - The Diagnosis
  • PeweeValleyKY's Blog
  • solange's Blog
  • Cate K's Blog
  • Layered Vegetable Baked Pasta (gluten-free Vegetarian Lasagna)
  • Gluten Free Teen by Ava
  • mtdawber's Blog
  • sweeet_pea's Blog
  • DCE's Blog
  • Infertility and Celiac Disease
  • What to do in the Mekong Delta in 1 Day?
  • glutenfreenew's Blog
  • Living in the Garden of Eden
  • toddzgrrl02's Blog
  • redface's Blog
  • Gluten Free High Protein
  • Ari
  • Great Harvest Chattanooga's Blog
  • CeliBelli's Blog
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  • redface's Blog
  • Being in Control of Your Gluten-Free Diet on a Cruise Ship
  • jayshunee's Blog
  • lilactorgirl's Blog
  • Yummy or Yucky Gluten-Free Foods
  • Electra's Blog
  • Cocerned husband's Blog
  • lilactorgirl's Blog
  • A Little History - My Celiac Disease Diagnosis
  • How to line my stomach
  • sewfunky's Blog
  • Oscar's Blog
  • Chey's Blog
  • The Fun of Gluten-free Breastfeeding
  • Dawnie's Blog
  • Sneaky gluten free goodness!
  • Chicago cubs shirts- A perfect way of showing love towards the baseball team!
  • Granny Garbonzo's Blog
  • GFzinks09's Blog
  • How do I get the Celiac.com podcast on my mp3 player?
  • quantumsugar's Blog
  • Littlebit's Blog
  • Kimberly's Blog
  • Dayz's Blog
  • Swimming Breadcrumbs and Other Issues
  • Helen Burdass
  • celiacsupportnancy's Blog
  • Life of an Aggie Celiac
  • kyleandjra.jacobson's Blog
  • Hey! I'm Not "Allergic" to Wheat!
  • FoOdFaNaTic's Blog
  • Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes
  • Lora Derry
  • Dr. Joel Goldman's Blog
  • The Ultimate Irony
  • Lora Derry
  • ACK514's Blog
  • katinagj's Blog
  • What Goes On, Goes In (Gluten in Skin Care Products)
  • What’s new in hydraulic fittings?
  • cannona3's Blog
  • citykatmm's Blog
  • Adventures in Gluten-Free Toddling
  • tahenderson67's Blog
  • The Dinner Party Drama—Two Guidelines to Assure a Pleasant Gluten-Free Experience
  • What’s new in hydraulic fittings?
  • sparkybear's Blog
  • justbikeit77's Blog
  • To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications
  • Onangwatgo
  • Raine's Blog
  • lalla's Blog
  • To die for Cookie Crumb Gluten-Free Pie Crust
  • DeeTee33's Blog
  • http://glutenfreegroove.com/blog/
  • David2055's Blog
  • Gluten-Free at the Fancy Food Show in San Francisco
  • Kup wysokiej jakości paszporty, prawa jazdy, dowody osobiste
  • Janie's Blog
  • Managing Hives & Gluten Allergies
  • Bogaert's Blog
  • Janie's Blog
  • RaeD's Blog
  • Dizzying Disclaimers!
  • Dream Catcher's Blog
  • PinkZebra's Blog
  • Hibachi Food and Hidden Gluten Hazards (How to Celebrate Gluten-Free)
  • jktenner's Blog
  • OhSoTired's Blog
  • PinkZebra's Blog
  • gluten-free Lover's Blog
  • Gluen Free Health Australia
  • Melissamb21's Blog
  • Andy C's Blog
  • halabackgirl9129's Blog
  • Liam Edwards' Blog
  • Celiac Disease in Africa?
  • Suz's Blog
  • Gluten-Free Fast Food
  • mis_chiff's Blog
  • gatakat's Blog
  • macocha's Blog
  • Newly Diagnosed Celiacs Needed for Study in Chicago
  • Poor Baby's Blog
  • the loonie celiac's Blog
  • jenlex's Blog
  • Sex Drive/Testosterone can be Depleted by Certain Foods
  • samantha79's Blog
  • 21 Months into the Gluten-free Diet
  • WashingtonLady's Blog-a-log
  • James S. Reid's Blog
  • Living with a Gluten-Free Husband
  • runner girl's Blog
  • kp3972's Blog
  • ellie_lynn's Blog
  • trayne91's Blog
  • Gluten-free Lipstick!
  • Nonna2's Blog
  • Schar Chocolate Hazelnut Bar (Gluten-Free)
  • pnltbox27's Blog
  • Live2BWell's Blog
  • melissajohnson's Blog
  • nvsmom's Blog
  • Diagnosed with Celiac Disease and Still Sick
  • snowcoveredheart's Blog
  • Gluten Free Nurse
  • Gluten-Free Frustration!
  • Melody A's Blog
  • novelgutfeeling's Blog
  • Trouble Eating Out Gluten-Free...Good or Bad?!
  • dilsmom's Blog
  • theceliachusband's Blog
  • amanda2610's Blog
  • Pancreas and Celiac Disease Link?
  • epiphany's Blog
  • Patty55's Blog
  • The Latest Gluten-Free Food Recalls
  • kenzie's blog
  • CVRupp's Blog
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  1. Is there a Type I and Type II Celiac Disease IF so what is your Type: What the Diabetic Model can tell us about Celiac Disease Subtypes? ****these opinions are my own and are not an endorsement by Celiac.com….these are only my conclusions after years of research. I am sharing to generate thought, feedback, opinions, progress on the topic and change if they make sense to you. I would say there are two types of Celiac disease based on all the available research I have read. Think Type I and Type II like diabetes. I share/post this for your feedback, education, careful thought, insight and opinion(s). Maybe it will spur your thinking! This Model of a "Type I" and "Type II" Celiac disease explains best what is happening IMO! These type of grand break though ideas deserve to be shared on Celiac.com.....I suspect it will be another 10 or 15 years (IF then) that this "Working Hypothesis" will be confirmed with more studies proving IT is a "Working Theory"....I just hope some intrepid medical who might read this will be courageous enough to do a a thorough study on this topic confirming my many years of research as the Lord has been my help! I only ask that you be Berean in your thought! as you read this Posterboy blog post and Consider what I say.... Acts 17:10, 11 10 And the brethren immediately sent away Paul and Silas by night unto Berea: who coming thither went into the synagogue of the Jews. 11 These were more noble than those in Thessalonica, in that they received the word with all readiness of mind, and searched the scriptures (research) daily, whether those things were so. Type I happens as a kid (refractory often)... and Type II happens as an adult (often triggered by PPIs or Stress) see below... and why kid's don't get better (probably)....the age you get these deficiencies effects your bodies response.... triggered, in part, by congenital Vitamin deficiencies in children IMO. I concluded this based on research I recently discovered about how Riboflavin aka Vitamin B2 can affect Villi formation in children…… and why it was first diagnosed in Children in IMO. See these links on Riboflavin....I will summarize....if you get low Riboflavin, Thiamine etc. as a kid...you villi won't recover but if it happens as an adult you can recover from PPIs (low stomach acid) triggered Celiac disease. Here is the research on Riboflavin and Thiamine and Niacin and how they work together to regulate our immune system. https://pubmed.ncbi.nlm.nih.gov/7857908/ https://www.ncbi.nlm.nih.gov/pubmed/8785207 https://www.sciencedirect.com/science/article/pii/S0278691510002474 thiamine and riboflavin together https://www.sciencedirect.com/science/article/abs/pii/S1734114016302729 thiamine, riboflavin and niacin together completely down regulated inflammation/toxicity... https://www.ncbi.nlm.nih.gov/pubmed/30903555 If this Posterboy blog post doesn’t make sense to you? It will have to be someone else to rediscover this again in 15 to 20+ years... I have tried to educate the best I could! Too Educate is Too Free!!!! I have tried to share how supplementing with B-Vitamins helped my GI problems, but it seems/seemed to be a “bridge to far” for some…. May this Posterboy blog post....help you "bridge" over the connection between Genetics and Environment IE....Epigenetics...(STRESS) To discovery this I haven't cared what the truth is....I have just wanted it as it is! Truth Frees us from Error! I only know that...... Magnesium, Thiamine, Riboflavin and Niacin(amide) changed my life! ****note this comments that follows are notes to myself that quickly summarize these points (written previously) as cliff notes version of the above...(this I wrote for you as a summary for myself) "Low stomach acid triggered by stress and we lock in with antacids.. Then being low in stomach aid makes you low in Magnesium in 6 months.. Being low in Magnesium makes thiamine unavailable to the body When thiamine is low – you get low in Riboflavin after a month.. And villi begin swelling --- affecting absorption of other nutrients.. Then because riboflavin is a cofactor for Niacin synthesis via the Kyneurine pathway…. and you develop perfuse Skin Lesions diagnosed as DH… When low in meat and dairy (or take mitochondria toxic medicine) you develop pellagra when you can’t synthesize niacin from low tryptophan and riboflavin levels…" This has recently been confirmed in IMO by the discovery that Tryptophan can be used as Therapeutic in the treatment of Celiacs… https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx Otherwise you rest/settle on just having (PSP) aka Pellagra Sine Pellagra (think thyroid problems) Or Pellagra without Skin Involvements… https://pubmed.ncbi.nlm.nih.gov/3809170/ If this is triggered by infantile Beri Beri or more probably a Riboflavin deficiency your Villi might never recover... SIDS has been linked to a thiamine deficiency in kids. Heck even in old age Beri Beri will cause blindness due to glaucoma...and 80pct of WE (brain version of Beri Beri) is not diagnosed until autopsy upon death... https://www.ncbi.nlm.nih.gov/pubmed/485004 Here is link https://academic.oup.com/ajcn/article/77/6/1352/4689829 focus on the riboflavin and gastrointestinal development paragraph... quoting from that paragraph (read it all) it very informative... "Recent work has shown that even when riboflavin is supplied to tissues intraperitoneally, the absence of riboflavin from the lumen of the gastrointestinal tract from the time of weaning leads to a disruption of normal gastrointestinal development in rats." Meaning in young children probably 2 or 3 years or young never (maybe up to 5 years of age estimate only) (fully) develop Villi if their mother was also low in Riboflavin.... cleft palates develop this way....Riboflavin deficiencies in new born baby's.....Vitamin deficiencies passed from mother to baby.... The below link was recently rediscovered by me even though it is almost 10 years people don't know its role in regulating our immune system our helping keep our GI tract healthy Here is Riboflavin’s role in protecting against the Heatshock protein in SIBO https://www.sciencedirect.com/science/article/pii/S0278691510002474 Entitled "Riboflavin protects mice against liposaccharide-induced shock through expression of heat shock protein 25" in SIBO. This also probably happening in Celiac disease as well…..we can surmise if it helps one of the GI disease’s that mimic Celiac disease….it could help Celiac disease as well. See this old forgotten article about how SIBO is common in Celiac disease. Entitled Bacterial Overgrowth of Small Intestine aka SIBO Common in Treated Celiac Disease https://www.celiac.com/celiac-disease/bacterial-overgrowth-of-small-intestine-common-in-treated-celiac-disease-r791/ Note: a couple things here….this Is not suspected Celiac disease but “Treated Celiac Disease”….. SIBO is common in treated Celiac disease….meaning these were people eating a gluten free diet already…. And as I often site and say in my Posterboy blog post this research 10 or 15+ years old…. And yet people (doctor’s/clinician’s) are not aware of these connections/associations…. I set out to confirm my diagnosis and it took me approx. 4+ years to realize I had Low/NO stomach acid going un/misdiagnosed. I have continued studying since then….and I am convinced now more than ever 10 to 12+ years later that Low/NO stomach acid could help Celiac’s….. But we have a “Long Tail” Memory…..and can’t seem to move onto another possible diagnosis like Low/NO stomach acid despite what the research seems to say! I am not the first to discover, study or conclude this… This was studied 30+ years ago....but through much study and the grace of God I have rediscovered it..... will it be another 10 or 15 years before it is accepted??? I hope and pray not! But I honestly don't have much hope.... That people will read it and believe it.....it has been lost for 30+ years for a reason.....nobody believes it! See this research entitled Gastric morphology and function in dermatitis herpetiformis and in C(o)eliac disease. https://pubmed.ncbi.nlm.nih.gov/3992169/ quoting “Antrum-sparing chronic atrophic gastritis was present in 92% of the achlorhydric patients, and hypergastrinaemia and serum parietal cell antibodies were found in most of them. The prevalence of chronic gastritis of the body and of the antrum increased with age.” Note again: this was not in NCGS patients….but diagnosed Celiac and DH patients…. Surely Low/NO stomach acid is the trigger for Celiac disease. IF this is so we would see the same thing in PPIs users… And WE do….recent research confirmed this analysis….among PPIs users….for those who used them for a year or more Low Stomach Acid (from PPIs Acid reducers) were found to be the trigger (CAUSE) of their Celiac diagnosis! See this article about it on Celiac.com entitled “Do Proton Pump Inhibitors Increase Risk of Celiac Disease” https://www.celiac.com/celiac-disease/do-proton-pump-inhibitors-increase-risk-of-celiac-disease-r2860/ They summarize it very well…. Quoting “The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship.” See also this thread started by Knitty Kitty https://www.celiac.com/forums/topic/117685-atrophy-associated-with-ppis-nsaids-and-ssris/ Back to the main point of this Posterboy blog post….Low stomach is triggerable and reversible a “Type II” Celiac disease. A congenital Celiac disease diagnosed as a kid…could not be reversed (in most people)…. and why it was originally diagnosed as a “Type I” genetic disease once Celiac antibodies were discovered IMHO. I don’t believe it fair to someone who at 40 or 50 started taking PPIs to then tell them…you now have a genetic disease…. No, it was triggered by your PPIs usage….and is reversible like most EPI (Environmentally) genetic triggered diseases are…. B-Vitamins are the very definition of Epigenetics….you got low in Vitamins….and you got a disease from the deficiency…. This might not show up for years….until the Doctor’s recognize as a deficiency…..hence a “Type II” diagnosis! I have written a couple other Posterboy blog posts that might help you. An “Open Letter” Part 1 and Part 2 that explains how these things are connected if you think it would help you to read some more on these connections. I didn’t understand it at the beginning of my journey, but I hope it will help start you on your journey back to heath as it did me! It has been a long journey for me….but It can be short(er) for you….because you know the way back….I have shown you how I got back! https://www.celiac.com/blogs/entry/2167-open-letter-part-1-to-fellow-gi-sufferers-etc-like-ibs-uc-and-other-gi-diseases-like-infant-heartburn-gerd-that-grows-into-in-time-to-ibs-uc-chrons-and-ncgs-as-a-teenager-or-celiac-disease-in-time-as-an-adult-look-beyond-to-the-parent-disease/ https://www.celiac.com/blogs/entry/2515-open-letter-to-the-many-gi-sufferers-part-2-still-suffering-look-beyond-these-symptom%E2%80%99s-to-the-parent-disease-pellagra-with-these-many-unruly-children-like-ibs-gerd-uc-etc-up-to-and-including-ncgs-and-celiac-disease-in-time-i-believe-part-2/ Just trying to help those still suffering (I believe) unnecessarily. Who think there is only one Type of Celiac disease? 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” I hope this is helpful but it is not medical advice. 2 Timothy 2:7 As always, “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God, ADDENDUM: I am adding this Posterboy blog post from an earlier blog post maybe it will help you…. https://www.celiac.com/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ At the time not many people read it…..but maybe this time more people will read and understand it! The presenting symptom of DH in Celiac disease is confirmation that the Kynurenine Pathway has broken down and who have developed the 3rd "D" of Pellagra…. Let’s hope the doctors realize this before the 4th "D" symptom DEATH occurs! Since 80 percent of Wernicke Encephalopathy better known as the mental/brain symptom of Beri Beri is diagnosed on autopsy I have my doubts they will notice the Pellagra Co-morbid in 58% (Majority) of Celiac noted no less than by the IJCD (see Posterboy blog post link above) and why I continued to emphasis this in my Posterboy blog posts….. because the IJCD noted the same thing! I only ask that you believe you own research (prophets)…..and agree with them that Beri Beri, Pellagra Sine Pellagra, and Pellagra is happening in Celiac’s. https://www.celiac.com/celiac-disease/how-low-thiamine-can-thin-villi-old-research-rediscovered-and-its-clinical-significance-in-celiac-disease-r5100/:~:text=Beriberi%20is%20is%20caused%20by%20low%20thiamine%20(B1).,dietary%20thiamin%20deficiency%20on%20intestinal%20functions%20in%20rats.” At what rate only more tests/studies can prove. I ask that others in the Celiac community that might read this…. Do these studies….so that future doctors are aware of these connections/associations. I just know we can't wait another 10 or 15 years before this trickles down to the clinical (Medical) level when current (today's) research shows that Tryptophan can be used as a Therapeutic for Celiac disease.....IMHO confirming this theory! https://www.celiac.com/celiac-disease/tryptophan-in-turkey-meat-can-speed-gut-healing-in-celiac-disease-r5338/ Isn't that we ALL want to speed our healing! This is happening in other auto-immune diseases too/also because we only have ONE immune system! With many difference (faces)….IE symptom’s….. Note: Pellagra is found in Lupus too! https://www.celiac.com/blogs/entry/2709-the-lupus-inflammation-model-for-sickness-beginning-with-b-vitamin-deficiencies-in-celiacs-and-other-inflammation-triggered-diseases%E2%80%A6/ I must stop for now, or this will be way too long again!
  2. In Part 1 I mentioned many of the GI issues diseases I think this might help and have seen it help. But most people only think of an “official diagnosis” and not co-morbidities in the same person. Treating your Vitamin deficiency lets you treat your co-morbidities. It is known as a 2ndary diagnosis in Sjorgen’s diesease as Pellagra has also been diagnosed with SJD for example. https://www.researchgate.net/publication/263324686_Pellagra_in_a_patient_with_primary_Sjogren's_syndrome Despite the conditions responding to Niacin(amide) --- Pellagra was still considered the 2ndary disease. This is more common than people realize often. You hear often “you” the average person doesn’t need to take a Vitamin but if you are reading this blog you are not average. People with Celiac disease and other GI problems are known to be low in a range of Vitamins. See this link for appropriate supplementation with a celiac diagnosis. https://www.ncbi.nlm.nih.gov/pubmed/24195595 Niacin(amide) was not mentioned in this study but should be added/studied since B-Vitamins are known to help Celiac’s. At 58% co-morbidity of Pellagra in Celiac’s there is better than 50/50 chance your symptom’s can be in remission in 6 months? If you are ONE of the many Pellagrins being diagnosed as Celiac disease today. Gluten free works actually summarizes this topic well. https://glutenfreeworks.com/blog/2017/07/18/niacin-vitamin-b3-deficiency-in-celiac-disease/ But still people are afraid to take a water soluble Vitamin that is known to help digestion problems. Are you Afraid of a Vitamin? You needn’t bee! Praise bee to God! I must always say *** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen but it helped me. And I think it can help you too and why I share for “Sharing is Caring”. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God, *****Addendum I mean this to be some kind of “Opus”. My story! Yours might be different. Now the onus is on you to try? What you can do is urge your doctor to have you tested for Pellagra (though I doubt very seriously you will test low). See this posterboy blog post that explains the difference in Primary and 2ndary Pellagra. Anyone who eats a protein rich diet will not test low enough to be diagnosed as a Pellagrin at least in the Western world. You have bee near death, an alcoholic or homeless to be diagnosed as a Pellagrin today or maybe an alcoholic homeless fellow who has severe Psorsias. . . might test positive for Pellagra if they knew to test for it. And why it usually shows up in war torn areas today because protein is limited in war. (and Alcoholics) as seen in this House MD episode on Celiacs called Forever because Alcoholics have poor diets and thus low in protein in their diets. https://www.bing.com/videos/search?q=house+season+2+episode+22+forever+daily+motion&view=detail&mid=C2050653028DE02DBDE6C2050653028DE02DBDE6&FORM=VIRE What needs to be done to change this oft over looked fact is a study with Niacin to see if it helps Celiac’s. See here where other B-Vitamins were shown to help Celiac’s. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html this study was only as to how it (B-Vitamin supplementation) effects homeocysteine levels in people diagnosed with Celiac disease. Not if taking a B-complex or specifically the Niacinamide version of Niacin could help treat or alleviate gluten antibodies in Celiacs with cross contamination. A double blind study would have to be done but could be effectively tested with some time and effort. This is only antidotal information with no confirmed medical research unless someone else takes the ball and runs with it. Plumbago you come to mind. But it doesn’t matter who it is. The time has come to test this hypothesis to see if it is a “working theory”. I only know it helped me and helps other I give the Vitamin B-3 as Niacinamide to . . . up to and including people who have had an official NCGS diagnosis. Which tells’ me it would help other Celiac’s too if they would try it (Niaciamide) 3/day for 6 months. Note: No Follow up is done at two years to see if they are in remission after cross contamination or if they have adhered strictly to a gluten free diet. But their clinical outcomes (symptom relief) appear to greatly improve at 6 months including re-introducing problem foods such as dairy which they now tolerate without GI distress. I have tried to be a witness to what I have experienced. (I speak as a man) that no other person Pellagin being diagnosed as Celiac disease instead would be in the dark about this fact. Romans 10:13-15 King James Version (KJV) 13 For whosoever shall call upon the name of the Lord shall be saved. 14 How then shall they call on him in whom they have not believed? and how shall they believe in him of whom they have not heard? and how shall they hear without a preacher? 15 And how shall they preach, except they be sent? as it is written, How beautiful are the feet of them that preach the gospel of peace, and bring glad tidings of good things! When you get the right/correct diagnosis (if Pellagra is correct/parent diagnosis) it’s unruly child Celiac will get better. See this posterboy celiac.com blog post. I only know it is a devastating delay. To ignore one disease at the expense of the other. quoting the celiac posterboy again “A differential diagnosis is one of the best standard of medicine rarely practiced today and how specialists decide between competing diseases like UC or Chron’s or IBS or Celiac Disease and if I am right Co-Morbid Pellagra now forgotten for 75+ years since the “War on Pellagra” is now over according to medical professionals’ but sadly the battle rages on for at least for the potential 3 Million American’s who are now being diagnosed as Celiac disease today instead.” AS someone who has had BOTH Celiac and Pellagra. I can tell you that it can be difficult to tell them apart sometimes (most times). What we fail to understand often with any diagnosis there is continuum of disease/symptoms. Yet we think of them as separate diseases Right? I have unwittingly become the Celiac and Pellagra Posterboy . Learn from my mistakes! I have made too many (mistakes) to count. Take as much honey (knowledge) as you can from my mistakes so bad (lack of knowledge) health will not sting your quality of life. So let’s say. Today they find a miraculous cure for Celiac disease or NCGS. . . it would take on average 17 years for doctor’s in Clinical settings to apply these technique’s to eradicate new Celiac cases/diagnosis’s from occurring. Now in this hypothetical case (which doesn’t exist yet or does IT? As a differential diagnosis the answer is a definite YES) it would take another 17 years on average for doctors if they knew today that Pellagra (which they don’t) can mimic Celiac disease in a Clinical setting. But one does exist (it is not hypothetical) – a cure for Pellagra exists today. It has in fact existed for 100+ years and still doctors don’t recognize it today. I share/write these posterboy blog post’s so that others might not have to suffer the same things’ I have again in the future someday. . . I pray soon! Now that you have the knowledge of my experience what will you do with it? Every hour/patient/person matters. And why I have tried diligently to educate other Celiac’s of this maddening fact. All those who have ears to hear may they listen! Feel free to read all my posterboy blog post’s if this pique’s your curiosity/interest but there is only so much in a/one blog post than can be explained but it really Is not necessary or visit the website/blog in my profile where I have told the same story hundreds of time that ONE fellow sufferer like myself may/might be helped by the same wisdom, I found God being my help, when I learned Pellagra and Celiac disease are Siamese twins and separating one (supplementing one to death) will kill the other (cause the other to go into remission). And I believe you can too! Praise bee to God! 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them (fellow sufferer) which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” Posterboy by the Grace of God, EPILOGUE A simple self-test is to prove this works for you and your friends. It is to take Niacin as NIACINAMIDE usually one 300 count bottle is enough for a 3month supply. I call it the NIACINAMIDE CHALLENGE. You and a friend/family member begin taking it at the same rate. Whatever that rate is – is fine. But it needs to be at the same rate – consistently. 2/day or 3/day works (i.e., with each meal) works for most people. If so two things will happen for you/them (if Pellagra is indeed Co-Morbid presenting as Celiac Disease) then you/they will begin BURPING for the first time in years and years (if at all) and their stool will begin to SINK to the bottom of the bowl. ***Not twenty minutes after eating something with bloating or burping with carbonation/soda or beer etc. but BURPING 2 hours after a meal without the bloating you used to have. It will start slowly and then be your new normal. The burping within a month of each other will match up with your stool beginning to SINK where it did not before (or it did for me). A witness of two is “true”. Usually it takes 3 to 4 months taking the Niacinamide 1/day to notice these results Usually it takes 2 to 3 months taking the Niacinamide 2/day to notice these results Usually it takes 6 weeks to 2 months taking the Niacinamide 3/day to notice these results If these are your results then together ya’ll have completed a self-test to confirm Pellagra was causing your GI problems. If it is the Vitamin making the difference your GI symptoms’ will improve. It is as simple as that. I would recommend a 6 months regimen for most people. Two 300 count bottles equal $50 Dollars worth of a B-Vitamin. As I called this an open a letter to the many GI sufferers etc. It doesn’t matter what part phase (spectrum) of the disease you are in it will (should) get better. GERD, IBS, UC, NCGS or even Celiac disease if (low Niacin(amide) was the cause) you will have a cause and effect reaction. If you had Pellagra Co-Morbid and your GI improves with supplementation. This almost always works if you are not now taking PPI’s like Nexium or Prilosec etc. . . . If you are taking PPI’s then your “Way Back” may be a little longer but the trip back is the same. ****Again this is not medical advice but it is too cheap not to try and see if it works for you . . . I have found it work for others. ****Note: I am only reporting what medical journals have concluded. It is just not well understood today one disease is being diagnosed as the other because it can take a generation for this knowledge to filter down to the clinical level. Again a “Witness of Two” – you Both having the same reaction to the Vitamin proves Pellagra was causing your symptom’s and the doctor’s don’t recognize it today in a Clinical setting. The Journal of Psychosomatics says its well and I can’t say it better. https://www.sciencedirect.com/science/article/pii/S003331821070668X?via%3Dihub quoting the abstract Pellagra: An Old Enemy of Timeless Importance Author links open overlay panelThomas M.BrownM.D. Show more https://doi.org/10.1016/S0033-3182(10)70668-XGet rights and content Background “In the United States, pellagra is infrequently reported. Yet this disorder does occur among malnourished persons. Objective The author seeks to clarify diagnosis and treatment. Method The author describes various presentations and effects of this disorder. Results Knowledge of classic and atypical presentations can assist in making the diagnosis. The author presents two cases of pellagra that exemplify the classic and atypical presentations. Conclusion The typically robust response of the disorder to physiologic doses of niacin can assist in confirming the diagnosis.” *** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I am your witness people, have and do get better using this technique realizing a mistake has been made in your/their diagnosis. It is the time honored medical “Second Opinion” AKA a Differential Diagnosis. Isn’t it about time to see if supplementing with Niacinamide will help your co-morbid Pellagra symptom’s to see if your Celiac disease diagnosis was arrived at in error – no matter well intended has keep you from getting better from Pellagra. Quoting an old friend J. Dan Gill when he talks about the power of Truth to Free us! Where/when he (Dan) talks about the difference between Truth and Error. “The Truth is Always Better The Truth, whatever it is, Is always better than error, Whatever it is.” By J. Dan Gill The truth is when an error/mistake is made. Admit it and move on to the correct/better diagnosis so you can then get better! And we have known how to treat Pellagra for a 100+ years but this generation having not seen it in their lifetimes have forgot how to diagnose it! When they see it in its earliest forms. .. they do not recognize it in a clinical setting anymore! Those that have ears to hear? Listen! You can get better from Co-morbid Pellagra. SADLY! Few listen. But some (Celiac’s) have heard (listened to) the good news that Pellagra is reversible and have gotten better. Don’t be the Last! ****Again this is not medical advice but it is too easy, simple and cheap not too try and see if it works for you too!. . . I have found it works for others. . . not already taking a Proton Pump Inhibitor (PPIs) like Nexium or Prilosec etc . . . Praise bee to God! To those who have listened and got better! Just trying to help those still suffering (I believe) unnecessarily. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” Posterboy by the Grace of God, 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

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  4. When Myth becomes Medical Fact people suffer unnecessarily; the case of mistaken Identity: How Pellagra now thought to be rare today became known as Celiac Disease — A White Paper better said as a Grey paper or ahead of Print Paper To Who Ever might read this......may it be a blessing to you......this is the Capstone blog post to more than 12 Plus years of research. May it bless you to read it. Blessed are those who read it and understand and put into practice in their lives, I pray! I called this a grey paper and or white paper because it is the first time I know this conclusion/hypothesis has appeared in print in any form (note: this is a REPOST from a former blog post) and 2) it has not been proofed by other medical reviewers). These thoughts are my own and do not reflect the opinions of Celiac.com. and should not be considered an endorsement by them.....but is for use only as education on the part of the reader......but hopefully after you have read it all (or other Posterboy blog post) you will not have any remaining questions..... Getting a Peer review paper published requires you agree with the previously published papers and since this is “A New Thinking’ in Celiac disease it is rejected and thus can’t be published by Peer review journals……thus making it a Grey Paper…..kind of like MedRxiv.org etc. and preprint editions on COVID-19 papers etc.…….the results are NO less valid but not approved (as of yet) by their peers. See this article about this topic of Grey Papers or Prepint findings not medically reviewed….. https://newatlas.com/medical/anti-inflammatory-drugs-risk-chronic-back-pain/ Quoting their results “The researchers are aware their findings will likely be controversial as treating acute pain with anti-inflammatory drugs has been standard practice for decades. Speaking to STATnews Mogil said the research team faced challenges getting the new study published in a journal as peer-reviewers were concerned at the radical implications of the findings.” Medical researchers don’t like surprises…..it means they have been wrong about their conclusions all this time…..and that makes them look bad…… and they don’t like that…..so they won’t print any “New and Original” thinking that contradicts their established Dogma (teaching) about the topic. Now begins the Posterboy blog that is modified to show that when Pellagra Sine Pellagra showed up in Wheat based “Food stuffs”….. it was not properly understood as a lesser form of Pellagra that showed up almost exclusively in Corn based “Food Stuffs” and was mistakenly given a new and trendy diagnosis of Celiac disease and/or NCGS instead thus passing into history as Medical Fact too this day a Case of Mistaken Medical Myth. Note: For simplicity this Posterboy blog mentions Pellagra and not Pellagra Sine Pellagra, though Pellagra is also Pellagra Sine Pellagra plus Skin issues etc. Really in most cases 2/3 of the time only Pellagra Sine Pellagra ever develops……unless you also develop Skin issues like DH, Acne, Psoriasis, LUPUS or Sjorgen’s disease etc……then you have developed full blown Pellagra going misdiagnosed…… otherwise the information contained below is accurate as I can make it…..keeping in mind I wrote this originally from the viewpoint that Wheat (IE Gluten) was triggering Pellagra (aka Low or NO Stomach Acid) where before it was being triggered by Corn and this confused the medical (and still does) to this day. If you want to see other Posterboy blog posts on Celiac.com just search for the Posterboy of both Pellagra Sine Pellagra and Celiac disease. Pellagra is/was first identified as occurring in Corn based feed stuffs it is/was only natural that when STRESS (WWII) triggered it..... (Celiac Disease/Pellagra by another name) in wheat based grain diets that doctor’s didn’t see the similarities. So a new disease was being described/created to explain why wheat consuming people developed a malabsorption syndrome that could/would be mistaken for Pellagra if the diet was Corn based. So this medical myth became medical fact in the 50’s and it has not been challenged really until the functional medicine doctor Prousky conclusively proved Niacin treats digestive problems just as Pellagra Preventive Factor Vitamin B-3 did then protect (cause remission) people from Diarrhea, IBS, and other GI problems not yet classified in the early 20th century so too can/does Niacin(amide) (I believe) now treat Celiac disease today because Celiac disease was the first time Pellagra was described in a wheat based diet. The One (Pellagra faded away) and is replaced now by Celiac disease. See Dr. Alessio Fasano’s 5 myths about (of) Gluten in the Washington Post a founder and director of the Center for Celiac Research at Massachusetts General and Author of Gluten Freedom. https://www.washingtonpost.com/opinions/five-myths-about-gluten/2015/12/18/a803377e-a279-11e5-ad3f-991ce3374e23_story.html I want to talk about his 5th myth today. 5) If you have Celiac disease as a child, you will outgrow it. In the same point he contradicts himself (as people often do when they don’t understand the cause of something) when he says to close his point quoting Fasano “Another milestone was when we determined that people can develop celiac disease at any time in their lives, even into old age. Now we know it is a permanent condition, and the best medical intervention we have is a gluten-free diet.” Which is it Doc? You don’t grow out of it but you can grow into it? Is it a genetically triggered disease which patients can’t outgrow? Or is it a disease triggered in time http://www.bloomberg.com/news/articles/2010-09-27/celiac-disease-incidence-increases-as-people-grow-older-u-s-study-shows If you doc are saying your chance of Celiac disease increases with time as you cite then clearly genetics is not the trigger? Clearly doctor you don’t understand the trigger. It makes more sense to say if as child you encountered something in your environment that triggered Celiac disease then you could get better if the trigger (STRESS) was removed just as in older individuals who had not YET encountered stress in their live HAVE not yet triggered Celiac disease genes in their life. One has been substituted for the other. A myth has become (medical) fact. It happens a lot more than you think. See Dr. Dana Myatt’s seven-not-surprising-health-updates-from-2015 she call’s them kindly calls them “updates” but they were really myths. Something told as truth/fact but still persists though proven untrue. If Dr. Fasano is still telling people it is genetic (only) disease but in the same post says you can develop it in old age ONE is wrong? OR it doesn’t well explain what is actually happening. To investigate further his comments in point 5 Dr. Fasano cites Dr. Dicke’s work in the 1950’s “After watching the mortality rate of children with Celiac disease drop during World War II, Dicke suspected that the decline might be related to the scarcity of bread at that time. Still, it would be decades before the notion that you can outgrow Celiac disease was challenged.” Let’s consider our environment here for a second – WWII. I would say that is a pretty STRESSFUL environment to say the least. Any war is stressful but a world war could/might trigger any number of syndromes. So the further we get away (in time) from that stress it only makes sense these children’s health would improve tremendously. And while there was a scarcity of wheat and any food stuffs to a degree (specifically high quality meat proteins known to hold Pellagra at bay) what was not taken into account when considering the possible causes of Celiac disease was you guessed environment (STRESS). Have you experience a lot of stress in your life. Then you are experiencing what researchers are now discovering (again) Lifestyle is risk factor for Celiac Disease and you can develop Celiac Disease at any age (see citation above “Celiac disease risk increases as you grow older (again at ANY AGE) as Fasano himself has proven (again not genetics only) there is a trigger he is still missing because he doesn’t understand completely why this is happening. Now if stress was the only trigger then Celiac disease would of/have shown up in other theaters’ of war presumably the pacific theater as well. But here it is silent. Let’s see if we can’t figure out why? The answer lies in food fortification? I quote “In the U.S., only 40 percent of the nation’s manufactured flour was enriched, because smaller companies continued to produce cheaper unenriched flour to compete with larger manufactures. In 1942, the U.S. Army decided it would purchase only enriched flour.” Which lead to all (100 percent) of the flour being enriched with what was called the Pellagra Preventive Factor at the time the newly discovered third Vitamin or what we know today as Vitamin B-3 Niacin. See this article entitled "Food fortification spurred by military purchases" https://www.eurekalert.org/news-releases/634050 for a great summary. And while flour as a rule was scarce in Europe during WWII especially in latter years what is often overlooked is that the flour that did arrive now had Pellagra Preventive Factor enriched in it aka Vitamin B-3 or Niacin today put the Celiac crisis in remission. A Pellagra outbreak was already successfully quelled once with fortified food stuffs when the Red Cross reversed its incidence during the great flood of 1927 by following Goldberg’s directive of distributing yeast a good nutritional source of Vitamin B-3. See this link http://www.encyclopediaofarkansas.net/encyclopedia/entry-detail.aspx?entryID=2230 Remember Celiac Disease was not classified as a definable disease until the 1950’s when Dicke hypothized that the lack of wheat in the diet improved what was then also known as Gee-Herter’s disease when really it was the presence of Pellagra Preventive Factor as correctly hypothized by Goldberg in the 20’s that caused Pellagra to go into remission in the European theater. I note again for emphasis “After watching the mortality rate of children with Celiac disease drop during World War II, Dicke suspected that the decline might be related to the scarcity of bread at that time” If stress is a trigger for disease and it is. WWII should of increased Celiac disease UNLESS enriched bread with Pellagra Preventive Factor became MORE common and it did halfway through/during WWII in 1942 exactly when we might suspect improvement in Pellagra patients if indeed Celiac disease (Pellagra misdiagnosed) was now being diagnosed in patients who primary dietary staple was wheat and not Corn Maize where/when it was first described/diagnosed in the “War on Pellagra” as summarized well by Dr. Heaney here http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ Because Pellagra is/was first identified as occurring in Corn based feed stuffs it is only natural that when STRESS (WWII) triggered it in wheat based grain diets that doctor’s didn’t see the similarities. So a new disease was being described/created to explain why wheat consuming people developed a malabsorption syndrome that could/would be mistaken for Pellagra if the diet was Corn based. But we got lucky in a way. The US Army knowing the old adage “an army marches on its stomach” got smart and begin requiring all its flour to be enriched thus not only reversing a developing epidemic (Pellagra confused for Celiac disease in Europe) but the US Army not only fighting/keeping in remission Pellagra in its own soldiers but the whole country and continental Europe benefited. For when the Army required enriched flour the country went from 40 percent enriched flour to 100% enriched flours and this new developing epidemic of Celiac disease went into REMISSION too (just as Pellagra too was beaten in the poor South) indicating an environmental trigger 70+ years ago and still (confused) experts in the field saying things like myth #5 not only can you not grow out of it as a child but YOU can grow in to it as an adult. Stop the Madness! How much longer must people suffer before we relearn histories lesson’s that STRESS triggers sickness and Vitamin’s make us healthy? I sometime think we have been hit with this “genetic stick” so much if we don’t understand something well it must be genetic then. We don’t understand it so it must be genetics. Some researchers’ are finally waking up and saying NO Lifestyle is risk factor for Celiac Disease you can get Celiac disease at ANY age. But even doctor’ Fasano doesn’t understand STRESS is the trigger! Why else quoting Fasano again would you say “The fact that about 1 percent of the population is affected by Celiac disease, while almost 100 percent of humankind is exposed to gluten-containing grains, is evidence that these grains are safe for most people” and in the same article say “ Another milestone was when we determined that people can develop Celiac disease at any time in their lives, even into old age.” IT IS NOT GENETICS’ ALONE if you can increase your risk at ANY age. Their might be a pregenetic disposition if STRESS is high enough. Then after saying that we “determined that people can develop Celiac disease at any time” he says exactly the OPPOSITE thing. Quoting Fasano again in his VERY next statement “Now we know it is a permanent condition, and the best medical intervention we have is a gluten-free diet. “ NO doctor it is not permanent or you could not develop it at ANY age. The best medical intervention is vitamins specifically Pellagra Preventive Factor now known as Niacin(amide) Vitamin B-3 as Prousky proved over almost 15 years ago Niacin treats digestive problems. See this Italian Study on Pregnant women prove this summarized by Very Well health that I have subtitled “First Comes Baby, then Comes Celiac Disease” https://www.verywell.com/can-pregnancy-trigger-celiac-disease-562302 I could go on . . . all the inconsistencies trying to fit a round peg into a square hole. EVEN though he say’s and research (HIS) bares it out that it NOT genetic’s alone he (Fasano) can’t let go of his genetic paradigm . . . you want to say . . . wait a minute this disease develops at any age but you still say it is permanent. No your argument has holes in it that doesn’t fit the disease patterns. But Epigenetics (Environment/Stress) triggering this disease does. And Epigenetics is reversible just as Fasano research bares out IS triggerable at any age. And other researchers agree Researchers have not been able to explain why Celiac Disease develops until now; Part 2 Epigenetics (STRESS) discovered as the cause of Celiac Disease/NCGS by the Celiac Posterboy. “According to Dr. Decker Butzner, a Calgary-based pediatric gastroenterologist, there are another triggering factor which we’ve never understood…[t]here is an environmental trigger.“ To summarize I will quote for emphasis me The Celiac Posterboy what I said earlier in this blog post because “Pellagra is/was first identified as occurring in Corn based feed stuffs it is/was only natural that when STRESS (WWII) triggered it (Celiac Disease/Pellagra by another name) in wheat based grain diets that doctor’s didn’t see the similarities. So a new disease was being described/created to explain why wheat consuming people developed a malabsorption syndrome that could/would be mistaken for Pellagra if the diet was Corn based.” So this medical myth became medical fact in the 1950’s and it has not been challenged really until the functional medicine doctor Prousky conclusively proved Niacin treats digestive problems see above citation just as Pellagra Preventive Factor Vitamin B-3 did then protect (cause remission) people from Diarrhea, IBS, and other GI problems not yet classified in the early 20th century so too can/does Niacin(amide) (I believe) now treat Celiac disease today because Celiac disease was the first time Pellagra was described in a wheat based diet. The One (Pellagra faded away) and is replaced now by Celiac disease. See my earlier post where I quote Dr. Heaney of Creighton University and he says as much “Pellagra is a disease of the past” see this link for the whole article Dr. Heaney does correctly state” it is doubtful today that most health professionals (doctors) would recognize it if a case (of Pellagra) happened to come to their attention.” http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ And why should they when Celiac disease has replaced it (Pellagra) today! Well it is not as in the past as people/doctor’s think it just known (goes) now as Celiac disease TODAY! unless your an alcoholic and homeless..... then the doctor's can spot it.....but only if you are also a drinker etc.....it is affluent confirmation basis.....or as Dr. Derrick Lonsdale call's it... High Calorie Malnutrition.....but we know from the Russian Japanese War Circa 1904 to 1905 and the Japanese Navy/Army Beri Beri can still develop even in well fed troops if their Carbs to Protein ratio exceeds 15 to 1 Carbs to Protein ratio etc... See this article about it....https://medium.com/war-is-boring/eating-too-much-rice-almost-sank-the-japanese-navy-f985772c81a6 And is a precedent for how Pellagra Sine Pellagra and/or Pellagra showed up in the middle of WWII in Wheat Based Food Stuffs and the doctor's after the war..... created a new disease from the symptom's......and it has been wrong ever since IMHO. I called this a white/grey paper because it is the first time I know this conclusion/hypothesis has appeared in print in any form. How do we know this is true? We can’t really UNLESS we are willing to try The Niacin (Niacinamide) Challenge and see if your digestive problems don’t’ go into remission as Prousky proved almost 15 years ago this year. You can find the Niacinamide Challenge by Googling for it and you should see it by the Celiac and Pellagra Posterboy..... What have you got to loose.....it is a water soluble Vitamin shown to help GI problems.... We can’t really prove this until medical trials are performed. “Keys” as I call them. Or can we....see the Addendum at the end of the blog post.....I think we can and I have found the research that show 50+ years old Celiac's were shown to have trouble with Tryptophan metabolism.....showing at least Metabolically Pellagra is occurring in Celiac's and it has been over looked by modern medicine in this genetic age when it is/was Epigenetics all along! See my blog post To Educate is to Free by the Celiac Posterboy if you want to read more about this. There are reason’s the doctor’s don’t find Pellagra instead of Celiac disease it is partly because they are commonly taught that “Pellagra is a disease of the Past” to quote Dr. Heaney. But we can “buzz” the doctor’s with this information till they submit to either let you take the Vitamin see my post Who’s Afraid of a B Vitamin or through your improvement/remission assent to do “key” studies proving (again) what the Canadian research Prousky discovered 15 years ago this year that “Niacin(amide) treats digestive problems” And what’s worse 35+ years ago researchers proved that Celiac disease happens when we get low in stomach acid or have NO stomach acid to protect us against the proteins in our diet we are eating……. See this research that show NCGS and Celiac disease start with Low and/or NO Stomach Acid in the case of DH especially. Entitled “Gastric morphology and function in dermatitis herpetiformis and in Celiac disease” https://pubmed.ncbi.nlm.nih.gov/3992169/ Where they note quoting “The frequency of achlorhydria (aka NO stomach acid) was significantly higher in patients with dermatitis herpetiformis than in 69 patients with celiac disease.” And it is worth noting……this study was in ACTIVE Celiacs ……not in candidates….so we can say with Certainty…… this is happening in Celiac’s and continues to --- TOOOOOO! this day! Because we can say with certainty (above 90+ percent) in DH patients and Celiac’s will have little to NO stomach acid. Quoting again…. “Antrum-sparing chronic atrophic gastritis was present in 92% of the achlorhydric patients, (remember this is in ACTIVE Celiac disease) and hypergastrinaemia and serum parietal cell antibodies were found in most of them.” And yet the doctor’s toooooo this day are still groping in the dark still looking for answers in all the wrong places……. I said it here first healing for Celiac’s begin in the STOMACH because it protects us from the (now) harmful proteins IE food allergen like CASEIN and GLUTEN that are still passing into our (your) small intestines UNDIGESTED. I always say share – share what you learned here today! (Class/reader) because a lot of people are suffering unnecessarily while the doctor’s find the right (keys’) disease. Tell someone (share) is all I ask Are You a Starfish (Part 2 – of a Former Sufferer’s Journey) tell others is all I ask – when you are BURPING for the first time in years or (EVER) – tell a friend about this blog is all I ask but don’t let the chain break with you. There a lot of starfish (sufferers’) who need help. See my Celiac Posterboy WordPress blog entry To Educate is to Free Part Two: A Physician’s Guide If you want to try and educate your doctor and think he will listen. I argue (maintain) theorize that based on triggers in our environment we get low in stomach acid and THEN develop Celiac disease and if you want to read more about how there are two Types of Celiac disease please see and read this Posterboy blog posts that explains how there are two types of Celiac disease today a Type I (one you are born with) and Type II (one triggered by the stresses of life and is reversible for any thing triggered is reversible once you understand it). Blessed is everyone who reads and understands it…..because then healing and recovery can take place. And before everyone gets all upset…..this what even modern medical science has confirmed today! That Tryptophan heals Villi in Celiac’s proving in IMHO that Pellagra is going undiagnosed in Celiac’s and especially Dermatitis Herpetiformis patients aka DH in Celiac’s and other skin diseases in Non-Celiac’s.......I say it is about TIME! ......they are 50+ Years late according to the research! https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx Sadly it will take another 20+ years (a generation) for medical practice to catch up to medical science (IF then Sadly)….. remember the research on Low (really) NO Stomach acid in Celiac’s and DH patients is over 35+ years old…… and they (doctor’s) still don’t get it today! *** Remember: This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken The Niacinamide Challenge and his digestive/GI problems are in remission. The Celiac and Pellagra Posterboy by the Grace of God, 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.” 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. ADDENDUM Found this research this week that confirms the same thing 50+ years ago that modern medical science has forgotten. That Abnormal Tryptophan Metabolism is Occurring in Celiac disease confirming a diagnosis of Pellagra at worst and Pellagra Sine Pellagra at best! https://pubmed.ncbi.nlm.nih.gov/14169518/ It is worth noting that this is BEFORE Celiac disease was known as a “Genetic Disease” and we have been wrong EVER Since IMHO! Those who don’t learn from history are doomed to repeat it! To whom ever has read down to the end of this Celiac Posterboy "Magnum Opus" blog post may God be with you in your continued journeys in life! And God Speed as you continue in your recovery. If this blog post has helped you in anyway......check back in and let other knows it was helpful to you....... PTL!
  5. To Whom Ever Might Read This, This is triggered by some research Scott shared with me. Entitled "With age, insufficient tryptophan alters gut microbiota, increases inflammation" https://www.eurekalert.org/pub_releases/2021-06/mcog-wai062321.php And the very recent research I came across that shows Celiac disease (by monitoring our Microbiome) can be predicted up to 18 months in advance..... (Which I believe Scott will summarize soon as an article soon).....but this thread is more about the recent research I rediscovered on how LPS production triggering a Leaky gut can be triggered by Low B-Vitamins....and the accompanying research showing how each of the B-Vitamins (B1, B2, B3) play a role in controlling LPS production in our GI Tract... Entitled "Changes in gut microbiome in longitudinal study of infants precede onset of celiac disease" https://medicalxpress.com/news/2021-07-gut-microbiome-longitudinal-infants-onset.html 18 months in advance of a Celiac diagnosis is much earlier than you would suspect if Celiac disease is a 100 percent genetic disease (as they mused) surprising the researchers....but if SIBO or LPS production is the trigger for a leaky gut then.....it is what one might conclude if Low B-Vitamins are or could be the trigger.....what one might theorize...that your microbiome is triggering a Leaky gut.....(and why I have always argued that Celiac disease (and/or SIBO) if you believe SIBO can be a trigger for Celiac disease is a 50/50 proposition.....of your environment (IE Low B-Vitamins) affecting your genes... Proving to me, at least, that the genetic Celiac disease has an environment trigger....triggered, in part, by Low B-Vitamins. Here is the research that shows how B-Vitamins (B1 (Thiamine), B2 (Riboflavin) and B3 (Niacin) specifically) are involved in the regulation of LPS production in our GI tract leading, in time, to not only a Leaky Gut, but both SIBO and Celiac disease IMHO. For those who don't know or haven't studied it Liposaccharide aka LPS (and hereafter abbreviated LPS) is the portion of bacteria (known as a Endotoxin) thought to lead to a Leaky Gut in patients with SIBO.... The below research shows how Tryptophan, B1, B2 and B3 help down regulate the toxicity of LPS leading, in time, and with high enough (amounts) the toxicity (from LPS) can result in a Leaky Gut triggered by our Microbiome.... If low in any of these Vitamins or metabolites then you can develop SIBO and a leaky gut.....IMHO See this research entitled "Protective role of benfotiamine, a fat-soluble vitamin B1 analogue, in lipopolysaccharide (LPS)induced cytotoxic signals in murine macrophages" https://pubmed.ncbi.nlm.nih.gov/20219672/ See this research entitled "Riboflavin (aka Vitamin B2) protects mice against liposaccharide (LPS) induced shock through expression of heat shock protein 25" https://www.sciencedirect.com/science/article/abs/pii/S0278691510002474 See this research entitled "Niacinamide is a potent inhibitor of proinflammatory cytokines" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1808598/ This would explain why Tryptophan has recently been shown to help heal Villi in Celiac's.... https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx If any of these is true.....then it will take another 15 to 20 years (sadly) for the medical community to "Catch UP" with this latest medical research. The research on Niacin alone is 18+ years old..... And why they only "theorized" this.....much more recent research I found is less than 5 year old.....confirming these findings (as well as the new Tryptophan research) Entitled "Niacin (aka Niacinamide or Vitamin B3) and its metabolites as master regulators of Macrophage activation" https://www.sciencedirect.com/science/article/abs/pii/S0955286316302960 Where they note "This study reveals for the first time that niacin and its metabolites possess antioxidant, reprogramming and antiinflammatory properties on human primary monocytes and monocyte-derived macrophages." Which if the above research on B-Vitamins is correct trigger a Leaky gut when all these B-Vitamins (B1, B2, B3 and Tryptophan) get low and we get over run with the LPS endotoxin common in SIBO and other leaky gut syndrome(s) which include Celiac disease....etc. We now SIBO can be trigger for Celiac disease because people still struggling on a gluten free diet get better once their SIBO has also been treated. See this article about this topic... They concluded quoting... "The researchers conclude that SIBO affects most celiacs who have persistent gastrointestinal symptoms after going gluten-free." My argument is to treat the underlying trigger for Both.....Low B-Vitamins! I welcome anyone's feedback and insights? I hope this is helpful but it is not medical advice. Posterboy,
  6. To Wheatwacked and To Whom Ever Might Read This, This is mainly for @Wheatwacked but @knitty kitty might also like this thread... I recently came across this research that shows Refeeding Syndrome being treated with Thiamine......responds to Thiamine replacement therapy even when Refeeding Syndrome aka RFS does not respond to Potassium supplementation. This confirms my earlier analysis of how Refeeding Syndrome in Celiacs can be a sign of a Thiamine deficiency. It should also be noted treatment of Refeeding Syndrome can also be treated with Magnesium......taking either Magnesium or Thiamine has been shown to help Refeeding Syndrome. Here is my earlier Posterboy blog post on this topic that explains how and why Refeeding Syndrome can happen in Celiacs... Should this happen to you.....you usually are diagnosed as being in a "Celiac Crisis" but really you have developed Refeeding Syndrome and it can treated with either Magnesium or Thiamine supplementation. Here is a recent article about it... Entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://pubmed.ncbi.nlm.nih.gov/29382373/ Here is another article about it....where thiamine replacement therapy treated an electrolyte in-balance treating Refeeding Syndrome aka RFS. Entitled "Acute thiamine deficiency and refeeding syndrome:........" Which is to say Wheatwacked taking Benfotiamine or another Fat Soluble B-1 like Allithiamine or Lipothiamine should help your remaining electrolyte issues.... Here is a nice article explaining the main Fat Soluble Thiamine aka Vitamin B1 supplements and how they can help you. https://www.hormonesmatter.com/navigating-thiamine-supplements/ I hope this is helpful but it is not medical advice. Posterboy,
  7. To All, I came across some research on Lactose intolerance as trigger for a Celiac diagnosis in a Gluten Free eating person recently. And it got me thinking could the approx. 40 Percent of Celiac's patient not responding to a gluten free diet really be Lactose Intolerance instead. Here is the article on Refractory Celiac disease in those Celiac's patients whose disease is not well controlled on a gluten free diet. Then I found this research that shows Lactose (really Casein probably) can be the trigger for a Celiac diagnosis in someone who is Lactose Intolerant. See this thread where I note certain connections in Celiac disease that people have not put 2 + 2 together (yet) to notice these connections. Here is the Abstract on this topic entitled "[Anti-tissue transglutaminase antibodies not related to gluten intake]" from Cows Milk Protein...Instead. https://pubmed.ncbi.nlm.nih.gov/29555204/ From the linked thread on Refractory Celiac disease.....so I won't have to type it all again... I will quote the full abstract for those who might be following this. Abstract "Introduction: Anti-tissue transglutaminase antibodies (tTG) have high specificity for coeliac disease (celiac disease). However, positive anti-tTG antibodies have been described in non-coeliac patients. Aim To assess positive anti-tTG antibodies not related to gluten intake. Patients and methods: Retrospective review and follow up conducted on patients with suspected celiac disease (increase anti-tTG levels and gastrointestinal symptoms) but with atypical serology results, positive anti-tTG with gluten free diet and a decrease in anti-tTG levels despite gluten intake. Results: A total of 9 cases were reviewed in which 5 cases had Marsh 3 involvement in the initial biopsy, and were diagnosed with celiac disease (Group A). They began a gluten free diet and also a cow's milk protein (CMP) free diet because of their nutritional status. When CMP was re-introduced, anti-tTG increased, and returned to normal after the CMP was withdrawn again. The other 4 patients had a normal initial biopsy (Group B). Gluten was not removed from their diet, but they started a CMP free diet because a non IgE mediated CMP allergy was suspected. Symptoms disappeared, and anti-tTG was normal after CMP free diet with gluten intake. All the patients had susceptibility haplotype HLA DQ2/DQ8. Conclusions: CMP ingestion after an exclusion diet can induce an increase in anti-tTG in some coeliac subjects. CMP can produce this immune response if there were no gluten transgressions. This response has also been observed in non-IgE mediated CMP allergy patients with the susceptibility haplotype HLA DQ2/DQ8." IF you know it wasn't the gluten then Milk/Dairy is the next logical thing to removed from your diet! And there should be more awareness of this connection and why I started this thread so people can reference it in the future. Often 44% is quoted as the percent a first degree relative might have of going on to develop Celiac disease when one relative has it.... This possibility of Casein Protein also triggering a Celiac diagnosis explains this figure/connection nicely! We also know becoming low in Thiamine can trigger thin our villi and trigger a Lactose Intolerance in the process . It is an Elegant Theory! I would love to hear other's people's insights and opinion's on this exciting research. IF this is true then It (removing Dairy/Lactose/Caseins from their diet) could really help those Refractory Celiac disease still suffering from an unknown cause such as removing Dairy (Casein) from their diet to see if their Refractory Celiac disease doesn't THEN get better. The above research PROVES IT is happening. And 40 Percent is a common rate for whic Lactose Intolerance occurs, at least in part, in certain ethnicity's??? Is this also happen in Celiac patients at a similar rate the Doctor's haven't figured this out yet??? I hope this is helpful but it is not medical advice. Posterboy,

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  9. How Low B Vitamins can Trigger a Celiac diagnosis and be Mistaken for a Genetic Disease To Whomever May Read This, (Thank you for taking the time to read it and I hope it helps you the way it did me! and if it does tell others....is all I ask)....because I know there are many more fellow sufferers still looking for answers... (because many/most B-Vitamin deficiencies up to 80 percent of the time (especially a Thiamine Deficiency) is going undiagnosed or misdiagnosed in other diseases)....and probably a Riboflavin Deficiency too because they occur together.... Read the blog post and you will see what I mean.... Note: this Posterboy blog post will have 2 portions…. A high level summary and an Appendix/Addendum list of available resources that support these suppositions… Depending on whether you have read the other Posterboy blog post(s) will determine how you want to read this one…. If this is your first then read it all…IF you have read other Posterboy blog posts…then just jump to the Appendix where the references/additional resources are….and all the dirty details... The Posterboy blog post starts now…entitled "How Low B Vitamins can Trigger a Celiac diagnosis and be Mistaken for a Genetic Disease" For a while now (10 to 12+ years now)…..I have been studying B-Vitamins to see what role if any they (B-Vitamins) might have in regulating our Immune System and if they could be the trigger for my GI problems or could have been mistaken for my Celiac disease diagnosis…. Note: I did not say my Celiac disease….but my diagnosis as a Celiac….see Appendix for other possible triggers. I had written two previous articles/Posterboy blog posts one about Thiamine (Beri Beri) aka Vitamin B1 and one about Niacin (Pellagra) aka Vitamin B3. Provided here for easy reference.....if you want to go back and read them sometime... Both play a critical role in our immune system and down regulate inflammation pathways in the body… This Posterboy blog post/article unites the two into an "Elegant Theory" of how and why these occur together in Celiac disease. I had previously done an unpublished article/blog post on Riboflavin….which I might share in the future (but probably not at this point) This Posterboy blog post will serve as the argument (thesis) that Riboflavin deficiency is common in Celiac’s going commonly undiagnosed/misdiagnosed….much like the other B-Vitamin deficiencies of Thiamine (B1) and Niacin (B3) in Celiac’s. I have now found that it is a cascade of all three of these B-Vitamins and maybe 4 (beyond the scope of this blog post Vitamin B6)….. B1, B2, B3 work synergistically together to control inflammation in the body. I found first that Pellagra could be common in Celiac’s going undiagnosed/misdiagnosed…. Then I found that Beri Beri might also be the reason for Celiac’s thin Villi…. SO I had to write about it/that too!.....but no ONE Vitamin/Mineral answered all the questions…. So that made me think I could be wrong about the Pellagra question (in part) at least… IF there is NO SKIN issues IE DH with your Celiac diagnosis then you have NOT YET developed Pellagra…. but more appropriately Pellagra Sine Pellagra…..or Pellagra without skin issues…. And brings me to the point of my current Posterboy blog post. I believe that most Celiac’s have developed Pellagra Sine Pellagra. Now granted they developed Beri Beri FIRST….because B-Vitamin deficiencies NEVER happen alone…. It (Celiac disease) is a sequalae (aftermath) of B-Vitamin deficiencies…and possibly some Minerals like Magnesium and Zinc and Copper etc….(Again beyond the scope of this post) See this Posterboy blog post to see how nutrients (IE Vitamin and Mineral Deficiencies), Genetics and your Environment (STRESS) interact…. To produce disease… So how did I arrive at Pellagra Sine Pellagra instead of Pellagra or Beri Beri (only)…. Because you definitely develop Beri Beri (FIRST)…..why not continue on the Pellagra tack… There is a couple of distinguishing features between the two most notably the level of SKIN involvement…. Pellagra is a very VISUAL disease…..IF you don’t have DH or other Skin problems then you have not yet developed Clinical Pellagra…. But Pellagra Sine Pellagra a Riboflavin deficiency has all the same symptoms of Pellagra without the pervasive skin issues… Make no mistake about it….I had already developed Beri Beri first (horrible fatigue) and Peripheral Neuropathy etc…. They typically occur together…..because as noted earlier B-Vitamin deficiencies don’t occur alone… ONE will affect the others… And why I landed on B2 (Riboflavin) instead of B3 (Niacin)…. The 2nd clue was the pervasive Iron deficiency issues most Celiac’s develop. Is Notable that Iron Deficient Anemia aka IDA is very common in Celiac’s… And people have forgotten how Riboflavin aka Vitamin B2 plays an important role in Iron deficient anemia… https://pubmed.ncbi.nlm.nih.gov/31318024/ Riboflavin deficiency individuals often have fertility problems as well… I too had these same problems that got better after Riboflavin supplementation… Riboflavin again aka Vitamin B2 can cause people to have Hypothyroid problems…..which again was me three…. got better after Riboflavin supplementation… Reason number 4) Anxiety can be the first sign of a Riboflavin deficiency check that one off too! Reason number 5) Riboflavin is the trigger for a Homocysteine problem…..commonly diagnosed as MTHFR Gene defect…. https://chrismasterjohnphd.com/blog/2019/02/26/mthfr-just-riboflavin-deficiency/ Check, Check, Check, Check, Check….I had all the signs of a Riboflavin deficiency and the doctor’s missed them ALL! Not to mention the hallmark angular cheilitis (Leaky Lips) for years…..and the doctor could only recommend for/to me was to stop leaking my lips sooooooo much! ALL this symptom’s and more got better after supplementing with Riboflavin…. SO that is why I know Pellagra Sine Pellagra happened to me and is also happening in other Celiac’s going undiagnosed/Misdiagnosed. The Iron Deficient Anemia…..can be treated (in many if not most cases) with either/by treating your Low Stomach Acid or by taking Riboflavin and/or Copper. See this research entitled “Is achlorhydria (No Stomach Acid) an (independent) cause of iron deficiency anemia” https://pubmed.ncbi.nlm.nih.gov/25994564/ The answer was a resounding yes! So, I had developed low/NO stomach acid as the trigger for my Celiac/NCGS diagnosis… AND just what another intrepid research discovered/studied 35+ years ago and was promptly forgot and never believed….the more things change…the more they stay the same! See this research entitled “Gastric morphology and function in dermatitis herpetiformis (DH) and in Celiac disease” https://www.ncbi.nlm.nih.gov/pubmed/3992169 That should be the end of the discussion…..but It won't be....while their patients suffer...they will do more studies about it! Quoting the whole abstract for emphasis! Abstract “Gastric acid secretory capacity was evaluated in 116 patients with dermatitis herpetiformis by means of the pentagastrin test. Endoscopic gastric mucosal biopsy specimens were obtained from both the body and the antrum in 90 of them. Forty-eight patients (41%) had a maximal acid output less than 10 mmol/h, and 30 of them (26%) were achlorhydric. T he frequency of achlorhydria increased with age, and 27 out of 58 patients (47%) more than 50 years old were achlorhydric. Antrum-sparing chronic atrophic gastritis was present in 92% of the achlorhydric patients, and hypergastrinaemia and serum parietal cell antibodies were found in most of them. The prevalence of chronic gastritis of the body and of the antrum increased with age. There was no correlation between atrophic gastritis or achlorhydria and small-intestinal villous atrophy, the results of the D-xylose test, and blood folate and serum zinc determinations. The transferrin saturation index was lower in patients with achlorhydria. The frequency of achlorhydria was significantly higher in patients with dermatitis herpetiformis than in 69 patients with celiac disease.” Note: 90+ percent of Celiac’s have NO stomach acid (at all)….this is not counting the percent of Celiac’s where just Low in Stomach acid….mind you This was not in NCGS but a study of Celiac’s who were already diagnosed as Celiac’s…. But EVEN this is not enough to get some people to believe!!!! The research is out there…..this is a Classic example of Co-Morbidity….IE a Sequelae of one condition triggering the other! The aftermath of B-Vitamin and Mineral deficiencies of Zinc, Magnesium, B1 (Thiamine), B2 (Riboflavin), B3 (Niacin) and possibly Copper is being diagnosed as NCGS and/or as Celiac disease diagnosis IMHO! It is my hope by sharing this old research rediscovered that at least ONE other person will believe me (YOU) and be helped! Use a Celiac disease diagnosis as the way back. . . . not the end of the road for your health but the beginning of your way back to health! As the I have the Lord being my help! As I am fond of saying “To Educate is to truly free!” Where there is a free exchange of knowledge there is health and peace for one’s soul and body! So, what can I do NOW about this know that I know B-Vitamins might help my Celiac diagnosis? There is “No Formula” but this is the best advice I can offer you. Take a B-Complex AND a Benfotiamine (Fat Soluble B-1) or other Fat Soluble B-1s like AlliThiamine or Lipothiamine (harder to find) AND a Magnesium Citrate (with meals) or Magnesium Glycinate (anytime) 2x to 3x a day (with meals) for 3 to 6 months. (IF you are not taking an acid reducer like a PPI or H2 Blocker (better of the two kind with less long term side effects) ) you will begin to burp continuously even up to 2 hours after you have finished your meal….. and between meals with the smallest snack… producing the biggest BURPS you have had in years, and years. Don’t stop for at least 6 months….don’t stop taking them when you begin burping (again without bloating/gas distension) BUT continue for 6 months till BURPING without these other symptom’s and a regular movement will become your new normal. You are now again digesting proteins in your diet triggering a food allergy. What I didn’t know at the time was that Pellagra is a “Capstone” diagnosis and not the “Cornerstone” disease. Pellagra is definitely happening in Celiac’s because Tryptophan has been shown the ability to be a therapeutic for Celiac’s. See this research about it… https://www.eurekalert.org/pub_releases/2020-10/aaft-tri101920.php Here is another article about the same research indicating Tryptophan as Therapeutic treatment for Celiac’s… https://www.news-medical.net/news/20201023/Intestinal-microbiota-offers-new-prospects-for-treating-celiac-disease.aspx Confirming that when you develop “Leaky Gut Syndrome(s)” you have developed Pellagra. But Pellagra does not happen alone and is not the trigger….it is the combination of multiple B-Vitamin deficiencies beginning with Low Thiamine (B1), then Low B2 (Riboflavin) and finally Low Niacin (B3) aka Niacinamide presenting as DH in Celiac’s… I did not develop Pellagra but Sine Pellagra instead! Note: as to not overpower the reader (you) with too much information see addendum/appendix for more reference’s resource where you can read to your Heart’s content (as much) or as little as you need to help you understand these “Lost Connections” explaining how the Chicken came before the Egg (Diagnosis). First you develop Low B-Vitamin deficiencies (IE Thiamine deficiency or undiagnosed Beri Beri) THEN your Villi Thin and THEN you develop Pellagra Sine Pellagra a Riboflavin deficiency leading (in time) finally to a/your Celiac diagnosis! Also Note: SIBO and Cows Milk Protein IE Casein (not Lactose as is commonly believed) might also be a problem for you. See the Appendix for more details. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. I hope this is helpful but it is not medical advice. Posterboy by the Grace of God, ADDENDUM/Appendix Resources Thiamine the Overlooked Vitamin That Improves Autoimmune Disease And Autonomic Dysfunction https://awaken.com/2021/02/the-overlooked-vitamin-that-improves-autoimmune-disease-and-autonomic-dysfunction/ The issues/symptoms of a Thiamine deficiency hide in other diseases…. It is only suspected (tested) for in diseases with high clinical suspicion such as Alcoholics and Anorexic’s etc…. Also here is a nice overview of how to recognize a Thiamine deficiency… https://healthprep.com/articles/fitness-nutrition/guide-symptoms-thiamine-deficiency/#:~:text=Weight loss may occur in a thiamine deficiency,individuals called AMP-activated protein kinase (AMPK) becomes impaired. Here is the best thread on a Thiamine deficiency and its many presentations/faces/symptoms on Celiac.com for more resources on Beri Beri in GI diseases like Celiac disease and IBS etc. Recently Celiac.com wrote an article linking AnitGAD antibodies to Celiac disease. So that set me out to see if there was a link between Gluten Ataxia and AntiGAD antibodies…. And it turns out AntiGAD antibodies are diagnostic confirmation of a Thiamine deficiency in Celiac’s manifesting themselves as Gluten Ataxia… See this research that explains the connection… entilted “Wernicke's encephalopathy: an excitotoxicity hypothesis” https://pubmed.ncbi.nlm.nih.gov/9346467/ This confirms exactly what is happening in other GI diseases like UC and Chrons. See this research entitled "Wernicke Encephalopathy in Crohn's disease and Ulcerative Colitis" https://www.sciencedirect.com/science/article/pii/S0899900721000447 AS if often the case in WE the treatment is too little too late….let's not let the same thing apply/happen to Celiac disease patients too! IF the research on UC and Chrons’ is to be believed Low Thiamine level’s can be a predictor of disease severity and recovery. NOW a similar study needs to be done to confirm my many years of research proving once and for all…. A Thiamine deficiency is the trigger for Thin Villi! Note: The Hormones Matter website is the best Thiamine resource on the web….and EON Health is a close second. Zonulin a Marker for Niacin deficiency Links/Resources https://alobar.livejournal.com/2930798.html#%2F2930798.html Dietary Tryptophan Enhanced the Expression of Tight Junction Protein ZO-1 in Intestine: Trp enhanced tight junction protein ZO-1… https://www.researchgate.net/publication/312962348_Dietary_Tryptophan_Enhanced_the_Expression_of_Tight_Junction_Protein_ZO-1_in_Intestine_Trp_enhanced_tight_junction_protein_ZO-1 Dietary l-tryptophan alleviated LPS-induced intestinal barrier injury by regulating tight junctions in a Caco-2 cell monolayer model https://pubmed.ncbi.nlm.nih.gov/30977499/ Intestinal permeability IE Leaky Gut and oxidative stress in patients with alcoholic pellagra (reversed with Niacinamide) https://pubmed.ncbi.nlm.nih.gov/16713031/ Which is what the latest research confirms Tryptophan can be used in Celiac’s to heal Villi https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx Does Going Gluten Free Provide Relief or All Celiacs? The answer is NO! https://medicalxpress.com/news/2021-02-gluten-free-diets-cure-all-celiac-disease.html And why I recommended B-Vitamins as an adjunct treatment for Co-Morbidities that happen in Celiac’s. This a complimentary approach. See this Posterboy blog post that discusses the B-Vitamins that might help treat a Celiac diagnosis About 40 pct of Celiacs are NOT helped when they go gluten free. This is about what else someone can do that is still triggering Villi blunting when eating gluten fee is not enough to heal your Villi??? Three or four of the most common triggers (IMO) for continued GI inflammation (Issues) in IMO are Milk (Cows’ Milk Protein) aka CMP in the literature. See this great Celiac.com article about how Milk in peoples diet can also trigger Villi Blunting… A reaction to Cows Milk Protein (Casein) can happen in up to 40 percent of Celiac’s… See this nice study on the issue of Caseins’ also triggering an Immune response in Celiac’s Entitled “IgA anti-gliadin antibody immunoreactivity to food proteins IE Cows Milk Proteins” https://www.tandfonline.com/doi/full/10.1080/09540100400003204 You can just read the abstract and not surprising it is 15+ years old and only recently Celiac.com did an article on it….. people can’t wait another 15 years for the medical community to pick up on this connection and why I am writing this blog post NOW! 2) SIBO can happen in the Majority of Celiac’s Note: This study is about SIBO happening in Celiac’s already treated with a gluten free diet. Almost 2/3 of Celiac’s symptoms got better after treating their underlying causes for a Celiac diagnosis such as SIBO in this study. 3) B-Vitamins that become low when one has SIBO You will find this a common theme…..after treating Celiac disease…..continued symptoms continued until the underlying cause(s) like SIBO, Cows Milk, Low/NO stomach acid or Medicines keep triggering Villi blunting… I can only tell you it helped me to treat my underlying cause’s like Low Stomach Acid and my B-Vitamin deficiencies going undiagnosed as part of Celiac disease diagnosis. See this new research that verify this fact from 2020 just a year old…from Chicago University https://medicalxpress.com/news/2020-02-mouse-celiac-disease-treatments.html Where they note quoting “Even while maintaining a strict gluten-free diet, 40% of celiac disease patients still show signs of inflammation and villous atrophy, or damage to the villi, the small, finger-like protrusions in the small intestine that help absorb nutrients. Therefore, treatments that can reverse or prevent the disease are greatly needed to improve quality of life for people with celiac.” Tryptophan can do that. So can B1 (Thiamine), B2 (Riboflavin) and B3 (Niacin) if you can believe the latest research on this topic. Some of it is 15 or 20 years old now….and doctors are not aware of this groundbreaking research. 4) Low/NO Stomach Acid See this research discovered 30+ years ago entitled “Gastric morphology and function in dermatitis herpetiformis (DH) and in Celiac disease” https://www.ncbi.nlm.nih.gov/pubmed/3992169 Celiac’s are suffering now and can’t wait another 10 or 15 years before they rediscover this research on their own! I wrote a Posterboy blog post about this too about how Low/NO Stomach acid could be the trigger for a subsequent Non Celiac Gluten Sensitivity diagnosis aka NCGS ….but few people seemed to understand it… Recently PPIs use has shown to trigger a Celiac diagnosis…..and yet nonchalantly this research is minimized…. among other medicines that can also trigger Villi Blunting (Atrophy) with use… See this Celiac.com thread about it…how PPIs, NSAIDS and SSRIs use were found to be associated with Villi Atrophy and subsequent Celiac diagnosis. See also this thread about how some Blood Pressure Medicine might blunt your Villi…. Back to the discussion at hand….how Zonulin can be a biological marker for a Niacin deficiency… This is important because Niacin is used in Stomach Acid production…. Zonulin as a marker for a (Low) Niacin levels aka Deficiency confirms IMHO a metabolic trigger for Pellagra going undiagnosed in Celiac disease. The IJCD noted this association of Pellagra in Celiac’s in 2015…..where they noted the majority or 58 percent approximately of Celiac’s would be Co-Morbid with their Celiac disease. It just nobody has followed up on these associations…..because you can’t see Pellagra in people until Skin Rashes develop….. by then DH has been diagnosed as a symptom of Celiac disease and by then you are too late! Doctors can’t see how these two diseases are connected but researchers can……. and fellow sufferers who have suffered at the hands of Doctor’s ignorance of the 4 Ds of Pellagra…. They get a D+ on recognizing Pellagra, Beri and Beri and Pellagra Sine Pellagra in Celiac disease today! IT is no one’s fault….IT is the process. There are not good B-Vitamin tests to determine the status of B-Vitamin deficiencies in Celiac’s and other GI patients. The FIRST good study about this is the link I noted above that confirmed the SEVERITY of the Thiamine deficiency IE Beri Beri predicted the SEVERITY of UC and Chron’s patients! Provided here again for easy reference… See this research entitled "Wernicke Encephalopathy in Crohn's disease and Ulcerative Colitis" https://www.sciencedirect.com/science/article/pii/S0899900721000447 Why would we not think it would be the same for Celiac disease! And IF the research is to be believed low Zonulin levels are an indicator of Low Niacin levels aka Pellagra in it’s most severe presentation of perfuse Skin Lesions….being diagnosed as DH today! ETA: Found only this month (week) while writing this article/blog post Very recent research Circa 2021 also confirmed that eating gluten free alone does not heal all Celiac’s making supplementation with B-Vitamins (IMHO) and Magnesium, in part, an essential treatment for those suffering from inflammation not due to gluten! See this research entitled “Do gluten-free diets provide a cure-all for celiac disease” and the answer is unequivocally NO… In a subset of Celiac’s. https://medicalxpress.com/news/2021-02-gluten-free-diets-cure-all-celiac-disease.html Quoting their conclusion(s) A significant number of patients previously thought to be well-treated by a gluten-free diet may in fact require additional interventions to fully curb their gut inflammation. Don’t be surprised if takes another 10 or 15+ years of “more study” to confirm these findings! Each generation much pass on their knowledge to the next….or it soon becomes lost again… This is my humble attempt to pass on that knowledge. To quote Isaac Newton “I do not know what I may appear to the world, but to myself I seem to have been only like a boy playing on the seashore, and diverting myself in now and then finding a smoother pebble or a prettier shell than ordinary, whilst the great ocean of truth lay all undiscovered before me.” — Isaac Newton I did this first for myself…..with the hope that it might help others someday. 3 Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4 Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. It is my sincerest hope that I was able to throw a few “Starfish” back. But I fear I have not helped enough! http://www.starrbrite.com/starfish.html The Starfish Story Original Story by: Loren Eisley "One day a man was walking along the beach when he noticed a boy picking something up and gently throwing it into the ocean. Approaching the boy, he asked, What are you doing? The youth replied, Throwing starfish back into the ocean. The surf is up and the tide is going out. If I don’t throw them back, they’ll die. Son, the man said, don’t you realize there are miles and miles of beach and hundreds of starfish? You can’t make a difference! After listening politely, the boy bent down, picked up another starfish, and threw it back into the surf. Then, smiling at the man, he said I made a difference for that one!" Part 4 Additional Resources Is COVID 19 primarily a GI disease first See this research entitled “Severe COVID19 Is Fueled by Disrupted Gut Barrier Integrity” https://www.medrxiv.org/content/10.1101/2020.11.13.20231209v1.full Is “Leaky Gut Syndrome” a sign of Vitamin/Mineral deficiency See this research entitled “Regulation of the intestinal barrier by nutrients (Nutrition): The role of tight junctions” https://onlinelibrary.wiley.com/doi/10.1111/asj.13357 And this one entitled Intestinal permeability and oxidative stress in patients with alcoholic pellagra https://pubmed.ncbi.nlm.nih.gov/16713031/ See also the is Live Journal article about how Zonulin can be a “Marker for Niacin Issues”….IE is Zonulin a sign of Pellagra going undiagnosed or Misdiagnosed as Celiac disease today! https://alobar.livejournal.com/2930798.html#/2930798.html I can also recommend this blog post on Zinc deficiency by Blue Sky
  10. Genetics Nutrition and Stress the Threeway Model of How Gluten Triggers an Immune Reaction in Severely Malnourished IE Vitamin Deficient Individuals consuming a High Calorie Diet This blog post is WTL again....I tried breaking it into to two Posterboy Blog posts but decided to go ahead.... And post it instead as one due to other things IRL that are taking up most of my time these days..... So thanks in advance to every one who actually completes it! I truly believe it will help everyone who reads it and UNDERSTANDS! This Posterboy blog post is for everyone who got lost in the “Forest of Data” and never found their way out! As I am fond of saying “To Educate is to truly free!” Where there is a free exchange of knowledge there is health and peace for one’s soul and body! The journey of a thousand miles begins with the first step….that step back to health for me was my seemingly rare and not well understood Celiac disease diagnosis… I then began my journey….to learn at least what the doctor’s knew about this diagnosis….and exceed it if I could… But I got lost in the forest of data….for years…going around in circles…or so it seemed at the time… See my first attempt to hack/machete my way out of this sad forest (of illness) I was in… https://www.celiac.com/celiac-disease/a-differential-diagnosis-how-pellagra-can-be-confused-with-celiac-disease-r3989/ But I soon learned to spot clues as I read more and more studies….trends, patterns…in the data begin to emerge… one tree (study) at a time…I was able to blaze a trail back out of the forest… I can honestly say I am out of the forest now….and by blazing this trail….I hope I have left enough markers (IE posterboy blog posts/articles etc.) to help the next person out of this forest of symptom’s….. I had over focused on every shiny thing I found (individual Vitamin Deficiency one tree at a time)…. I begin to identify each Vitamin (tree of health) in this vast forest… I had settled on the 3 alarm fire of Pellagra….I didn’t know how wrong and right I was at the same time… It would take years to figure this out (as I walked around in circles)….it is what others had concluded before… The IJCD had concluded the same thing a couple years earlier… http://pubs.sciepub.com/ijcd/3/1/6/ They confirmed for me…it was possible… They noted: on how Pellagra occurred in Celiac disease… Pellagra and celiac disease “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40].” So Eureka! I had found what was being misdiagnosed as Celiac disease instead… 58% was good….I was more than halfway there….being right and wrong all at the same time! Then I found that there was another disease that explained these connections even better! https://www.celiac.com/celiac-disease/how-low-thiamine-can-thin-villi-old-research-rediscovered-and-its-clinical-significance-in-celiac-disease-r5100/ Now I had found out what was really causing my problems! I thought…and once again I was right and wrong all at the same time…. While my aim was dead on….it was nutrients (or lack thereof more correctly) causing my health problems… I had become too myopic only seeing individual trees and the not the forest ….for what it was a healthy place to live and thrive and fruit for meat and leaves for medicine… It was all the trees (at least 3 in particular)….together forming a Web of Life… To pivot from the metaphor to hard science (in real life aka IRL) ….how do know this analogy is true….or truer than not! To see if this is true we have to dig deep in the forest of data….and see what it tells us… See this research entitled “Pellagra in the USA: unusual manifestations of a rare entity” https://casereports.bmj.com/content/12/9/e230972 On the surface….it is just as we would suspect…Pellagra is rare in the USA…right only in Alcoholic’s right…. But we if we dig a little deeper….we learn something from this good research… Quoting from their abstract… “They/She had adrenal function testing which revealed adrenal insufficiency. Vitamin testing revealed normal B12 and folate levels but undetectable levels of thiamine, riboflavin and niacin. Her symptoms and signs resolved entirely with appropriate vitamin supplementation. Niacin (vitamin B3) is essential for multiple metabolic pathways, and severe deficiency may cause clinical syndrome of pellagra, which is most commonly associated with diarrhoea, delirium and dermatitis.” Notice the bolded Vitamin Deficiencie(S)….not one deficiency but many deficiencies culminating the a “Capstone” disease diagnosis…. Now why did this researcher not say the patient had Beri Beri (B1 deficiency), or Pellagra Sine Pellagra (B2 deficiency) instead…they/she had ALL these deficiencies…. Because B-Vitamins don’t occur alone or uncomplicated….so I was right to say I had gone on to develop (mostly) Pellagra ….except I didn’t have Skin (dermatitis) problems like DH etc….so I had only developed Pellagra Sine Pellagra instead…(so far)… But I had already gone on to develop Thiamine deficiency aka Beri Beri and the doctor’s had already missed it…. So why should I be surprised they missed me having a Riboflavin deficiency too! What most people don’t know (even doctor’s) don’t realize today….and I have recently found out that Pellagra has been incorporated into Celiac disease today….. Celiac disease is a three alarm metabolic (deficiency syndrome/disease) ramped up by each B-Vitamin you become low in …..in time…. It is a Cascade….like falling domino’s….one falling triggers the others too fall as well… Let’s see if there is research to backup this claim…. See this research published before 1950 (15+ years) before DH was associated with Celiac disease…. https://www.jidonline.org/article/S0022-202X(15)50482-X/pdf They show that DH was successfully being treated with Nictonic Acid aka Niacin more than 15 years before DH was described in the Skin of Celiac patients… Quoting from their summary “In a series of 12 patients with dermatitis herpetiformis of various degrees of severity, the oral administration of niacin in doses of 50 to 200 mgm. four times daily relieved the pruritus (Itching) and improved the cutaneous manifestations.” Yet today we exclusively “see” through50+ years of error(s)…having forgotten that DH can be treated with Niacin…. thus confirming a Pellagra diagnosis in a Celiac patient… It is the third phase (3 alarm stage) of the Vitamin Deficiencies you have now developed…. Don’t be surprised if the doctor’s don’t see your Vitamin Deficiency even then… Because in classic genetics….the environment and nutrition is discounted as limited factors….in disease… But other researchers are now rejecting this myopic view realizing Environment (Viruses etc.) and Deficiencies IE (Vitamins and Minerals) ALSO play a part in the pathogenesis of disease in an equal 50/50 mix…. See this 2 year old research that summarizes such an hypothesis entitled… Reovirus infection triggers inflammatory responses to dietary antigens and development of celiac disease Here is the link…to this seminal and groundbreaking research… https://science.sciencemag.org/content/356/6333/44 /tab-e-letters Where Doctor Leslie M. Klevay , Prof. Emeritus, Department of Internal Medicine University of North Dakota School of Medicine and Health Sciences says quoting “In the original classification scheme, Celiac disease would have been considered a toxic deficiency (3) similar to Wernicke’s encephalopathy in which excessive ingestion of ethanol induces thiamine deficiency. Now some celiac disease can be considered a three-way cooperation among an infection, a toxin and a deficiency. Other three- and four-way cooperations have been identified.” Here is longer and probably better description how Virus's (Environment) or IE Epigenetics could/can trigger an Genetic disease like Celiac disease... https://www.gutmicrobiotaforhealth.com/virus-may-lead-celiac-disease-disruption-intestinal-immune-homeostasis/ The research is a couple years old.....also the Epstein Barr Virus has also been associated with Celiac disease. Dr. Londsdale says we need a “new Model” for Medicine… https://www.hormonesmatter.com/new-model-medicine/ I say we need a better one that acknowledges the environment and deficiencies as important or as important as genetics…. Other researchers have noticed the same thing….your environment and deficiencies are not being taken into account for Celiac’s. See this recent research that says the same thing entitled “Genetic risk factors for disease can be affected by environment” https://www.upi.com/Health_News/2017/08/16/Genetic-risk-factors-for-disease-can-be-affected-by-environment/4251502820421/ Not only are genetic risk factors for Celiac disease being affected by your environment…. they are effected by your deficiencies like Thiamine, Riboflavin and Niacin…. We know this because they have been studied (these three B-Vitamins) for toxic overload in Sepsis…. where the Auto-immune system goes haywire and results in death… See this research in Rats https://pubmed.ncbi.nlm.nih.gov/30903555/ It will take a few years for this study to be confirmed in humans….while more studies are performed more people will be dying of Vitamin Deficiencies…. Despite 8+ years ago Riboflavin has been proven to treat (MADD) disorder resulting in acute Renal Failure…. https://www.jstage.jst.go.jp/article/internalmedicine/50/21/50_21_2663/_pdf/-char/en People still think it is 70/30 genetics or even 80/20 genetics… Recent research for Celiac disease proves it is no more than 50/50 percent Genetics/Environment IE (Vitamins deficiency etc. AKA malnutrition) It is my hope that clinical practice will quickly catchup with the newest/latest research proving DNA/Genetics usually has less than 50pct of the risk factors for Celiac disease and accept many Vitamin deficiencies are prevalent as co-morbidities and need to be addressed before a Valid Celiac diagnosis can be accepted/confirmed…. See this studied that confirms this in Celiac’s https://www.genengnews.com/news/dna-has-relatively-little-say-in-disease-risk-usually/ Where they say quoting “It is becoming increasingly clear,” explained Wishart, “that the risks for getting most diseases arise from your metabolism, your environment, your lifestyle, or your exposure to various kinds of nutrients, chemicals, bacteria, or viruses.” And though Celiac disease is a disease consider to have a higher genetic factor it is now believed to be no more than 50% of the risk factor …..as once commonly believed… quoting again “There are diseases, however, for which the genetic contribution is about 40–50%. These diseases include Crohn’s disease, Celiac disease, and macular degeneration.” But I don’t believe they (doctor’s/Clinicians) will……memory has a “longtail” of approximately 18 years from new research reaching clinical practice on average… Appropriate supplementation is consider a key part of “Aftercare” for Celiac’s ….it needs to be part of appropriate disease diagnosis (IMHO)….so you don’t continue to suffer from the avoidable and treatable diseases that often in as many as 80pct of patients are found out Post-Mortem….as is the case in Wernicke Encephalopathy (WE)… etc.…and it should be NOTED 80% of WE is not diagnosed in Alcoholics….. it is happening in Celiac’s today and/or passed off as other GI diseases like Chrons, IBS, UC etc. and psychiatric or neurogenerative diseases today…. https://www.hormonesmatter.com/beriberi-the-great-imitator/ see this current research on Thiamine Deficiency and Benfotiamine Therapy in Brain Diseases https://biomedgrid.com/fulltext/volume3/thiamine-deficiency-and-benfotiamine-therapy-in-brain-diseases.000621.php You will fell half-dead if you continue to have these deficiencies if they doctor don’t also treat you for these co-morbidities despite being on a gluten free diet! I know I did….Ignorance kills!....but It maims us first! I hope this is helpful but it is not medical advice…. Posterboy by the Grace of God At this point I am only making one Posterboy blog post....see following/below for more technical studies...... Showing how and why this is true and how the doctor's missed it! Note to Self::::::))))) Put this a Part 1 of the Blog post and then link the Smoking Gun research on Tryptophan… ADDENDUM IF this analysis is true and a good working Theory and not just a good hypothesis we would find research that shows Tryptophan is important in the pathogenesis of Celiac disease and new research in 2020 confirmed this analysis. Celiac.com ran a summary of the research but I will link a good synopsis for others to read for themselves showing how Celiac’s have impaired metabolism of Tryptophan. https://www.celiac.com/celiac-disease/tryptophan-in-turkey-meat-can-speed-gut-healing-in-celiac-disease-r5338/ This good synopsis of this working theory shows how Tryptophan speeds gut healing in Celiac IMHO proving Pellagra is happening in Celiac’s. I would recommend reading it ALL when you get a chance. https://www.gutmicrobiotaforhealth.com/gut-microbes-in-celiac-disease-show-impaired-metabolism-of-dietary-tryptophan-according-to-researchers-at-mcmaster-university/ And like most “All” good medical research….they always conclude “more research/study” is needed…. Well people can’t want another 10 or 15 years until this research is again confirmed (and again) See this research entitled “Kynurenine pathway metabolites in humans: disease and healthy States” https://pubmed.ncbi.nlm.nih.gov/22084578/ This connection was established at least 10+ years ago….and now we can say for SURE IMHO that this metabolic breakdown is triggering inflammation in Celiac’s leading, in time, to a Leaky Gut! Again, I want to say (make note) that the International Journal of Celiac disease aka IJCD first noticed this connection 5 years ago…will it take another 10 or 15 years before it is “accepted” medical research??? I hope not: but I AM honestly not encouraged!!! This was meant to be a 2 part blog post….so It doesn’t get too long and too technical…but I have decided to publish it all at once now that I am working through some other health issues at the moment! If this is true….there should be studies about these facts….and there is…. I have argued IT is ONE immune system with multiple presentations of the difference Phases of Vitamin Deficiencies…. We see how this works in the LUPUS Inflammation Model I wrote a Posterboy blog post about these connections…. https://www.celiac.com/blogs/entry/2709-the-lupus-inflammation-model-for-sickness-beginning-with-b-vitamin-deficiencies-in-celiacs-and-other-inflammation-triggered-diseases…/ Here is the recent research it is based on…describing how IL-2 and IL-6 combine to help control the immune system…. We see this Alcoholic’s too…in how Niacin can help Leaky guts… See this Celiac.com thread about this topic… https://www.celiac.com/forums/topic/126496-intestional-permability-could-a-vitamin-deficiency-cause-it/?tab=comments#comment-1009633 And that is exactly what we want to fix in Celiac’s right….well B-Vitamins do that! And we see B-Vitamins are low in other chronic inflammation GI diseases like IBS, Chron’s and UC…because there is ONE Immune System! See this research entitled “Blood Concentrations and Renal Clearance of Water-Soluble Vitamins in Outpatients With Ulcerative Colitis” https://pubmed.ncbi.nlm.nih.gov/30906550/ Quoting “The blood concentrations of vitamins B2, C, niacin and folate were markedly lower in the patients with UC than those in the control group, and the renal clearance of vitamins B1, B6, B12 and folate was notably higher in the UC cohort. It was concluded that vitamins B2, C, niacin and folate were at significantly lower concentrations in patients with UC following adjustment for coexisting factors. The lower levels of niacin may be partially due to impaired reabsorption. Chronic inflammation, common in patients with(my words and/or chrons, IBS etc. and Celiac disease), with UC may contribute to the lower levels of other vitamins by rendering amino acid and carbohydrate metabolism into a hypermetabolic state. As the role of vitamins in metabolic activity is constant and pervasive, nutritional management including the application of water-soluble vitamins appears important for patients suffering from UC.” It is me again….why wouldn’t we think this would be the same in Celiac’s…..and why I believe the new research that shows Tryptophan helps heal Celiac Villi is key to understanding/proving Celiac is Pellagra in disguise in the 21st Century! It is time testing is done to confirm these same B-Vitamin deficiencies in Celiac’s is all I am saying so the Co-morbidities can be treated…leaving a true diagnosis… If not the same Vitamin Deficiencies could be confused for Celiac and you will never be sure if you ever received the proper diagnosis…. I have had to figure this out on my own….this is written so you won’t have t o suffer like I did for year’s going undiagnosed despite a Celiac diagnosis…. Two front wars are rarely winnable. Disguise is a great trick of the enemy. For if you get the wrong diagnosis then the symptom’s never getting better and the battle/war rages on. But What If you have the wrong disease? Would you get better? This is dedicated to those still suffering who are willing to ask why? am I still suffering GI symptom’s on a Gluten free diet? Since (auto-immune) or disease in general rarely occur alone it only makes sense to tackle the easiest one’s first. There are two camps/type of people. (It is true in many things of life). Supplementing or not to supplement is the 64K dollar question. The one’s who believes in supplementing readily attack the front (symptom’s) on/from whatever artillery (vitamins and minerals) they can find to shore up their defenses. The other camp prefers to hunker/bunker down and wait for reinforcement/symptom’s to get better and the battle/siege to pass. But in war there is an old saying. “A city besieged is a city taken”. I know there is a lot of confusion out there. … I have been YOU! I am just trying to help those who are still suffering (losing the war). For a battle the war was lost. And many battles’ are lost from confusion…. Knowledge is power …..know you have to power to move forward! It is been said Doctor’s miss Celiac’s in 90% of their patients… https://www.celiac.com/articles/24919/1/Are-Doctors-Missing-90-of-Celiac-Disease-Cases/Page1.html It is equally true about how often Vitamin Deficiency are missed in Celiac’s… “How could this be? One reason is that even classic Celiac disease symptom, such as abdominal pain, bloating, gas, diarrhea, anemia and weight losscan mimic other conditions. Less classic symptoms such as fatigue, low vitamin C, D and calcium levels can be misleading.” Lupus is known as the great imitator disease. And Celiac or is it Pellagra could be called the same in 87% of cases if you are lucky. And so is Beri Beri… https://www.hormonesmatter.com/beriberi-the-great-imitator/ Imitation is the sincerest form of flattery — Unless it is medicine then it is the unkindest cut. . . How do we know this is true…we can predict that Pellagra would develop in Sorgen’s disease aka SLE or LUPUS and it does…where they ask how confident are you of your diagnosis…explaining DH in detail (IF) you did not know it also described Pellagra instead (Rough Skin)… https://www.dermatologyadvisor.com/home/decision-support-in-medicine/dermatology/pellagra/ Dermatology doctor’s get it because a Niacin deficiency is 90% classically described as a skin disorder first and foremost…. But Beri Beri and Pellagra GI’s problems are a forme fustre of WE’s….FIRST a Thiamine deficiency and finally a Niacin deficiency when it present’s as DH today! See this research that explains how the first signs of these Vitamin Deficiencies are GI related… .entitled“Gastrointestinal Beriberi: A Forme Fruste of Wernicke's Encephalopathy?” https://pubmed.ncbi.nlm.nih.gov/29982183/ I can only hope what I have shared here has lifted the tide of knowledge a little and your boat/that has been lifted enough for you to freely sail again. Learn from my mistakes! No body is so dumb who won’t learn from other people’s mistakes! A valid I dare say standard “process” of modern/good medicine is the differential diagnosis. If it is not the doctor has not done justice for you or YOU for yourself . … A “differential diagnosis” makes more sense. They have not done YOU justice. Isn’t that what we all want – to know just what we need to do to get better that is justice/peace and good medicine. We are our own best advocate! I share that other’s may know to look for these Vitamin Deficiencies if you too received a Celiac diagnosis and the Doctor’s don’t “See” it in your face….like those of nearly 70 years ago who were treated for DH by Niacin(amide)…… 15+ years before DH was ever linked to Celiac disease Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. As I am fond of saying “To Educate is to truly free!” Where there is a free exchange of knowledge there is health and peace for one’s soul and body! Let’s all make peace for to educate is to empower to change. Change is not easy . . especially if you have a bunker mentality I grant . . . but possible with education for with education comes understanding! 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish/sufferer), by the comfort wherewith we ourselvesare comforted of God.” Posterboy by the Grace of God, EPILOGUE We know this is a good working theory because both B1 (Thiamine) and B3 (Niacin) are used in the production of stomach acid. Quoting from the Celiac.com article on How Low Thiamine Can Thin Villi How Low Thiamine Can Thin Villi: Old Research Rediscovered and its Clinical Significance in Celiac Disease - Celiac.com “Via the Parasympathetic Nervous System (PNS) the neurotransmitter "acetylcholine" regulates our organ functions throughout the body, and could be why both undiagnosed celiac disease and Beri Beri affect so many organs in the body. Without enough thiamine our body can’t synthesize enough acetylcholine to regulate it’s organs, which may cause the body to go into high alert mode and trigger a runaway auto-immune reaction like celiac disease. Another study shows a connection with the microvilli that line organs and how they can trigger auto-immune reactions throughout the body.” B3 aka Niacin via Histamine is used to trigger stomach acid production and why an H2 Blocker is used to treat stomach acid issues….and can be used for other immune mediated conditions like allergies etc… Low Thiamine (B1) triggers the Auto-Immune Cascade….leading to low B2 (Riboflavin) and finally resulting in Low B3 (Niacin)…. who’s production in the body is regulated by Tryptophan via the Knyneurine Pathway and why Tryptophan recently was shown to help heal Villi in Celiac’s. And why just over 7 years ago PPIs were shown to be able to trigger a Celiac diagnosis. Do Proton Pump Inhibitors Increase Risk of Celiac Disease? - Celiac.com See my previous Posterboy blog post about why this so. Is there a Type I and Type II Celiac Disease IF so what is your Type: What the Diabetic Model can tell us about Celiac Disease Subtypes? - Celiac.com Niacin (B3) and Thiamine both help control the Biofeedback loop in the body and why being low in either one will trigger an auto-immune cascade! And Note: it is not just humans who need Thiamine to live/survive ALL animals need it even Bacteria and Fungus. See this latest research from 2020 entitled "Born to be wild: Fungal highways let bacteria travel in exchange for thiamine" that shows/explains how Bacteria and Fungi or Fungus use Thiamine as "Currency" along "Life's" highway.... https://www.sciencedaily.com/releases/2020/09/200924114128.htm Dr. Lonsdale called Thiamine the "Spark of Life".....I have called it the "Currency of Life"....because your health will be poor without IT! So we know this is true! Even at the microscopic level! You will feel half-dead if you continue to have these deficiencies if they doctor don’t also treat you for these co-morbidities despite being on a gluten free diet! I know I did….Ignorance kills!....but It maims us first! Lord willing it has been helpful and will it will help someone before the medical community catches up with the latest research on the topic. As always 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God
  11. To All, About 5 years ago research was done that discovered Tryptophan was involved in the Pathogenesis of IBS well new research has now linked that same Tryptophan to the same Pathogenesis in Celiac's. See this link on the role Typhtophan lays in IBS. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266036/ Here is the latest research on the topic that now indicates Tryptophan could also be beneficial to Celiac's in a similar way. https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx What do you think have they found the "Smoking Gun" for the Pathogenesis of Celiac disease. I know Celiac.com will do an article on this soon.....I just wanted to go ahead and get the discussion started. It is very exciting new research! To indicate that quoting this "study findings highlight the potential therapeutic value of targeting tryptophan metabolism in the gut in celiac disease to better control symptoms." Highlighting Tryptophan as a possible therapeutic in Celiac's who do not respond to a gluten free diet. As I always I hope this is helpful but it is not medical advise. Posterboy,
  12. To All, This is the thread I said I would start.... This analysis/opinion will turn on the neurotransmitter Acetylcholine. While it is well known Acetylcholine effects our CNS....it is less well know that Acetylcholine also performs the same function for the Parasympathetic Nervous System. https://en.wikipedia.org/wiki/File:1503_Connections_of_the_Parasympathetic_Nervous_System.jpg When we get low in Thiamine and subsequently Acetylcholine we lose the ability to control our bowels because our Vagus nerve in essence short circuits....and our body no longer can control it's organs connected to the Vagus Nerve leading to bowel problems associated with Celiac disease. IE a Vagus Nerve disorder develops once we get low in Thiamine..... Here is a nice over of how a Vagus nerve disorder can trigger issues with our Parasympathetic Nervous System. https://www.md-health.com/Vagus-Nerve.html I hope this is helpful but it is not medical advise. Posterboy,
  13. A Case for Thiamine Supplementation in Celiac’s IF only for a Season in Time I have been doing Posterboy blog posts every so often now for a while now to share my experience with supplementation. I have settled on the fact that many of the existing GI issues can triggered by existing nutritional deficiencies. ((I think most people must think I still take Niacinamide or Thiamine or a B-complex.....I do not now take any of these things. I only took them for a Season in Time and the reason for the name of this Posterboy blog post. For many taking an Enzymic B-Complex with Benfotiamine (preferably with Magnesium Glycinate or Magnesium Citrate with meals) for 3 to 6 months when taken with meals will be enough, for some 6 months or longer might be needed..... you decide the Season and the times that is best for you!)) See this research entitled “Nutritional inadequacies of the gluten free diet in both recently diagnosed and long term patients with celiac disease” https://pubmed.ncbi.nlm.nih.gov/23198728/ As I often note….. research is 5 or 10 years old (for whatever topic it is)…in this case that Thiamine is not only Low at diagnosis of a Celiac diagnosis…continuing to eat a gluten free diet without supplementation will make you even LOWER in Thiamine. This is not a case of the “Chicken or the Egg”….. a Thiamine deficiency comes FIRST….then you develop GI problems IMHO. This leads to an impaired Vagus Nerve response…. https://www.md-health.com/Vagus-Nerve.html I once thought this was a Niacin deficiency (and in part it still can be) but it begins with a Thiamine Deficiency first (beyond the scope of this Posterboy blog post)…..when one develops the skin condition of DH in/with their Celiac diagnosis…. the Celiac has gone onto to develop a Niacin deficiency. I never developed full blown Pellagra (beyond limited skin involvement) I did not develop symptom’s beyond Pellagra Sine Pellagra aka as a Riboflavin deficiency as noted by horrid Angular Cheiliitis (Leaky Lips)…. After extensive PMing back and forth with EnnisTx (I don’t think I ever told him) I realized….I had gotten the wrong diagnosis…. so from then I adjusted/iterated the model. I changed my opinions/mind about my conclusions…..and realized I had been wrong…. So that sent me back to the drawing board(s) so to speak…..if it wasn’t Pellagra what was it…. And I will skim over this portion because it is only an intermediate step in the process as noted above I had developed not Pellagra but Pellagra Sine Pellagra a Riboflavin deficiency. See this research entitled “Kynurenine pathway metabolites in humans: disease and healthy States” Here is the abstract to keep it on the lighter side…. https://pubmed.ncbi.nlm.nih.gov/22084578/ Once the Kynurenine Pathway breaks down…essentially your immune system goes haywire… Here is the more technical answer via their conclusion on the Kynurenine Pathway and disease states… “Conclusion The kynurenine pathway is an effective mechanism in modulating the immune response and in inducing immune tolerance. This is achieved by accelerating the degradation of tryptophan and the generation of kynurenines. The metabolites of the pathway, with their different inherent properties, can also synergize or antagonize the effects of one another. By measuring the levels of tryptophan, kynurenines and the K/T ratio under various pathological conditions, the degree of immune activation and the relationship between the kynurenine pathway and disease states may be gleaned. However, much research is still needed to fully understand the complex interaction between tryptophan, IDO and kynurenines among themselves and within the CNS and in the periphery. With the seemingly prevalent involvement of the kynurenine pathway in a wide range of different diseases and disorders, the knowledge gained from research focusing on the kynurenine pathway may be translated into designing novel and more effective treatment strategies.” I did not set out to learn this….but only set out for the truth of the matter. But from there I was able to back track and find out the trigger for this cascade… It was not B3 or B2 (not really) but B1….(Or lack thereof) that was the real trigger… I have been counting down B-Vitamins all this time….you might say I have been counting down to One! The combination of these B-Vitamins (B1, B2, B3) had been shown to down regulate inflammation in the body. See where this was recently studied in the mouse model for health entitled “Vitamin B combination (of B1, B2, B3) reduces fluconazole toxicity in Wistar rats” https://pubmed.ncbi.nlm.nih.gov/30903555/ And while they each work to down regulate inflammation…..together they are dynamite! But what was the Spark??? That creates the BOOM! Thiamine is the Spark for Energy! According to Lonsdale it (Thiamine) is the “Spark of Life”…. http://europepmc.org/article/MED/22116701 Stress requires energy and we absolutely can NOT make energy without Thiamine. The Thiamine deficiency came First…..It is not a “Chicken AND the Egg” scenario. One interesting new study that illustrates this point and I will try and wrap up this Posterboy blog post at least for a Season of Time. Let’s go back to the B1, B2, B3 issue of picking which one is the Spark for the Autoimmune BOOM triggered by inflammation..... Sepsis is a condition in the body that is triggered by unchecked infection often….and what down regulates inflammation in the body??? Answer B-Vitamins at least in part…..we know B1, B2, and B3 work synergistically to down regulate inflammation in the body thereby controlling first inflammation and thus Sepsis. How can we know it is B1 instead of B3…because new research bears this fact out! See this Sciencedirect article about Thiamine and Sepsis and how unchecked inflammation can be a sign of a Thiamine deficiency not the other way around … https://www.sciencedirect.com/topics/nursing-and-health-professions/thiamine-deficiency quoting Effect of Sepsis on Intestinal Thiamine Uptake Thiamine deficiency is prevalent in patients with sepsis.15–17 This appears to be mediated in part via an effect of sepsis on intestinal thiamine uptake37 given recently reported observations of a significant inhibition in intestinal thiamine uptake in rat model of sepsis where the degree of inhibition was shown to correlate with the severity of sepsis. The degree of the Thiamine Deficiency correlated with the degree of the Sepsis! Again, the Thiamine deficiency came First…..It is not a “Chicken AND the Egg” scenario. To quote Ecclesiastes 3 (read it all if you get chance) it is so well known the first few verses can be quoted (or commonly known). And it is often quoted at major life events such as death and at marriages or when one gets sick…..this too can pass! But if you want energy during these emotional times you can’t pass by Thiamine! Ecclesiastes 3:1 “To everything there is a season, and a time to every purpose under the heaven:” It is time for a “Season of Thiamine” to fight off the stress and inflammation your GI tract is now experiencing because your body is low in Thiamine…… before medically diagnosable Beri Beri develops from unchecked inflammation in the body! There will be time of Joy! Of Celebration that you found out what was causing your “Chronic” Fatigue that the doctors couldn’t diagnose! Because they didn’t know the cause of the unchecked inflammation https://www.msn.com/en-us/health/other/chronic-fatigue-syndrome-may-be-due-to-an-overactive-immune-system-study-shows/ar-BBR5ba3 I had similar things happen to me….before Sepsis develops someone in a Celiac Crisis will develop Refeeding Syndrome….. presenting itself as “Electrolyte Abnormalities” See my Posterboy blog post how I was a Posterboy for a Thiamine deficiency post and the doctor’s were misdiagnosing it! If this is the right diagnosis you would expect patterns to emerge in the research and when we look we see we/they do! 2 out of 3 Celiac’s who do not respond to a gluten free diet get (feel) better when they are treated for SIBO or unchecked inflammation from an overgrowth of bacteria! And a Thiamine Deficiency is known to be common in a SIBO diagnosis. It Turns out the Bacteria need Thiamine for their Spark of Life too! Draining your in the process leading to your Fatigue! And new research is emerging that Toxic Shock (this is no longer an hypothesis) but a working Theory that “Thiamine (vitamin B1) (can be used) in septic shock: a targeted therapy” which IMO is being triggered by gluten in Celiac’s when you First get low in Thiamine presenting as a Celiac Crisis or being Misdianosed as Refeeding Syndrome or SIBO in IMO. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7024754/ I must stop before this blog post gets too long again…… I truly hope it helps someone else! It is time for a Season of health! I share that it might help the next person…..so they won’t have to suffer without the doctor’s help the way I did! I hope this is helpful but it is not medical advise. 2 Corinthians 1:3, 4 3 Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4 Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God, ADDENDUM IF you have a spare hour of your time this youtube link about how a Thiamine Deficiency can lead to Vagus Nerve disorders is worth your time! Entitled “Is Thiamine Deficiency Destroying Your Digestive Health? Why B1 Is ESSENTIAL For Gut Function” Or if you prefer to reading to video this is a nice article that shows the Thiamine Deficiency in a SIBO Patient connection… and remember in 2 out of 3 Celiac’s who do not get better eating a gluten free diet feel better after treating their SIBO Or is it more appropriately treating their Thiamine Deficiency??? A Season of Thiamine (or a B-complex) can tell you if it was the "Chicken or the Egg". What have you got to loose but Time! It is time for a Season of Health! https://www.eonutrition.co.uk/post/thiamine-deficiency-a-major-cause-of-sibo
  14. To All. Is Refeeding Syndrome being misdiagnosed as Celiac Disease today? Refeeding Syndrome happens among the severely malnourished and having Celiac disease is a risk for a Refeeding Syndrome leading to a Celiac Crisis aka Celiac diagnosis. See this research entitled “Celiac Crisis: an unusual presentation of gluten-sensitive enteropathy” where the Symptoms of Refeeding Syndrome (Electrolyte Imbalances) is being diagnosed as “Celiac Crisis” instead…. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6066267/ Refeeding Syndrome is missed in 50 percent of patients and there have been many studies showing Refeeding Syndrome (RFS) being diagnosed as Celiac Crisis instead…. Quoting from the above study about this phenomenon in Celiacs... “PubMed articles published between September 1990 and April 2018, were searched using the uniterm “celiac crisis” in patients older than 18 years; 31 reported cases were gathered (Table 1). The mean age was 52 years ranging from 23 to 83 years and a gender predominance was found among females (1.81:1). Interestingly, amid the 31 cases, only 3 had the diagnosis of Celiac Disease before the crisis. ” So in these studies these Electrolyte Anomalies aka Refeeding Syndrome where ultimately diagnosed as Celiac disease instead of RFS….of which there is a readily medically treatable regimen with good clinical/patient outcomes. See this Medical New Today article to see if you are experiencing what is known as Refeeding Syndrome many times diagnosed as a Celiac Crisis instead... https://www.medicalnewstoday.com/articles/322120 I only know it happened in my case.....and your case might be similar....low Potassium is often an early sign of Refeeding Syndrome.... IN these cases the Electrolyte abnormalities showed up before the Celiac diagnosis as it did in my case too! It is not as a rare as people/doctor's believe it is .....in only two years time the case studies on the this topic for Refeeding Syndrome (Connection/Association) as a a trigger for Celiac disease has gone up 50+ Percent because doctors are now more aware and are looking for it more! See this very recent 2020 Case Study article that bears this out...entitled "Life-threatening onset of celiac disease: a case report and literature review" https://pubmed.ncbi.nlm.nih.gov/32381744/ where they note: "The present case highlights that celiac disease may manifest quite abruptly with a severe malabsorption syndrome, that is, electrolyte abnormalities".. .IE Refeeding Syndrome....commonly known/diagnosed as a "Celiac Crisis" instead today I believe... Comparing the number of studies of Refeeding Syndrome in Celiac's went from only 31 to almost 50 studies in under two years time... It is time doctor's became more aware of these connections so Celiac's can be helped sooner in those who have developed a Thiamine deficiency (commonly found in Refeeding Syndrome) as the triggering cause of a Celiac Crisis! You will probably also have a Magnesium deficiency presenting as Low Potassium and Chronic Fatigue.....I know I did in my case! Because as the Medical News Today article pointed out.....Low Potassium is a symptom of Low Magnesium levels...quoting from the above Medical News Today article... Refeeding syndrome can also lead to a lack of magnesium. Hypomagnesemia is the name for dangerously low levels of magnesium. Signs and symptoms of hypomagnesemia include: low potassium levels, or hypokalemia ......weakness.... and fatigue. And in my case terrible "Charlie Horses" aka Muscle Spasms that got better after taking Magnesium Citrate with meals. I hope this helps at least one other person....I share because I have suffered these same symptom's going undiagnosed in/with my Celiac diagnosis and if I am right being the Posterboy for Celiac disease and this research is right being Misdiagnosed as a Celiac Crisis instead today! I hope it helps the next person....I only know it helped me! I hope this is helpful but it is not medical advise. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
  15. Micronutrient deficiencies remain common in adults with Celiac Disease despite increased non classic presentation new Mayo Clinic study shows; or How Under/Undiagnosed Malnutrition is making you Sick…. The Posterboys Story of How Taking Magnesium and a B-Complex help him address asymptomatic Vitamin Deficiencies in Celiac disease They (Mayo Clinic) titled it… Micronutrient Deficiencies Are Common in Contemporary Celiac Disease Despite Lack of Overt Malabsorption Symptoms…but as usual some of the usual suspect’s are missing… IE many B-Vitamins https://www.ncbi.nlm.nih.gov/pubmed/31248695 Like Niacinamide (best form to take without flushing side effects)…Thiamine, and Riboflavin… Eating a gluten free diet will make you low in Thiamine…. See this 5+ year old study on this effect/relationship to Malnutrition in Celiacs’ entitled…. Nutritional inadequacies of the gluten-free diet in both recently-diagnosed and long-term patients with coeliac disease commonly spelt Celiac disease in North America… https://www.ncbi.nlm.nih.gov/pubmed/23198728 And note quoting…someone eating a gluten free diet will become low in Thiamine... “The frequency of inadequacies was similar pre- and post-diagnosis, except for thiamine and vitamin A, where inadequacies were more common after GFD implementation.” Gluten free foods are un-enriched…and are from common sources like Rice that typically low in Thiamine already…. (A great argument for Fortification of Gluten Free Foods) keeping Thiamine levels’ low even in Celiac’s…who have been Gluten Free for some time… Now the Mayo Clinic is picking up on these same issues in Celiac’s 5+ years later…. Progress takes time….but it comes with awareness… And Why I am writing this posterboy blog post to share my experience…. Low Thiamine levels have been linked to Villi thinning… See this article explaining these connections….featured on celiac.com Here are a few links that will help you understand Magnesium vital role in the body… https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-229 https://www.ncbi.nlm.nih.gov/pubmed/29480918 https://onlinelibrary.wiley.com/doi/abs/10.1111/j.0954-6820.1985.tb08836.x Magnesium deficiency has also been shown to be a key way into how the Epstein Barr Virus (EBV) causes/contributes to Chronic Fatigue Syndrome (CFS) in people who have Chronic Active EBV… http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/ But people (doctors etc.) don’t really have a good understanding today of how important it (Magnesium) is to the body… I believe mainly because of all the confusion of different Magnesium supplement types….It is like a maze to just find one that your body can use….and why I have simply told you the best kinds to take… Find a Magnesium Glycinate or Magnesium Citrate and your body will think you with some very lucid dreams! Special Note: on Taking B-Complex’s….after a 3 or 4 days…urine color will often change…this is normal… Note: (Taking an Enzymic B-Vitamin) is often easier to absorb for people with low stomach acid because they have already been converted into their active form...used by the body (that normally takes) place with a strong stomach acid...sold usually as a CoEnzyme B-Complex etc...I hope this is helpful. B-Complex’s half life is 12 hours so…take them twice a day or with meals…they are water soluble and leak out… I describe it as being a quart low in blood etc…you just drag…when you are low….(same with Magnesium by the way)… you are said to “Waste Away” when low in Magnesium! You can test this by the color of your urine….take one every other day…and you will notice a change in your urine color…. as you become low in B-2 aka Riboflavin… Your now “yellow” urine will become clear 12 to 24 hours later… Taking them 2x a day ensures you have enough to get by for 24 hours in the day…without feeling a “quart” low… As the intensity of your urine color becomes brighter….this is a sign your body is now storing more in your body (liver mostly)…. Once…it begins to (GLOW) in the dark….your body is now bypassing all the B-2 (Riboflavin) through the kidneys… It is a sign you can give the B-Complex and/or Riboflavin a break… If I take B2 now…..it immediately (in 3 to 4 hours) turns…it yellow…and will stay that way for another 12 hours or so… (Similar to the Asparagus effect about 1/2 the population) encounters....of a strong order to their urine...harmless but noticeable... until being water soluble (and the body) not able to store extra…leaks out again… Another distinct sign (if you are NOT taking) an acid reducer now….is burping replacing bloating and indigestion in your stomach… As your acid rebuilds in the stomach (from the B-Complex) another sign you are getting your body’s stress under control is a distinct and noticeable burping….this will be your new normal… This effect (of burping without bloating) will usually take about 6 weeks to notice and 3 to 4 months to ensure it is your new normal…unless you are stressed “out” again… Stress is related to heartburn….see this research about it…entitled “The effect of life stress on symptoms of heartburn.” https://www.ncbi.nlm.nih.gov/pubmed/15184707 I have to stop for now…but I hope this is helpful to whomever might read this Posterboy blog post… Stress kills…but it maims us first! As always I hope this is helpful but it is not medical advise… I just know it helped me and I have tried diligently to share what helped me…. so that other could be helped the same way Lord willing. No people or blog post is perfect...but this covers the basics without it being Way Too Long (at least by my standards)... 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (fellow sufferer), by the comfort wherewith we ourselves are comforted of God.” 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  16. Whos Afraid of a B Vitamin You needn’t Bee? An FAQs on Niacin(amide) and how to take Niacinamide and why you would want too in the first place. The very definition of a Vitamin is a Vital (life giving) nutrient needed in a minimum amount without which we become sick. This is especially so for B Vitamins since the body does not have good way to store more than 3 months’ worth on average. STRESS makes us low! If you had Cancer and someone told you a Vitamin could help would you try to take it? Most people I dare say would – probably readily. While unfortunately this is not the case for Cancer but what if you had Beri Beri, or Anemia or (Pellagra misdiagnosed as Celiac Disease anyone) and the doctor’s didn’t know or recognize it in a clinical setting see and you were told a Vitamin could help you. Would you try a B-Vitamin? All these (Beri Beri, Anemia, Pellagra) are diseases (and others not mentioned here like Scurvy and Rickets etc) are disease’s that a Vitamin could/does help? And possibly Celiac Disease if you are in the majority of those Pellagra Patients who present as Celiac Disease or NCGS presenting as IBS or have Pellagra misdiagnosed. Your disease profile might differentially be called something else. It is a standard practice of medicine called: A Differential Diagnosis. You hear this a lot but don’t think about it probably when someone is giving a horrible diagnosis such as cancer we say “I am going to get a 2nd Opinion” on that right. Well you have asked for “A Differential Diagnosis” of the diagnosis of the disease you have been said to have. Often today Common Vitamin deficiencies are thought to be “cured” in the modern world by enriching our foods presenting/revealing as Celiac Disease and/or GERD/ Heartburn. When stressed you often lack enough of certain B Vitamins to function properly hence disease develops. If a Vitamin could be taken to reverse this disease (STRESS) why wouldn’t you want too or at least try? We don’t think of STRESS in these terms often but High Blood Pressure is often the first sign of a Folic Acid deficiency – the beginning of disease. That really is what UN-controlled stress /inflammation is in the body. It is disease or will become disease if left unchecked. What if there was a Vitamin that helped us regulate STRESS in the body. Well there is! It is called Niacin (Vitamin B-3) regulates our fight or flight responses. All of this requires massive amounts of energy when a shock/trauma affects our system. Our body functions break down. And disease develops’. This is what happens when someone develops GERD/IBS/NCGS/Celiac Disease (Pellagra in disguise I believe – a Niacin deficiency/dependency). The longer or more deficient (lower) you are in this cornerstone nutrient (Vitamin) the more of your body stop functioning. Yet few people are willing to believe (take) a Vitamin that might help their bodies function better? I ask again who’s afraid of a (water soluble) Bee Vitamin that is known to regulate stress in the body? Ok great? A B-Vitamin can help me. How do I take it and how much? Here is where I have been conservation and have recommended (anyone who has read my other posterboy posts) 500mgs of Niacinamide. This is for 2 reasons mainly. 1 The Niacinamide version does not flush the way higher doses of Niacin does. So it is inherently easier form to take without feeling you have “overdosed” (Flushed) on this Vitamin (Which is a misnomer) -- Flushing when understood properly is a healthy response to the Vitamin. Niacin is a natural vasodilator allowing more oxygen into our capillaries indicating a sufficient dose of the vitamin has been achieved to cause capillary relaxation. (This is most pronounced on an empty stomach) But since people mistakenly take this as an adverse reaction and why I emphasize the Niacinamide form it is the Non-Flushing Amide form of Niacin. 2 Since 500mg is the most commonly found size of Niacinamide I recommend(ed) it out of defense mainly. Smaller doses work as well indeed -- As a matter of fact smaller more frequent doses works 40 percent better than larger one time doses. And the reason I am writing this FAQs about Niacin. B-Vitamins by their nature are hard to store by the body so even in larger doses (500mg) as much as half the dose is essentially wasted by the body – excreted through the kidneys’ since the body has no long term way to store excess amounts of B-Vitamins. And why smaller more frequent doses help 2X to 3X times quicker because the Vitamins serum level’s are maintained for longer periods thus enhanced absorption. It is not the size above about 250mgs that is important but the frequency of the Vitamin. If Niacinamide was widely available in smaller doses 100mg I would of have recommended that instead. Niacin is available in100mg doses but can still mildly flush at that dose (especially on an empty stomach without food to compete for absorption) and again why by default I recommend the Niacinamide form. Medical doctor’s know this and use the smaller doses more frequently when treating Pellagra. See this link from the American Journal of Clinical Nutrition http://ajcn.nutrition.org/content/85/1/218.full See their “subjects” paragraphs on how smaller doses effectively treated the symptoms’ of Pellagra. Quoting “The patients were treated according to the standard local clinical protocol and received a 100-mg nicotinamide supplement and a B complex tablet 3 times daily for 17 d if an adult or a 50-mg nicotinamide supplement and a B complex tablet 3 times daily for 15 d if aged <15 y. In addition, all patients received a weekly food supplement—400 g of a fortified blended food (corn soy blend, oil, and sugar)—for 3 wk. Families of the pellagra patients were also eligible for a food ration from the World Food Programme, which was distributed monthly for 3 months.” **** Note: This is a much shorter time than I often (have) advocate(d) because I want to be absolutely 100 percent sure these symptom’s will never EVER come back (unless you have more STRESS more on that later). But as you can see much lower doses for a much shorter time than 4 to 6 months can works as well. I/posterboy say conservatively 3 months (see the time a rich niacin and protein rich food plan was provided) to avoid remission because that is the time your body can store most B-Vitamins. But the amount is not important it the FREQUENCY that is key! By being conservative (some might say aggressive) with how long I recommend to take it (Niacin(amide)) (and the amount see above about why I recommended this amount in the first place) people are reluctant to take Niacinamide at ALL. And this in turn leads to disbelief that taking a B-Vitamin can help people with GI problems. But we see in this study (above link) by the American Journal of Nutrition that even low doses in divided doses as quickly as (or as little as a month’s time) can dramatically help people with the trifecta of Pellagra symptom’s. Note: Read the whole article for yourself when you get a chance because it explains in detail how to have your doctor check your Niacin levels’ and why this can confirm your diagnosis (but taking the Vitamin can too! As confirmed by clinical remission in less than a month on/of divided 100mgs doses) But instead Pellagra 3 D’s are diagnosed as separate diseases today. See their discussion section (a great read for anyone doing nutritional/medical research) the discussion section is most always the “real story” and not the headlines (title) often. Whatever you are researching beeeeeeee! sure to get all the facts of the story not just the headlines by reading the discussion section. The American Journal of Nutrition (AJN) summarizes Quoting “The lack of knowledge about pellagra was slightly surprising given the endemic nature of the disease. However, it may be that the symptoms of severe niacin deficiency are so diverse that people do not understand them as a single disease and account for them separately using other terminology.” And I believe that is why Pellagra explains most of the symptom’s of a Celiac Disease patient experiences today because of the “Lack of Knowledge” about how Niacin treats digestive problems today! But you won’t know if you are not willing to try it and the reason for the Who’s Afraid of a B-Vitamin post or this FAQ blog post on Niaicin and the best way to take Niacin(amide) I hope this is helpful. By all means please check with your doctor before taking megadoses of any Vitamin even when you think it might help. But what could a relatively low dose of Niacinamide 250mg (if you can find it) or Niacin 100mg with food hurt when it used in much higher doses (500mg day to start titrated up to 3 grams a day in divided doses) to treat Cholesterol already by doctors. See this link by the mayoclinic that discusses dosing recommendations for Niacin(amide) http://www.mayoclinic.org/drugs-supplements/niacin--niacinamide/dosing/HRB-20059838 People regularly are prescribe/take Niacin for over a year with no side effect (see Mayo clinic link) and often for twice that time or longer. So I hardly think taking Niacinamide in divided dosages for 1 to 3 months is mega dosing but I understand why people think it is. I am not trying to diagnose of treat your condition(s) I am only trying to share/educate you on what helped me. For to Educate is to truly free! How can you know (learn) these things (about Pellagra) or how/why Celiac Disease could be being diagnosed as Pellagra today if you do not hear! And if it helps (your symptoms’) improve in as little as a month (in divided doses) up to 3 to 4 months (to be conservative) then you had Pellagra Co-Morbid and now at least your Pellagra is in remission and you can concentrate on just getting one disease better. But you say I don’t live in Angola (how does this affect me)???? I am glad you asked! Remember what I said about STRESS https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html Stress makes us low! Think car accident, surgery, pregnancy, divorce, medical emergency etc. and so it goes. Anything traumatic can lower our B-Vitamin levels and cause us STRESS! Some of us which will/do not recover from without eating nutrient rich Niacin foods or supplementing with Niacin(amide) as they did in the Pellagra outbreak discussed. And the doctors have forgotten the old phrase “STRESS KILLS” and surely war kills people but many (most) of those who die don’t die immediately from a gunshot or wound but stress of surviving has harmed them. But we forget before STRESS kills us it maims us first. So too does it (harm/ maim) us first us too the same way! In our doctor’s eyes they see the same thing. It is just stress you will live. But not recognizing this condition soon enough can lead to death in time. See this link that discusses why this is commonly misdiagnosed in most doctors’ office’s today. http://www.medscape.com/medline/abstract/19624986 Quoting from the Dermatology Online Journal "Pellagra is a nutritional disease caused by the deficiency of niacin. It presents with a photodistributed rash, gastrointestinal symptoms, and neuropsychiatric disturbances. In the Western world, this disease is mostly confined to alcoholics or the impoverished. However, this condition must be recognized in other clinical settings because it is easily treated and can be fatal if not identified." And this great summary of Pellagra and the 4 D’s which I think now are the 3 D’s of Celiac Disease. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ YOU will only know if you are not afraid of a B-Vitamin. You needn’t Bee! And by writing this (if) I put this dosage information all in one post maybe I won’t have to write it again and again in each thread I comment on. I repeat for(e) emphasize. For to Educate is to truly free! How can you know (learn) these things (about Pellagra) or how/why Celiac Disease could be being diagnosed as Pellagra today if you do not hear! Good luck on your continued journey. I could write many more pages on this topic because it has helped me soooooo! much but need to quit so as to not bore you too much and it is getting longer than I planned. (sorry about the formatting every time (I try to import a post it messes up my formatting) and thank you in advance for anyone who reads this. I truly hope it helps you the way it did me! Praise bee to God! 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish those still suffering), by the comfort wherewith we ourselves are comforted of God.” **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
  17. The Grey Science of Nutrition in a black and white world of Genetics and disease or the Elegant Neat IE Key method to (uncontrolled) inflammation in the body or How/Why low micronutrients IE Vitamins and restoring micronutrients aka(B-Vitamins) are key to maintaining good GI health or Why Vitamin Deficiency Test often fail to give us a black and white answer. The Purpose of this Blog post Is To Educate for “To Educate is to Free” for those who want to know and would try a Vitamin for their health…(sorry about the formatting I will endeavor to add breaks but the flow of the matter might not be concise) This Posterboy blog post is to encourage you to be tested for a B-Vitamin deficiency…but I betting you won’t test low… Through my research on Nutrients/Vitamins/Minerals IE Nutrients I with other deep researchers have come to similar opinions from different perspectives or journeys… For now …I just wanted to float the idea…of an “Elegant” theory of supplementation and how it can help people’s GI problems…. Last time I spoke of KIA’s and Jaguar’s… This time I am writing/speaking on “The Grey Science of Nutrition”…referring to an early DRAFT version of a “White” paper (new idea) not spoken or discussed before…. This will be wrong as much as right hence….the Grey Science…thought provoking ideas… though while sound in their logic and reasoning….totally unproven as to the science… the difference between an Hypothesis… and a theory… Even good working theories can take years let’s say 20+ years for this model/example… to be proven more than a good hypothesis… I will refer you to the “hormone smatter” site if you want to know more about Thiamine…which I will cite at the end regarding how and why vitamin deficiency test often fail us.... https://www.hormonesmatter.com/mitochondria-energy-not-genetics-underlies-health-disease/ Where they will say similar things …only having Thiamine aka B1 as their focus… I have spoken about my experience with Niacin aka B3 here before so I will not belabor that point now… What I want to discuss/talk about is how these B-Vitamins B1,B2, B3 together ---- work in a neat/elegant way to help control our immune system… Without which our immune system becomes disordered…IE attacks itself…. B3 was an easy target….because without it you will die…it is a medical fact… A short summary of why this is so can be seen here by a 2nd Year biology student that says it well you find “Pellagra in unexpected places” today every where are bodies needs energy… eventually Pellagra will show up… https://pellagradisease.wordpress.com/ Described here as “Pellagra: A Non-Eradicated Old Disease” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4019925/ But you do not have Pellagra but more like Pellagra Sine Pellagra aka Ariboflavinosis or a severe Riboflavin deficiency… Without energy…we can’t manage our bodies properly and stress kills us…but it maims us first… We all know stress kills but rarely do we think of it maiming us. “Fight or Flight” right! Well all these fleeing or fighting causes use to use up great amounts of energy (think Adrenaline and a young child lifting a car). Our body has a instant decision to make. Think for yourself when your GI flares up … are not you going through some personal stress in your life. Who has ever heard of the phrase – “A place for everything and everything in its place” We like for things to look neat and be neat most of the time right??? When we are low in B-Vitamins our bodies place for things get’s disordered… More importantly it should make sense to us IE be in black and white. We want to be able to find things in a moment’s notice. And why nutrition is a “Grey Science” Admit it you have gone to google and typed in a few symptoms on webmd etc (web) and diagnosed yourself of the latest plague to hit the airways. But seriously, the medical community does this almost to the extreme. If you have xxx, then it is yyy because zzz happens when you are allergic, sick, etc ad naseum. They are called “keys” in the medical community. That is why the doctor in 15 minutes can diagnose low body temperature as a thyroid problem because it is our thermostat…but nutrition rarely can be reduced to just one thing/Vitamin right? But We want these quick hits. Because it make’s sense and is easy(ier) to diagnose that way. But what if a disease is more general in scope say malaise (celiac)/NCGS or has a possible nutrition base then it get complicated (messy) more test’s (keys) are needed to see which one fits. The problem with Celiac disease today is there are many “keys” than can fit in the door and seemingly all the keys work. 200 symptom’s all least by some estimates. So it can be hard if you are not looking at the right key’s to determine if have the right diagnosis. … IBS, Chrons, NCGS etc…. The problem with this solution is the more (longer) the doctor/practitioner/clinician looks for the right key the more their patients suffers. The “key” solution works fine if the medical problem is “Neat”. “ A place (key/symptom) for Everything and everything in it’s place.” But those of who have ever been diagnosed with Celiac disease or a gluten allergy know it is anything but “Neat”. It is a very messy process at times. But if you find/are a “good” doctor/practitioner/clinician who has been through the process with another patient then luckily your diagnosis goes more smoothly. Or not? Maybe they haven’t learned the keys yet. They have seen them before maybe. IBS, NCGS, Celiac Disease, UC etc all look a lot of like. Now remember for the most part these are all “general” practitioner’s. They have a lot of keys to juggle. And after a while they all look the same. Especially if it is a “sprue” tropical or non-tropical in nature disease like Celiac is. According to the medical dictionary “sprues” are a chronic form of malabsorption syndrome Time for a little vocabulary lesson chronic what does – Chronic mean? According to google dictionary “(of an illness) persisting for a long time or constantly recurring.” … most doctor’s will call it chronic if it lasts more than 6 months. So now we have a disease/syndrome of symptom’s (more on that later) that does not fit a “neat” picture in fact it can be very messy for the patient at times (and the clinician) who is doing his/her best to help you one key at a time. INSTEAD of 15 minutes it might take 5 to 10 years until a doctor/practitioner/clinician makes sense of all his or her keys. The fact that the problem is chronic “of an illness persisting for a long time or constantly relapsing” tells him/her that she has not found the right key yet right??? Is there a better way more Elegant way? (The Answer is YES there is – It is called Vitamins/Nutrition) Disease need not be CHRONIC when one understands the underlying cause. Indeed I believe we need got to all the way back to the root cause of nutrition — Pellagra Sine Pellagra presenting as digestive disorder which is healed (put in to remission) with supplementation in as little as 3 to 4 months depending on how many times a day it (B-complex) is taken. Knowledge is power as they say….use this new found knowledge to have your doctor test for B-Vitamin deficiencies is all I ask …. have them test for Vitamin B1, B2, B3 you might be surprised…or not depending on what you expect to find... or how well the test(s) are done... The researchers where who said “Pellagra, an Almost‐Forgotten Differential Diagnosis of Chronic Diarrhea: More Prevalent Than We Think” https://onlinelibrary.wiley.com/doi/abs/10.1002/ncp.10418 That is too Elegant to theorize/propose/diagnose Vitamins’ (more correctly the lack thereof) as the (possible) cause of (Celiac) disease/GI/digestive problem’s? Vitamins are the very definition of ‘elegant’ a nutrient needed in a minimum amount without which we become sick and develop malaise, disease and syndromes (like Pellagra) or Pellagra Sine Pellagra presenting as Celiac Disease or even Beri Beri etc). See this research on a Thiamine deficiency in someone with IBS and Chronic Fatigue… Entitled Thiamine and fatigue in inflammatory bowel diseases: an open-label pilot study. https://www.ncbi.nlm.nih.gov/pubmed/23379830 The researchers were surprised to find it and your doctor probably will be too! And the doctor’s can’t find there keys/studies in the medical record until more patients are diagnosed with these Vitamin deficiencies in (More) GI patients….because a “small cohort” is not deemed to be medically significant ….you can change the future today by being tested for these Vitamin deficiencies…it is really up to you now! But you we can educate them so they will begin looking! For this key nutrient Vitamin deficiency/dependency for “To Educate is To Free” …the next generation…. But note: Pellagra did not happen in a uncomplicated way (single nutrient) IE elegant way but in complicated Triad of nutrient deficiencies….a syndrome of symptom’s…from a complex of Vitamins… hence the “Grey Area” of Nutrition have left doctor’s/clinician’s in the dark as to the true cause of your syndrome of GI symptom’s… https://casereports.bmj.com/content/12/9/e230972 **** Note: This is not medical advice. I am not diagnosing, treating or recommending you change your routine before consulting your doctor but only advocating that nutrition needs to be rediscovered today as possible cause of your GI problems….More testing will need to be performed to confirm this analysis…. I meant this to be shorter than it is but you can only cover so much in one blog post I guess. It is important to note I do not NOW take Niacinamide or Riboflavin or Thiamine and have not for several years now. If it (B-complex) is the missing ingredient/nutrient(s) you will get better UNLESS more stress/trauma occurs robbing you of your God given burp indicating to you stress is now a problem again for you. If it helps (you find you have these deficiencies) and you feel better…tell someone else who is not better yet… get your doctor to do a key/study on your experience so future doctor’s will have the key/study in the medical record to find that Pellagra Sine Pellagra or Pellagra or Beri Beri is more prevalent today than once realized… presenting together (I believe) in the capstone disease Pellagra or Pellagra Sine Pellagra (without skin manifestations) much more commonly…as It did in me…as/with Angular Cheilitis…. It (Ariboflavinosis) low Riboflavin could of presented with many other symptom’s…and I wouldn’t have and (and doctors don’t) didn’t recognize it then…until it presented with a “Capstone” symptom… with it’s many other earlier symptom’s most doctor’s (and myself) did not know Geographic tongue for instance was an early sign of low Riboflavin aka Pellagra Sine Pellagra… https://glutenfreeworks.com/health/tongue-magenta-swollen/ The earlier you recognize any disease/syndrome the more symptom’s you can spare yourself of… Knowledge is power…pass it on…hopefully to your doctor ….and you have put your “key” diagnosis in the medical record so other doctor’s can find their keys for the next patient…we can’t wait another 15 to 20 years… (has been my thing) till this nutrition(al) knowledge filters down to the medical/clinical practitioner’s level…. I am not a doctor but I like most other sufferers have armed myself with knowledge. I studied every day diligently for 4+ years before the Lord being my help …. I was able to figure out I had a Vitamin deficiency (many reallly)… now it is up to those still suffering to put it in the/your medical record(s) for others doctor’s to find it in the future! In black and white! Praise be to God! To those who hear and listen. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. 2 Cor 1:3,4 3)Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4 Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God Posterboy by God’s Grace, Addendum: This Posterboy blog post is/was to encourage you to be tested for a B-Vitamin deficiency… but I betting you won’t test low…but I hope and pray you will get tested...to see if (it) is happening...and if you only needed a test to diagnose you...why wouldn't you do it...even a low normal test can be helpful to guide you...in your journey back to health....right now I am low normal in Vitamin D...but I didn't know until I got tested... See this Hormones Matter blog post about why most people (even when low in Thiamine) will test normal… http://www.hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ the same is true for Riboflavin (and Niacin often) as well….depending on the factor you used in the test … a deficiency might show as being normal… see this study in the UK… https://www.ncbi.nlm.nih.gov/pubmed/19102813 factor’s have not (at the time of their test (yet)) been standardized to determine what constitutes a Vitamin deficiency (for many B-Vitamins)...so we guess often...(at least when it comes to B-2 aka Riboflavin) though we know what to test for... soooooo many people go undiagnosed……they (UK researchers) estimated as many as 1/3 of the (UK) population might have a “hidden” deficiency depending on the “factor” used to determine a Riboflavin deficiency….etc… Note: I can't tell how much a cow weighs by looking at it...I have to have it tested/weighed to see if my guess is accurate... and neither will you be able to "guess" what deficiency (if any) you have without being tested for them... I wish everybody well....I hope this is helpful but it is not medical advise. I must stop for now...but good luck and God speed on your continued journey...and if you do test low at least then you will know.... Posterboy,
  18. Open Letter to the many GI sufferers etc Part 1’ Like IBS, UC and other GI diseases like Infant Heartburn (GERD) that grows into (in time) to IBS, UC, Chron’s and NCGS as a teenager or Celiac disease in time as an adult— Look Beyond these symptom’s to the parent disease –- Pellagra. *** a couple of notes to begin with. You can see I meant this to be one post -- but as usual it got too long to read at one seating. 2) because I might be having a medical procedure soon (I am posting part 1) in case I don't get to part 2 until latter. ****This is only my experience (and my research) that has lead me to my conclusions. They are NOT endorsed by celiac.com nor should this blog post be considered and endorsement of these ideas by celiac.com. Thank you in advance for letting me share my opinions and conclusions. (God being my help) may this posterboy blog post benefit those who take the time to read them/it. What follows is something that has been on my heart to share for a while. It is my story only. . . yours may be different but I have found if it helps you . . . it will help others too! And as they say "Without Further Ado" Here are my thoughts about my original celiac diagnosis and what/why I think was also low in stomach acid but a proper diagnosis was not made because not enough/proper test's were done to rule it out as an official "differential diagnosis". If it is happening to me. . . it is happening to others! Below begins the body of blog post of "An Open Letter Part 1 to Fellow GI Sufferers" Because as I am fond of saying “To Educate is to (Truly) Free” God being my help 2 Timothy 2: 7 as always“Consider what I say; and the Lord give thee understanding in all things” this included and all the knowledge I have absorbed in 10 years of researching this topic for myself (God being my help) how I discovered this forgotten medical fact after 4 years of research (see below) and have been helping people for over 6 years (those who will listen) and who better to learn from than someone who has done it himself and not only for himself but 100’s of his friend too! See this celiac.com article where much of this information is summarized in something called a white paper about the “When Myth becomes Medical Fact People suffer unnecessarily; The Case of Mistaken Identity: How Pellagra now thought to be rare became known as Celiac Disease — A White Paper linked at the end of the article. Referenced here if you have not had a chance to read the article since it was featured on celiac.com https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html “A white paper is an authoritative report or guide that informs readers concisely about a complex issue and presents the issuing body’s philosophy on the matter. It is meant to help readers understand a (complex) issue, solve a problem, or make a decision.” By reading this blog post I hope to convenience you that your experience can be the same as mine. A differential diagnosis is one of the best standard of medicine rarely practiced today and how specialists decide between competing diseases like UC or Chron’s or IBS or Celiac Disease and if I am right Co-Morbid Pellagra now forgotten for 75+ years since the “War on Pellagra” is now over according to medical professionals’ but sadly the battle rages on for at least for the 60 Million American’s alone who get (Infant) Heartburn once a month not counting the heartburn that grows up to be IBS, UC, Chron’s or Celiac disease. See link below from Creighton University that mention’s this medical fact. Pellagra is not a disease of TODAY. Celiac is the disease of Choice today! But in 58% of those diagnosed with Celiac TODAY 58% are Co-Morbid with Pellagra as I was and most ALL my friends because they ALL get better when they take the Niacinamide. I now it works. I have seen it work for too many people. And I believe it can/could work for you too! See end of this blog posts and my doctor does too. He now uses this method in his practice with great success! And it can work for you too! (I believe) Lord willing if you do as I suggest and take Niacinamide 2or 3/day for 6 months (see below). I now describe myself as the Celiac and Pellgara Posterboy as a “Former Celiac Sufferer” who blogs about digestive disorders that Co-Morbid Pellagra causes often presenting as other GI diseases like IBS, UC, Chons, NCGS and GERD” Note **** This IS NOT medical advice only my personal experience of how through deep research (and the Grace of God) after 4 years of study I found what the doctors have always known but overlook in treating the many symptoms of Celiac Disease. The true cause as recorded in medical textbooks the world over the cause of 90+ percent of Digestive disorders (I believe) is because of one Vitamin Deficiency/Dependency. This blog post and (Posterboy blog) is about that ONE nutrient/vitamin/mineral that is lacking and the causative agent for most Digestive Disorder(s) presenting as the Iceberg Disease(s) of Gluten Insensitivity aka Celiac Disease in its most advanced stage (with enough time). And I hope at least ONE other Celiac besides me will believe also and be helped from this post. As proven/researched by Prousky almost 17 years ago that low Niacin levels lead too low stomach acid. It is time this information was known by a wider audience – the Celiac audience. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm see also by posterboy blog about this topic. It is a devastating delay. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. When Celiac Disease points it head (rears it head) out of the water 20+ symptoms (known as associated diseases) have already presented themselves in various malady’s. When only 3 (the 3 Ds) symptoms where need 75 years ago to diagnose the condition once considered cured but is rampant in today’s society because we are more STRESSED than ever. Digestive disorders, dermatitis syndromes, and dementia disorders – known then as Pellagra 75+ years ago but now is known mostly as various GI diseases depending on how long or low you are in Pellagra Preventive Factor as it was called in the day. Here is the best research article I have ever read on the topic. https://www.hindawi.com/journals/cggr/2012/302875/ They called it “Lessons from Pellagra” but the problem is we haven’t learned them. What does this look like in human beings? If one is critically low in Niacin the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up. (see hindawi link about for the exhaustive complete diagnostic picture of all the ways Pellagra might present itself. It is very exhaustive and informative) We will not count the 4th D of death if you are reading this blog. Explained here well http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ To quote Dr. Heaney a Past Professor of Medicine at Creighton University “2014 marks the 100th anniversary of the war on Pellagra, a war that lasted nearly 25 of those years before victory could finally be declared. You have not heard of the war on Pellagra? The celebration is not on your calendar? You’re not alone.” I have been in remission now for 5+ years after suffering 30+ years. Remission is possible! From Pellagra! Epigenetics has been discovered as the cause for Pellagra being diagnosed as Non-Celiac Gluten Sensitivity (NCGS) or Celiac disease when Heartburn/Gerd then IBS etc. and NCGS in time grows up to become your Celiac Diagnosis. Learn how Lifestyle (STRESS) is a risk factor for Celiac Disease. see this article entitled ‘Lifestyle is a Risk Factor for Celiac Disease”. https://www.sciencedaily.com/releases/2015/11/151102100302.htm Quoting an article that appears on Celiac.com https://www.celiac.com/articles/24166/1/Could-Changing-Gut-Bacteria-Prevent-Celiac-Disease/Page1.html “According to Dr. Decker Butzner, a Calgary-based pediatric gastroenterologist, there are another triggering factor which we’ve never understood…[t]here is an environmental trigger.“ i,e. STRESS Have you been stressed of late? Stress is said to kill you well it also maims you. NCGS is that maiming of people who have eaten wheat without resetting their stress clock. Find out how you can reset your stress clock (my words). Also see this very well article on pregnancy. https://www.verywell.com/can-pregnancy-trigger-celiac-disease-562302 where they say quoting First Comes Baby, Then Comes Symptoms "Most women are diagnosed with celiac disease after at least one pregnancy — in fact, a comprehensive Italian study published in 2010 on the reproductive effects of celiac found that 85.7% of women received their celiac diagnosis following their first pregnancy." WE also know stress is a trigger for Celiac disease. https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html Join his friends who no longer suffer from heartburn, gas, constipation, diarrhea, IBS , UC, Chron’s and Ulcer’s etc. of NCGS/GERD. You too can be in remission in as little as six months if you follow this ground breaking discovery hidden in medical text books now brought to light about how to manage digestive stress from Pellagra. When he (God being his help) rediscovered Pellagra as a disease of TODAY now often Diagnosed as Celiac disease instead of one conquered 75+ years ago as the doctors teach. A brief history: over 4+ years ago after being able to eat gluten again after being Gluten Free for 4 years and suffering 30+ years before I received a diagnosis as Celiac disease I begun to realize I had low stomach acid instead. So now I speak about it freely and blog about it regularly with only modest success and why I participate on celiac.com to Educate those still suffering unnecessarily to help explain how Pellagra is often confused for many GI issues up to and including Celiac Disease in time – usually 10 years or more. *** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your diet or your prescribed medical regimen. After 4 years of research and 5+ years of GI symptom remission I am convinced more than ever that 90+ percent of the most common GERD/Gluten issues are related to sub-clinical presentation of Pellagra unrecognized in a clinical setting. So much so that I tell those who will listen. As I am fond of saying Learn from my mistakes. Honey is like knowledge sticky and sweet when good news comes. “This posterboy blog is just that storehouse of knowledge learned from life experiences. The blog’s author has been stung so you don’t have to be. No man is so dumb as the man who won’t learn from other people’s mistakes. Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life. Feel free to ladle and dollop your life with the sweet stickiness of the truth found here. For honey like truth stick to you once in contact and you can’t just wash it away.” This posterboy blog is about my struggle to reach people yet only about 10 percent believe and are helped when they read these things though 95+ percent are helped when they treat their Pellagra symptoms with Niacinamide taking it 3 times/daily for 4 to 6 months. Education (this blog) is about raising the conversion rate so people don’t have to suffer any longer. I will go on telling those who will listen. How can they hear if no one tells’ them? Romans 10:14 (I speak as a man) Tell others about this blog post if you decide to try Niacinamide for yourself and see If it helps you. It will help others/them too most likely! At least it helps most of my friends that will/have believe/believed and tried it for themselves. Take the Niacinamide and get/be better in 6 months (begin BURPING) (w/o bloating I might add) for the first time in years IF EVER from Pellagra undiagnosed. No one seems to believe (or at least not many) becoming deficient in (a) vitamin or vitamin(s)/minerals will/can make us sick. What a novel concept. You would not think I would need to write a blog post to tell people that! Maybe it is not true in your case. But you won’t know if you don’t try it. All I know it has been true in my life! and Hundreds’ and hundreds’ of my friends. Thanks bee to God who helped me to see these things. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” Tell someone (share) is all I ask tell others is all I ask –when you are BURPING for the first time in years or (EVER) – tell a friend about this blog post “is all I ask” but don’t let the chain break with you. There a lot of fellow sufferers’ who still need help. I always say the number one mistake people make with Niacinamide is not taking it long enough (3 to 6 months 3/day in divided doses) but now I am going to amend that. The number one mistake people make with GI problems is the mistake of not taking the Vitamin in the first place. The 2nd biggest mistake is they don’t take it long enough! If you want to try and educate your doctor/friends and think he/she/they will listen tell them how Niacinamide helped you or some fellow who says it helped him but I was too scared to try it. Maybe they will listen to your better than they will/do me. *** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But mine has taken Niacinamide and his digestive/GI problems are in remission. And his difficult to help/treat patients who don’t respond to “popular” medicine’s like Linzess etc. are better for IBS-C. And have stopped the medicine because their symptoms are in remission. He has even given Niacinamide to his sister to help her Chrons symptoms’ though research bears this out people don’t (Heck doctors don’t even) well understand the connection. See this article entitled “Pellagra as the presenting manifestation of Crohn's disease.” https://www.ncbi.nlm.nih.gov/pubmed/7060914 (***Note: this is an update. I saw my doctor recently and he admitted as such. But I could see it in his eyes (and hear it in his voice) because it did not fit his paradigm (world view of Vitamins/medicine) he spoke only of her Chron’s being in remission. It never occurs too him that her co-morbid Pellagra is better and it (Pellagra) could be being misdiagnosed as Chron’s instead (and won’t/wouldn’t) even if I brought him the research.) But Vitamin(s)/Minerals especially Niacinamide and Magnesium don’t get the attention they deserve because Vitamins’ don’t have a USP today in this genetic age we now live in. They (drugs) are popular because they have drug companies who have the money to advertise them. I do not. I do not have a Unique Selling Position (USP). Nor do Vitamins these days! And I say too you too. Put your Pellagra symptoms into remission too! (Your Celiac diagnosis can remain your primary disease diagnosis) as the doctor's wonder why your (Pellagra misdiagnosed) symptom's are in remission. No body profits if you get better in 6 months or a year and you no longer need the Vitamin! We don’t’ get sick from being low in “a Medicine” to quote the frustrated pharmacist but a Vitamin. I usually end up giving Niacinamide away and often they (friends) give it back instead much like a Johnny Appleseed character. Such is the fear of Vitamins these days. See also the posterboy blog post on celiac.com why this is so. . . entitled it is time for a Vitamin Reformation; Why all the hate for Vitamin’s these days. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. I am just trying to help those who still haven’t heard yet Pellagra is being diagnosed as Celiac disease today and your Pellagra undiagnosed/mistakeningly diagnosed as Celiac can be in remission from a Vitamin deficiency. If we follow most normal paths’ for adoption it will take another 20 years (a generation) for the medical community to accept Pellagra as the proper diagnosis. ****Note: I am only reporting what medical journals have concluded. It is just not well understood today one disease is being diagnosed as the other because it can take a generation for this knowledge to filter down to the clinical level. How do we know this??? Or can we? The International Journal of Celiac disease notes this association/connection. http://pubs.sciepub.com/ijcd/3/1/6/ Not only did/does the Journal of Celiac cite common symptom’s 58 percent of the time in Celiac and Pellagra but they also cite that Pellagra has been described in a Celiac Disease diagnosis. Now if the symptoms’ are similar it is easy to confuse one disease for the other and if not well understood they might be considered “exceptional” or, i.e., not well understood and discounted as the cause. I would argue that it should be the other way around if the majority (58 Percent) of the time Pellagra symptoms are described in a Celiac diagnosis it stands to reason that medical science is identifying the wrong disease. The math doesn’t add up. 58% is the Majority (primary/parent) disease and as such should be treated first. Pellagra has 3 faces that often confuse doctors today but 75 years ago they were able to diagnose this disease with only 3 symptoms the D’s of Pellagra. Dementia’s, Digestive Disorder and Dermatitis issues. Are You starting to see a pattern here? If it starts with a D then Pellagra a Niacinamide deficiency is involved. Quoting the Celiac Posterboy “These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.” I could go on and on and on . .. but there is no need for that. I need to stop for now. Either you will believe and be helped or go on suffering needlessly if indeed Pellagra is the parent disease and GERD, IBS, UC, Chrons, NCGS and Celiac disease it‘s unruly children. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” ****Again this is not medical advice but it is too easy, simple and cheap not to try and see if it works for you . . . I have found it works for others. Remember Occams’ Razor. . . The Simple answer is a Vitamin. But convincing people of that fact has not been simple or easy. I can’t convince you either way. You will have to decide for yourself . . . I only know it help’s those (of my friends) who have tried it for themselves. Praise bee to God and I want other’s still suffering from Pellagra disease if the research is to be believed being diagnosed as Celiac disease to be the next to be helped Praise bee to God! But I know now you will have to discover it for yourself. I stand as your witness. I tried! Posterboy by the Grace of God, 2 Timothy 2:7 As always, “Consider what I say; and the Lord give thee understanding in all things” this included. **** I will update this blog post in a month to 6 weeks with Part 2 about how you can test these things for yourself (if I am not recovering (God forbid) from a medical procedure) depending on how and if my CT scan shows any blockage that might require a stent to be implanted like my brother had to have done. . . Otherwise I wish you all who read this posterboy blog post God speed! And good GI health soon! Praise bee to God if you are encouraged enough from this post to try the Niacinamide 3/day for 6 months for yourself.
  19. Why did I call this post “Time for a Vitamin Reformation”? I see this a lot. So I wanted to write more about it. I share/write these posterboy blog post’s so that others might not have to suffer the same things’ I have. As always I hope you find it helpful to learn how/what someone else did to help their own selves in this journey/road we all walk/or have walked on as a Celiac Disease/NCGS patient. I know this post is way too long (again) as usual but I had a lot of ground to cover. So hang on if you can and will and if you have an interest in learning how I became the posterboy for Celiac and Pellagra. Learn from my mistakes! Quoting the Celiac and now Pellagra Posterboy “No man is so dumb as the man/woman who won’t learn from other people’s mistakes.” I have made too many (mistakes) to count. Take as much honey (knowledge) as you can from my mistakes so bad (lack of knowledge) health will not sting your quality of life. Is it any wonder God’s promised’ land was described as a land flowing with milk and honey? Where knowledge (truth) flows there is health of mind and body. Truth of the right diagnosis can free us from the error of a wrong diagnosis. SADLY! Few listen. But some (Pellagrins’) who have received a Celiac diagnosis co-morbid have heard (listened to) the good news that Pellagra is reversible (when it is mimicking Celiac disease in a clinical setting) and have gotten better. Don’t be the Last! Tell others! So again Why did I call this post “Time for a Vitamin Reformation”? Most people (in the US anyway if you are reading this in some other country) are aware of the Protestant Reformation but most people are not as aware of the Catholic Reformation. Where basically the Catholic’s got smart? If you will and said all these Protestant’s are writing books (fresh off the invention of Gutenberg’s printing press (the internet of their day)) and the Catholic church said let us start printing our own books about how great the Catholic church is plus some minor changes essentially stopped the reformation in it’s tracks. And today there is still 1 Billion (with a Bee Catholics in this world. (I am not against either by the way) this is only by the way of illustration. I had recently wrote a blog post about this why Supplementation wins the War but I wanted to take another stab at it again. And even though I will have only used Vitamin(s) in this post. I want it to be clear this is for Vitamins and Minerals . . . like Iron, Magnesium, Calcium etc. It is just easier to type/write colloquially to use Vitamins to stand in for both Vitamins and Minerals together. See any of my comments or Ennis_Tx’s about Magnesium taken as Magnesium Citrate or Magnesium Glycinate. And why it is easy for the Protestant’s to claim a victory of sorts (there are Protestants still right) it is a pyrrhic victory at best because according to answers.com Catholics outnumber Protestant’s 2 to 1. https://answers.yahoo.com/question/index?qid=20070213184757AAHuhGz If you don’t still don’t believe me visit some of the old Cathedral’s of Europe you guessed it nearly all of them are Catholic Cathedral’s. Back to our point about Vitamins needing a Reformation. Such is the reign of Genetics today we blame it (our Genes) for everything today. Yet new research indicates maybe less than 1/3 of cancer’s day has anything to with Genetics at all. http://www.foxnews.com/health/2015/01/02/study-concludes-that-many-cancers-caused-by-bad-luck-in-cell-division.html Why this research is old it highlights my point that lifestyle (nutrition/vitamins etc) can and do help prevent Cancer today even in this GENETIC age we live in. http://www.cbsnews.com/news/lifestyle-changes-can-prevent-40-of-cancers-study/ To quote them from cbsnews “”We didn’t expect to find that eating fruit and vegetables (VItamin rich foods my words) would prove to be so important in protecting men against cancer,” Parkin said in the statement. … “This adds to the now overwhelmingly strong evidence that our cancer risk is affected by our lifestyles,” Dr Rachel Thompson, deputy head of science for the World Cancer Research Fund, told The Guardian. “ We hope this study helps to raise awareness of the fact that cancer (sickness) is not simply a question of fate (it’s in our genes my words) and that people can make changes today that can reduce their risk of developing cancer in the future.” My point is we need to be saying. Nutrition (Vitamins’ make us healthy) and not let Genetics get all the credit these day’s this includes our GI health too! I believe. It is actually probably more true too realize/say the balance is 50/50 because stress/environment effect both our health and yes even Genes. I think of it in these terms. A Vitamin is a substance we need in a “Min”ium” amount without which we become sick. I understand completely there is a lot of confusion about this topic. I will provide you some of the sources that lead/helped me come to my conclusions. Dr Prousky’s research is what I based my conclusion’s on and helped me to realize my Celiac Disease with/where he concluded “Niacin treats digestive problems” could also be confused for Low Stomach Acid. http://www.yourhealthbase.com/database/a124b.htm This is the link to the abstract. I realized this was going to be a future post when I saw Ennis_Tx muse about this question in a previous thread. Digestion is a north south process and it begins to make much more sense when you begin to understand the stomach protects your Small Intestine and if your defense are low (low stomach acid) when it is commonly thought to be high invading proteins like lactose, soy, and gluten etc. get through. http://divinehealthfromtheinsideout.com/2012/03/digestion-101/ Try a low carb (i.e. and also gluten free) diet for about a month and see if you flare ups don’t improve I think you will find your trigger is gluten and carbs. If so this will work but you will have to come to this conclusion on your own. It took me 3 years of study to understand these things God being my help. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. If you are now taking an acid reducer/proton pump inhibitor (I can’t lie) there will be a transition period. They all have a wall effect (burning when stopped) that often lock people in to using them for years and years when they were only intended to be used for 6 weeks or less to let ulcer’s heal. Actually on the OTC kind people usually buy without a prescription. It is even less than that. Only 14 days is recommended. . . . not 14 months ++ as is so often the case for people when they begin an acid reducer. See the FDA box warning. https://www.fda.gov/drugs/drugsafety/ucm245011.htm It will take courage and conviction on your part to take a Vitamin when all you hear these days’ that the “average” person doesn’t need a Vitamin. (see link below about why all the hate for Celiac’ drug/medicine treatment?/ trials?) by Jefferson Adams which inspired my title. https://www.celiac.com/articles/24099/1/Why-All-the-Hate-for-Celiac-Disease-Drug-Treatments/Page1.html Or put another way why ‘all the hate” for Vitamins? these days” instead of “Time for a Vitamin Reformation” (though I believe it is. .. I am also convenienced) it will take another generation to realize Pellagra is now being diagnosed as Celiac disease today instead. It takes a generation to make a change unless there is Education. This posterboy blog post is about that education process/the things I have learned from studying this subject myself. Do not change any of your supplementation/medical regime unless you have consulted with a doctor. . . but I found it helped me. The ignorance of this fact that Pellagra can occur with/in/as part of a Celiac diagnosis is so strong that so much so the “average joe” won’t take a Vitamin for their health? Well an IBS/NGCS patient/ Celiac Patient is not the average patient. They are known to develop malabsorption syndromes and B Vitamins are known to help celiac patient’s why wouldn’t you at least try a B-Vitamin or B-Complex to see if could help your GI symptom’s. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html (though this study does not include the effects of full spectrum B-complex) it would have been nice if it did. I ask again “Who’s Afraid of a B Vitamin” See my earlier posterboy blog post about this topic Or to ask it rhetorically why all the hate for Vitamins these day (reader)? Or you (reader) afraid of a Vitamin? Or have you been too (reader) taught to hate Vitamins? And it isn’t just Niacinamide by the way (which is the focus of this post) it is most B-Vitamins. See this article about how B-1 Thiamine can help reverse Kidney Damage in Type 2 Diabetes http://news.bbc.co.uk/2/hi/health/7796073.stm Entitled “Thiamine ‘reverses Kidney Damage’ in Type 2 Diabetes” As usual this research is almost 10 years old and doctor’s clinical practices have not caught on to this fact proven by research. Instead the standard reply is “you don’t need Vitamins” or at least the average person does not. People who have TD2 or Celiac disease should not be considered the average person. Let me say at this point. Why is this not on the front page of every newspaper in the US and the UK and the world. Here we have a Vitamin that reversed Kidney Damage but no one is talking about it. What is not considered or well understood that these same vitamins that can help these patients – a deficiency in these same vitamins can also cause these same symptom’s. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ Now back to Niacinamide for a few minutes. What if had a Vitamin that was known to treat GI problems? We do but clinical practice has not yet again caught up with the research. That is why Prousky’s research is so ground breaking and misunderstood because the same vitamin (commonly misunderstood) associated with these problems has been proven to help the same problems it (Vitamin B3) has been thought to cause … though not commonly (well) understood Niacin treats digestive problems. http://www.yourhealthbase.com/database/a124b.htm *****I must say at this point this is not medical advice only my experience with Niacinmaide See my previous posterboy blog post about how the average clinical delay is 17 years in implementing new research into doctor’s protocols’/treatment regimens. This clinical gap is a devastating delay. And also I want to make this disclaimer. The default (thought) here is you are not taking Niacin or any version of B-3 (in its many forms) or have either not taken it for Cholesterol management previously or are now taking it for your GI problems. If you are now taking Niacinamide/Niacin etc. this post does/is not directed at you (or other Vitamins/Minerals) for that matter . . . like Magnesium or Iron etc. Also see my posterblog post about how supplementing can help you fight a two front war. Any Vitamin or Mineral can be taken to excess . . . contributing to a worsening of your conditon.. . including Niacinamide, Iron, Calcium etc. This comment/thread is directed to those who have not yet considered supplementation previously. And with the intent you will only take this for a cycle of time. Say 4 to 6months for most people or 6 to 12 months max for the most severe forms of this disease. See this link where it explains how “up to 12 months” B-Vitamins helps improved/improves moods for those who are depressed. https://www.ncbi.nlm.nih.gov/pubmed/7477807 Reader, Do some of the research of I have listed here and if you still feel the same way. I get it. I have been on that same journey. But this is not as uncommon or unplausible as it might sound. The “House TV” show/medical drama noted this fact in their episode on Celiac Disease. Google House season 2 episode 22 on Celiac disease entilted “Forever” and you will find articles about it and probably a link to watch it. I think it would be enlightening to see how these two diseases are entangled like Siamese twins. When digestion works properly the God given burp is produced (not soda’s) but you burp like a healthy child at 6 months of age so too will an adult when they take Niacinamide (the nonflushing form of Vitamin B-3) for 6 months 2/day (especially if you are not taking PPIs currently). Your results might be different but you won’t know unless you try it. When I began my journey I was/became known as the posterboy for Celiac disease. What it has turned into unexpectedly is me being/becoming the posterboy for Pellagra too! It (Pellagra in Celiac’s) is not as rare as people think it is today especially 2ndary Pellagra caused by your original Celiac diagnosis since Vitamin absorption is frequently compromised in Celiac’s. I always have to say. **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I have found (and my friends have found) if you take it (Niacinamide) like an antibiotic (UNTIL BURPING) then 95% of your GI stress will be in remission. And I don’t mean twenty minutes after you have eaten but 2+ hours later when burping has replaced burping and bloating that start’s almost as soon as you take you first bite. Or burping that occurs with drinking soda or a carbonated drink. Again I say 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” I hope this is helpful. Posterboy by the Grace of God, That is all for now until the next post. (Whenever that is) but the intent of this/theses post’s is “Too Educate” and anyone of my posterboy blog posts could help you without the need to read all my posterboy blog posts??? So I am sorry if I run a little long some times. . . but people need to know if this is the only blog post they read. . . Pellagra in Celiac’s can be successfully treated with supplementation or AKA a Vitamin Reformation (in the way we think) about GI problems according to Prousky who almost 17 years ago proved Niacinamide can help those with low stomach acid misdiagnosed. Will you listen? and take the Niacinamide Challenge taking it until you are burping 2 hours after you finish a meal. This usually takes 3 to 4 months taken it 3/day or morning and evening and (one hour before) bedtime (if it is not convenient to bring to work) works well for most people. This tends to be one 300 count bottle for most people. Though a smaller amount might work I want you to have a positive experience and thus recommend conservatively a 3 month to 4 month cycle – the amount your body can typically store in your liver – thus helping to reset your body’s stress clock (my words). This schedule works well for Magnesium as well. . . and usually it (Magnesium Citrate/Glycinate) causes restful dreaming in the first month of taking it. The power to change is in your hand for “To Educate is to Free” As always remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. But I have found (and friends have found) if you take it (Niacinamide) like an antibiotic (UNTIL BURPING) then 95% of your GI stress will be in remission. It is time for a Vitamin Reformation (a change in the way we think about Vitamins – a shift in our paradigm) praise bee to God! Back to when in the 20th century they understood Vitamins make us healthy! They even gave Nobel Prizes for discovering these substances called Vitamin(s) and rightly so! If this is the case for you – you the reader also have/had developed 2ndary Pellagra due to your primary diagnosis of Celiac disease. See my earlier posterboy blog post where I talked about my experience of developing Pellagra 2ndarly to my Celiac diagnosis. All those who have ears to hear may they listen! Feel free to read all my posterboy blog post’s if this pique’s your curiosity/interest but there is only so much in a/one blog post than can be explained but it really Is not necessary or visit the website/blog in my profile where I have told the same story hundreds of time that ONE fellow sufferer like myself may/might be helped by the same wisdom, I found God being my help, when I learned Pellagra and Celiac disease are Siamese twins and separating one (supplementing one to death) will kill the other (cause the other to go into remission). Also see my posterboy blog post of how I supplemented Pellagra to death/into remission. Noted above (earlier) in this post but provided here again for easy reference. And I believe you can too! Praise bee to God! 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them (fellow sufferer) which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” Posterboy by the Grace of God, 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. As always it is in this spirit of truth that I share so that others like my-self might not have to suffer the same things I did.
  20. Medical Mysteries and Shadowlands the Posterboys Story of how he unlocked help co-morbid Pellagra God being his help from his Celiac diagnosis. May you find the same faith in your life for to Educate is to truly Free! How to determine if it is a complementary or competing diagnosis? It takes faith to free yourself from a comorbidity. Health is like faith . . . you will only do what you believe. And you can have only faith in what you know to do. As some long time members of celiac.com know most/many of my blog posts’ document my trials and tribulations with Low Stomach Acid often being misdiagnosed as high stomach acid today). I have like many of you on this board had severe GI symptom’s culminating in a Celiac diagnosis after 30+ years of IBS and/or NCGS symptom’s. Only to find out that taking BetaineHCL (powdered stomach acid) helped alleviate many of my symptoms’. **** Let me say that this does not negate my positive Celiac/NCGS (really positive blood test only) diagnosis. I am in the medical world something termed a “Zebra” or “idiopathic” would be a more correct term/diagnosis. These GI conditions were happening for an “unknown reason” . . . Low stomach acid being misdiagnosed as HIGH stomach acid instead. Think the “House” TV show which I don’t get to see much anymore but commonly took several “differential diagnosis’s” to determine the correct one. While any of the previous diagnosis had a valid conclusion they ultimately were wrong. (But in TV land . . . . everybody finally gets the right diagnosis and gets better as if my magic it seems) but if you have ever read the Washington post’s “Medical Mysteries” column you know that is far, far from the real world sometimes. https://www.washingtonpost.com/national/health-science/a-bad-diagnosis/2015/08/24/b17606c2-12ac-11e5-89f3-61410da94eb1_story.html Often we/us “‘Zebras” exist in some “shadow land” as described well in this NYtime times article here discussing the difference between “The Damage of Bile Reflux not (Stomach) Acid” http://www.nytimes.com/2009/06/30/health/30brod.html quoting “The symptoms are similar to heartburn, and many sufferers are told they have gastroesophageal reflux disease, known as acid reflux. Yet treatment with popular remedies for acid reflux, like the acid-suppressing proton-pump inhibitors Prilosec, Prevacid and Nexium, fails to work or gives only partial relief. That’s because acid reflux is, at most, only part of the problem. The main culprit is bile reflux, a back-up of digestive fluid that is supposed to remain in the small intestine, where it aids the digestion of fats.” However if low stomach acid continues to be treated like HIGH stomach acid instead . . . no real progress is made and people become locked into a (bad) misdiagnosis. I have been that person. I know what it is like to receive one bad diagnosis after another. Co-morbidity is a real medical condition where more than one disease exists in a person and because of “preconceived notions” one disease is not being treated because the other “Primary” disease is considered secondary to the first. See my blog post about how this “devastating delay” can delay healing in recognizing the correct morbidity. Or can we identify the real/correct diagnosis in the first place. Maybe? Or Maybe Not? I am not saying this will help “All” your problems but it will help your co-morbidity. My co-morbidity was Pellagra occurring with/because of my Primary NCGS/Celiac diagnosis or as I said in another blog post I had Celiac disease and developed Pellagra. Or was it I had Pellagra and was diagnosed as a Celiac? How could I know for sure? I could supplement with the missing ingredient that leads to Pellagra in time. And if I got better then I had addressed a common co-morbidity in celiac disease. See my blog post where I explain how to win this two front war. I have found (digestive) peace praise be to God! Now I don’t’ expect this to work for everyone who try’s it but I didn’t anticipate the amount of resistance or faith it would take for people to consider a valid “differential diagnosis” either. It turns out without faith . . . people can’t get better. I will say it again “Health is like faith . . . you can only do what you believe”. What do I mean by that? Read most any post from Ennis_Tx and he will faithfully tell you about Magnesium. . . though few believe him (often) he faithfully tells it (because it helped him). I didn’t know what was happening at the time. I was witnessing the Pike Syndrome in action . . .until it happened to me. I naively believed . . . tell other’s and they will believe. Not so young padawan . . . you can have the knowledge to help other’s but until they know how much you care . . . they don’t care how much you know. I had come up against the greatest force in the (medical) world)) and maybe the world in general (I speak as a man) . . . inertia/apathy also called “learned helplessness”. Better known as the “Pike Syndrome” (Anybody who has received a misdiagnosis . . .. later on to find out your IBS is now NCGS or your NCGS is now Celiac disease this post is for you. Think if you had received a Celiac diagnosis in the beginning how much suffering you could of avoided over all these years.) Explained well here at a motivational coaches site https://jcrowcoaching.com/2012/02/01/that-pike-experiment-is-downright-chilling/ I will quote short pieces/clips to explain quickly what I mean but read it all for your selves for a more comprehensive understanding of this concept. “Known as the Pike Syndrome, it’s a great, albeit depressing, example of learned helplessness. There’s a pike in a tank of water along with a dozen doomed minnows. Sure enough, the pike darts and snaps and gorges. Poof, the minnows are nowhere to be found and the pike is pretty satisfied. Enter these two exceptionally perky researchers who proceed to lower a glass barrier into the tank and slip in another dozen minnows. Like any self-respecting pike, this fish is thinking “lunch,” and goes after them with gusto. Except he smacks his nose against the glass and comes up empty-handed (so to speak). Again. And again. Finally, the pike sinks to the bottom of the tank, suspends himself in the water and stops trying. That’s when these researchers (and really, they’re so happy they’re scary) remove the glass barrier, freeing the minnows to swim wherever they like. And where they like includes all around the motionless pike, right in front of his nose, even bumping into his head. And the pike? He just sits there and never again tries to eat a minnow. And he starves.” To many times in life there are “invisible barriers” in our lives’ holding us back. . . This is to those who have lost hope or are still searching (hopefully) if you are reading this blog post for yourself or a friend who has developed NCGS or Celiac disease. Gluten is your minnow (with good reason) but if you have Pellagra too (that invisible barrier) can be removed by supplementation. IF your now suffering from Celiac and Pellagra the way I was then taking Niacinamide will remove the Pellagra barrier in your GI quest to get better and find GI peace from Pellagra for yourself the way I have. How do we know if it really can be Pellagra instead? It is as simple as Occam’s Razor. From Wikipedia 1. “Occam's razor is a problem-solving principle attributed to William of Ockham (c. 1287–1347), who was an English Franciscan friar and scholastic philosopher and theologian. The principle can be interpreted as stating Among competing hypotheses, the one with the fewest assumptions should be selected.” The correct diagnosis is the simplest one to diagnose. Pellagra can be simply treated by supplementation. AND (a witness of two is true) IF you have developed a CORN allergy in addition to your gluten allergy you have met the medical definition of Pellagra 75+ years ago lost now to medical history. See Dr. Heaneys’ great blog post summarizing this fact about Pellagra and the 4 Ds. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ I will say it again “The correct diagnosis is the simplest to diagnosis”/simplest to treat in a co-morbid condition. . . where there is some doubt as to the true diagnosis. And supplementation removes that barrier if indeed you have also developed a corn allergy I beg you to consider taking Niacinamide 2 or 3/day (whichever is easier/ with each meal or morning and evening) for 6months to see if your GI problems don’t improve the way mine did after 30+ years of suffering from a Vitamin deficiency. Or if you are still suffering from a “poor prognosis” and poor dietary compliance (seemingly) though you have tried your best (you really have) and are still failing at achieving remission then consider the differential diagnosis of Pellagra is all I ask. Also see this thread about a Celiac starfish/zebra who is suffering still from Pellagra misdiagnosed as Celiac disease (I believe) and is shocked her Ttg levels are still elevated. quoting/paraphrasing from the earlier Pike Syndrome article christina this post is for you. “The thing is, unlike that starving pike, we have the power to change our perspectives, challenge the accuracy of our beliefs, and question our views. It’s not necessarily easy. Sometimes it takes an outsider to help . . . .who will push and prod and challenge. If we’re lucky something inside of us nudges at our unconscious until we move, and try, and change our views”… /belief(s) about our/your bad diagnosis. You will only know if you try! I pray you will have the faith to try! If it could help why wouldn’t you at least try? You are not a Pike! As always 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen Change is not easy . . especially if you have developed/are suffering from the Pike Syndrome I grant . . . but possible with education for with education comes understanding. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (Pike/sufferer still suffering), by the comfort wherewith we ourselves are comforted of God.” Posterboy by the grace of God, *****Note: I have said all I have intended to say. I speak as a man. Badly misquoting Romans 10:14 How then shall they change their stars/diagnosis in what they have not believed/heard? and how shall they believe in what they have not heard? and how shall they hear without a preacher? Romans 10:14 "How then shall they call on him in whom they have not believed? and how shall they believe in him of whom they have not heard? and how shall they hear without a preacher?" I have spoken/preached to other’s still suffering with/about a diagnosis I did not receive that helped me. I hope it helps you too the way it did me. Pellagra – Like Celiac Disease has existed in the Shadowlands as a Medical Mystery for way too long! Find out which is the correct diagnosis is by supplementing with Niacinamide 3/day for 6 months I beg of you until BURPING two hours after a meal is your new normal and the “Natural Order of Things” have been restored. If this has "Piked" your interest you can read best how to take Niacinamide by reading this blog post. You are not a Pike! You can decide for yourself. Knowledge is power! Now that you know what else Celiac Disease could be what will you do with this knowledge? Will you sink to the bottom of the tank or try to bust through that glass barrier (which isn’t there) but in your mind if Pellagra is now being diagnosed as Celiac disease and the doctors have badly misdiagnosed this Medical Mystery (Pellagra) and you have been found to exist in the Shadowlands of Medicine. Then there is hope! This is not as far off as it might sound on a first hearing. See Season 2 Episode 22 “Forever” listed as episode 44 see link below of the medical TV drama “House” the “Differential Diagnosis” /Final Diagnosis was Pellagra for the Episode on Celiac Disease. https://en.wikipedia.org/wiki/House_(season_2) Feel free to comment and add your success stories when you begin burping w/o bloating for the first time in years and years so others too can be helped from your experience. Like I am sharing now. Praise bee to God if you have considered what I said and are willing to try it (taking Niacinamide) for yourself or your little pike if you are a parent and still searching for answer's for your little one until . . . burping is their/your new normal. I only know it helped me. I can't be the only one. If I am let it not be because I did not share! A witness of of two is true! Both you and your tyke take it (Niacinamide) at the same rate/amount 2/day or 3/day (whichever is easiest) and you will begin burping together -- a confirming sign that the Vitamin is making a difference and Pellagra is fading away into medical history for you in approx. 3 months. 2: 7 “Consider what I say; and the Lord give thee understanding in all things”
  21. Is Non-Celiac Gluten Sensitivity and/or Celiac disease really Pellagra in disguise in the 21st Century? Whether to supplement or to not supplement by the Posterboy What to say? What not to Say? So many things to cover. . . yet so little time/room for it in only one post. Let me be clear. I think it is or was in my case. That is I think one disease lead to the other. Your story might be similar. Which one to choose? Supplementation I think answers/answered that question (for me) at least. And I hope it will you too! In the work place we have a phenomenon called “Silos”. “That is not my job” is heard way too often. Instead of let me see if I can help you with that! Right? It would be called or known as good Customer Service if we were in business for ourselves to offer help. But not in medicine . . . it is stay off my territory/turf and an all-out war breaks out. But when it comes to diseases/symptom’s that are or can be “Differential Diagnosis” we have that same bunker mentality or “Silos” thinking. Talk to your friends who have NCGS or Celiac disease (and I have tried) and inevitably they will say . . . I do not have Celiac . . . I have IBS or I am not a Celiac (yet) I have NCGS instead. Or talk to a UC patient (stuck) in their Silo (diagnosis) or a Chron’s patient . . . and the lament is the same. I do not have that. It is almost a knee jerk reaction. “I can’t have that”. I know because I have tried diligently to educate my friends and many forum members on this board of how Pellagra makes more sense when you stop and ask seriously “What else”? can/could cause these/my symptom’s. I recommend this thread/post where other forum members staunchly defend their silos/bunkers. In it NCGS, SIBO and Pellagra sufferers battle to the proverbial death over their positions. Let me say at this point???? Who knows who is right? Captain NCGS could be right or SIBO girl could be right or all three could be right! But it is better to settle on one diagnosis (usually) and run with it so to speak. And each in turn have faithly done this and ran to their bunkers to get more fuel for the fight? (SIBO girl) I am sorry I don’t know the percentage for SIBO that becomes’ Celiac or Pellagra. But for IBS and NCGS the failure rate(s) are horrible. For weatherman we would be happy with 50/50 right? (though they are getting somewhat better these days) A good baseball player is said to be good when he bats .300 or better. He is doing good. Well in Celiac’s we are still well below that number. We are not doing good at catching Celiac or is it Pellagra early enough in the sub-clinical phase? where it could prevent the most harm! See this post where 90% of Celiac’s in Canada is missed or Misdiagnosed. https://www.celiac.com/articles/24919/1/Are-Doctors-Missing-90-of-Celiac-Disease-Cases/Page1.html quoting “Among their findings is likely ~1%, with 87% of cases being undiagnosed.” And the rate in the US is only marginally better at maybe 80% being misdiagnosed. They even pose this important question? “Why? Or How could this be?” They are puzzled at such a high misdiagnosis of Celiac disease. Quoting again “How could this be? One reason is that even classic celiac disease symptom, such as abdominal pain, bloating, gas, diarrhea, anemia and weight loss can mimic other conditions. Less classic symptoms such as fatigue, low vitamin C, D and calcium levels can be misleading.” Lupus is known as the great imitator disease. And Celiac or is it Pellagra could be called the same in 87% of cases if you are lucky. They say imitation is the sincerest form of flattery. Well not in this case (it is all out war). One disease is being disguised at the other. Which one to choose though since they both imitate each other. For me supplementation let me see which was the last disease/man standing so to speak. But let’s go back to our bunker(s) of symptom’s and defend/ask/consider how in 87% of cases we know we have the wrong disease. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html As to/for the IBS sufferers If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS? The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly just UC or other GI disease presumably. It is even worse in NCGS cases. https://www.celiac.com/articles/24448/1/Gluten-Definitely-Triggers-Symptoms-in-Some-NCGS-Patients/Page1.html 90% + of NCGS have the wrong diagnosis . . . but don’t point that to anyone because “I don’t have that disease” artillery will come out and blast you into smitherins. In the military it is called “friendly fire” whatever that means right. You can’t make anybody happy it seems. I am a “friendly” here. Tell someone (a Chron’s) patient they could have Celiac and duck for cover because “friendly fire” explodes. Pick your “poison”. . . IBS, UC, Chron’s, NCGS, SIBO etc. and be prepared to be gunned down in cold blood (forgive the analogy) lest you suggest somehow in some way a “differential diagnosis” makes more sense. A valid I dare say standard “process” of modern/good medicine is the differential diagnosis. If it is not the doctor has not done justice for you or you for yourself has not done you justice. Isn’t that what we all want – to know just what we need to do to get better that is justice/peace and good medicine. We are our own best advocate! Supplementation to me answer's that question and Is good customer service. Think of/about the show House who inevitably get’s the diagnosis wrong the first time and the second time and maybe (if it is not a two part episode) by the fourth or fifth try we learn an hour later what took months to determine you (the patient) has NCGS, SIBO, Chron’s, or Celiac disease etc. and the patient goes way coming in feeling crappy but goes away happy! Oh wouldn’t it be nice if “real life” imitated art sometimes. So if the “war” you find yourself in (Chron’s, NCGS, UC, etc. and yes Celiac disease) is imitating Pellagra then consider a “Differential Diagnosis” if you are like the 58% of Celiac’s who also have Pellagra. http://pubs.sciepub.com/ijcd/3/1/6/ Maybe . . . just maybe you will find you are like me and getting a valid differential diagnosis helps your GI problems too! The odds of this happening is (far) better than you think. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html I ask again Is Non-Celiac Gluten Sensitivity and/or Celiac disease really Pellagra in disguise in the 21st Century? Let me be clear. I think it is or was in my case. Because if you get the wrong disease the battle (war) in your GI will wager on but if it is Pellagra then the battle can be won. Peace how sweet the sound! If you have not heard of Pellagra and if it was not part of your valid “Differential Diagnosis” http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ Don’t’ be surprised by this most doctors’ have not either. Read Dr. Heaney’s blog posts where he summarizes why this is today! quoting “2014 marks the 100th anniversary of the war on pellagra, a war that lasted nearly 25 of those years before victory could finally be declared. You have not heard of the war on pellagra? The celebration is not on your calendar? You’re not alone. Why did it take so long? Was the science so intractable, like the current “war” on cancer? No. It was politics (differential diagnosis) and pigheadedness (Silos) that were the obstacles.” The science is valid. A Differential Diagnosis is “good” medicine but it will be hard to believe this because of our/are bunker mentality. (I know I have done the same thing) It is said the longest distance/foot in the world is the 12inches from your head to your heart. It only took me 4+ years of research to convince me that more than ever the 90+ percent of the most common GERD/Gluten/NCGS/IBS, Chrons’, Celiac disease issue(s) etc. GI problems are related to sub-clinical presentation of Pellagra unrecognized in a clinical setting. Or imitating first IBS and NCGS then Celiac disease (in time) if you will. If you know in your head something else is still wrong then let your heart be open to another front of the war co-diagnosis/co-morbidity/supplementation. Or if you have/continue(d) to develop more leaks in the dam (leaky gut, SIBO etc. or other food allergies in addition to gluten) then consider Pellagra as a valid differential diagnosis. Especially if CORN is now bothering you too! The medical definition of Pellagra first diagnosed/discovered in corn products 75+ years ago is Pellagra. Since auto-immune diseases rarely occur alone it only makes sense to tackle the easiest one’s first. On this board there are two camps. (It is true in many things of life). Supplementing or not to supplement is the 64K dollar question. The one’s who believes in supplementing readily attack the front (symptom’s) on/from whatever artillery (vitamins and minerals) they can find to shore up their defenses. The other camp prefers to hunker/bunker down and wait for reinforcement/symptom’s to get better and the battle/siege to pass. But in war there is an old saying. “A city besieged is a city taken”. I prefer to advance when possible to take the “fight” to the enemy. Supplementing allows me to do this. .. and this is how I learned to fight back Pellagra disguising itself as Celiac disease today. Disguise is a great trick of the enemy. For if you get the wrong diagnosis then the symptom’s never getting better and the battle/war rages on. But What If you have the wrong disease? Would you get better? This is dedicated to kareng for she once asked me why? worry about a disease I couldn't be sure I had over the one I knew I had. . . without supplementation I couldn't be sure if it was Pellagra or Celiac disease I was fighting. Supplementing answers/ed that question. It removes/d a front in the war. So what do you say are you ready to fight back the enemy? It might not be the one you think. Two front wars are rarely winnable. If they were I might be typing this in German. I need to stop for (now) but this is my story. . . maybe yours is similar you will only know if you are willing to try. I can only tell you what helped me. I can’t tell you if it will help you. Praise bee to God! To those who will hear and listen! Let me say (Thank you) at this point to Jmg. Thank you for taking the Magnesium and a B-complex and telling others how much they helped your "tiredness" etc. . . I know there is a lot of confusion out there. I am just trying to help those who are still suffering (losing the war). For a battle the war was lost. I implore you don’t’ let it (war/diagnosis) be lost because of “pigheadedness” to use Dr. Heaney’s words because you won’t try fighting back with supplementation. The Starfish Story Original Story by: Loren Eisley “One day a man was walking along the beach when he noticed a boy picking something up and gently throwing it into the ocean (world wide web) … Son, the man said, don’t you realize there are miles and miles of beach and hundreds of starfish? You can’t make a difference! After listening politely, the boy bent down, picked up another starfish, and threw it back into the surf. Then, smiling at the man, he said "I made a difference for that one.” . . . I hope that one is you reader -- fellow sufferer from a former Pellagra sufferer diagnosed as Celiac disease. I am that Celiac and Pellagra posterboy walking along the shore throwing starfish back or trying too! As I am fond of saying “To Educate is to truly free!” Where there is a free exchange of knowledge there is health and peace for one’s soul and body! Let’s all make peace for to educate is to empower to change. Change is not easy . . especially if you have a bunker mentality I grant . . . but possible with education for with education comes understanding. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish/sufferer), by the comfort wherewith we ourselves are comforted of God.” Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the Grace of God, Addendum: The Time has Come to talk of Walruses and Kings and Many Things (Hat tip to Jmg you know who you are – your wit is priceless) a horrible paraphrase of Lewis Caroll’s quote. I think I am an American who was born with British humor sometimes because who doesn't like a good quip. . . quote or misquote. Like your NCGS bit/disguised as NCIS. Imitation is the sincerest form of flattery -- unless it is medicine then it is the unkindest cut. . . (See I can't write a short thread/a long winded American with British wit) Truly the time has come for me to spend some time “mending fences” and spend more time either away on the farm helping my brother or at least a “little time” away somewhere else/doing something else. My changing life requirement(s) and other spiritual interest(s) has/will take/are taking me away from this board more and more till it is less and less. And in time people will ask what ever – happened to “posterboy” and his low stomach acid problems. I can only hope what I have shared here has lifted the tide of knowledge a little about stomach acid issues and your boat/life has been lifted enough for you to freely sail again. Take what you have gained and share. . . at every port you land in . . . who knows what/ where the wind of (life) might take you. I know I will miss many of you on this board but my experience does not match up with many others on this board and I don’t want to impose my ideas where/if they are not wanted or don’t seem to be doing any good. If anyone else thinks they may have low stomach acid who is reading this like I had feel free to PM me and I will try and answer any question I can but searching for the posterboy on celiac.com is the easiest way to find/answer most any question you might have. (For I can’t answer/write) a short thread and always tried to be exhaustive in my answers. I will still comment when from time to time if it feels right and my experience of low stomach acid being misdiagnosed can help those still suffering. https://www.celiac.com/forums/blogs/entry/2106-is-ncgs-andor-celiac-disease-really-low-stomach-acid-misdiagnosed/ It is my hope that at least some starfish/sufferers have found hope/help in the things I have suffered with/and shared about how /what helped me. Praise bee to God! It only takes one to make a difference! Don’t every stop being your own advocate! 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish/sufferer), by the comfort wherewith we ourselves are comforted of God.” 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  22. I was inspired today for two reasons. (Sorry for the formatting) 1) my brother recently had an emergency that required hospitalization and two stents to be put in his heart. Every Hour Counts/Every Person Counts 2) this new research about Zika and the implementation gap/clinical delay in recognizing a disease in clinical setting. http://www.nejm.org/doi/full/10.1056/NEJMp1707273 AS someone who has had BOTH Celiac and Pellagra. I can tell you that it can be difficult to tell them apart sometimes (most times). In many respects they look like twin(s). Both have GI problems as a presenting symptom’s. Both have Skin Issues in their presentations (clinical appearance). Both can have dementia/neurology symptoms. SO you can see how easily one can be confused for the other? And often one twin (disease) is picked over the other. What does this have to do with Zika. Only this Quoting the New England Journal of Medicine from the article and applies here when contemplating any disease’s symptom’s. “Translational gaps are not unique to Zika; similar challenges exist throughout the health care system. According to several estimates, it takes an average of 17 years for research evidence to reach clinical practice. 2 One study showed that patients receive only about 55% of the recommended processes involved in medical care. 3” So let’s say. Today they find a miraculous cure for Celiac disease or NCGS. . . it would take on average 17 years for doctor’s in Clinical settings to apply these technique’s to eradicate new Celiac cases/disagnoses from occurring. Now in this hypothetical case (which doesn’t exist yet) it would take another 17 years on average for doctors if they knew today that Pellagra (which they don’t) can mimic Celiac disease in a Clinical setting. But one does exist (it is not hypothetical) – a cure for Pellagra exists today. It has in fact existed for 100+ years and still doctors don’t recognize it today. Every hour/patient matters. And why I have tried diligently to educate other Celiac’s of this maddening fact. In 2015 a medical association was established of Pellagra occurring in/with a Celiac diagnosis. http://pubs.sciepub.com/ijcd/3/1/6/ Quoting from section 3. Pellagra and Celiac disease in this ground breaking research. Pellagra and celiac disease “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40].” So if their (NEJM) timeline is correct. It will be 2032 at the earliest for the Clinical delay to catchup to research. As I mentioned earlier it has been 100+ years since doctors’ have seen Primary Pellagra in a Clinical setting. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ And it isn’t Primary Pellagra that is the problem here. It is a phenomen that is called Secondary Pellagra. It didn’t know what it was either. And I have studied the topic extensively. see this entertaining thread where SIBO girl, Captain NCGS and Pellagra boy are superheroes saving others from their respective disease's They are all superheroes in their own right in my mind (hat tip to you both) and good luck on your continued journeys. Now back to my updated blog post on the "clinical gap" that is so devastating. See this link from the doctor’s healthy press (Yes doctors have to look things up too) that explains the difference very well. https://www.doctorshealthpress.com/food-and-nutrition-articles/pellagra-vitamin-b3-deficiency-causes-symptoms-and-treatment/ I will quote for reference. 1. Primary Pellagra “This form of vitamin B3 deficiency is related to a lack of nutrition, such as not getting enough eggs, meat, seafood, or green vegetables in your diet. Alcoholism is often a factor with primary pellagra, for the reason highlighted above. 2. Secondary Pellagra Those who regularly consume sufficient amounts of vitamin B3 may still deal with this condition. Secondary pellagra is the result of improper absorption of the nutrient, whether as a whole or partially. This is observed with gastrointestinal diseases that do not accept the niacin.” (Celiac disease) It is me again pellagra and celiac posterboy. So now we know what else it (Celiac disease) could be? Now the question remains will it take another 17 years for the doctor’s to have you checked for it or for you to believe a Vitamin might help you? Now Pellagra (and other B-Vitamin diseases) can be tricky to diagnose. Because for some diseases there are not good/reliable “blood serum” test’s to confirm the clinical suspicions. A cause and effect method is often used. If taken the B-Vitamin (NIACIANMIDE) helps your GI problems then Pellagra or at least Secondary Pellagra was a contributing factor in your GI problems. Dr. Prousky tested this theory. You guessed it almost 17 years ago. Next year will be 17 years and still this modern research has not trickled down to a Clinical setting. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm And why I have been inspired to share my Celiac story of the road not taken. The Pellaga road was not taken in my diagnosis either. The doctor's did not know this could be a valid reaction to NCGS or Celiac Disease. Knowledge is power. Now you have the knowledge to do different and probably better than you are doing now if Secondary or Rebound Pellagra is causing some of your same GI problems and this is making your original Celiac disease symptom's even worse. This is mostly for those still looking for answer's despite being gluten free for 2 or 3 years and are still having "control" issues or have become ultra sensitive to many more proteins (food allergens) like even Corn for example. Pellagra was first diagnosed with corn based food stuffs. And promptly forgotten years ago. See this great newspaper summary of how "Pellagra in the South" presented itself 75+ years ago. It is actually a fairly new article about this topic. Only a year old. And found it amazing that others (though few) still talk about it today. http://www.timesfreepress.com/news/life/entertainment/story/2016/jul/12/clif-cleaveland-pellagrand-history-south/375065/ But doctor's haven't yet figured out that Rebound/Secondary Pellagra is estimated to occur in 58% (majority) of first diagnosed NCGS or Celiac patients. If the normal clincal adoption curve applies here then it will be another 15 year before doctor's acknowledge that indeed the corn allergy occuring in Celiac's is really from Secondary Pellagra. You have probably heard this phrase there is a "generation gap" . . . well if the trend holds in clincial adoptation and bleeding/leading research then indeed it will be another "generation" before this "Clincial Gap" will be closed. Then and only then will people begin to listen and get better . . .And I hate that for those still suffering . . . because every hour/patient/person matters. ****this is not meant to bee medical advice only the path I took. Yours might be different. But there is a 50/50 chance it might help. I don't know what else to say. With my changing life and farm responsibilities/realities I will not get to participate on this forum the way I once could so I wanted to say what happened to me with the hopes it might help those who might be still be suffering from rebound/Seconardary Pellagra triggerd by their NCGS/Celiac disease. You can rebound from Pellagra. I have praise bee to God! The Celiac diagnosis might still be retained if Secondary or Primary Pellgra was not the cause but if it (Pellagra) was the primary cause then the Secondary Celiac diagnoses/symptom's will improve with Niacinamide supplementation taken 2 to 3 times a day for 6 months I truly believe. I have emphasized the NIACINAMIDE form on my blog posts/in my threads because it is the non-flushing form of Niacin. see my earlier posterboy blog post for/on how to take Niacinamide FAQ and why you would want too. Or if you prefer you read this thread that talks' about Vitamin's and Mineral's role (or lack thereof role) on/in inflammation in the body. It focuses especially on how Magnesium and B-Vitamins can help depression. **** Again this in not medical advice. One size does not fit all. Some people do respond to supplementation. Some do not. You will only know if you try. . . . and sometimes you might have to try more than once to find the right form/Vitamin you need to take and why I have emphasized the Niacinamide form so you can learn from my mistakes! This is not the end of your journey. . . this is only beginning . . you will still want to supplement with the other (now) missing nutrients like Vitamin D (if you are low) or a good B-complex etc. and the Magnesium Citrate/Glycinate (mentioned in another thread) But I must end for now. I hope to update my blog sometime in the future (about the supplementation question and what helped me) but can't do so now. I would refer you to one of Ennis_Tx many post's on his supplementation program for now or one of Knitty Kitty's threads. They have both done very well with supplementation and are bedrock kind of people who can give you great advice learned from life's experience. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included posterboy by the grace of God,
  23. Is it NCGS or Low stomach acid misdiagnosed Low Stomach Acid and Celiac Disease Dear Gluten Intolerant please consider Low Stomach Acid as a possible Differential Diagnosis as a possible way to achieve remission of your GI symptom's. “Consider what I say; and the Lord give thee understanding in all things” 2 Timothy 2: 7 Low stomach acid has now been linked to a probable cause of damage to the Small Intestine before and/or occurring with a Non-Celiac Gluten Sensitivity (NCGS) or Celiac diagnosis. See this research as reported on celiac.com that discusses the increased risk of/for someone to develop celiac disease after taking PPI’s. https://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html Note how the article starts quoting “Rates of celiac disease and the use of drugs to inhibit the secretion of stomach acid have both increased in recent decades. A research team recently set out to explore the association between anti-secretory medication exposure and subsequent development of celiac disease.” If these medicine are lowering stomach acid what cause effect relationship does/ could this have on Celaic/NCGS diagnosis is what he is postulating. He goes on to say without being very technical (read the whole article for yourself) that “The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship”. If even after a year OFF these medicines your chances of developing Celiac Disease (celiac disease) not to mention even NCGS which is much more prominent surely the researcher is correct in postulating that there is a cause and effect relationship between low stomach acid and NCGS and/or Celiac disease. Surely there is something we can learn here. I now postulate some homework for the reader of this blog post. Do some research for yourself and see if achlorhydia or hypochlorhydia symptoms don’t at least resemble in some manner all of the GI symptoms you have been having. (I note some of the many symptom’s low stomach acid can present with below as referenced from Dr. Myatt’s online article “What’s Burning You” for easy reference (It might not be what you think (my words)) It is important to note here that “some” symptoms does not mean all but many or several. It is called a differential diagnosis. It is an important diagnostic tool in medicine. Think of the tv show “House” where they spend the whole hour/over a week times going through the ‘differential diagnosis’ in short any one symptom can/have many different causes. The trick is how to quickly eliminate possible outcomes as symptoms (many) go up. All is usually never meet because that would make the disease in full outbreak and obvious even to the layman a condition described as “frank” or “classic” Scurvy or Rickets as an example. Sadly too often after 8 to 10+ years of testing after all the differential diagnosis’s are ruled out you are said by process of elimination to have Celiac Disease if you are lucky or maybe NCGS and not some other acronym GI disease as I like to refer to them as a group. GERD,IBS,UC, Chrons etc because if they turned down that street … . you are/could be in/at a dead end for they stop looking at the trigger (gluten) as the cause of your gastric upset/digestive disorder(s). So in summary if 3 or 4 or 5 or 6 of these symptoms overlap “many of’ these symptoms could be Low Stomach Acid related. IF that is the cause/case for you then there is hope! For remission! From Dr. Myatts’ Online article what’s burning you? From Dr. Myatts’ Online article what’s burning you? http://healthbeatnews.com/whats-burning-you/ Diseases Associated with Low Gastric Function Low stomach acid is associated with the following conditions: * Acne rosacea * Addison’s disease * Allergic reactions * Candidiasis (chronic) * Cardiac arrhythmias * Celiac disease * Childhood asthma * Chronic autoimmune hepatitis * Chronic cough * Dermatitis herpeteformis * Diabetes (type I) * Eczema * Gallbladder disease * GERD * Graves disease (hyperthyroid) * Iron deficiency anemia * Laryngitis (chronic) * Lupus erythromatosis * Macular degeneration * Multiple sclerosis * Muscle Cramps * Myasthenia gravis * Mycobacterium avium complex (MAC) * Osteoporosis * Pernicious anemia * Polymyalgia rheumatica * Reynaud’s syndrome * Rheumatoid arthritis * Scleroderma * Sjogren’s syndrome * Stomach cancer * Ulcerative colitis * Vitiligo When low in stomach acid we become low in essential nutrients Quoting from Dr. Myatts “what’s burning you” online article “Our bodies need 60 or so essential nutrients. “Essential” means that the body MUST have this nutrient or death will eventually ensue, and the nutrient must be obtained from diet because the body cannot manufacture it. Many of these essential nutrients require stomach acid for their assimilation. When stomach acid production declines, nutrient deficiencies begin. Calcium, for example, requires vigorous stomach acid in order to be assimilated. Interestingly, the rate of hip replacement surgery is much higher in people who routinely use antacids and acid-blocking drugs. We know that people who have “acid stomach” were already having trouble assimilating calcium from food and nutritional supplements due to lack of normal stomach acid production. When these symptoms are “band-aided” with drugs which decrease stomach acid even more, calcium assimilation can come to a near-halt. The result? Weak bones, hip fractures and joint complaints resulting in major surgery. Jonathan Wright, M.D., well-known and respected holistic physician, states that “Although research in this area is entirely inadequate, its been my linical observation that calcium, magnesium, iron, zinc, copper, chromium, selenium, manganese, vanadium, molybdenum, cobalt, and many other micro-trace elements are not nearly as well-absorbed in those with poor stomach acid as they are in those whose acid levels are normal. When we test plasma amino acid levels for those with poor stomach function, we frequently find lower than usual levels of one or more of the eight essential amino acids: isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, and valine. Often there are functional insufficiencies of folic acid and/or vitamin B12.” Remember, these are essential nutrients. Deficiencies of any single one of them can cause serious health problems over time. Weak bones, diminish immune function, failing memory, loss of eyesight and many other “diseases of aging” are often the result of decreased stomach function.” It is me again reader. So low stomach acid is the triggering agent (often) for low nutrients. Make too much sense! Now don’t take Vitamin’s for this condition where low Vitamins/Minerals are known to be low in patients who have this condition because . . . . (if you do you won’t need to keep coming back to the doctor) I can almost hear the doctor say now. Of course he/she doesn’t say that . . . just that the “average person” doesn’t need to take Vitamins. Well I hate to break it too you . . . . but if you are having GI problems and reading this blog post on celac.com then you are not the “average” person. You my friend or a sufferer or a friend of a sufferer still looking for answers. If that is you then consider taking either powdered stomach acid – Betaine HCL or taking Niacinamide to help you reset your stress clock. A Canadian researcher wrote about this connection 15+ years ago but still most doctors’ don’t understand this connection between about how “Niacin treats digestive Problems” Here is the full link so you can research it more yourself. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml And you might not after a first reading. I didn’t believe it myself for over a year . . . but every time I thought about it – it (Low Stomach Acid) made/makes the most sense to me. **** Note: research this yourself. Here is a link about how to take Betaine HCL (powdered stomach) for maximum effectiveness. http://20somethingallergies.com/how-much-hcl-do-i-take-learn-to-test-for-your-correct-dose/ Don’t take my blog post as medical advice. It is only what I did . . . it might not work for you but I think it is worth a try especially if you are not now taking an acid reducer. (see notes below about why this might) be more difficult if you are already taking an acid reducer . . . because the rebound wall (see chris kresser link) keeps us locked in . . . sometimes for years. Since I was not taking acid reducers at the time I took Betaine HCL my stomach problems improved and I am sharing this now in the hopes it might help yours too! Now back to (really) LOW stomach acid being diagnosed as HIGH stomach acid these days. How can we know if it truly high or low? You’ve heard the phrase timing is everything well it is here too! Timeline is important in any diagnosis. IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor aka acid reducer’s for heartburn/GERD (medical name for heartburn) then eating food (carbs, greasy things) wouldn’t bother you. The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid. BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn. Leading in time to Non-Celiac disease first and with enough injury (and time) to Marsh lesions qualifying you for diagnosis as a Celiac candidate / patient. See above link between/about PPI’s in the year preceding a Celiac diagnosis. If you (can) be that patient and weight the xx number of years for all this damage to occur, there is a better way it is called digestion! A virtuous cycle can replace the vicious cycle you are now in – it is caused digestion. Digest your food with healthy stomach acid and your body will thank you for it with the God given burp. A healthy child burps (at 6 months of age normally) and a healthy adult should too and you will again after taken Niacinamide 3/day for 6 months or this is not the right diagnosis. *********Note this is not medical advice only my experience with Niacinamide and my many years researching this topic as a fellow sufferer. Let me make these disclaimer(s). If you are a) experiencing heartburn that causing vomiting (with unintended weight loss) you may have a special case of heartburn that feels like heartburn (on steroids) that is really Bile Reflux and taking Stomach is not something you should do without medical advice and supervision. See this NYtimes article that discusses the many complications often seen with Bile Reflux patients and why it is treated as Heartburn often and why Bile Reflux is especially hard to recover from. http://www.nytimes.com/2009/06/30/health/30brod.html you are already taking an acid reducer then the chance you will get better (off of acid reducers completely) is only 50/50 on your first try but going low CARB can help your transition. Otherwise most people will get better when taking BetaineHCL for gastric support and Niacinamide to help them/you reset your digestive processes. See this online article about how Jo Lynne Shane got off Nexium for good. http://www.jolynneshane.com/how-i-got-off-nexium-for-good.html and her Epilogue http://www.jolynneshane.com/epilogue.html You will see she still struggles some but is much better when she let her natural digestive juices do their job. I call it the “Natural Order of Things”. See this article about the digestion process being a North South Affair from the bodywisdom website http://bodywisdomnutrition.com/digestion-a-north-to-south-process/ Taking it (Niacinamide) (or any B-Vitamin) should be taken 2 to 3/day (too keep up serum levels) for 3 to 4 months (the time you can store B-Vitamins) in the liver mostly. Once you have a distinctive BURP that displaces the bloating and sense of “I am going to explode” if I eat another bite (though you haven’t eaten half your meal) then normal digestion is occurring again. If you stool did not sink before this process (of taking Niacinamide begun) and burping became your “new normal” then it (your stool) will begin to sink too! Burping without bloating is the “Natural Order” of good digestion. Don’t stop this process of taking B-Vitamins as Niacimaide or Slo-Niacin 2/day for at least 4 months then you should see most of your GI symptom’s go into remission. (I did not say "cure" but remission from your cross contamination's (flares/symptom's etc.) might be possible. Because our defenses are now strong enough to cut up proteins before they reach our small intestine (where most of the damage is done). Think of a castle with a moat around it (stomach acid is designed to protect us) when it is low (the moat doesn’t protect us) and when the moat is dry the castle becomes a ruin!!! So do proteins (lactose (casein), gluten, soy, seafood etc.) to our small intestines (they become ruined) when our stomach acid (moat) is low or worse dry! I repeat again Timeline is important in any diagnosis. All heartburn is not equal. IF your stomach acid is truly high then it WILL occur between meals when there is no food to tamp down the fire (occurring in your stomach) not your esophagus. The excess pressure from fermented carbs push open the trap door allowing the low acid you have to burn the lining of your uncoated esophagus. See also this online article by Chris Kresser to study this more about why/how this could be a case of medical misdiagnosis in more detail https://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd/ This is part of a 3 part series that I think you will find very informative. This (low stomach acid) is a vicious cycle. STRONG stomach acid makes it a virtuous circle/cycle. Now food benefits you because low acid not only causes heartburn it limits your body’s absorptive ability by limiting its ability to cut up your food into digestible peptides and amino acids which are no longer harmful to your Small Intestine but helpful to your overall health because nutrients can now be absorbed because the food particles are now small enough to not cause harm to your villi. I hope this is helpful and it helps you the way it helped me. Maybe it will help you in a similar manner. I write this only as a guidepost on your way. May you find your way back to digestive peace! The “Natural Order” of things! Praise bee to God! It is not a long way if you know the way . . . . from someone who has found his way back God being his help! There are more things I could say . . . but this post is getting kind of long but you get the gest. I noticed someone else on the celiac.com noticed the same improvement when they treated their low stomach acid and thought it was time a blog post talked about it. It is so much easier to consume all this information in one setting instead of hunting and peeking through several thread posts. Search for the posterboy on celiac.com and you will find it is my focus (how low stomach acid is misdiagnosed) and how Niacinamide helped me to restore its “Natural Order” in the digestive process because it helped me! Here is the link to the Prousky’s abstract. 15+ years is a long time for people to continue to suffer but if the research it right then Niacinamide might help you too! http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm Let’s hope it is not another 15 years before doctor’s and people realize low stomach acid can explain many of the same symptom’s an IBS, NCGS or even a Celiac patient might experience given a long enough time for these conditions to develop from too low a stomach acid to protect our Small Intestine. See link at start of this blog post posted here again for convenience. https://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html And it is worth noting about the time Celiac disease started (began to be more prevalent) / to increase in the population Acid reducer’s became more and more popular. *** Some plot the increase in time to Roundup usage but I am not buying it. PPI’s increase seam more plausible to me based on the relatively new research (less than 5 years old) is pretty current by research standards and the near linear response to increased first H2 stomach acid reducer’s then PPI’s in the population at large. *****Note: after I finished writing this blog post new research that in my mind confirms this connection was reported on celiac.com today that notes the link between gastric pH and impaired nutrient absorption. This very topic as I was getting ready to publish my post about low stomach acid possibly being diagnosed as Celiac disease on my posterboy blog mentions how a Celiac patient’s absorption can be impaired by gastric pH. https://www.celiac.com/articles/24738/1/Can-Celiac-Disease-Impair-Drug-Therapy-in-Patients/Page1.html Where they (researchers) say/ask discussing Celiac Disease and whether it (celiac disease) can impair drug therapy in patients. Note the opening paragraph discussing this topic quoting “Celiac disease is associated with numerous chronic conditions, such as anemia and malabsorption of some critical vitamins. Changes in the gastrointestinal tract, rates of gastric emptying, and gastric pH are responsible for impaired vitamin and mineral absorption." i.e., low gastric pH can effect absorption. It stands to make reasonable sense to me they are related conditions and one is being diagnosed for the other often or at least one is being confused as the other and treating one (raising your stomach pH) might treat the other since many of the symptoms’ are the same. *** this/these opinion(s) are my own and do not reflect an endorsement by celiac.com of these ideas, comments, thoughts or opinions. I hope this helps! You the way it did me! Good luck on your continued journey, Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen. 2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things. Posterboy by the Grace of God,
  24. Why and How Pellagra is (often) Confused with Celiac Disease and/or Digestive Problems ; The Science of Pellagra a Hidden Epidemic in the 21st Century presenting/revealing as Celiac Disease. When I was gluten intolerant following a Gluten Free diet religiously and newly diagnosed as a Celiac I began studying to see if there was a “cure” for this disease. About 3 years into my study of Celiac disease I begin to match up/cross reference symptoms of Low Stomach acid – Hypochlorhydria. It seemed obvious my symptoms were the same. See the link by Dr. Dana Myatt “What’s Burning You” that explains why this is so. https://www.drmyattswellnessclub.com/WhatsBurningYou.htm It was on that day the seed was planted that if I could begin to digest my food again then gluten would be cut up into harmless peptides. It would take another year before I had the courage of my conviction to actually try gluten again knowing the five alarm bathroom visit I would set off if I was wrong … but the research was clear the doctor’s had the wrong disease. I had become/was low in Stomach Acid. This post/thread on Celiac.com talks about the effects of leaky gut when your stomach acid is not strong enough to digest proteins – it is known as hydrolysis – to cleave by water and it explains why a healthy baby burps at 6 months of age and a healthy adult should too. https://www.celiac.com/forums/topic/117026-leaky-gut-intestinal-barrier-impairment-help/#comment-969684 (I didn’t know this at the time) but Celiac.com reported on this finding that Proton Pump Inhibitors can contribute to a Celiac Diagnosis. See this link https://www.celiac.com/articles/23432/1/Do-Proton-Pump-Inhibitors-Increase-Risk-of-Celiac-Disease/Page1.html Where the researchers concluded “Patients prescribed both proton pump inhibitors and histamine-2 receptor antagonists had an even higher risk for celiac disease .. . The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the Celiac disease diagnosis suggests a causal relationship.” So this confirmed my hunch and over 3+ years of research. So with faith in myself and God that He had led me to this wisdom (2 Timothy 2:7) I began my journey back to peace with Gluten and health I had not known in over three decades. And after a year of being able to put my cross contamination issues in remission (no accident poisoning’s when dining out) – defeating my mortal enemy gluten I began to write about my opus /journey back to peace with gluten. “I Know World Peace is Easier”. Someone who I was explaining this too (or trying to explain this to) asked me but “why does this happen” and I didn’t have an answer for them. So that set me off again. If I could figure out by God’s Grace why this was happening then imagine all the suffering that could be avoided by people? Well after much study and the Grace of God – I did. STRESS! What happens when we are stressed – we burn energy and a lot of it? Fight or Flight right? All this fighting takes energy and lots of it to survive the body takes our energy reserves from other parts’ of the body when it does this too much or too often over a 3 to 4 month period our body becomes STRESSED out. This is the same amount of time our body can store B Vitamins usually in the Liver. Is there anything we can do to help with this STRESS we are experiencing or is it hopeless. No it/we are not helpless or hopeless if we will supplement (or feed our cravings) of the missing ingredient/nutrient then we can meet our need and remission from too much stress is obtained. Hence the Niacinamide Challenge I have mentioned elsewhere in this blog. Prousky talks about this in his seminal work “Is Vitamin B3 Dependency a Causal Factor in the Development of Hypochlorhydria and Achlorydia” linked here http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml where he theorizes (note this is research 15+years old) and still we don’t know/understand this connection or it is not widely talked about enough that Niacinamide supplementation can help digestive problems and that quoting prousky “The primary somatic complaints of individuals with vitamin B3 dependency are be gastrointestinal disturbances with hypochlorhydria presenting as one of the early clinical signs of the vitamin dependency. The only way to confirm a clinical suspicion of a vitamin B3 dependency is to provide optimal doses of the vitamin, and see if the clinical problems improve or resolve.” Or be tested for Pellagra. Which the Doctor’ are not looking for today. Like the doctor’s did not look for Celiac disease 15 or 20 years ago neither is Pellagra looked for today because they don’t know to look for it anymore. See this blog post by Dr. Heaney of Creighton University that talks about why this is so today. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ where he (Dr. Heaney) says correctly that “In the United States, at least, pellagra is a disease of the past – fortunately – and it is doubtful today that most health professionals would recognize it if a case happened to come to their attention.” And that is unfortunate for GI patients of all stripes and kinds (IBS, Heartburn aka GERD, Non-Celiac Gluten Sensitivity etc.) because doctor’s today don’t know to look for Pellagra anymore as a GI disease. How do we know this? We can’t for sure unless we are willing to take the missing nutrient according to Prousky “a vitamin B3 deficiency occurs when the intake of the vitamin is below a known minimal amount that guards against pellagra. A vitamin B3 dependency occurs when there is an increased metabolic need for the vitamin requiring treatment with megadose amounts”. Or have our doctor’s test us for a Niacin deficiency. A deficiency is why we enrich/fortify are bread with Niacin our milk with Vitamin D and our salt with Iodine. A dependency is when are bodies don’t function properly due to high stress levels requiring high or increased metabolic need as quoted by Prousky above. What does this look like in human beings? If one is critically low in Niacin the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up. As cited in the International Journal of Celia Disease http://pubs.sciepub.com/ijcd/3/1/5/ from the article “Two Exceptional Complications Revealing Celiac Pellagra and Ischemic Cardiomyopathy … “pellagra is essentially affecting tissues with a high rate of cell turnover, such as the digestive tract and the skin, and tissues with high energy needs, such as the brain”. Now if the symptoms’ are similar it is easy to confuse one disease for the other and if not well understood they might be considered “exceptional” or, i.e., not well understood. How do we know this? The same Journal of Celiac in another issue entitled Celiac Disease Intestinal Heart and Skin Interconnections http://pubs.sciepub.com/ijcd/3/1/6/ when listing common aspects of both diseases’ says and I quote “The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease.” Not only did/does the Journal of Celiac cite common symptom’s 58 percent of the time in Celiac and Pellagra but they also cite that Pellagra has been described in a Celiac Disease diagnosis. I would argue that it should be the other way around if the majority (58 Percent) of the time Pellagra symptoms are described in a Celiac diagnosis it stands to reason that medical science is identifying the wrong disease. Quoting the Celiac Posterboy “Pathology presumably would qualify the Pellagra patient as a Celiac Patient if the Pellgarin was first diagnosed as a Celiac first as often is the case TODAY!” I ask if you have the wrong disease would you get better Or Is Non-Celiac Gluten Sensitivity and/or Celiac Disease really Pellagra in disguise in the 21st Century? Suffering by another name hurts just as much???? Does it not? Pellagra being confused for Celiac disease in the Majority of those being diagnosed as Celiacs’ today -- hurt’s as much Does it not . .. and probably worse because then/now you have ruled out a valid differential diagnosis. Why is this? Or how is this possible? The International Journal of Celiac Disease muses on this point too? when discussing the “exceptional” (not well understood) reason why Pellagra shows up in a Celiac Diagnosis. They say “Little progress has been made in our knowledge of pellagra … since Goldberger discovered that nicotinamide was a preventive factor in 1926” of Pellagra. Continuing the citation “Proof of this is that there have been no changes’ in treatment or diagnostic criteria in the last 90 years” for Pellagra. As the International Journal of Celiac Disease summarizes this case of “Exceptional Complications Revealing Celiac Disease and Pellagra “illustrates … rare (I would say common) complication revealing celiac disease”. Because it is not YET well understood that 58 percent of Celiac patients are Co-Morbid with Pellagra. Common enough I believe to declare Pellagra as the Parent disease and the subsequent Celiac patient the child meaning every one (95 plus percent probably) of those diagnosed with Celiac disease has symptoms derived from Pellagra though it is not now commonly understood in the medical community. If we follow most normal paths’ for adoption it will take another 15 or 20 years (a generation) for the medical community to accept Pellagra as the proper diagnosis. Don’t suffer in the meantime! If the International Journal of Celiac Disease is right and Pellagra is Co-Morbid revealing as Celiac disease the majority of the time? Then take the “Niacinamide Challenge” for yourself and see if you don’t begin burping in 6 months or less depending on how many times a day you take it and potentially put your IBS/GERD/NCGS and possibly ??? dare I say it Celiac in remission along with your Co-Morbid Pellagra symptoms aka (the 3 D’s) 75+ years ago if one is being diagnosed as the other. It will take one more test to make a valid determination or else we can’t know for sure which disease we really have since they are eerily similar in their clinical presentations. The Mdguidelines website outlines why this is so see their link http://www.mdguidelines.com/pellagra Where they (Mdguidlines) say quoting “The diagnosis of pellagra is straightforward when the classic rash is present but may be (more/my word) elusive if there are only gastrointestinal and/or neurological manifestations.” The LTO website gives an good overview of the B-Complex test than be performed to confirm if Pellagra is presenting as Celiac disease. See this link https://labtestsonline.org/understanding/analytes/b-vitamins/tab/test As I have said before in this blog. A healthy child burps at 6 months of age and you can too in six months by taking the Niacinamide putting your Co-Morbid Pellagra (digestive) symptom’s into remission if indeed we can believe the International Journal of Celiac Disease and your Celiac Disease is presenting as Pellagra the majority of the time. See this article feature on Celiac.com that explains in more details why this is so. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html Keep in mind the more times a day you take it (Niacinamide) the quicker the desired effect. You will begin burping and your stool will sink if does not already. See my other blog post where I say I was a Pellagra patient diagnosed as a Celiac patient to learn more about how to take Niacinamide properly and what signs too look for when it is working and the natural order of things has been restored and you are now digesting your food again. Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen. This will not work if are already taking a PPI (proton pump inhibitor) like Prilosec, Nexium or one of their generics or other acid reducers for hearburn/GERD but if you are only taking antacid’s like Rolaids or Tums then burping will occur where it is most likely not occurring now. You will need to take stomach acid to get you over rebound wall that comes on when you stop taking your acid reducers. See prousky link about how to do this or check with Dr. Google where there are websites that explain how to do this. But new research by Washington University strongly suggest that you need to work with your doctor to get off you PPI’s and do it as quickly as possible where they say the “ Popular heartburn drugs (PPIs are) linked to gradual yet 'silent' kidney damage Most patients don't experience acute kidney problems beforehand” https://www.sciencedaily.com/releases/2017/02/170222082252.htm This is only the latest bad news for Proton Pump Inhibitors. So if you are taking them for gastric support they may be doing more harm than good in the long run. But I prefer to talk about Vitamins because they are safer to take and are at the root cause for most diseases and yes Pellagra being diagnosed as Celiac’s today. What have you got to loose there is better than a 50/50 chance your doctor will find Pellagra is the correct disease or at least you will eliminate the contributing concomitant Pellagra symptom’s greatly controlling your Pellagra flare up’s (the 3 D’s – dementia(s), digestive issue(s) dermatitis issue(s)) being confused/revealing as your Celiac disease by mistake. If you have never heard of Pellagra you are not alone. Many doctors have not either and that is why they don’t find it. You only find what you are looking for! Perhaps with this education/awareness you now have the doctor’s/patients will be more aware now that the presenting symptoms of Celiac disease and Pellagra are eerily familiar and one disease is being confused for the other. Or at least they were in my case. As I am fond of saying “To Educate is to Truly Free”. YOU don’t have to have all 3 D’s to have Pellagra any one of the D’s like C and D is enough to confirm Pellagra in the absence of Dermatitis issues etc. See md guideline quote above. Quoted again here for easy reference Where they (Mdguidlines) say quoting “The diagnosis of pellagra is straightforward when the classic rash is present but may be (more/my word) elusive if there are only gastrointestinal and/or neurological manifestations.” I couldn’t agree more. Your path to the knowledge of a Celiac diagnosis as we know is a long one for most people. It doesn’t have to be a long path back if you know the way. Knowledge of Pellagra is fairly poor (elusive) today the way Celiac disease was 15 or 20 years but the path to a valid/correct diagnosis of Pellagra doesn’t have to be a long one if you will have your doctor test you for It (Pellagra) to see if your Pellagra is like the 58% of Celiac’s according to the Journal of Celiac Disease is masking/presenting as Celiac disease today. Let’s take the mask of Celiac disease off and reveal the true diagnosis if you will and get tested for a Niacin deficiency proving that Pellagra is contributing to your poor patient experience i.e. super sensitivity etc. The gluten free works website covers this topic well. A niacin deficiency in Celiac’s. https://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ Where they quote old research (again this is not new information) but the awareness is low that a “niacin deficiency itself sensitizes the intestinal mucosa of rats to gluten in wheat, barley, rye, oats and corn and induces susceptibility to gluten toxicity by means of cellular dysfunction.3” This research is 30+ years old. How much longer will we suffer in ignorance of this fact? They say and I couldn’t agree more! “Human research needs to investigate this effect of niacin deficiency in human celiac disease” or at least it is high time that Celiac’s are also tested to see if co-morbid Pellagra is contributing to their Celiac Diagnosis. And Prousky did 15+ years ago (did human research on Niacin and digestive issues) but people still suffer today because it still not well known (understood) today that Pellagra a Niacin deficiency treats digestive problems. This blog post is about awareness of this fact that medical doctor’s today are not looking for Pellagra in Celiac’s and therefore people continue to suffer because of it. Good luck to those who are still on our journey who come across this blog post and find it helpful. I hope it helps you on your journey to find at least one was able to find (their way back)/help himself /herself/themselves of their GI problems by taking a Vitamin for a rarely diagnosed disease today -- Pellagra but is eerily similar to the way Celiac disease presents/is diagnosed today. If you still have questions after reading this blog post about my journey of how I learned Pellagra is being diagnosed as Celiac Disease today then visit the website in my profile to read more about why doctors are ignorant of this fact today but there is only so much you can put in one blog post. But I hope this is enough to pique your curiosity. Or search for the posterboy on celiac.com to read all my posts or comment threads about why Pellagra is being diagnosed as Celiac Disease today. Knitty Kitty also comments a lot about how Niacin helped her DH symptoms. It is my hope it will help you too to know that there is an alternative diagnosis. It is said ignorance is bliss. Well in this case it is dangerous. If you had cancer wouldn’t you want to know . . . of course you would! If you have Pellagra the ignorance of this fact can kill as surely as Cancer. The 4th D of Pellagra is death. So please have yourself tested to see if Pellagra is contributing to your Celiac disease symptom’s is my advice to you and maybe just maybe you too like me will have a good/favorable response and your cross contamination issues will go into remission. Praise bee to God! To those who will hear and listen! I am just trying to help those who are still suffering. I am that boy walking along the shore throwing starfish back or trying too! The Starfish Story Original Story by: Loren Eisley “One day a man was walking along the beach when he noticed a boy picking something up and gently throwing it into the ocean (world wide web) … Son, the man said, don’t you realize there are miles and miles of beach and hundreds of starfish? You can’t make a difference! After listening politely, the boy bent down, picked up another starfish, and threw it back into the surf. Then, smiling at the man, he said I made a difference for that one.” . . . I hope that one is you reader -- fellow sufferer from a former Pellagra sufferer diagnosed as Celiac disease. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.” 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the Grace of God,
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